any of you have this condition? well as lymphocytic colitis also have nodular lymphoid hyperplasia in the ileum.
Tomorrow I receive the results of the gastroscopy.
everything that I have seen so far, according to my doctor all I have is nonspecific
thanks!!
Nodular lymphoid hyperplasia
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hola Bea,
In this country, during a colonoscopy, GI doctors do not always examine the intestines past the cecum. Often, the scope tube is not long enough to go any further. Therefore, they do not always examine the terminal ileum. At least, during my colonoscopy, the cecum was not even entered, by the scope. Because of that, it is possible that some of us may also have nodular lymphoid hyperplasia, but it was never detected and diagnosed.
In most children, however, the scope tube length allows the terminal ileum to be examined, and back about 10 years ago, a British doctor named Wakefield, made the headlines, when he proclaimed that he had discovered that autistic children, who had received the MMR vaccine, (mumps, measles, rubella), had a condition known as nodular lymphoid hyperplasia. He claimed the condition was due to a virus caused by the vaccine, and called for the vaccine to be withdrawn from the market. This claim was later disputed by a researcher who discovered that Wakefield was planning to market his own vaccine, (or so the story goes).
Here is a picture of what it looks like through a scope:
http://briandeer.com/wakefield/ileal-hyperplasia.htm
Here is a discussion of how the details unfolded, after the researcher, Brian Deer, published a newspaper article "exposing" the "scandal":
http://briandeer.com/mmr-lancet.htm
Here is a transcript of a lecture given by Dr. Wakefield, in which he makes his claims, (that were apparently later refuted).
http://www.emergingworlds.com/ch_articl ... Autism.htm
Anyway, the point is, the condition known as nodular lymphoid hyperplasia, is apparently somewhat common during childhood, and I believe that it is generally considered to be a benign condition, though there have been cases where it has caused bleeding, and there have been a few cases in adults, where the hyperplasia developed to the point where it became obstructive, and necessitated a resection. Maybe Polly can shed some light on this, because I know very little about it, so I could be mistaken about it being common, (and generally benign), during childhood.
Please let us know the results of the gastroscopy.
Tex
In this country, during a colonoscopy, GI doctors do not always examine the intestines past the cecum. Often, the scope tube is not long enough to go any further. Therefore, they do not always examine the terminal ileum. At least, during my colonoscopy, the cecum was not even entered, by the scope. Because of that, it is possible that some of us may also have nodular lymphoid hyperplasia, but it was never detected and diagnosed.
In most children, however, the scope tube length allows the terminal ileum to be examined, and back about 10 years ago, a British doctor named Wakefield, made the headlines, when he proclaimed that he had discovered that autistic children, who had received the MMR vaccine, (mumps, measles, rubella), had a condition known as nodular lymphoid hyperplasia. He claimed the condition was due to a virus caused by the vaccine, and called for the vaccine to be withdrawn from the market. This claim was later disputed by a researcher who discovered that Wakefield was planning to market his own vaccine, (or so the story goes).
Here is a picture of what it looks like through a scope:
http://briandeer.com/wakefield/ileal-hyperplasia.htm
Here is a discussion of how the details unfolded, after the researcher, Brian Deer, published a newspaper article "exposing" the "scandal":
http://briandeer.com/mmr-lancet.htm
Here is a transcript of a lecture given by Dr. Wakefield, in which he makes his claims, (that were apparently later refuted).
http://www.emergingworlds.com/ch_articl ... Autism.htm
Anyway, the point is, the condition known as nodular lymphoid hyperplasia, is apparently somewhat common during childhood, and I believe that it is generally considered to be a benign condition, though there have been cases where it has caused bleeding, and there have been a few cases in adults, where the hyperplasia developed to the point where it became obstructive, and necessitated a resection. Maybe Polly can shed some light on this, because I know very little about it, so I could be mistaken about it being common, (and generally benign), during childhood.
Please let us know the results of the gastroscopy.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
thanks tex, the truth is that I'm tired of all this, it is very hard and no longer have the strength. Every day is worse than the previous, I still gluten-free diet i don´t know whay I have inflammation in my digestive system, and the worst is that doctors not know.
my doctor said me that i have inflamamation inespecific, but i think that these inflamation have a cause, but which is this cause????..gluten?? so why I'm not good with the diet?
if Polly explain me, i will be very happy.
my doctor said me that i have inflamamation inespecific, but i think that these inflamation have a cause, but which is this cause????..gluten?? so why I'm not good with the diet?
if Polly explain me, i will be very happy.
Bea,
I'm sorry that this disease is so difficult to live with. Yes, it is very exhausting, because it takes away all of our energy, just to fight it every day.
