This site discusses some of the attempts made to determine maximum "safe" levels of gluten that can be ingested by people who are either celiac, or gluten sensitive:
http://www.enabling.org/ia/celiac/mxgluten.html
How much Gluten is Too Much, For Someone Who is Sensitive
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
How much Gluten is Too Much, For Someone Who is Sensitive
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Alice,
I stick with zero tolerance also, because when I had a fat malabsorption test done at Enterolab in April, after being strictly GF for 2 years and 8 months, I still showed some intestinal damage. I evidentally have some permanent damage, due to the severity of the damage before I discovered the GF diet.
Tex
I stick with zero tolerance also, because when I had a fat malabsorption test done at Enterolab in April, after being strictly GF for 2 years and 8 months, I still showed some intestinal damage. I evidentally have some permanent damage, due to the severity of the damage before I discovered the GF diet.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wayne,
I never considered that the damage could be permanent. What were your numbers - if you don't mind my asking? Mine were in the mild range
and I can't remember what they were exactly because it was done so long ago. When I had a retest, the fecal fat number was "almost" within normal range and the anti-body number was right on the edge. I think that was a year after being gluten free. Of course, he changed his mind as to what "normal" was. Even allowing for that, though, I'm better.
Alice
I never considered that the damage could be permanent. What were your numbers - if you don't mind my asking? Mine were in the mild range
and I can't remember what they were exactly because it was done so long ago. When I had a retest, the fecal fat number was "almost" within normal range and the anti-body number was right on the edge. I think that was a year after being gluten free. Of course, he changed his mind as to what "normal" was. Even allowing for that, though, I'm better.
Alice
Alice,
My fecal fat score was 294, (normal is <300), however, based on this alone, they classified me as having "dietary gluten sensitivity". (At least I assume that is what they based their judgment on, since I didn't have any direct gluten sensitivity tests done, because I had been GF for so long.)
I tested negative for eggs, yeast, and soy, but I do have the primary gene for celiac sprue, and another gene for non-celiac gluten sensitivity, HLA-DQB1*0201, 0501.
Some of my nerves seem to have suffered permanent damage--I haven't felt a normal hunger pang in over 5 years. Like Pavlov's dogs, I have learned to crave food at mealtimes, but for a couple of years, when I was sick so much of the time, I never got hungry, even when I was feeling good. Even today, if I don't notice the time, I don't get hungry, so I know I am responding to habit, based on the clock, rather than feeling hungry.
The downside of that is that I also can't really tell when I have eaten enough to be "satisfied". If I don't just eat a reasonable amount and stop, I will overdo it, and get too full. I'm assuming this is related to the MC. I think that Luce is the only one in our group who has noticed similar issues.
Tex
My fecal fat score was 294, (normal is <300), however, based on this alone, they classified me as having "dietary gluten sensitivity". (At least I assume that is what they based their judgment on, since I didn't have any direct gluten sensitivity tests done, because I had been GF for so long.)
I tested negative for eggs, yeast, and soy, but I do have the primary gene for celiac sprue, and another gene for non-celiac gluten sensitivity, HLA-DQB1*0201, 0501.
Some of my nerves seem to have suffered permanent damage--I haven't felt a normal hunger pang in over 5 years. Like Pavlov's dogs, I have learned to crave food at mealtimes, but for a couple of years, when I was sick so much of the time, I never got hungry, even when I was feeling good. Even today, if I don't notice the time, I don't get hungry, so I know I am responding to habit, based on the clock, rather than feeling hungry.
The downside of that is that I also can't really tell when I have eaten enough to be "satisfied". If I don't just eat a reasonable amount and stop, I will overdo it, and get too full. I'm assuming this is related to the MC. I think that Luce is the only one in our group who has noticed similar issues.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.