Update

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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Pat
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Post by Pat »

I need to update you on my diet. I was following the gf, sf, df, ff, and others to the tee and still having major problems. Somedays were better and some days not so good. 2 or 3 weeks ago after following the diet I had 2 accidents in one week and I cratered. I decided to just eliminate the things that I had for sure seen as a problem and gluten was not one of them. So I started eating gluten. I made sure there was little or no sugar included and also eliminated fruit, dairy, tomato, spinach, potato, and zucchini. I was enjoying wheat so much I was not eating rice and lo and behold I started having almost normal BMs!!!!!!!!!! I tried rice a couple of times since then and the next day I would have very liquid BMs so rice is now out! I feel so much better on wheat and I have gained 5 lbs since starting wheat again. I know this goes against Dr. Fine and everyone on this board but I just have to do what works for me.

Pat
JLH
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Post by JLH »

:shock: That's really interesting......
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

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Jan
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Post by Jan »

Pat,

Congradulations. I am one of the few who does not react to gluten so it's nice to have another person who can eat gluten.

I'm sorry to hear that rice was one of your culprits.

Continued weight gain and improving health.

Jan
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Gloria
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Post by Gloria »

Wow! It sounds like rice has been the problem all along!! Who'd have thought?

I'm so happy to read that you're finally having almost normal BMs!


Congratulations!

:manynanas:

Gloria
You never know what you can do until you have to do it.
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tex
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Post by tex »

Pat wrote: I know this goes against Dr. Fine and everyone on this board but I just have to do what works for me.
Interesting, indeed, (of course, the jury is still out, since you have avoided gluten for so long that you may have to build up enough antibodies, and accrue sufficient damage, before a gluten reaction will be triggered).

I don't see any Enterolab food intolerance test results for you in our lists, so at this point, (though I note that you do have the most common celiac gene, DQ2, as shown in our DNA test result list), there's no reason to suspect that you are going against Dr. Fine's research results, unless you received a positive result on an anti-gliadin test at Enterolab. If you did, then this is an interesting dilema.

Remember, though, not reacting to gluten, does not prove the absence of gluten sensitivity. There are a lot of asymptomatic celiacs in this world, (apparently, about 99% of all celiacs, according to statistics). It's possible that your previous diet was unable to yield formed stools, (especially if you are sensitive to the protein in rice, oryzein), but gluten may be enhancing the texture of your stools sufficiently, that formed stools are now possible, (remember the definition of agglutinating agents, and how they work to make the molecules in bread stick together so well).

Or, if you did get a positive gliadin antibody test result at Enterolab, it's certainly possible that their test is flawed, (few tests are 100%, especially since they usually require some judgment by the technician doing the test). Remember - the only people who are never wrong, are liars.

I certainly hope that your "discovery" will prove to be correct, and you will continue to have "almost normal BMs". In view of the fact that you have the DQ2 gene, however, IMO, the odds are pretty slim, that this will work in the long run. I hope I'm wrong. Either way, we will learn a lot from your "experiment", and we really appreciate you sharing this information with us.

And, you are most definitely correct, when you say, "I just have to do what works for me." That is absolutely, and irrevocably true. Trust me, nothing would make us happier, than for this improvement that you're experiencing, to continue forever. We'll keep our fingers crossed. :xfingers: Please keep us updated.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
ant
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Post by ant »

Dear Pat

Really interesting. This is such a complex disease to work out....

All best, Ant
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