Hi Ant!
How about a progress report? I notice that you are in the same boat as I with the multiple intolerances (MIs). In fact, I was the first one to discover MIs, at a time when most here were doing fine just eliminating gluten or gluten/dairy. It was so discouraging. Anyway, I am particularly interested in how your diet is going.......how long has it been since you eliminated certain foods? I'd love to see a sample day's menu! (Am always interested in what other MIs eat). It can take a long time to see results from diet - in my case almost 9 months.
Hope you are having a good weekend.
Love,
Polly
Paging Ant
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Paging Ant
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hey Polly,
As a fellow MI thought I would chime in. It's been one year since my D started and I am now under fairly good control. I don't have MC but I do have badly behaving mast cells that account for all of my symptoms, including D. I have finally figured out that my reactions are considered anaphylactic, complete with throat swelling, tachycardia etc at times. It's not systemic mastocytosis, thankfully. Even though I have figured out my food triggers I still react to many drugs, scents/fumes, and as crazy as it sounds, PMS (highly reactive during this phase). This year's Mastocytosis Society annual meeting will focus on nutrition, so I plan on going. I have also been asked to help them with a cookbook.
The only grains I can tolerate are white rice, corn, oats but I am very cautious not to overdo - I am worried about developing a new intolerance so I am on a rotation.. The lectins that are worst for me are peanut (scary reactions), gluten, and soy/all legumes. I can eat all meats but avoid all seafood due to the high histamine content, which triggers my mast cells.
I did the MRT test and it was incredibly accurate, except for the lectins, which it currently does not pick up. I followed the MRT plan and it really helped to isolate my sensitivites and hopefully prevented more from occuring. Based on those results I also avoid all spicy foods/curry, apples, blueberries, apricots, lecithin (I only eat egg in some baked products), lettuce, tapioca, almonds, yeast. I get mild reactions to sweet potato, avocado, and cabbage and a few other things but occasionally live dangerously and eat them. I also can't eat too much fruit. I am on the fence about dairy. My enterolab result was only 10 and my LEAP report said dairy was OK. I have had some butter and haven't had a problem. Doubt I will ever go back to eating lots of casein, but I may sneak some dairy fat - it used to be my favorite food group. Sigh.
Tonight for dinner we had roasted rosemary/garlic chicken, mashed potatoes and roasted carrots. For lunch we had leftover beef and butternut squash stew and for breakfast I had oatmeal with maple syrup. For snacks I had grapefruit, chocolate chips (dairy/soy free), canned peaches. I have no trouble with black coffee and drink it in the morning and at night. I used to love tea but it also aggravates my mast cells.
I am getting quite a collection of recipes and have even entertained a few times. I've had to completely change my eating habits (I used to live on salads) but I've settled in for the long haul.
Take care,
Mary Beth
As a fellow MI thought I would chime in. It's been one year since my D started and I am now under fairly good control. I don't have MC but I do have badly behaving mast cells that account for all of my symptoms, including D. I have finally figured out that my reactions are considered anaphylactic, complete with throat swelling, tachycardia etc at times. It's not systemic mastocytosis, thankfully. Even though I have figured out my food triggers I still react to many drugs, scents/fumes, and as crazy as it sounds, PMS (highly reactive during this phase). This year's Mastocytosis Society annual meeting will focus on nutrition, so I plan on going. I have also been asked to help them with a cookbook.
The only grains I can tolerate are white rice, corn, oats but I am very cautious not to overdo - I am worried about developing a new intolerance so I am on a rotation.. The lectins that are worst for me are peanut (scary reactions), gluten, and soy/all legumes. I can eat all meats but avoid all seafood due to the high histamine content, which triggers my mast cells.
