You have changed my life

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
User avatar
connie
Adélie Penguin
Adélie Penguin
Posts: 106
Joined: Tue Oct 06, 2009 5:03 pm
Location: Montana

You have changed my life

Post by connie »

Hi, I was diagnosed with CC in April of this year. The journey has been a painful one both emotionally and physically. This support group has been my life line. I know the members here have heard it before but you are a blessing. The information here has helped me to know that I am not alone. At one point I thought I couldn't go another day but I am now coping. I have visited this website everyday since I found you guys a few weeks ago. I have read backwards and forwards through many days of posting. I have been gluten free and dairy free for 8 days. I would encourage anyone out there who is suffering to consider food intolerances. To the members, p :grin: lease keep sharing. I wish everyone who was newly diagnosed could start here with this website. More than that I wish every GI doc would read this website. Thank you for hours of companionship during the lonliest time of my life.
If I knew how to use the smiley's I would be smiling and waving. Thanks again.
no-more-muffins
Adélie Penguin
Adélie Penguin
Posts: 90
Joined: Wed Jun 24, 2009 5:37 pm

Post by no-more-muffins »

Hi Connie! I agree, this site is great. I know that we all have differences in our problems and what treatments work for us but this is a great support. It has been an amazing support to me as well when nobody else understands what I am going through. :pulsinghearts: I understand what you mean about the lonliest time in your life. My struggle with my digetstive issues have been the most frustrating, painful and lonely thing I have ever dealt with. I am holding out hope that things will get better. It's hard to believe that some days though.

Great job on starting the diet. Those first few weeks of the diet are the worst. It seems like there's nothing to eat, and when you don't feel well it's so hard to have to make a change like that. I hope you find remission soon.
NMM
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hi Connie,

Welcome to our internet family. I'm sorry that you've had such a rough time with CC, but I'm glad that you found us, and I hope that we can help to make your journey back to good health a lot easier.

You're right, this can be a very depressing disease, and no one truly understands what it's like, to have to deal with it, day after day, unless they actually have it. Being able to "talk" with others who truly understand what you are going through, can be very liberating, and empowering.

Congratulations on jumping right into the diet. As no-more-muffins said, it can be tough to adapt to it, but after a while, it becomes sort of second nature, and it's definitely the safest way to control this disease.

To use the smilies, when you get to a place in your message where you want to add one, just click on the one you want, and the system will automatically enter it into your post. To see many more of them, click on the View more Emoticons link, and when a pop-up window opens, with all the other smilies, you can enlarge it, to make it easier to locate the ones you want. Once they are in your message, you can cut and paste, to move them anywhere you want, or you can copy them, to replicate them, if you want. Anytime you have any questions about the way that anything on this board works, please feel free to ask.

I hope you start seeing results soon, but if you don't, please don't become discouraged, because we are all different, and some take much longer to achieve remission, than others. Also, some of us have to avoid additional foods, in order to allow our GI tract to heal. Everyone develops her or his own treatment plan, as they fine tune their diet.

We really appreciate the kind words. Please feel free to ask anything. We learn from each others' experiences here, and unlike most of the GI docs, we try to cover all the bases, including dealing with all the little everyday problems of living with this disease. There's no cure, but the symptoms can be controlled, and you can definitely get your life back. Again, welcome aboard.

Tex (Wayne)
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
mbeezie
Rockhopper Penguin
Rockhopper Penguin
Posts: 1500
Joined: Fri May 29, 2009 3:14 am
Location: Texas

Post by mbeezie »

Welcome Connie!

So glad you have found us and have found the site helpful. This is the best place for information. I agree that doctors should read the forum - they could learn a thing or two.

Be patient with the diet changes. Eventually we all figure out our triggers and things get alot better.

Mary Beth
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

Post by JLH »

:welcome: Connie, I'm so glad you found us. We all pretty much felt the exact way you were feeling.Things will improve, I'm certain. Keep on reading here and at www.enterolab.com

I don't know if you've shared the diet information from this site with your doctor or not, but don't expect him to believe that diet has anything to do with MC. :roll: We KNOW otherwise.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
ant
Rockhopper Penguin
Rockhopper Penguin
Posts: 1676
Joined: Sun Jun 28, 2009 11:59 pm

Post by ant »

Dear Connie, I just want to say :welcome: :welcome:

I remember the first time I found this site and started to read, and then read some more and more through the posts. I could hardly believe that there was this place that UNDERSTANDS. All best on your journey to wellness, ant
User avatar
connie
Adélie Penguin
Adélie Penguin
Posts: 106
Joined: Tue Oct 06, 2009 5:03 pm
Location: Montana

Post by connie »

Thanks to for the kind responses. I will fix my profile when I figure out how to do it. Need to read the technical tips. Just for today, I want you to know how valuable each one of you of are. I am hoping I can become a helper too. Best of all to each of you.
Connie
User avatar
MaggieRedwings
King Penguin
King Penguin
Posts: 3865
Joined: Tue May 31, 2005 3:16 am
Location: SE Pennsylvania

Post by MaggieRedwings »

Welcome Connie,

We are truly family here and we share all of our experiences and learn from each other. Good step in going to diet control for this disease. I agree with the others that most GI docs do not recognize diet - all they know is pills and little other than that.

Stick around and I am sure you will be a real helper too.

Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Connie,

To access your profile, so that you can modify it, just click on the "Profile" link that's near the top of any page. The link is the first one in the line to the right of the Potty People logo, that says, "Profile You have no new messages Log out[connie]".

We appreciate your help - trust me, we need all the help we can get. :grin:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
barbaranoela
Emperor Penguin
Emperor Penguin
Posts: 5394
Joined: Wed May 25, 2005 6:11 pm
Location: New York

Post by barbaranoela »

Welcome to U CONNIE----

I know there will be much to learn from U as we all learn from each other--
What a blessing that is----

Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
User avatar
Gloria
King Penguin
King Penguin
Posts: 4767
Joined: Sat Jul 07, 2007 8:19 am
Location: Illinois

Post by Gloria »

Welcome Connie!! :wave:

I'm impressed that you have voluntarily changed your diet just from reading this site. I am also someone who has benefited from it, as have many others here. One suggestion I have is that you also maintain a food and elimination diary while you are modifying your diet. I review my food diary nearly every day. It has allowed me to see patterns between what I eat and my reactions. I also make notes regarding any gurgling, headaches, mouth sores, and any other symptoms associated with this disease.

Good luck with your diet modifications. I hope that you see results very quickly.

Gloria
You never know what you can do until you have to do it.
User avatar
Gas Bag
Adélie Penguin
Adélie Penguin
Posts: 198
Joined: Sat Aug 01, 2009 11:00 am
Location: Washington State

Post by Gas Bag »

Hi Connie, welcome and I am glad you found this site. It does help so very much to know you aren't alone and it's so nice to be able to complain to others who know exactly what you are going through. You don't need to explain a thing, we just read and nod our heads!

Deb
Hypothyroid 06/01
LC 12/06

Dwell on the positive.
Happiness is a result of a decision to be happy.
Post Reply

Return to “Main Message Board”