Thank God I found this forum. Recently Dx with CC and miserable! Normally, I have a wickedly wonderful sense of humor and I was afraid that living with CC would destroy that. Maybe I won't cry so much now either. What an embarassing disease. My DH is so wonderful. I was horrified to wake up yesterday morning and had "messed" the bed and didn't even feel it when it happened?! Can't talk to anyone about this, they just don't understand unless they experience it.
Do the rest of you have accidents and don't feel it coming? Alot of the time I just don't feel anything til it's too late. I hate that part the most I think.
My D started July 30th and hasn't quit. I was actually happy to do the colonoscopy prep cuz it meant I was 'empty' and didn't have to worry about D in my pants!
Do any of you feel as though you're starving sometimes? I do...
Immodium only works sometimes. Start Asacol today, (pray it works)
Trying pepto as of yesterday..... Funny, D looks like black ashes now! LOL
Thank you for being here. I look forward to getting to know many of you. And thank you for the humor! That, in itself gives me hope!
Always,
Josiecat
Newbie Here - Love the humor
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Josie, we're glad you found us and like our humor. Be sure to visit the jokes room........Start by reading newbies section and ask any and all questions you may have. Nothing is off limits.
Yes, I know of one member who had the same night time problem as you did. I believe she wore Depends every night.
You may not believe it now, but you are going to get much better with the help of the PP.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
one of my favs from the jokes room
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
from Jodi Dave Barry's colonoscopy
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Dear Josie
Sorry for the reason, but glad you found us. Here we can laugh and cry and laugh again, because we have all been embarrassed and UNDERSTAND. It is great to have a sense of humor. Its a good way to deal with all the cra*p. 
It is great you also have an understanding DH. I had not shared this, but your post has prompted me. Yes, I have "messed" my bed and towel running to the loo. Three in the morning at my sister's house. I cleaned my sheet and towel in the bath and no one knew in the morning (or, if they did, they were to polite to say).
The black BMs with Pepso Bismol are quite normal.
You will learn much here. There is serious stuff and funny stuff and, best of all, this place is full of caring hearts.
All best, ant
Sorry for the reason, but glad you found us. Here we can laugh and cry and laugh again, because we have all been embarrassed and UNDERSTAND. It is great to have a sense of humor. Its a good way to deal with all the cra*p. It is great you also have an understanding DH. I had not shared this, but your post has prompted me. Yes, I have "messed" my bed and towel running to the loo. Three in the morning at my sister's house. I cleaned my sheet and towel in the bath and no one knew in the morning (or, if they did, they were to polite to say).
The black BMs with Pepso Bismol are quite normal.
You will learn much here. There is serious stuff and funny stuff and, best of all, this place is full of caring hearts.
All best, ant
Welcome Josie, I'm a newbie too
I'm so glad I also found this site, everyone has been so helpful. Yes, I can identify with everything you described. Here's to getting this stuff under control!!!
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
WELCOME JOSIE!!! 
Yes, most of us have had accidents and it is very embarrassing. As you read posts here, you'll find that you are not alone and we understand what you are goiong through. We are here to help you and answer any questions you may have. I'm sure you are busy reading and learning how many of us have learned to control our MC and resume living a normal life. You will get better and you will get your life back.
Gloria
Yes, most of us have had accidents and it is very embarrassing. As you read posts here, you'll find that you are not alone and we understand what you are goiong through. We are here to help you and answer any questions you may have. I'm sure you are busy reading and learning how many of us have learned to control our MC and resume living a normal life. You will get better and you will get your life back.
Gloria
You never know what you can do until you have to do it.
When I was younger, I hated brown clothes. Now I have several pairs of brown pants for those days when I have to go out, but I'm not so sure of things. Oops - that wasn't just gas... 
Oh yes, been there, done that ... waking up messy and not even knowing, and then there was the time I couldn't make it to the bathroom and made a mess on the carpet. The solution was to wear a Depends to bed until I stabilised and stopped going at night- it saved me a lot of trouble and cleaning. It took effort to wear one that first time as I associated them with old incontinent people, was embarrassed, and I was worried what my SO would think. He snuggled me anyway! After that, I never gave it another thought - a girl's gotta do what girl's gotta do ...
Watch out for too much Pepto ... Imodium worked sporadically for me so my GI suggested Pepto. I went from 20+ daily bouts of D to nothing for 3 days, and was considering go to Emerg as I thought I must have a blockage. When I finally went, it was like the floodgates opening. Then I was back to 20 times again. This pattern repeated itself. D or C, what a great choice.