I did the MRT test and it was incredibly accurate, except for the lectins, which it currently does not pick up. I followed the MRT plan and it really helped to isolate my sensitivites and hopefully prevented more from occuring. Based on those results I also avoid all spicy foods/curry, apples, blueberries, apricots, lecithin (I only eat egg in some baked products), lettuce, tapioca, almonds, yeast. I get mild reactions to sweet potato, avocado, and cabbage and a few other things but occasionally live dangerously and eat them. I also can't eat too much fruit. I am on the fence about dairy. My enterolab result was only 10 and my LEAP report said dairy was OK. I have had some butter and haven't had a problem. Doubt I will ever go back to eating lots of casein, but I may sneak some dairy fat - it used to be my favorite food group. Sigh.
Tonight for dinner we had roasted rosemary/garlic chicken, mashed potatoes and roasted carrots. For lunch we had leftover beef and butternut squash stew and for breakfast I had oatmeal with maple syrup. For snacks I had grapefruit, chocolate chips (dairy/soy free), canned peaches. I have no trouble with black coffee and drink it in the morning and at night. I used to love tea but it also aggravates my mast cells.
I am getting quite a collection of recipes and have even entertained a few times. I've had to completely change my eating habits (I used to live on salads) but I've settled in for the long haul.
Take care,
Mary Beth
Thank you for the update and the list of foods, Mary Beth. I've been wondering how you've been doing. You share the same genetic test results as Polly and me, so we're both interested in your progress.
I thought I'd post my sample menus here, too, though I'm in another flare.
I ate 1/4 cup of blueberries last week and I think they set it off. It appears that I'm unable to eat any fruit other than lemons and limes, and I'm even wondering about them.
Breakfast
Hot cream of buckwheat, rice, quinoa cereals with pumpkin pie spice and rice milk (all homemade)
homemade hash browns with sausage and tomatoes
1/4 cup unsweetened cranberry juice
Lunch
Kitchen Basics beef broth with hamburger, broccoli, cauliflower, potatoes or turnips or kohlrabi
Kitchen Basics chicken broth with Boar's Head turkey, rice noodles, broccoli and cauliflower.
Sometimes I substitute brown rice for the noodles or potatoes.
rice crackers with homemade guacamole or olive paste or sunflower butter
turkey or tuna sandwich with homemade bread and homemade mayonnaise
a blend of Almond Dream milk and homemade rice milk
occasionally tuna-macaroni salad
Snack
rice crackers with sunflower butter
olives
1 oz. Passover chocolate (lethicin-free)
Dinner
turkey, beef, chicken
broccoli, asparagus, cauliflower, brussel sprouts, turnips, kohlrabi, parsnips, occasionally beets
ghee with the above
rice, potatoes, rice pasta
a blend of Almond Dream milk and homemade rice milk
I've been trying to keep my sugar intake as low as possible because I thought I had Leaky Gut syndrome, so I've been using Aspertame as a sweetener, though not more than 1-2 packets a day. I've never noticed any problems with it. I've been making sugar-free jello and homemade pudding with a blend of Aspertame and sugar. I've also been drinking about 1 glass of lemon or lime water, sometimes sweetened with Aspertame. All other times I drink water.
I can't handle carrots, onions, red or green peppers, squash, yams or sweet potatoes. Carregeenan seems to be a problem, too.
I'm eliminating ghee, Aspertame, the cranberry juice and lime and lemon juices, jello and pudding for the next week to see if I can get the flare under control without increasing Entocort above 3 mg/day. If it works, it will be the first time. So far today, things have improved.
Gloria
I thought I'd post my sample menus here, too, though I'm in another flare.
I ate 1/4 cup of blueberries last week and I think they set it off. It appears that I'm unable to eat any fruit other than lemons and limes, and I'm even wondering about them. Breakfast
Hot cream of buckwheat, rice, quinoa cereals with pumpkin pie spice and rice milk (all homemade)
homemade hash browns with sausage and tomatoes
1/4 cup unsweetened cranberry juice
Lunch
Kitchen Basics beef broth with hamburger, broccoli, cauliflower, potatoes or turnips or kohlrabi
Kitchen Basics chicken broth with Boar's Head turkey, rice noodles, broccoli and cauliflower.