Doctors do not understand this disease, and they do not believe that the inflammation can be caused by some of the food that we eat, but certain foods do cause the inflammation. We know that gluten, dairy products, and soy causes the inflammation, and sometimes other foods cause problems for us. We know this because many of us no longer have any symptoms, as long as we avoid those foods.
It takes time for the intestines to heal. Most of us did not see improvement until at least 6 months on the diet. For some of us, it took a year, before the diarrhea stopped. If you take Entocort, along with the diet, you might see improvement much sooner - possibly in a few weeks. Microscopic colitis is very difficult to control. We have to be very careful about what we eat, and it takes time for the intestines to heal.
I hope you feel better, soon.
Tex
I'm sorry that this disease is so difficult to live with. Yes, it is very exhausting, because it takes away all of our energy, just to fight it every day.
Doctors do not understand this disease, and they do not believe that the inflammation can be caused by some of the food that we eat, but certain foods do cause the inflammation. We know that gluten, dairy products, and soy causes the inflammation, and sometimes other foods cause problems for us. We know this because many of us no longer have any symptoms, as long as we avoid those foods.
It takes time for the intestines to heal. Most of us did not see improvement until at least 6 months on the diet. For some of us, it took a year, before the diarrhea stopped. If you take Entocort, along with the diet, you might see improvement much sooner - possibly in a few weeks. Microscopic colitis is very difficult to control. We have to be very careful about what we eat, and it takes time for the intestines to heal.
I hope you feel better, soon.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Bea,
I think all of our doctors say the same thing - that they don't know why. My second GI told me that I "have the gene" for MC and that is why I have it. I really don't know what that meant because he didn't believe that I was celiac. The bottom line, in my opinion, is that they really don't know - there may be many different reasons different for each person. This is just something they don't understand yet. You may be intolerant to more than just gluten and maybe several things. I hope not. I want you to know that you are not alone. We have this too. Some have been helped by medicine and some by diet and some by a combination of the two. Some, like me, are still struggling with both medicine and diet. You are right that it is very frustrating and exhausting. I'm thinking about you and hoping you will find what helps you soon!
Pat
I think all of our doctors say the same thing - that they don't know why. My second GI told me that I "have the gene" for MC and that is why I have it. I really don't know what that meant because he didn't believe that I was celiac. The bottom line, in my opinion, is that they really don't know - there may be many different reasons different for each person. This is just something they don't understand yet. You may be intolerant to more than just gluten and maybe several things. I hope not. I want you to know that you are not alone. We have this too. Some have been helped by medicine and some by diet and some by a combination of the two. Some, like me, are still struggling with both medicine and diet. You are right that it is very frustrating and exhausting. I'm thinking about you and hoping you will find what helps you soon!
Pat
That means that you have damage to the mucosa of the duodenum, (upper third of the small intestine), but it is only located in one or two areas of the duodenum. The damage includes villus atrophy, (the same kind of damage caused by celiac disease), but it is not extensive enough in coverage, to be called celiac disease. Also, with mild atrophic duodenitis, the jejunal mucosa is usually not affected, the way it would be with celiac disease, but this may not have been checked, since it wasn't mentioned. By "no unspecific", I assume that he means that the cause is non-specific, (In other words, he does not know what caused the problem).1. mild atrophic duodenitis no unspecific
This type of damage can be caused by an autoimmune reaction, (gluten-sensitive enteropathy), or it could also be caused by an H. pylori infection, but since no H. pylori infection was found, it is probably due to an autoimmune reaction, and it is associated with your microscopic colitis, and with gluten sensitivity.
Chronic atrophic gastritis refers to a chronic inflammation of the stomach, with damage, (atrophy), of the mucosa. Intestinal metaplasia is the transformation, (metaplasia), of epithelium, of the stomach, to a type that resemblances the epithelium of the intestine, (but your stomach does not have any intestinal metaplasia). The term "intestinal metaplasia" is sometimes used to describe Barrett's esophagus, but in this case, I'm sure your doctor is referring to the stomach, not the esophagus.
2. chronic atrophic gastritis without intestinal metaplasia, not active.
Your doctor did not find any evidence of an H. pylori infection.3. no helicobacter
Remember that I am not a doctor, so I cannot give you any medical advice, but all of these test results suggest that you are sensitive to gluten, (and probably other foods), and you are probably in the early stages of celiac disease development. I hope this information is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
thaks tex , yo are very beautiful person. my doctor said me that all is perfect! and maybe my problem is stress. i don´t think so. He also said me that maybe i´m celiac, but the disease had not caused changes in my intestine.
now I.m wait the results to food intolerance test through a blood test.
could gastritis
thank you very much.
now I.m wait the results to food intolerance test through a blood test.
could gastritis
thank you very much.
At least your doctor recognizes that you might be developing celiac disease. The changes to your intestine so far, are fairly minor, and as long as you do not eat any more gluten, that damage should heal.
