More on Emily

[ronipow]

Emily eats no processed foods. I cook everything.

So what was everyone eating in the begining stages? How simple is simple?

Do you think there's a possibility of getting allergic to eating the same foods over and over.

I'm also really considering Asacol. It seems like a lot of people did pretty good on it. Maybe just for a short while in combination with diet.

Roni

[Marsha]

Hi Roni,
I saw a nutritionist who thought I was allergic to something I was eating. He said -"OK, lets pick some foods that you never eat and just eat those for a week" I picked fish, pears, and he suggested millet. (As far as he was concerned I could have picked 3 meats, or three fruits, but I insisted on having things from different food groups just because)

So I ate:
pears canned in their own juice because they were closest to fresh, even out of season
fish because I rarely ate it, but liked it
millet, because he said it was rarely allergenic

Problem solved: no gas, no D, bloating went away. The problem was that I didn't have help adding things back in; had incomplete knowledge of just how many foods had dairy in them, wasn't careful adding one food back at a time, didn't keep a journal, didn't know what gluten was, didn't think it was possible to have more than one food intolerence. Couldn't afford to keep seeing the nutritionist - had no insurance. You are so much better prepared to do this type of thing correctly. Could you be my mom?

I hope this helps, all my best, Marsha

[moremuscle]

Hi Roni,

You are doing a great job cooking everything for Emily. That is the only way to be in control too - very good! You are well on your way to cracking the nut or solving the puzzle or however you want to look at it - it can be very frustrating to seemingly get no results when you put so much thought and effort in; but please, don't let that get you down. Often you are just one step away from actually having completed the journey - you just don't know how to take that last step or in which direction to turn. Sometimes it is better to just be right where you are and really analyze what you are doing instead of making new changes all the time.
I know, it is easier said than done I wish Emily was getting some relief.

You wrote that Emily doesn't eat processed foods, you prepare all her meals. I have a question in relation to that. When you cook her food do you use items that come in a can, jar, bag, bottle, or box? Do you use premixed spices, condiments, canned tomatosauces, jarred pasta sauce, mustard, ketchup, mayonaise?
Many such items are virtually intolerance bombs LOL!!

I understand why you are thinking about Asacol - some members have had good results with it. Peg is one - she will tell you about it, I'm sure. Other members have reacted poorly to it - perhaps because it has a "dairy element". Did Emily try Entocort and react badly to it?

Love,
Karen

[JJ]

Hi...I was one who had a bad reaction to Asacol. After a week, I felt horrible and then I broke out with a bad case of hives! I eat dairy all the time, so know that wasn't the problem. Anyway, I have been on Entocort for almost a year, and am doing really well on one pill a day. Norman is at my house every day and I can eat everything. No side effects that I can tell, although Entocort may cause bone loss. I have been taking a calcium supplement in addition to my multi-vitamin. Hope this helps...take care...Jill

[starfire]

I am one who is taking Asacol, Roni. I started out on Asacol + steroid. The steroid was to get the symptoms under control quickly. The Asacol is for long term.

It can take several weeks for Asacol to start controlling the symptoms, so if you decide to put Emily on the drug, don't give up too quickly unless she get worse instead of better.

Love, Shirley