Sometimes I substitute brown rice for the noodles or potatoes.
rice crackers with homemade guacamole or olive paste or sunflower butter
turkey or tuna sandwich with homemade bread and homemade mayonnaise
a blend of Almond Dream milk and homemade rice milk
occasionally tuna-macaroni salad
Snack
rice crackers with sunflower butter
olives
1 oz. Passover chocolate (lethicin-free)
Dinner
turkey, beef, chicken
broccoli, asparagus, cauliflower, brussel sprouts, turnips, kohlrabi, parsnips, occasionally beets
ghee with the above
rice, potatoes, rice pasta
a blend of Almond Dream milk and homemade rice milk
I've been trying to keep my sugar intake as low as possible because I thought I had Leaky Gut syndrome, so I've been using Aspertame as a sweetener, though not more than 1-2 packets a day. I've never noticed any problems with it. I've been making sugar-free jello and homemade pudding with a blend of Aspertame and sugar. I've also been drinking about 1 glass of lemon or lime water, sometimes sweetened with Aspertame. All other times I drink water.
I can't handle carrots, onions, red or green peppers, squash, yams or sweet potatoes. Carregeenan seems to be a problem, too.
I'm eliminating ghee, Aspertame, the cranberry juice and lime and lemon juices, jello and pudding for the next week to see if I can get the flare under control without increasing Entocort above 3 mg/day. If it works, it will be the first time. So far today, things have improved.
Gloria
You never know what you can do until you have to do it.
Sorry to hear about your flare, Gloria. We eat similarly, except I don't use almond milk or eat bread. Almond Dream used to have carrageenan - has it been removed from the ingredient list?
I've often wondered if you and some others who struggle here have some overactive mast cells or have a disruption in some enzymes from gut damage. DAO is an enzyme that breaks down histamine, which is released from mast cells. Like me, you could have normal test results but still have mast cell problems. Might explain your non-cardiac chest pain as well. Not everyone "shocks" like me. Some people just "leak" contents from their mast cells. FYI, your sensitivity to pepto could also be related, as many of us can't tolerate aspirin . I could go on and on but won't - it's just something I've always wondered.
Hope you get to feeling better soon.
Mary Beth
I've often wondered if you and some others who struggle here have some overactive mast cells or have a disruption in some enzymes from gut damage. DAO is an enzyme that breaks down histamine, which is released from mast cells. Like me, you could have normal test results but still have mast cell problems. Might explain your non-cardiac chest pain as well. Not everyone "shocks" like me. Some people just "leak" contents from their mast cells. FYI, your sensitivity to pepto could also be related, as many of us can't tolerate aspirin . I could go on and on but won't - it's just something I've always wondered.
Hope you get to feeling better soon.
Mary Beth
Hi Marybeth and Gloria!
Thanks for sharing your progress. And also your menu suggestions. MIs become quite creative, don't we?
Marybeth,
It sounds as if you have come a long way.......and I know you've had to figure out so much on your own. Interesting that you have more of an anaphylactic response to foods. Have you been able to find any cause for this in your readings? Do you have a strong allergic history other than foods? If everything started one year ago, can you pinpoint any possible association with anything else?
Gloria,
I have not found any chocolate that I can tolerate - even those with no soy, dairy, etc. Sigh. Also I can't do any of the phony sugars. Instead of ghee, have you tried the Earth Balance soy-free spread? I used to have a lot of trouble with citrus, but that has improved.
Love,
Polly
Thanks for sharing your progress. And also your menu suggestions. MIs become quite creative, don't we?
Marybeth,
It sounds as if you have come a long way.......and I know you've had to figure out so much on your own. Interesting that you have more of an anaphylactic response to foods. Have you been able to find any cause for this in your readings? Do you have a strong allergic history other than foods? If everything started one year ago, can you pinpoint any possible association with anything else?
