I just need to share my experience of the last week with food. My pills are working quite well and no more d for weeks now. Than I would expect, problem solved. Not really. I just start figuring out that, with this disease (or maybe with any bowel disease), comes the problem which food you can stand (or digest) and which ones you can't. For the gluten, soy, diary, enterolab will give an answer to that in a couple of weeks. But other things it seems like a case of trial and error.
Last week I changed to another type of gluten free bread (also milk free), at the seem time, bowel problems get worse, pain, cramping a bit. I just did not understand why? It even took a while to make the link between the bread and the worsening of the complaints. Probably the insolvable fibers in it cause the trouble. Stopped eating the bread and it is getting better again.
But yesterday a new problem, real stomach pain. Again, wondering why, what. It is almost to stupid for words, it is the corn. I know I can't stand corn, but I started to eat corn flakes. They look different, but it is in the word corn flakes. Also I bought like rice crackers, corn crackers, same story. Today it seems to get better.
This is something doctors don't tell you, but to me seems quite an important part of this disease in dealing with it and solving it.
food experience
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Yes, it's a real process. It was after I got my Enterolab results and eliminated gluten, soy and yeast (I was already dairy free for 3 years) that the fun started. As I elimintated them, I felt much better, but as many here have reported, when the major sensitivities are eliminated, others start to manifest themselves, especially in the early going. I know that many here have bee able to add back some of these minor sensitivites once healing has taken place, maybe after a year or so. I'm not on any drugs, so any problems show up right away. Basically I'm doing pretty good.
With the gluten/dairy free bread, I haven't been able to find a brand that works for me. Any of them with pea flour or sorghum flour give me gas and D. So far I've discovered that corn has become a problem, as well as oatmeal, chocolate, and carageenan. These other sensitivites seem to be more dose-dependent, in that I can get away with tiny amounts, but eating more will create problems. So I'm hopeful that with time I can add them back. I'm just happy that I've found this forum and know how to go about controlling my LC with diet.
I know that getting the Enterolab results will be a big help.
Rosie
With the gluten/dairy free bread, I haven't been able to find a brand that works for me. Any of them with pea flour or sorghum flour give me gas and D. So far I've discovered that corn has become a problem, as well as oatmeal, chocolate, and carageenan. These other sensitivites seem to be more dose-dependent, in that I can get away with tiny amounts, but eating more will create problems. So I'm hopeful that with time I can add them back. I'm just happy that I've found this forum and know how to go about controlling my LC with diet.
I know that getting the Enterolab results will be a big help.
Rosie
Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time………Thomas Edison
Rosie,
Excellent point about the commercial GF breads that are available. The breads that are close to wheat-based breads in terms of flavor, texture, and palatability, are made by Kinnikinnick, and Breads From Anna. The breads from Anna, especially, are excellent, and great for sandwiches, or any other purpose, but as far as I can determine, the ones without soy, all contain pea protein, or pinto bean flour, or something similar.
Harma,
It's good to see that you are tracking down the problem foods, and eliminating them from your diet. Hopefully, if you can eliminate all of the problem foods, then after your intestines heal, you should be able to slowly reduce the dose of budenofalk, and eventually stop using it.
Tex
Excellent point about the commercial GF breads that are available. The breads that are close to wheat-based breads in terms of flavor, texture, and palatability, are made by Kinnikinnick, and Breads From Anna. The breads from Anna, especially, are excellent, and great for sandwiches, or any other purpose, but as far as I can determine, the ones without soy, all contain pea protein, or pinto bean flour, or something similar.
Harma,
It's good to see that you are tracking down the problem foods, and eliminating them from your diet. Hopefully, if you can eliminate all of the problem foods, then after your intestines heal, you should be able to slowly reduce the dose of budenofalk, and eventually stop using it.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kscolorado
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When I get home I will look at the ingredients to my Udi bread. I know for sure it doesn't contain pea flour, dairy, or soy. It is awesome and tastes the closest to real bread that I have ever had (I've had anna's and kinnickinnic and although the are good, they don't compare). Its moist and doesn't need to be toasted ect in order to eat. Udi's is a bakery in Denver and available in colorado grocery stores but you can order on line at http://udisglutenfree.elsstore.com/
Kathy
Kathy,
I got out of the habit of eating bread, but if Udi's bread is better than Anna's, I may have to try some of that stuff, just to see what it's like. I had never heard of it before you mentioned it.
Thanks for the tip, and the link.
Tex
I got out of the habit of eating bread, but if Udi's bread is better than Anna's, I may have to try some of that stuff, just to see what it's like. I had never heard of it before you mentioned it.
Thanks for the tip, and the link.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Another ingredient to pay attention to is tapioca - it's in most GF products. I and a few others here have noticed a sensitivity.
My husband like Udi's bread. It's available at Whole Foods here. Recently my family has been eating bread by GF Houston. You can buy is already baked or frozen dough. We baked a frozen one and it smelled like the real deal. I was drooling. Not sure if she's distributing outside of Houston yet though, ut she is rapidly expanding, so maybe.
Mary Beth
My husband like Udi's bread. It's available at Whole Foods here. Recently my family has been eating bread by GF Houston. You can buy is already baked or frozen dough. We baked a frozen one and it smelled like the real deal. I was drooling. Not sure if she's distributing outside of Houston yet though, ut she is rapidly expanding, so maybe.
Mary Beth