Thank you, Gloria, I won't be surprised if you see a sister or two of mine on here shortly. The list of auto-immune diseases that my siblings and our mother have all had and have is staggering. The sister I referred to above has 4 children. I've now learned that the oldest has had part of his intestine removed - he is a doctor. Two of his daughters are being treated for Crohns and IBS. One of them is a nursing student. I don't know if you saw the post by Dr. Mark Hyman on HuffPo the other day: http://www.huffingtonpost.com/dr-mark-h ... 79089.html It's so interesting to see the discussion on this - the usual naysayers pop up, but the vast majority of people who responded have been where we've been.
I am just so grateful for this site and the information gathered here and so thankful that we have all found some answers and stopped what would likely have been a downward health spiral for all of us.
Here's to a great 2010 and beyond.
Enterolab Results for HLA-DQ Gene Molecular Analysis
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Stanz,
It's great to see a post from you again, and thanks for such an upbeat undate. I'm glad to see that your symptoms are so much better.
Lucky you - very few of us are not sensitive to casein, in addition to gluten. Since you tested negative to casein, (and your symptoms have pretty much disappeared, there's a very good chance that gluten may be your only significant food sensitivity. In the event that your remission should head south, though, please don't be discouraged, because often, the immune system only notices secondary food intolerances after the GF diet has brought remission, and the anti-gliadin antibodies have begun to diminish. If that happens, soy would probably be the most likely suspect. Since you're not sensitive to casein, though, I'm guessing that you are not likely to develop any more food intolerances.
Note that you are the very first member that I'm aware of, who has double DQ genes, (double DQ1, in your case), who did not have multiple intolerances. Most members with double DQ genes have many intolerances, and experience a lot of difficulty in achieving remission. Apparently the "double DQ" rule is not iron clad.
Since you posted your test results, I'll assume that you won't mind if I add them to our collection. If you would rather I didn't, though, please let me know.
Thanks for the test information, and the update on your condition.
Tex
It's great to see a post from you again, and thanks for such an upbeat undate. I'm glad to see that your symptoms are so much better.
Lucky you - very few of us are not sensitive to casein, in addition to gluten. Since you tested negative to casein, (and your symptoms have pretty much disappeared, there's a very good chance that gluten may be your only significant food sensitivity. In the event that your remission should head south, though, please don't be discouraged, because often, the immune system only notices secondary food intolerances after the GF diet has brought remission, and the anti-gliadin antibodies have begun to diminish. If that happens, soy would probably be the most likely suspect. Since you're not sensitive to casein, though, I'm guessing that you are not likely to develop any more food intolerances.
Note that you are the very first member that I'm aware of, who has double DQ genes, (double DQ1, in your case), who did not have multiple intolerances. Most members with double DQ genes have many intolerances, and experience a lot of difficulty in achieving remission. Apparently the "double DQ" rule is not iron clad.
Since you posted your test results, I'll assume that you won't mind if I add them to our collection. If you would rather I didn't, though, please let me know.
Thanks for the test information, and the update on your condition.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I will check out your BIL on HuffPo, Joan, I guess you may have figured out that I am Craftyone on Huffpo. I was careful in what I posted not to link to anything in my first post because the naysayers were out in force and I didn't want to be accused of an "agenda".
Thanks for the welcome back Tex, I think I am done with childbirth as I don't believe I have anymore grandchildren planned. This one was tough, but had a very happy ending and I now have a beautiful new grandson. I am so glad I was there, though and left them with a clean house and a freezer full of prepared meals. I know I was needed and I had to intervene when we had a nurse that was a major negative pain - took her into the hallway and expressed my feelings that she was NOT helping and in fact HURTING - whereupon she said she was off shift in 45 min. so I didn't have to worry about it much longer. Fortunately all the rest of the hospital staff that attended her for the LONG labor were midwives/RN's. Hopefully the little guy's food issues only relate to being fed formula when he had a slight case of jaundice. He is only on breastmilk now, but then there's the whole genetic thing and....well...I guess it's just better to know what I know in any case. After this experience I'm thinking a home birth might not be such a bad idea. They give new parents TMI and TM conflicting information. How anyone our generation lived to adulthood is apparently amazing w/o lactation counselors and breast pumps.