Gloria,
I have not found any chocolate that I can tolerate - even those with no soy, dairy, etc. Sigh. Also I can't do any of the phony sugars. Instead of ghee, have you tried the Earth Balance soy-free spread? I used to have a lot of trouble with citrus, but that has improved.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Polly,
My problems became evident with my anaphylactic flu shot reactions. It was determined that I was negative for an IgE allergy to the flus shot but I definitley had an anaphylactic response. People with mast cell disorders can have mast cell degranulation without binding to IgE, so it all makes sense now. I never have had IgE allergies - I always test negative. Again, I am what is known as a "shocker" but sometimes people are just "leakers", meaning their mast cells slowly leak mediators and the response isn't as dramatic as mine. Drug intolerances, like aspirin, beta blockers, opiates, contrast dyes etc can also be problematic.
Lectins are known mast cell degranulators, which is why I think there might be a connection for those who are lectin sensitive and struggling with symptoms. Mast cells are found in abundance in mucous membranes, the uterus, thyroid . . .and there can be many, many symptoms and everyone's symptoms could be different. Gut symptoms include GERD, N/V, D, gastroparesis etc. Not enough is known about mast cell disorders to say the cause, but it is not considered genetic at the present time, although there are sometimes tendencies in families, like mine.
In my case I kept eating lectins so I think I caused damage to my gut and lost some enzyme activity. Since I removed all foods that cause a big mediator response I think I encouraged healing and must have resumed some enzyme activity. If I am in the midst of an anaphylactic reaction I still have an urgent need for a BM.
Here is an article (theory only) that describes symptoms of histamine intolerance (histamine is one of the primary mediators released from mast cells). http://www.ajcn.org/cgi/reprint/85/5/1185
Take care,
Mary Beth
My problems became evident with my anaphylactic flu shot reactions. It was determined that I was negative for an IgE allergy to the flus shot but I definitley had an anaphylactic response. People with mast cell disorders can have mast cell degranulation without binding to IgE, so it all makes sense now. I never have had IgE allergies - I always test negative. Again, I am what is known as a "shocker" but sometimes people are just "leakers", meaning their mast cells slowly leak mediators and the response isn't as dramatic as mine. Drug intolerances, like aspirin, beta blockers, opiates, contrast dyes etc can also be problematic.
Lectins are known mast cell degranulators, which is why I think there might be a connection for those who are lectin sensitive and struggling with symptoms. Mast cells are found in abundance in mucous membranes, the uterus, thyroid . . .and there can be many, many symptoms and everyone's symptoms could be different. Gut symptoms include GERD, N/V, D, gastroparesis etc. Not enough is known about mast cell disorders to say the cause, but it is not considered genetic at the present time, although there are sometimes tendencies in families, like mine.
In my case I kept eating lectins so I think I caused damage to my gut and lost some enzyme activity. Since I removed all foods that cause a big mediator response I think I encouraged healing and must have resumed some enzyme activity. If I am in the midst of an anaphylactic reaction I still have an urgent need for a BM.
Here is an article (theory only) that describes symptoms of histamine intolerance (histamine is one of the primary mediators released from mast cells). http://www.ajcn.org/cgi/reprint/85/5/1185
Take care,
Mary Beth
Dear Polly
Here is my update.
But first, Gloria, so sorry you are in another flair and I do hope you get over it soon and can pinpoint what caused it. Your diet is pretty close to mine except I have cut out: tomatoes, buckwheat, quinoa and rice milk. I am also not pushing fruit (even cranberry too much) except occasionally as d-mannose. I also have not had potatoes for the last two weeks. Not deliberately, but because I find white rice easier and, when at restaurants, they do not seem to have baked potatoes easily available.