All the Imodium and Pepto did was treat the diarrhea, and not always successfully. Going gluten free was the big thing that stopped my D, I'm down to 1-2 times daily and semi-normal bm's, and the Pentasa (Asacol) is working on healing the gut. I'm still working on dealing with the wet farts ..
I never felt starved .. didn't feel hungry at all. I dropped about 35 lbs in the worst 2 months. There was definitely a mental thing going on with a fear of eating because I knew it'd go straight through me not to mention not wanting the awful pain.
There IS light at the end of the tunnel and it isn't a locomotive. Laughing is good medicine, from my brown trousers and brown knickers, to my weapons quality bread making efforts, and the "MC shelf" in the bathroom (Imodium, Pepto, Pentasa/Asacol, Vitamin supplements, D vitamin drops, baby wipes, zinc cream, and hemorrhoid cream).
To laugh at MC in this home, we make up sentences that contain only words that begin with g or f such as "go forth get food good for gluten free " or "gluten feeders go frequently" or "God fearing girls for gluten freedom".
Watch out for too much Pepto ... Imodium worked sporadically for me so my GI suggested Pepto. I went from 20+ daily bouts of D to nothing for 3 days, and was considering go to Emerg as I thought I must have a blockage. When I finally went, it was like the floodgates opening. Then I was back to 20 times again. This pattern repeated itself. D or C, what a great choice.
All the Imodium and Pepto did was treat the diarrhea, and not always successfully. Going gluten free was the big thing that stopped my D, I'm down to 1-2 times daily and semi-normal bm's, and the Pentasa (Asacol) is working on healing the gut. I'm still working on dealing with the wet farts ..
I never felt starved .. didn't feel hungry at all. I dropped about 35 lbs in the worst 2 months. There was definitely a mental thing going on with a fear of eating because I knew it'd go straight through me not to mention not wanting the awful pain.
There IS light at the end of the tunnel and it isn't a locomotive. Laughing is good medicine, from my brown trousers and brown knickers, to my weapons quality bread making efforts, and the "MC shelf" in the bathroom (Imodium, Pepto, Pentasa/Asacol, Vitamin supplements, D vitamin drops, baby wipes, zinc cream, and hemorrhoid cream).
To laugh at MC in this home, we make up sentences that contain only words that begin with g or f such as "go forth get food good for gluten free " or "gluten feeders go frequently" or "God fearing girls for gluten freedom".
Maxine
Hi Josiecat,
Welcome to our internet family. Yes, CC is a very humbling disease. I suspect that most of us have had our share of "accidents", so yep, we do understand what you're dealing with. You're quite correct when you say that no one understands this disease, unless they have it - that includes doctors, too, unfortunately.
Speaking of "prep", I had a different experience. It always made me sick as a dog, (as if I weren't sick enough, already), so one time, I had the bright idea of not eating anything between tests, because there was only a two week interval between the tests, so I only drank water, and an occasional 7-up, and I ate a little plain, clear jello, so that I wouldn't have to go though the prep experience again, right before the test. Silly me, besides losing so much weight that I looked like a scarecrow, and developed a world-class case of the hiccups, they made me do the prep again, anyway.
Until you can achieve remission, and get your life back, you can't afford to lose your sense of humor - because with this disease, sometimes you have to laugh, in order to keep from crying.
Speaking of humor, your post is chock full of inspirations for Jeff Foxworthy type jokes, (if Jeff Foxworthy told jokes about MC).
For example:
If you happen to stumble across a discussion board on the internet, where apparently deranged people are discussing poo, and instead of making you feel disgusted, it almost makes you feel as happy as if you've won the lottery,
You might have MC.
If you don't hesitate to tell total strangers, all over the world, that you've had a major "accident" in bed,
You might have MC.
If you're feeling as though you're having a good morning, and suddenly you realize that you should have gone to the bathroom a few minutes ago,
You might have MC.
If you look forward to the day when you can wear white slacks again,
You might have MC.
If you can name at least half a dozen products that are better than preparation H, for treating "baboon butt",
You might have MC.
If you're afraid to eat, and the reason is not due to a weight problem,
You might have MC.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
Welcome to our internet family. Yes, CC is a very humbling disease. I suspect that most of us have had our share of "accidents", so yep, we do understand what you're dealing with. You're quite correct when you say that no one understands this disease, unless they have it - that includes doctors, too, unfortunately.