I hadn't realized I was so "special" in that I am not positive for casein, but rest assured I will be on the lookout should my condition go south. I would be honored if you added my results to your collection. I couldn't figure out how to do that myself. I truly hope that the "double DQ" rule is not iron clad in my case. Perhaps I should change my name to Double DQ1, has a nice ring.
I just feel so fortunate to have a ND who has treated me with such respect and confidence. I researched, I called him with my questions and possible answers, he investigated and helped me decide what to do. We should all be this lucky, if indeed I have resolved this. I am on a mission now. Can you see any reason why I should NOT write to the GI Dr. who did my colonoscopy and had recommended Entocort but was supportive of my trying other means? If we don't tell our MD's what we've done, how will they ever learn? Clearly they are plugged into the pharmaceuticals for research and $.
Thanks for the welcome back Tex, I think I am done with childbirth as I don't believe I have anymore grandchildren planned. This one was tough, but had a very happy ending and I now have a beautiful new grandson. I am so glad I was there, though and left them with a clean house and a freezer full of prepared meals. I know I was needed and I had to intervene when we had a nurse that was a major negative pain - took her into the hallway and expressed my feelings that she was NOT helping and in fact HURTING - whereupon she said she was off shift in 45 min. so I didn't have to worry about it much longer. Fortunately all the rest of the hospital staff that attended her for the LONG labor were midwives/RN's. Hopefully the little guy's food issues only relate to being fed formula when he had a slight case of jaundice. He is only on breastmilk now, but then there's the whole genetic thing and....well...I guess it's just better to know what I know in any case. After this experience I'm thinking a home birth might not be such a bad idea. They give new parents TMI and TM conflicting information. How anyone our generation lived to adulthood is apparently amazing w/o lactation counselors and breast pumps.
I hadn't realized I was so "special" in that I am not positive for casein, but rest assured I will be on the lookout should my condition go south. I would be honored if you added my results to your collection. I couldn't figure out how to do that myself. I truly hope that the "double DQ" rule is not iron clad in my case. Perhaps I should change my name to Double DQ1, has a nice ring.
I just feel so fortunate to have a ND who has treated me with such respect and confidence. I researched, I called him with my questions and possible answers, he investigated and helped me decide what to do. We should all be this lucky, if indeed I have resolved this. I am on a mission now. Can you see any reason why I should NOT write to the GI Dr. who did my colonoscopy and had recommended Entocort but was supportive of my trying other means? If we don't tell our MD's what we've done, how will they ever learn? Clearly they are plugged into the pharmaceuticals for research and $.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Congratulations on the new grandson. I hope he can bypass any adverse genetic issues, but in case he doesn't thrive, at least he's lucky to have a grandmother who already knows what to do, in that event.
By all means, if your GI doc is open-minded, share your success story with him or her. Patient feedback is best link with reality, that a doctor can have, IMO.
quote="Stanz"]If we don't tell our MD's what we've done, how will they ever learn?[/quote]
That's right on target, I believe. Sadly, if we don't share information with them, or if they aren't willing to listen, then they may never learn, because they obviously aren't learning everything they need to know in med school.
Thanks again. I've got to try to find some time to read that blog. There never seem to be enough hours in the day.
Tex
By all means, if your GI doc is open-minded, share your success story with him or her. Patient feedback is best link with reality, that a doctor can have, IMO.
quote="Stanz"]If we don't tell our MD's what we've done, how will they ever learn?[/quote]
That's right on target, I believe. Sadly, if we don't share information with them, or if they aren't willing to listen, then they may never learn, because they obviously aren't learning everything they need to know in med school.
Thanks again. I've got to try to find some time to read that blog. There never seem to be enough hours in the day.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I will write to my MD and my GI and tell them what I've done, don't imagine that it can hurt my medical record any at this point.
If you recall the earlier post that linked to a video of my great-niece, she is the one with Crohn's. Clearly she is in a position to do some good. Her grandma, my sister, will likely be checking in here before long, as I have just shared all of this with her this week.