My diet in the couple of weeks tends to go as follows:
Pre breakfast 2 Entocort (as of the last 9 days; before that still 2 in the morning, but also 1 in the evening before supper)
Just before or during breakfast one vitamin D pill
Breakfast: rice cake, with shrimp and/or mushroom and/or bacon/ham, usually green tea but sometimes black tea. 2 Boswellia
Lunch (usually in a 'tamed' restaurant): Either vit B or zinc tablet (rotated with supper). Food usually chicken, fish, steak or pork, grilled in olive oil with steamed broccoli and/or carrots and/or cauliflower and steamed rice, balsamic vinegar and ground pepper for flavour. Drink; green tea and/or fresh lemon soda, sometimes a glass of dry red or white wine. 2 Boswellia.
Tea: unsalted nuts (hazel, walnut, almonds), green or black tea.
Evening drinks: red wine and nuts
Supper: Either vit B or zinc tablet (rotated with lunch). Like lunch but I try vary it: chicken, fish, steak or pork, grilled in olive oil with steamed broccoli and/or carrots and/or cauliflower and steamed rice, balsamic vinegar and ground pepper for flavour. Also sometimes a risotto and/or a mild curry of meat, fish or shellfish with rice, coconut milk, olive oil, onions, curry powder, cumin, turmeric, salt, pepper, wine vinegar, chives, lemon and lemongrass. Dry red or white wine. 2 Boswellia
There have been variations: e.g. I went to dinner the other night where we had a hot pot: water boiled shrimp, squid, Chinese mushroom, water chestnuts, beef, rice noodles, vegetables (not legumes). While others had soya source and garlic to dip the food into into I had balsamic and garlic. Hot pot should be boiled in stock, but my hostess had bought the stock so it could not be trusted and we decided to stick with water! (there was another hot pot on the table for others which was more adventurous - with the additions of tofu, Chinese dumplings etc...).
Also, sometimes I have had mussels in a white wine and garlic/herb source (no cream or butter)
I have also been eating nuts and/or smoked salmon and/or drinking pure coconut water as snacks or when others have been eating puddings or starters that I cannot have.
For the last three weeks have had also been taking calcium with water at various times.
My BMs have been as follows:
I have had full on D only twice since 15 Dec (21st Dec and 12 Jan) On 21st I suspect some balsamic vinegar "source" the day before which I had in a restaurant. It was unusually stiff and sweet, so had had something done to it. On the 12th I accidentally had some butter with potato the day before. I may be wrong but I think they were the two culprits.
From 5th Jan to 31 Jan, apart from D on the 12th, I only had 3 soft BMs. All the rest where firm or Normans with mainly just 1 or 2 Bms a day. That's why I cut down to 2 Entocort on the 31st Jan (and started Boswellia). Since then I had soft BMs 1st to 4th Feb and Firm from 5th to 9th. Frequency has been usually 2 a day. That's the good news.....
Bad news is that I have felt mildly bloated since cutting down to 2 Entocort a day. Also, since the 24th January I have been paying more attention to if my BMs are floating or not. About 80% float.
That, I imagine, fits with my low vitamin scores and, of course, osteoporosis. I realize that a true "Norman" cannot be achieved unless it sinks quickly.
That is also why I let my new doctor give me vitamin D and B intravenously today.
That about sums up where I am.
You may have noticed that I drink quite a bit of wine and I also go out to restaurants quite I bit. It is the consumption habit that I have hung on to (and going out is very Asian and expected). I do it because I want to still "be normal" both to myself and others......
All best (and thanks for reading), Ant
PS. My rib fracture is much improved.
Here is my update.
But first, Gloria, so sorry you are in another flair and I do hope you get over it soon and can pinpoint what caused it. Your diet is pretty close to mine except I have cut out: tomatoes, buckwheat, quinoa and rice milk. I am also not pushing fruit (even cranberry too much) except occasionally as d-mannose. I also have not had potatoes for the last two weeks. Not deliberately, but because I find white rice easier and, when at restaurants, they do not seem to have baked potatoes easily available.