Please let us know the results of the food intolerance test, when you receive them.
You are very welcome,
Tex
Please let us know the results of the food intolerance test, when you receive them.
You are very welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
--and things will get better---sometimes U have to be the doctor too-
hello everyone.
I already have the test results of food (blood test) according to the test:
Food not allowed: coke, chocolate, ( vainilla, i don´t know how is translate in inglish)
Not Recommended foods: wheat, clams, curry, cinnamon, mustard and a few more that I do not usually eat.
But curiously not gluten
I am a little worried, because although my doctor told me that I do not worry I have read on the internet that atrophic gastritis (which I suffer) can evolve into cancer. someone knows something? I am very scared.
do you explain the difference between anemia and other anemias?
thank you very much, kisses
I already have the test results of food (blood test) according to the test:
Food not allowed: coke, chocolate, ( vainilla, i don´t know how is translate in inglish)
Not Recommended foods: wheat, clams, curry, cinnamon, mustard and a few more that I do not usually eat.
But curiously not gluten
I am a little worried, because although my doctor told me that I do not worry I have read on the internet that atrophic gastritis (which I suffer) can evolve into cancer. someone knows something? I am very scared.
do you explain the difference between anemia and other anemias?
thank you very much, kisses
Hi Bea,
Well, the test is certainly correct about the wheat, and it might be correct about the other items, though I'm not sure why pure vanilla would be a problem. Years ago, "experts" thought that the alcohol that is used to extract vanilla, during the manufacturing process, contained gluten, because it might be distilled from wheat, and they thought that because of that, vanilla contained gluten. It does not, however, because alcohol does not contain gluten, if it is properly distilled, and provided that it is not blended back with anything else that contains gluten, after the distillation process.
Please do not worry about the risk of atrophic gastritis causing cancer. The risk of stomach cancer depends on the level of severity of the atrophic gastritis, and it increases with age, and it is dependent upon ethnic background. Certain Asian countries have a much higher risk, (at all ages), when compared with other ethnic groups. At your age, and considering where you are living, (in Spain), your risk is very low. 30 or 40 years from now, (IOW, when you are in your late 50s, 60s, or 70s), the risk will be higher, if you still have the atrophic gastritis, then, but it will still not be as high as it is in certain Asian countries. If you cut gluten out of your diet, and keep it out, and don't have any H. pylori infections, then after a while, the atrophy should disappear, as your digestive tract heals.
Do you mean pernicious anemia? A glycoprotein known as intrinsic factor is normally produced in the gastric parietal cells, (in the stomach), but if the parietal cells of your stomach cannot produce enough intrinsic factor, then when your chime, (partially digested food), gets to the terminal ileum, (where it is normally absorbed into the bloodstream), the epithelia of the ileum cannot absorb vitamin B-12, because intrinsic factor is a required ingredient, (the B-12 normally binds to the intrinsic factor, and the complex that is formed, is allowed to pass through the ileal mucosa, in order to enter the bloodstream). IOW, the B-12 cannot be absorbed without the intrinsic factor. If you have damage to your gastric parietal cells, (because of the atrophic gastritis), then you are probably unable to produce enough intrinsic factor.
If your stomach does not heal on it's own, after you have been on the GF diet for at least half a year or more, then IMO, you should be treated for H. pylori, because something is definitely causing your gastritis, whether your doctors are able to find it or not. IOW, the gastritis is probably either caused by gluten damage, or by H. pylori. It is definitely caused by something, and whatever it is, the damage it is doing is also causing your pernicious anemia.
You are very welcome.
Love,
Tex
Well, the test is certainly correct about the wheat, and it might be correct about the other items, though I'm not sure why pure vanilla would be a problem. Years ago, "experts" thought that the alcohol that is used to extract vanilla, during the manufacturing process, contained gluten, because it might be distilled from wheat, and they thought that because of that, vanilla contained gluten. It does not, however, because alcohol does not contain gluten, if it is properly distilled, and provided that it is not blended back with anything else that contains gluten, after the distillation process.
Please do not worry about the risk of atrophic gastritis causing cancer. The risk of stomach cancer depends on the level of severity of the atrophic gastritis, and it increases with age, and it is dependent upon ethnic background. Certain Asian countries have a much higher risk, (at all ages), when compared with other ethnic groups. At your age, and considering where you are living, (in Spain), your risk is very low. 30 or 40 years from now, (IOW, when you are in your late 50s, 60s, or 70s), the risk will be higher, if you still have the atrophic gastritis, then, but it will still not be as high as it is in certain Asian countries. If you cut gluten out of your diet, and keep it out, and don't have any H. pylori infections, then after a while, the atrophy should disappear, as your digestive tract heals.
