Oh, Gloria,
I can only imagine how much regret your DH is feeling for this and how frustrating it was for you not to have documentation in writing for what was said to you by the doctor. STRESS-In all it's lovely forms - if it wasn't so sad it would be a funny TV sketch.
Yes, it has been a pretty eventful month for all of you. This was your time to be heard and hopefully since you're not having any complications right now, this can wait for awhile to see what you need to do next. Hopefully your ins. company will allow you another opinion, if this is what you would be comfortable with.
Will be thinking of you.
Connie
A Serious Problem
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Gloria,
Wow! It seems that there's never a dull moment in your life, these days. This was quite a day. I agree that your DH could probably benefit from your attention to detail, with his diet. I hope he's returned to feeling normal, by now.
I have to say that I like the opinion and advice of the neuro that you visited today. I've always been a firm believer in the benefits of leaving sleeping dogs lie. I certainly agree that with no symptoms, having surgery at this point, might just be subjecting yourself to unnecessary risk, with little to gain.
Tex
Wow! It seems that there's never a dull moment in your life, these days. This was quite a day. I agree that your DH could probably benefit from your attention to detail, with his diet. I hope he's returned to feeling normal, by now.
I have to say that I like the opinion and advice of the neuro that you visited today. I've always been a firm believer in the benefits of leaving sleeping dogs lie. I certainly agree that with no symptoms, having surgery at this point, might just be subjecting yourself to unnecessary risk, with little to gain.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Gloria,
That sounds like one doozy of a visit. You must be in shock! DH was probably stressed as well and that contributed to the blood sugar drop - we forget how stressful it is supporting someone through this stuff.
A third opinion sounds like a very wise thing to do in this situation. It's your health at stake, and you have the right to be absolutely sure.
Best wishes.
Lyn
That sounds like one doozy of a visit. You must be in shock! DH was probably stressed as well and that contributed to the blood sugar drop - we forget how stressful it is supporting someone through this stuff.
A third opinion sounds like a very wise thing to do in this situation. It's your health at stake, and you have the right to be absolutely sure.
Best wishes.
Lyn
Yes, DH said that he believes that the stress of considering the surgery probably contributed to his drop in blood sugar. He doesn't show his feelings very much and I didn't realize he was so stressed. He slept for three hours after we got home.
I spent some time yesterday looking at brain tumor support groups - I hadn't even thought about looking before. It was pretty scary to read the side effects some had from the surgery: droopy eyelids, inability to move one side of the face, change in personality, etc. One person said her neuro said it could take 2-3 years to regain some of her functions. I'm pretty relieved that I'm not going to have the surgery.
That said, I am still considering seeing a 3rd neuro, primarily because I'll be needing to get followup MRIs and I think the first one I saw is not experienced enough. The 2nd neuro is about an hour from my house and didn't seem to think that I needed to see him on a regular basis. Right now I am feeling drained and am taking a few days to unwind. I'm looking forward to going to Florida (if it ever warms up there).
I am so glad that I have this support group. I trust your advice and know that you care. If anything changes, you will be among the first to know - I'm
that it won't change.
Gloria
I spent some time yesterday looking at brain tumor support groups - I hadn't even thought about looking before. It was pretty scary to read the side effects some had from the surgery: droopy eyelids, inability to move one side of the face, change in personality, etc. One person said her neuro said it could take 2-3 years to regain some of her functions. I'm pretty relieved that I'm not going to have the surgery.
That said, I am still considering seeing a 3rd neuro, primarily because I'll be needing to get followup MRIs and I think the first one I saw is not experienced enough. The 2nd neuro is about an hour from my house and didn't seem to think that I needed to see him on a regular basis. Right now I am feeling drained and am taking a few days to unwind. I'm looking forward to going to Florida (if it ever warms up there).
I am so glad that I have this support group. I trust your advice and know that you care. If anything changes, you will be among the first to know - I'm
that it won't change.Gloria
You never know what you can do until you have to do it.
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faithberry
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Gloria,
I had a similar experience once. When I was 15 I had surgery on my eyes and they looked really gross and bloody afterwards. A friend came to visit, took one look at me, fainted and hit her head on the tray table and ended up in the ER. I'll never forget it. Glad to hear DH was OK.
My sister has a friend with a similar story to yours. She has a brain tumor and is asymptomatic - she was told it was inoperable. She was very freaked out about it initially and imagined the worst, but they have simply been watching it for a few years now and it hasn't changed. I am hoping that you have a similar course and no surgery will be necesary.
Take care,
Mary Beth
I had a similar experience once. When I was 15 I had surgery on my eyes and they looked really gross and bloody afterwards. A friend came to visit, took one look at me, fainted and hit her head on the tray table and ended up in the ER. I'll never forget it. Glad to hear DH was OK.
My sister has a friend with a similar story to yours. She has a brain tumor and is asymptomatic - she was told it was inoperable. She was very freaked out about it initially and imagined the worst, but they have simply been watching it for a few years now and it hasn't changed. I am hoping that you have a similar course and no surgery will be necesary.
Take care,
Mary Beth