My diet in the couple of weeks tends to go as follows:
Pre breakfast 2 Entocort (as of the last 9 days; before that still 2 in the morning, but also 1 in the evening before supper)
Just before or during breakfast one vitamin D pill
Breakfast: rice cake, with shrimp and/or mushroom and/or bacon/ham, usually green tea but sometimes black tea. 2 Boswellia
Lunch (usually in a 'tamed' restaurant): Either vit B or zinc tablet (rotated with supper). Food usually chicken, fish, steak or pork, grilled in olive oil with steamed broccoli and/or carrots and/or cauliflower and steamed rice, balsamic vinegar and ground pepper for flavour. Drink; green tea and/or fresh lemon soda, sometimes a glass of dry red or white wine. 2 Boswellia.
Tea: unsalted nuts (hazel, walnut, almonds), green or black tea.
Evening drinks: red wine and nuts
Supper: Either vit B or zinc tablet (rotated with lunch). Like lunch but I try vary it: chicken, fish, steak or pork, grilled in olive oil with steamed broccoli and/or carrots and/or cauliflower and steamed rice, balsamic vinegar and ground pepper for flavour. Also sometimes a risotto and/or a mild curry of meat, fish or shellfish with rice, coconut milk, olive oil, onions, curry powder, cumin, turmeric, salt, pepper, wine vinegar, chives, lemon and lemongrass. Dry red or white wine. 2 Boswellia
There have been variations: e.g. I went to dinner the other night where we had a hot pot: water boiled shrimp, squid, Chinese mushroom, water chestnuts, beef, rice noodles, vegetables (not legumes). While others had soya source and garlic to dip the food into into I had balsamic and garlic. Hot pot should be boiled in stock, but my hostess had bought the stock so it could not be trusted and we decided to stick with water! (there was another hot pot on the table for others which was more adventurous - with the additions of tofu, Chinese dumplings etc...).
Also, sometimes I have had mussels in a white wine and garlic/herb source (no cream or butter)
I have also been eating nuts and/or smoked salmon and/or drinking pure coconut water as snacks or when others have been eating puddings or starters that I cannot have.
For the last three weeks have had also been taking calcium with water at various times.
My BMs have been as follows:
I have had full on D only twice since 15 Dec (21st Dec and 12 Jan) On 21st I suspect some balsamic vinegar "source" the day before which I had in a restaurant. It was unusually stiff and sweet, so had had something done to it. On the 12th I accidentally had some butter with potato the day before. I may be wrong but I think they were the two culprits.
From 5th Jan to 31 Jan, apart from D on the 12th, I only had 3 soft BMs. All the rest where firm or Normans with mainly just 1 or 2 Bms a day. That's why I cut down to 2 Entocort on the 31st Jan (and started Boswellia). Since then I had soft BMs 1st to 4th Feb and Firm from 5th to 9th. Frequency has been usually 2 a day. That's the good news.....
Bad news is that I have felt mildly bloated since cutting down to 2 Entocort a day. Also, since the 24th January I have been paying more attention to if my BMs are floating or not. About 80% float.
That, I imagine, fits with my low vitamin scores and, of course, osteoporosis. I realize that a true "Norman" cannot be achieved unless it sinks quickly. That is also why I let my new doctor give me vitamin D and B intravenously today.
That about sums up where I am.
You may have noticed that I drink quite a bit of wine and I also go out to restaurants quite I bit. It is the consumption habit that I have hung on to (and going out is very Asian and expected). I do it because I want to still "be normal" both to myself and others......
All best (and thanks for reading), Ant
PS. My rib fracture is much improved.
Polly,
The soy-free Earth Balance spread has pea protein in it, so I haven't purchased it. Luckily, I do have some soy-free margarine in the freezer that I bought at Passover a couple of years ago.
I have given up chocolate at various times, but it hasn't seemed to make a difference.
I had explosive D this morning, so I'm back to square one again. The next items to eliminate are chocolate, potatoes and/or rice. I eat each of them almost every day.
