Correcting/adding here to my own post:
"if med. students were assigned the task of doing what we have all done to diagnose ourselves as a part of their schooling"
I meant to expand that further to add that medical students could learn so much valuable information from being assigned charts from patients whose chronic health problems are undiagnosed and doing the research that PCP's don't have the time to do. I only know that if I were a medical student, I would LOVE being given the task of finding an answer to a puzzle and frankly, if a med student wasn't this curious - they should find another career.
Please, I am new and I need answers to questions and advice
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
You said a mouthful there, for sure. A true scientist should "burn", with the desire to learn.Stanz wrote:and frankly, if a med student wasn't this curious - they should find another career.
Regarding your "heavy" antibiotic usage, I'd have to say that it was almost certainly the trigger for your MC.
If you ever have any problems with UTIs again, try D-Mannose. It's not an antibiotic, and it's very effective. In fact, one of our members, (on the recommendation of her doctor), tried it for controlling her MC symptoms, and she is now maintaining remission with it.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10609
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I know if it were me, Tex, I would try to learn everything and maybe the next generation of Dr.'s will benefit from this Doctors program that my niece Elisa is involved in and they are interviewed here:
http://www2.tbo.com/video/2009/nov/03/u ... 09/video-/
She is 2nd generation, her Dad is an MD, her Mom was an RN and she died of breast cancer. I am just so happy that Elisa is getting her training from this man's program.
I have D-Mannose in my kitchen now and have done a lot of research on it, thanks to this site. My MIL has an elderly friend who has had recurrent UTI's and I recommended she look into it. When my MIL was at her house last week she found she already had it there. So---word is getting out. This woman is 84 and hopefully will be saved from this antibiotic hell so many of us have to deal with now.
Whatever it was that I had that caused all of my symptoms of bacterial infection seems to be gone now. Just wish I'd had the knowledge I have now to have just asked for penicillin.
http://www2.tbo.com/video/2009/nov/03/u ... 09/video-/
She is 2nd generation, her Dad is an MD, her Mom was an RN and she died of breast cancer. I am just so happy that Elisa is getting her training from this man's program.
I have D-Mannose in my kitchen now and have done a lot of research on it, thanks to this site. My MIL has an elderly friend who has had recurrent UTI's and I recommended she look into it. When my MIL was at her house last week she found she already had it there. So---word is getting out. This woman is 84 and hopefully will be saved from this antibiotic hell so many of us have to deal with now.
Whatever it was that I had that caused all of my symptoms of bacterial infection seems to be gone now. Just wish I'd had the knowledge I have now to have just asked for penicillin.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
It must be a Firefox thing, because no matter what I do, it refuses to play on Firefox. I just tried IE, and it works like a charm.
Mainstream medicine will surely have to change with changing patient attitudes. No one, and no industry, can stand in the way of progress. Those who have tried to eschew changes in the past, have either been destroyed in the process, or left behind.
Tex
Mainstream medicine will surely have to change with changing patient attitudes. No one, and no industry, can stand in the way of progress. Those who have tried to eschew changes in the past, have either been destroyed in the process, or left behind.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
For those who haven't had the antibiotic issue, like me, tendonitis still went away on diet, and in three days. This is not to say that I CAN'T get tendonitis via the usual means -- injuries of one kind or another, it just means that I had what I would call systemic tendonitis (probably not even a diagnostic category officially), but mine went away totally in three days just off what I then knew to remove by way of gluten. I don't think I've heard anyone with gluten sensitivity prior to the diet say they had as much trouble as I did in the years preceding my diet.
What I notice is that when I do things that eventually will lead to tendonitis normally -- like reposition my mother who is paralyzed, that that repetitive, stress will eventually cause tendonitis in the elbow, but it's not the "on fire" version that I used to have around most of my joints pre-gf diet. By the way, I studied and found a way to keep Mother from sliding down in the bed as puling her up every time we turned her in bed was wearing out my elbows. Now we almos never have to pull her up in bed, so elbows are fine. I would hate to think of what those elbows and wrists would feel like if I were having to do alot of lifting and stressing several joints if I hadn't gotten off the gluten.
Not sure I would've been able to take care of my mother. Almost wasn't able to take care of my uncle before her because I was so sick prior to the diagnosis and finding the original gang on the original site from whence this one sprang. I think it would've just multiplied the pain many times over and above what the instigating stress would've caused. The global nature of it all over the body should've made me wonder if there wasn't a connection to the GI symptoms, but I just didn't put all the autoimmune stuff together back then -- it was all I could do to get up in the morning and do what I had to do.
Don't know why some of us have sooo many more symptoms and conditions than others, but a few is bad enough to want to quickly get rid of by whatever means you can.
Let us know how you are progressing on the road to health.
Yours, Luce
What I notice is that when I do things that eventually will lead to tendonitis normally -- like reposition my mother who is paralyzed, that that repetitive, stress will eventually cause tendonitis in the elbow, but it's not the "on fire" version that I used to have around most of my joints pre-gf diet. By the way, I studied and found a way to keep Mother from sliding down in the bed as puling her up every time we turned her in bed was wearing out my elbows. Now we almos never have to pull her up in bed, so elbows are fine. I would hate to think of what those elbows and wrists would feel like if I were having to do alot of lifting and stressing several joints if I hadn't gotten off the gluten.
Not sure I would've been able to take care of my mother. Almost wasn't able to take care of my uncle before her because I was so sick prior to the diagnosis and finding the original gang on the original site from whence this one sprang. I think it would've just multiplied the pain many times over and above what the instigating stress would've caused. The global nature of it all over the body should've made me wonder if there wasn't a connection to the GI symptoms, but I just didn't put all the autoimmune stuff together back then -- it was all I could do to get up in the morning and do what I had to do.