Speaking of "prep", I had a different experience. It always made me sick as a dog, (as if I weren't sick enough, already), so one time, I had the bright idea of not eating anything between tests, because there was only a two week interval between the tests, so I only drank water, and an occasional 7-up, and I ate a little plain, clear jello, so that I wouldn't have to go though the prep experience again, right before the test. Silly me, besides losing so much weight that I looked like a scarecrow, and developed a world-class case of the hiccups, they made me do the prep again, anyway.
Until you can achieve remission, and get your life back, you can't afford to lose your sense of humor - because with this disease, sometimes you have to laugh, in order to keep from crying.
Speaking of humor, your post is chock full of inspirations for Jeff Foxworthy type jokes, (if Jeff Foxworthy told jokes about MC).
For example:
If you happen to stumble across a discussion board on the internet, where apparently deranged people are discussing poo, and instead of making you feel disgusted, it almost makes you feel as happy as if you've won the lottery,
You might have MC.
If you don't hesitate to tell total strangers, all over the world, that you've had a major "accident" in bed,
You might have MC.
If you're feeling as though you're having a good morning, and suddenly you realize that you should have gone to the bathroom a few minutes ago,
You might have MC.
If you look forward to the day when you can wear white slacks again,
You might have MC.
If you can name at least half a dozen products that are better than preparation H, for treating "baboon butt",
You might have MC.
If you're afraid to eat, and the reason is not due to a weight problem,
You might have MC.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Yup, Been there done that.
I had the same experience with pepto or immodium...would slow things down for a day or so and then it would all break loose
I found half a dose of immodium was actually more effective. Didn't stop the D per se but made it so I could do things. I reserved its use for those days with important activities not near a bathroom...field visits for work, marching in a parade, meetings with clients, etc.
You'll get better. You're lucky, only 4 months for diagnosis is far better than many (although I think that is improving). It took me 8 months and when I joined this board in 2002, that was incredibly fast!
Katy
I had the same experience with pepto or immodium...would slow things down for a day or so and then it would all break loose
I found half a dose of immodium was actually more effective. Didn't stop the D per se but made it so I could do things. I reserved its use for those days with important activities not near a bathroom...field visits for work, marching in a parade, meetings with clients, etc.You'll get better. You're lucky, only 4 months for diagnosis is far better than many (although I think that is improving). It took me 8 months and when I joined this board in 2002, that was incredibly fast!
Katy
The Dave Barry article that Jodi linked to is priceless.
"And then, when you figure you must be totally empty, you have to
drink another liter of MoviPrep, at which point, as far as I can
tell, your bowels travel into the future and start eliminating food
that you have not even eaten yet."
Truly it is amazing how much D you can pass when you aren't eating, it DOES feel like your bowels have traveled into the future to eliminate food you haven't eaten yet, LOL. This whole thread is so reassuring and pathetic at the same time. Does anyone else do the "toilet rocking" to distract you from the pain? I also find myself kneading my intestine to speed it up. Also find that when my husband and I are spooning at night, if he puts his hand on my belly, it makes the contractions start almost immediately and I have to get up and visit the loo. Never have I been more appreciative that he is an EMT and has seen worse, but the fear of being dependent on anyone is a major trigger for me.
Loved the Foxworthy stuff, Wayne.
"And then, when you figure you must be totally empty, you have to
drink another liter of MoviPrep, at which point, as far as I can
tell, your bowels travel into the future and start eliminating food
that you have not even eaten yet."
Truly it is amazing how much D you can pass when you aren't eating, it DOES feel like your bowels have traveled into the future to eliminate food you haven't eaten yet, LOL. This whole thread is so reassuring and pathetic at the same time. Does anyone else do the "toilet rocking" to distract you from the pain? I also find myself kneading my intestine to speed it up. Also find that when my husband and I are spooning at night, if he puts his hand on my belly, it makes the contractions start almost immediately and I have to get up and visit the loo. Never have I been more appreciative that he is an EMT and has seen worse, but the fear of being dependent on anyone is a major trigger for me.
Loved the Foxworthy stuff, Wayne.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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RUBYREDDOG
- Adélie Penguin
- Posts: 158
- Joined: Tue Jun 10, 2008 4:45 pm
- Location: Glendale, Ca.