Ant,
Yes, our diets are pretty similar. You eat nuts whereas I've given them up as a precaution. I'm assuming you've given up rice milk because of the additives. That's one reason why I make my own, but I'm not drinking it this week because I'm going to eliminate all rice.
It's encouraging that you're still maintaining while reducing Entocort. I've found that the magic number for me is 55 days after reducing the dosage. Interestingly, the 55 day mark for reducing to 1 pill a day came last Thursday, and I'm flaring again. I'm leaving for Florida in 13 days and I can't be dealing with a flare. I guess I'll be upping the Entocort to 2 pills a day.
Gloria
The soy-free Earth Balance spread has pea protein in it, so I haven't purchased it. Luckily, I do have some soy-free margarine in the freezer that I bought at Passover a couple of years ago.
I have given up chocolate at various times, but it hasn't seemed to make a difference.
I had explosive D this morning, so I'm back to square one again. The next items to eliminate are chocolate, potatoes and/or rice. I eat each of them almost every day.
Ant,
Yes, our diets are pretty similar. You eat nuts whereas I've given them up as a precaution. I'm assuming you've given up rice milk because of the additives. That's one reason why I make my own, but I'm not drinking it this week because I'm going to eliminate all rice.
It's encouraging that you're still maintaining while reducing Entocort. I've found that the magic number for me is 55 days after reducing the dosage. Interestingly, the 55 day mark for reducing to 1 pill a day came last Thursday, and I'm flaring again. I'm leaving for Florida in 13 days and I can't be dealing with a flare. I guess I'll be upping the Entocort to 2 pills a day.
Gloria
You never know what you can do until you have to do it.
Dear Gloria
So sorry you are back to D. I am getting more suspicious of potato - it is after all a nightshade.
I do not have rice milk and, as you say, I assume that it is not the rice itself that is the problem, but what they have added - never agreed with me early on and find I can get along without it.
Hope you get better soon, Ant
So sorry you are back to D. I am getting more suspicious of potato - it is after all a nightshade.
I do not have rice milk and, as you say, I assume that it is not the rice itself that is the problem, but what they have added - never agreed with me early on and find I can get along without it.
Hope you get better soon, Ant
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Gloria sorry you have D - and good luck eliminating what ever is causing the issue (fingers cross it is not chocolate!)
funny enough a work colleague was asking me today about how i was going, did i have my diet etc figured out. I have realised that majority of the population treat illness as you get sick, you get a diagnosis you take the right pill and it is all good, problem solved.
I replied that as things are now i have got reasonable control - who knows what will happen next week. that my research to date (meaning the information on this website) works this month may not work in 3 months time.
hope you figure it out and feel fabulous for your trip to florida
funny enough a work colleague was asking me today about how i was going, did i have my diet etc figured out. I have realised that majority of the population treat illness as you get sick, you get a diagnosis you take the right pill and it is all good, problem solved.
I replied that as things are now i have got reasonable control - who knows what will happen next week. that my research to date (meaning the information on this website) works this month may not work in 3 months time.
hope you figure it out and feel fabulous for your trip to florida
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Good Morning (or is it evening there?) Ant!
I am very impressed by your progress report. I know you are still having problems, but really, you have made tremendous progress in such a short time. Especially for one with multiple intolerances (MIs). Kudos to you!
You have provided an excellent detailed food log. Again, you are making very wise choices and seem to be a quick learner when it comes to avoiding MIs. I will mention a few thoughts that occured to me as I reviewed your foods:
1. BALSAMIC VINEGAR! This can indeed be a land mine. From what I have read, the only "safe" balsamic vinegar comes from fermented grapes (nothing else added) in a certain region in Italy and much be aged for years - more than 8, I believe. It is quite expensive. The balsamic vinegar found in most restaurants and grocery stores is simply distilled vinegar with dyes and flavorings added. You are probably aware that the caramel color/flavor added to many foods is made from barley (which has gluten). Of course, I may be all wet here - perhaps you eat only in exclusive restaurants that use the real thing. LOL! Perhaps you can invest in a bottle of the real thing and take it with you wherever you go to eat. I have no problem taking my own condiments with me when I eat out - ketchup without corn syrup, extra virgin olive oil, etc.