And I neglected in my previous post to say how grateful I am for the support and the information from the shared knowledge of those who have gone before me in this journey. If I had not found this place I would not have had the information that I researched and that has apparently helped me to regain my health. I know I am not completely out of the woods yet, but as I said on HuffPo, a small bit of gluten on Christmas day in the form of breaded onion rings in a green bean casserole that my SIL requested, made me sick for the better part of 2 days.
I didn't post a link to this site on HuffPo. If someone else does, maybe it will have more credence.
If you recall the earlier post that linked to a video of my great-niece, she is the one with Crohn's. Clearly she is in a position to do some good. Her grandma, my sister, will likely be checking in here before long, as I have just shared all of this with her this week.
And I neglected in my previous post to say how grateful I am for the support and the information from the shared knowledge of those who have gone before me in this journey. If I had not found this place I would not have had the information that I researched and that has apparently helped me to regain my health. I know I am not completely out of the woods yet, but as I said on HuffPo, a small bit of gluten on Christmas day in the form of breaded onion rings in a green bean casserole that my SIL requested, made me sick for the better part of 2 days.
I didn't post a link to this site on HuffPo. If someone else does, maybe it will have more credence.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
We're very happy that you were able to utilize some of the information here, to enable you to take the steps that were necessary to get your health back. And the fact that you're able to help some of your own family members to resolve similar digestive system problems, is very gratifying. As the word gets around, if enough people get their health back on track this way, the doctors will eventually be pressured to sit up and take notice.
Thanks for the kind words.
Tex
Thanks for the kind words.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I am curious, having looked at the genes that many of us share, if it is possible that Nationality plays a part in genetics. My test showed that both of my parents had at least one copy of the gene. We are Swedish, and both families have done their family trees and go back to pure Swedish into the 16th century. Has anyone else noticed this in their family history?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
You're right on target with your assessment of our common genetics. We probably should do a survey on this, (we've done surveys on practically everything else that might be linked with MC), but we've always just accepted the findings of scientists such as Dr. Lorin Cordain, who points out in his book, Paleo Diet, that most people with our genetics, are not yet adapted to be able to handle grains and dairy. I feel sure that if we were to do a survey, we would find that most of us link back to British Isles/Scandinavia/Western Europe ancestry, where the early hunter-gatherers lived, and ate the paleo diet.
Quoting Polly, from a post that she wrote about a year ago:
So yes, our ancestry plays a vital part in the reason why we have the genes that make us susceptible to gluten-sensitivity/MC/celiac disease.
Tex
Quoting Polly, from a post that she wrote about a year ago:
http://www.perskyfarms.com/phpBB2/viewt ... rgatherersMany believe this diet may be the healthiest for most people. In fact, anthropologists have found (from fossils or however they do it) that our ancestors on the hunter-gatherer diet were taller, longer-lived, healthier, and had better teeth than those who later began farming and ate mainly grains.
So yes, our ancestry plays a vital part in the reason why we have the genes that make us susceptible to gluten-sensitivity/MC/celiac disease.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I really need to get to work for my next 2 days of catering, but I am fascinated with this. I hadn't read this page from Enterolab before. I'd be really curious to see a survey done on this, Tex.
From this link on Enterolab: http://www.enterolab.com/StaticPages/Fa ... tation.htm
Why are gene results so complicated, and which genes predispose to gluten sensitivity/celiac sprue?