Do you mean pernicious anemia? A glycoprotein known as intrinsic factor is normally produced in the gastric parietal cells, (in the stomach), but if the parietal cells of your stomach cannot produce enough intrinsic factor, then when your chime, (partially digested food), gets to the terminal ileum, (where it is normally absorbed into the bloodstream), the epithelia of the ileum cannot absorb vitamin B-12, because intrinsic factor is a required ingredient, (the B-12 normally binds to the intrinsic factor, and the complex that is formed, is allowed to pass through the ileal mucosa, in order to enter the bloodstream). IOW, the B-12 cannot be absorbed without the intrinsic factor. If you have damage to your gastric parietal cells, (because of the atrophic gastritis), then you are probably unable to produce enough intrinsic factor.
If your stomach does not heal on it's own, after you have been on the GF diet for at least half a year or more, then IMO, you should be treated for H. pylori, because something is definitely causing your gastritis, whether your doctors are able to find it or not. IOW, the gastritis is probably either caused by gluten damage, or by H. pylori. It is definitely caused by something, and whatever it is, the damage it is doing is also causing your pernicious anemia.
You are very welcome.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
hello everyone.
tell you that yesterday I started with sessions of intravenous iron, because I have anemia.
At the moment I am quite ill with diarrhea and stomach pain, althought i vas gluten-free diet a month ago, I think we may need new medication for the colitis.
in terms of food intolerances, I have intolerance: coke, chocolate, vanilla and some things do not usually eat.
I still psychologically bad, because it scares me to know that in addition to colitis have an atrophic gastritis (with only light microscope) and a nodular lymphoid hyperplasia.
how are you?
tell you that yesterday I started with sessions of intravenous iron, because I have anemia.
At the moment I am quite ill with diarrhea and stomach pain, althought i vas gluten-free diet a month ago, I think we may need new medication for the colitis.
in terms of food intolerances, I have intolerance: coke, chocolate, vanilla and some things do not usually eat.
I still psychologically bad, because it scares me to know that in addition to colitis have an atrophic gastritis (with only light microscope) and a nodular lymphoid hyperplasia.
how are you?
Bea,
I'm sorry to see that you are having those symptoms. Please be aware that those symptoms may be caused by the intravenous iron treatment. Intravenous iron often causes stomach upset, pain, nausea, diarrhea, fever, heartburn, and diaphoresis, (which is profuse sweating). Also, it can cause a metallic taste in the mouth.
I'm not a doctor, but I really believe that you have an H. pylori infection, even though your test result was negative, when your doctor took biopsy samples during an upper endoscopy a few weeks ago. It is very difficult to diagnose H. pylori infections, and the markers are sometimes overlooked. I think that your doctor should be treating you for an H. pylori infection. Here is another reason why I think you have an H. pylori infection:
http://www.ncbi.nlm.nih.gov/pubmed/1176 ... t=Abstract
Please do not worry about the atrophic gastritis, and the nodular lymphoid hyperplasia. As you continue the gluten-free diet, your gastrointestinal tract will slowly heal. As your gastrointestinal tract heals, the atrophic gastritis should slowly disappear, (if it doesn't, then your doctor definitely should treat you for H. pylori). Also, the nodular lymphoid hyperplasia should go away, as your intestines heal. Please continue the gluten-free diet, and in a few more months, you will begin to feel much better.
Thank you for the update, and please continue to keep us informed about how you are doing.
Tex
P. S. I am doing well, thank you.
I'm sorry to see that you are having those symptoms. Please be aware that those symptoms may be caused by the intravenous iron treatment. Intravenous iron often causes stomach upset, pain, nausea, diarrhea, fever, heartburn, and diaphoresis, (which is profuse sweating). Also, it can cause a metallic taste in the mouth.
I'm not a doctor, but I really believe that you have an H. pylori infection, even though your test result was negative, when your doctor took biopsy samples during an upper endoscopy a few weeks ago. It is very difficult to diagnose H. pylori infections, and the markers are sometimes overlooked. I think that your doctor should be treating you for an H. pylori infection. Here is another reason why I think you have an H. pylori infection:
http://www.ncbi.nlm.nih.gov/pubmed/1176 ... t=Abstract
Please do not worry about the atrophic gastritis, and the nodular lymphoid hyperplasia. As you continue the gluten-free diet, your gastrointestinal tract will slowly heal. As your gastrointestinal tract heals, the atrophic gastritis should slowly disappear, (if it doesn't, then your doctor definitely should treat you for H. pylori). Also, the nodular lymphoid hyperplasia should go away, as your intestines heal. Please continue the gluten-free diet, and in a few more months, you will begin to feel much better.
Thank you for the update, and please continue to keep us informed about how you are doing.
Tex
P. S. I am doing well, thank you.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.