2.You and I have similar intolerances, and you will be interested to know that I have trouble with coconut milk for some reason.
3. A word to the wise. I have discovered that in Asian restaurants the rice noodles often have wheat in them too. It may be best to stick to plain rice unless you can be sure about the noodles.
Also, I'm assuming that you made the risotto yourself. Most risottos in this country contain cheese.
4. Here's some good news - I love wine also and have never had a problem as long as I drink a dry red wine like merlot or cab.
5. It is probably wise to cut out the major nightshades for now as you have (potatoes, tomatoes). Remember that eggplant and peppers of all colors are also nightshades. More good news - once I got my MC under control I was able to tolerate nightshades (as well as citrus) again.
6. Have you heard of the "paleo" diet? There's a great book about it by Cordain called "The Paleo Diet". Of course, you are pretty much paleo now, except for fewer fruits/veggies (once your gut heals, you will be able to tolerate them again). I suggest it because it is a well-researched book and offers additional suggestions for meals, snacks.
I don't remember how long you have been on the Entocort? I believe that most here who elected to start diet along with medication found that it took 6 mo. to one year before the Entocort could be stopped and the MC could be controlled by diet alone.
Guess I'd better close before you are bored to tears! Please keep us posted on your progress. BTW, what is a "tame" restaurant"? Are there "wild" ones too? LOL!
Love,
Polly
I am very impressed by your progress report. I know you are still having problems, but really, you have made tremendous progress in such a short time. Especially for one with multiple intolerances (MIs). Kudos to you!
You have provided an excellent detailed food log. Again, you are making very wise choices and seem to be a quick learner when it comes to avoiding MIs. I will mention a few thoughts that occured to me as I reviewed your foods:
1. BALSAMIC VINEGAR! This can indeed be a land mine. From what I have read, the only "safe" balsamic vinegar comes from fermented grapes (nothing else added) in a certain region in Italy and much be aged for years - more than 8, I believe. It is quite expensive. The balsamic vinegar found in most restaurants and grocery stores is simply distilled vinegar with dyes and flavorings added. You are probably aware that the caramel color/flavor added to many foods is made from barley (which has gluten). Of course, I may be all wet here - perhaps you eat only in exclusive restaurants that use the real thing. LOL! Perhaps you can invest in a bottle of the real thing and take it with you wherever you go to eat. I have no problem taking my own condiments with me when I eat out - ketchup without corn syrup, extra virgin olive oil, etc.
2.You and I have similar intolerances, and you will be interested to know that I have trouble with coconut milk for some reason.
3. A word to the wise. I have discovered that in Asian restaurants the rice noodles often have wheat in them too. It may be best to stick to plain rice unless you can be sure about the noodles.
Also, I'm assuming that you made the risotto yourself. Most risottos in this country contain cheese.
4. Here's some good news - I love wine also and have never had a problem as long as I drink a dry red wine like merlot or cab.
5. It is probably wise to cut out the major nightshades for now as you have (potatoes, tomatoes). Remember that eggplant and peppers of all colors are also nightshades. More good news - once I got my MC under control I was able to tolerate nightshades (as well as citrus) again.
6. Have you heard of the "paleo" diet? There's a great book about it by Cordain called "The Paleo Diet". Of course, you are pretty much paleo now, except for fewer fruits/veggies (once your gut heals, you will be able to tolerate them again). I suggest it because it is a well-researched book and offers additional suggestions for meals, snacks.
I don't remember how long you have been on the Entocort? I believe that most here who elected to start diet along with medication found that it took 6 mo. to one year before the Entocort could be stopped and the MC could be controlled by diet alone.
Guess I'd better close before you are bored to tears! Please keep us posted on your progress. BTW, what is a "tame" restaurant"? Are there "wild" ones too? LOL!
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.