Don't know why some of us have sooo many more symptoms and conditions than others, but a few is bad enough to want to quickly get rid of by whatever means you can.
Let us know how you are progressing on the road to health.
Yours, Luce
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pinballwizard
- Little Blue Penguin
- Posts: 25
- Joined: Thu Jul 16, 2009 8:43 pm
- Location: San Francisco, CA
I have been at http://health.groups.yahoo.com/group/fqtoxicity/ for the last few days. I have finally found my home guys. AND, you helped me along the way. Like I said before, I don't have a lot of digestive problems. Its not a complaint of mine.
If you know anyone has taken levaquin, Cipro or any other of the fluoroquin family of antibiotics please go there. You don't need a burst tendon.
Symptoms include:
*Brain fog
*Systemic tendonitis
*muscle burning pain
*other soft tissue problems (joint, ligament)
*muscle twitching
*hearing problems
*irregular heartbeats
*nightsweats
*tingling
I have had only the first 4 problems and its usually the first 2 that bother me.
I will be back to talk about the relapsing on these symptoms. There appears to be a food connection with people that have this problem. The foods that they are sighting so far are:
Soy
Hummus
inorganic meats (like KFC chicken that has a cipro in it or fast food places. Farmed fish is another example)
Things that have seemed to help are alkaline foods and stuff (alka seltzer gold, baking powder)
Bromelaine
Magnesium
whey protein
glutathione (perhaps)
If you know anyone has taken levaquin, Cipro or any other of the fluoroquin family of antibiotics please go there. You don't need a burst tendon.
Symptoms include:
*Brain fog
*Systemic tendonitis
*muscle burning pain
*other soft tissue problems (joint, ligament)
*muscle twitching
*hearing problems
*irregular heartbeats
*nightsweats
*tingling
I have had only the first 4 problems and its usually the first 2 that bother me.
I will be back to talk about the relapsing on these symptoms. There appears to be a food connection with people that have this problem. The foods that they are sighting so far are:
Soy
Hummus
inorganic meats (like KFC chicken that has a cipro in it or fast food places. Farmed fish is another example)
Things that have seemed to help are alkaline foods and stuff (alka seltzer gold, baking powder)
Bromelaine
Magnesium
whey protein
glutathione (perhaps)
I'm very happy you are finding some answers, PBW, and have found a place with answers to your situation and I want to thank you for enlightening me to what was likely the beginning of my own issues, as somehow as vigilant as I've been, I never connected my use of antibiotics to MC before now.
I have a friend who has been through a bone marrow transplant, 2 yrs. ago, after 5 years of Non Hodgkins Lymphoma and literally been nearly killed several times in order that she is now cancer free, which is a miracle that she even found a donor. BUT - she is now in the hospital again because of D and losing 15 lbs. in 2 1/2 wks and guess what they gave her.....massive antibiotics. This is at City of Hope, you'd think they'd know. Fully expect to hear they have her on steroids any day now.
Will be very curious to know what else you learn about foods, etc. and will visit that site when I have time. Good luck.
I have a friend who has been through a bone marrow transplant, 2 yrs. ago, after 5 years of Non Hodgkins Lymphoma and literally been nearly killed several times in order that she is now cancer free, which is a miracle that she even found a donor. BUT - she is now in the hospital again because of D and losing 15 lbs. in 2 1/2 wks and guess what they gave her.....massive antibiotics. This is at City of Hope, you'd think they'd know. Fully expect to hear they have her on steroids any day now.
Will be very curious to know what else you learn about foods, etc. and will visit that site when I have time. Good luck.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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pinballwizard
- Little Blue Penguin
- Posts: 25
- Joined: Thu Jul 16, 2009 8:43 pm
- Location: San Francisco, CA
I have done the elimination diet for 2 weeks. My ND said I had to be eliminating for 3 weeks at least. She said it takes 3 months to get allergic foods out of your system. All I have is enough energy to be on a tight diet for 2 weeks. I am eating gluten pancakes right now and I had 6 pieces of wheat bread last night and some pancakes this morning. There as not much of a reaction last night. This morning more so. I will keep you posted as I have my last gluten meal today.
I guess the reason why I write is that I am wondering if 2 weeks was good enough for abstaining from gluten, soy, nightshades, fructose, and nitrates in order to start the challenger portion.
People with quinolone reactions to drugs are often sensitive to soy and other foods.
Thanks.
I guess the reason why I write is that I am wondering if 2 weeks was good enough for abstaining from gluten, soy, nightshades, fructose, and nitrates in order to start the challenger portion.
People with quinolone reactions to drugs are often sensitive to soy and other foods.
Thanks.
The stool test offered by Enterolab is so sensitive that it can reliably detect antibodies to gluten, at least a full year after all traces of gluten have been removed from the diet. In many cases, it can detect them up to two years after all traces of gluten have been removed from the diet. For all other allergenic proteins, (other than gluten), two weeks may be long enough.
Roughly 50% of us are sensitive to soy, whether we have adverse reactions to the quinolone-based drugs, or not.
Tex
Roughly 50% of us are sensitive to soy, whether we have adverse reactions to the quinolone-based drugs, or not.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex wrote
Best, Ant
Would this be THE evidence as to why it can take so long for MC symptoms to go into lasting remission even when some of us have gone GF for a long time? Also, would this also be the case for tissue Fecal Anti-tissue Transglutaminase IgA after going GF for a few years?In many cases, it can detect them up to two years after all traces of gluten have been removed from the diet.
Best, Ant