Gene tests for gluten sensitivity, and other immune reactions are HLA (human leukocyte antigen), specifically HLA-DQ, and even more specifically, HLA-DQB1. The nomenclature for reporting HLA gene results has evolved over the last two decades as technology has advanced. Even though the latest technology (and the one we employ at EnteroLab for gene testing) involves sophisticated molecular analysis of the DNA itself, the commonly used terminology for these genes in the celiac literature (lay and medical) reflects past, less specific, blood cell-based (serologic) antigenic methodology. Thus, we report this older "serologic" type (represented by the numbers 1-4, e.g., DQ1, DQ2, DQ3, or DQ4), in addition to the integeric subtypes of these oldest integeric types (DQ5 or DQ6 as subtypes of DQ1; and DQ7, DQ8, and DQ9 as subtypes of DQ3). The molecular nomenclature employs 4 or more integers accounting together for a molecular allele indicated by the formula 0yxx, where y is 2 for DQ2, 3 for any subtype of DQ3, 4 for DQ4, 5 for DQ5, or 6 for DQ6. The x's (which commonly are indicated by 2 more numbers but can be subtyped further with more sophisticated DNA employed methods) are other numbers indicating the more specific sub-subtypes of DQ2, DQ3 (beyond 7, 8, and 9), DQ4, DQ5, and DQ6. It should be noted that although the older serologic nomenclature is less specific in the sense of defining fewer different types, in some ways it is the best expression of these genes because it is the protein structure on the cells (as determined by the serologic typing) that determines the gene's biologic action such that genes with the same serologic type function biologically almost identically. Thus, HLA-DQ3 subtype 8 (one of the main celiac genes) acts almost identically in the body as HLA-DQ3 subtype 7, 9, or other DQ3 sub-subtypes. Having said all this, it should be reiterated that gluten sensitivity underlies the development of celiac sprue. In this regard, it seems that in having DQ2 or DQ3 subtype 8 (or simply DQ8) are the two main HLA-DQ genes that account for the villous atrophy accompanying gluten sensitivity (in America, 90% of celiacs have DQ2 [a more Northern European Caucasian gene], and 9% have DQ8 [a more southern European/Mediterranean Caucasian gene], with only 1% or less usually having DQ1 or DQ3). However, it seems for gluten sensitivity to result in celiac sprue (i.e., result in villous atrophy of small intestine), it requires at least 2 other genes also. Thus, not everyone with DQ2 or DQ8 get the villous atrophy of celiac disease. However, my hypothesis is that everyone with these genes will present gluten to the immune system for reaction, i.e., will be gluten sensitive. My and other published research has shown that DQ1 and DQ3 also predispose to gluten sensitivity, and certain gluten-related diseases (microscopic colitis for DQ1,3 in my research and gluten ataxia for DQ1 by another researcher). And according to my more recent research, when DQ1,1 or DQ3,3 are present together, the reactions are even stronger than having one of these genes alone (like DQ2,2, DQ2,8, or DQ8,8 can portend a more severe form of celiac disease).
From this link on Enterolab: http://www.enterolab.com/StaticPages/Fa ... tation.htm
Why are gene results so complicated, and which genes predispose to gluten sensitivity/celiac sprue?
Gene tests for gluten sensitivity, and other immune reactions are HLA (human leukocyte antigen), specifically HLA-DQ, and even more specifically, HLA-DQB1. The nomenclature for reporting HLA gene results has evolved over the last two decades as technology has advanced. Even though the latest technology (and the one we employ at EnteroLab for gene testing) involves sophisticated molecular analysis of the DNA itself, the commonly used terminology for these genes in the celiac literature (lay and medical) reflects past, less specific, blood cell-based (serologic) antigenic methodology. Thus, we report this older "serologic" type (represented by the numbers 1-4, e.g., DQ1, DQ2, DQ3, or DQ4), in addition to the integeric subtypes of these oldest integeric types (DQ5 or DQ6 as subtypes of DQ1; and DQ7, DQ8, and DQ9 as subtypes of DQ3). The molecular nomenclature employs 4 or more integers accounting together for a molecular allele indicated by the formula 0yxx, where y is 2 for DQ2, 3 for any subtype of DQ3, 4 for DQ4, 5 for DQ5, or 6 for DQ6. The x's (which commonly are indicated by 2 more numbers but can be subtyped further with more sophisticated DNA employed methods) are other numbers indicating the more specific sub-subtypes of DQ2, DQ3 (beyond 7, 8, and 9), DQ4, DQ5, and DQ6. It should be noted that although the older serologic nomenclature is less specific in the sense of defining fewer different types, in some ways it is the best expression of these genes because it is the protein structure on the cells (as determined by the serologic typing) that determines the gene's biologic action such that genes with the same serologic type function biologically almost identically. Thus, HLA-DQ3 subtype 8 (one of the main celiac genes) acts almost identically in the body as HLA-DQ3 subtype 7, 9, or other DQ3 sub-subtypes. Having said all this, it should be reiterated that gluten sensitivity underlies the development of celiac sprue. In this regard, it seems that in having DQ2 or DQ3 subtype 8 (or simply DQ8) are the two main HLA-DQ genes that account for the villous atrophy accompanying gluten sensitivity (in America, 90% of celiacs have DQ2 [a more Northern European Caucasian gene], and 9% have DQ8 [a more southern European/Mediterranean Caucasian gene], with only 1% or less usually having DQ1 or DQ3). However, it seems for gluten sensitivity to result in celiac sprue (i.e., result in villous atrophy of small intestine), it requires at least 2 other genes also. Thus, not everyone with DQ2 or DQ8 get the villous atrophy of celiac disease. However, my hypothesis is that everyone with these genes will present gluten to the immune system for reaction, i.e., will be gluten sensitive. My and other published research has shown that DQ1 and DQ3 also predispose to gluten sensitivity, and certain gluten-related diseases (microscopic colitis for DQ1,3 in my research and gluten ataxia for DQ1 by another researcher). And according to my more recent research, when DQ1,1 or DQ3,3 are present together, the reactions are even stronger than having one of these genes alone (like DQ2,2, DQ2,8, or DQ8,8 can portend a more severe form of celiac disease).
