I was weaning off encort from 1 every other day to 1 every 3 days and started to have more trouble with diarrhea, and nausea, now after seeing GI I am back on the Asacol 2 3 times a day, and 1 encort for a week then go to every other day etc...I would welcome anyone's experience with encort weaning off, wanting to know if others have had same experience, this morning I am vomiting, which I think is the Asacol, please help, the encort worked wonders for me and I was fairly normal for several months, the GI office seems to think this is usual please let me know your experiences,
Sincerely,
Laura
help encort weaning off question
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Hi Laura,
I'm sorry to hear about these problems. Don't let your GI doc pull the wool over your eyes - what you are going through is very common among people with MC. For some convoluted reason that no one understands, many GI docs pretend that what's happening to you is very rare. Why they would risk their credibility by denying the truth, is beyond me, but it seems to be a very common practice in the GI specialty.
Most of us are dairy-intolerant, and Asacol contains lactose, so many of us cannot tolerate Asacol. You didn't say how long you had been taking Entocort, but if it's less than a year, then you probably haven't been taking it long enough to allow your intestines to heal sufficiently to where you can discontinue taking it. Also, you may need to remove something from your diet, if you are going to try to control your symptoms without taking a lifetime maintenance dose of Entocort. (Many members take 1 Entocort capsule daily, or every other day, as a long-term maintenance treatment).
You can't continue to take Asacol if you are reacting adversely to it, so if your GI doc won't give you a prescription for Entocort, then maybe your GP will. Many members have used that solution successfully. Asacol is not a good option for some people anyway, because it has a history of causing chronic pancreatitis, which is a very serious issue. Usually, if that happens, discontinuing the use of the Asacol will stop the pancreatitis, but in a few cases, the pancreatitis can become permanent, and life-threatening.
Also, remember that if you are intolerant of Asacol, the Entocort will not stop you from reacting to the Asacol - you have to stop taking the Asacol, in order to resolve the problem. If I were in your shoes, I would tell the GI doc that I was having an adverse reaction to the Asacol, and ask for a prescription for Entocort. You will probably have to increase the dosage back up to either 6mg, or 9mg per day, for a while, in order to get the D back under control, and then after a while you can taper the dose back down to a maintenance dose. Most people in that situation have to maintain at 3mg, (one capsule), per day, but a few can go to every other day, and still maintain control of their symptoms. Very, very few people are able to successfully maintain control on one capsule every three days.
Good luck with this.
Tex
P S This an information forum, not a discussion forum, so not many members are likely to notice your post down here. Accordingly, I'm moving this thread to a forum where more people will be likely to notice it, and respond to it.
I'm sorry to hear about these problems. Don't let your GI doc pull the wool over your eyes - what you are going through is very common among people with MC. For some convoluted reason that no one understands, many GI docs pretend that what's happening to you is very rare. Why they would risk their credibility by denying the truth, is beyond me, but it seems to be a very common practice in the GI specialty.
Most of us are dairy-intolerant, and Asacol contains lactose, so many of us cannot tolerate Asacol. You didn't say how long you had been taking Entocort, but if it's less than a year, then you probably haven't been taking it long enough to allow your intestines to heal sufficiently to where you can discontinue taking it. Also, you may need to remove something from your diet, if you are going to try to control your symptoms without taking a lifetime maintenance dose of Entocort. (Many members take 1 Entocort capsule daily, or every other day, as a long-term maintenance treatment).
You can't continue to take Asacol if you are reacting adversely to it, so if your GI doc won't give you a prescription for Entocort, then maybe your GP will. Many members have used that solution successfully. Asacol is not a good option for some people anyway, because it has a history of causing chronic pancreatitis, which is a very serious issue. Usually, if that happens, discontinuing the use of the Asacol will stop the pancreatitis, but in a few cases, the pancreatitis can become permanent, and life-threatening.
Also, remember that if you are intolerant of Asacol, the Entocort will not stop you from reacting to the Asacol - you have to stop taking the Asacol, in order to resolve the problem. If I were in your shoes, I would tell the GI doc that I was having an adverse reaction to the Asacol, and ask for a prescription for Entocort. You will probably have to increase the dosage back up to either 6mg, or 9mg per day, for a while, in order to get the D back under control, and then after a while you can taper the dose back down to a maintenance dose. Most people in that situation have to maintain at 3mg, (one capsule), per day, but a few can go to every other day, and still maintain control of their symptoms. Very, very few people are able to successfully maintain control on one capsule every three days.
Good luck with this.
Tex
P S This an information forum, not a discussion forum, so not many members are likely to notice your post down here. Accordingly, I'm moving this thread to a forum where more people will be likely to notice it, and respond to it.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi again, Laura,
Your e-mail server bounced my e-mail response to you, (possibly because it contained a link to this forum, where I moved your post). However, in reviewing past e-mails, I notice that your e-mail server has consistently bounced my e-mail responses to you, even when they did not contain a live link, so obviously, your e-mail server doesn't like me at all.
Anyway, I'll copy my e-mail response here, since there's nothing in it that needs to be kept private, (otherwise I would have used a PM):
, in the future, if you need a private response from me on some matter, a PM would work much better.
Sorry for the problem,
Tex
Your e-mail server bounced my e-mail response to you, (possibly because it contained a link to this forum, where I moved your post). However, in reviewing past e-mails, I notice that your e-mail server has consistently bounced my e-mail responses to you, even when they did not contain a live link, so obviously, your e-mail server doesn't like me at all.
Anyway, I'll copy my e-mail response here, since there's nothing in it that needs to be kept private, (otherwise I would have used a PM):
Since it's not likely that your e-mail server will change it's opinion of me,Hi Laura,
I'm sorry, but for some reason or other, your e-mail didn't arrive until after I responded to your post on the board. As I mentioned there, I'm sorry to hear that you're having these problems, and I offered some suggestions, there.
I was regularly nauseated during some of my reactions, and on some days I would vomit, sometimes several times, during the day. Not everyone with MC has problems with nausea, though, and I don't believe that it's very common. If you haven't felt nauseated before, (due to MC), then the Asacol could be the problem, (unless you've picked up a virus of some type). Of course, Entocort can cause such issues also, but usually problems will show up during the first week or so of taking a med, (in fact, usually, if you are intolerant of a med, you will start having symptoms within a day or so, after you start taking it.
If you don't get the answers you need on the board, please feel free to e-mail me any time. Hopefully, you will get some responses there, from others who have dealt with the problem. Incidentally, I moved your topic to the Discussions on Treatment Options Using Diet, and/or Medications forum, at http://www.perskyfarms.com/phpBB2/viewforum.php?f=27 . Hopefully, you'll get more responses there, but Fridays are sometimes slow days on the board.
You're most welcome - I hope you start feeling better soon,
Tex
, in the future, if you need a private response from me on some matter, a PM would work much better.Sorry for the problem,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.