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Sure, I'll set up a survey. The results should be interesting.
Incidentally, thanks for posting that link. I hadn't read that page in several years, and for some reason or other, either I overlooked, or forgot about Dr. Fine's all-important observation:
So how is it that the medical profession has been, for the most part, almost completely overlooking the most common disease in the world, for so many years? IMO, relegating celiac disease and MC to the status of a "rare" or "uncommon" disease, that is mostly overlooked by most doctors, and totally denying the existence of non-celiac gluten-sensitivity, (NCGS), when patients present with typical GS symptoms, is, (and has been, for thousands of years), sufficient evidence that the profession is indeed, (for the most part), generally overlooking the disease. How blind can they be?
Tex
Incidentally, thanks for posting that link. I hadn't read that page in several years, and for some reason or other, either I overlooked, or forgot about Dr. Fine's all-important observation:
That suggests that everyone with those genes will be gluten sensitive, (whether they are symptomatic, or not, and whether they show villus atrophy, or not). That implies that roughly a third of the population, (of European ancestry), are/will be gluten sensitive. Unless I'm overlooking something, that should make gluten-sensitivity the most common disease in the world.Thus, not everyone with DQ2 or DQ8 get the villous atrophy of celiac disease. However, my hypothesis is that everyone with these genes will present gluten to the immune system for reaction, i.e., will be gluten sensitive.
So how is it that the medical profession has been, for the most part, almost completely overlooking the most common disease in the world, for so many years? IMO, relegating celiac disease and MC to the status of a "rare" or "uncommon" disease, that is mostly overlooked by most doctors, and totally denying the existence of non-celiac gluten-sensitivity, (NCGS), when patients present with typical GS symptoms, is, (and has been, for thousands of years), sufficient evidence that the profession is indeed, (for the most part), generally overlooking the disease. How blind can they be?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Well, you are a smart guy, Tex, and I may be new here, but I am well acquainted with the way Western Med. works. It is a rare study that is not funded by a pharmaceutical company. It is a rare doctor who doesn't take the advice of the "nice' people who call on them and give them stuff and sell them on their products.
Our doctors have NO time, they are scheduled a max of 15 mins. per patient, and if they want to be a better doctor then they are also being screwed because the pharmaceuticals are funding everything and they rule the world. So, if they have a wife or a husband or a kid or two at home and they just want to do their time and go home and have a life like most of us do... well then we need to be our own doctors and this is what I have been fighting for over 20 years in trying to find an answer to my health issues. I have a doctor in my family - a doctor who has two daughters on entocort, a doctor who has had part of his intestine removed. I don't know what else to say. What else do they need to know??? I don't choose to believe they don't care, I have a ND who cares, I care, you care, as hard as it is to believe, the reality is that we don't have the "family doc" anymore. Maybe there is still a rare one out there, but until and unless this country has an actual health policy that isn't dominated by the pharmaceutical industry, we will never have decent care in the US.
I know I am treading on being political here, and regardless of my political bent, I would say that BOTH parties have had a come to Jesus moment with the pharmaceuticals, or we would not have this debate continuing. Our healthcare, our HEALTH, should not be a political issue. I will STFU now.
Our doctors have NO time, they are scheduled a max of 15 mins. per patient, and if they want to be a better doctor then they are also being screwed because the pharmaceuticals are funding everything and they rule the world. So, if they have a wife or a husband or a kid or two at home and they just want to do their time and go home and have a life like most of us do... well then we need to be our own doctors and this is what I have been fighting for over 20 years in trying to find an answer to my health issues. I have a doctor in my family - a doctor who has two daughters on entocort, a doctor who has had part of his intestine removed. I don't know what else to say. What else do they need to know??? I don't choose to believe they don't care, I have a ND who cares, I care, you care, as hard as it is to believe, the reality is that we don't have the "family doc" anymore. Maybe there is still a rare one out there, but until and unless this country has an actual health policy that isn't dominated by the pharmaceutical industry, we will never have decent care in the US.
I know I am treading on being political here, and regardless of my political bent, I would say that BOTH parties have had a come to Jesus moment with the pharmaceuticals, or we would not have this debate continuing. Our healthcare, our HEALTH, should not be a political issue. I will STFU now.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Well, you've said the "secret word", (as Groucho Marx used to say), so here's your gold star: 
I can't disagree with anything you've said, (since I've posted virtually the same viewpoint, at least several times, over the past few years), except that I do have an old-fashioned, small town, family doc. Unfortunately, though, he seems to have evolved to where he doesn't really give a crap either.
And just like the rest of 'em, he seems to be the happiest, when he's writing a prescription. 
So I suppose that's further evidence that, as you say, "we don't have the 'family doc' anymore".
Tex
I can't disagree with anything you've said, (since I've posted virtually the same viewpoint, at least several times, over the past few years), except that I do have an old-fashioned, small town, family doc. Unfortunately, though, he seems to have evolved to where he doesn't really give a crap either.
And just like the rest of 'em, he seems to be the happiest, when he's writing a prescription. So I suppose that's further evidence that, as you say, "we don't have the 'family doc' anymore". Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you for the gold star, I really mean that, as I have nothing but the highest respect for everything you say, as I think we are kindred souls here.
I didn't have internet when I figured out that I had lead poisoning. I cannot imagine where I would be now if I hadn't had chelation for that and I know there are many in my family that think I was a bit crazy when I did that, whatever...I have to live with the joint damage I have because of that. I guess I have to live with the joint damage that has accrued since then, before I found the gluten connection. I will never take the meds that were prescribed, as they are poison. I am SO SAD to see that I have grandnieces who are already on steroids in their teens and twenties.
Now that I have the Internet to research I am just frankly shocked that there is anyone who isn't researching their own health history to try to find out what is wrong with them. It is my job now to educate and I hope that my family will learn from my experience. My brother went GF the day I sent him my test results.
I still intend to send my MD and the GI doctor who did my colonscopy my results from Enterolab as well as my experience with my own protocol that I established only with the help and respect and cooperation of my ND. I dropped off a copy of my results yesterday so he could see what they said, he called and left a message today saying that he has been referring Enterolab for the last few months and was so glad to see that I had an answer to what we thought was the problem. Can't think of when I was EVER able to actually TALK to my MD. The family doc is non-existent.
I didn't have internet when I figured out that I had lead poisoning. I cannot imagine where I would be now if I hadn't had chelation for that and I know there are many in my family that think I was a bit crazy when I did that, whatever...I have to live with the joint damage I have because of that. I guess I have to live with the joint damage that has accrued since then, before I found the gluten connection. I will never take the meds that were prescribed, as they are poison. I am SO SAD to see that I have grandnieces who are already on steroids in their teens and twenties.
Now that I have the Internet to research I am just frankly shocked that there is anyone who isn't researching their own health history to try to find out what is wrong with them. It is my job now to educate and I hope that my family will learn from my experience. My brother went GF the day I sent him my test results.
I still intend to send my MD and the GI doctor who did my colonscopy my results from Enterolab as well as my experience with my own protocol that I established only with the help and respect and cooperation of my ND. I dropped off a copy of my results yesterday so he could see what they said, he called and left a message today saying that he has been referring Enterolab for the last few months and was so glad to see that I had an answer to what we thought was the problem. Can't think of when I was EVER able to actually TALK to my MD. The family doc is non-existent.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.