Hi,
Does anyone here have constant ringing in their ears?
It started for me on Thrusday and it won't go away. At times I think I'm going to loose it!!!!
I went on Web MD and found info. Could be anything from meds, infection, tumor, high blood pressue etc., etc. It's called Tinninitis (not sure on the spelling).
It can last a lifetime. That is what scares me. There is no pain but the constant ringing is going to drive me nuts!!!! I was talking to one of the woman that live in my condo complex and she said she has had it for 10yrs and she just learns to live with it. She does do some meditation for it. And she notices that when she is stressed or her blood pressure goes up the ringing gets louder. She couldn't remember what they told her 10 yrs ago. Some long explination and that she would have it for the rest of her life.
One thing that Web MD said is thyroid problems could cause it. And I am having my thyroid watched. It is low. My doc tested me twice now and wants to test me once more. I get tested next month. But if this ringing does not go away by Monday I'm making an appointment.
It's gotten me somewhat depressed that there is another annoying thing I have to deal with with my body.
Love,
Joyce
Ringing Ears
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Joyce,
My sister's had this for a long time. Turns out that she's got the exact same food reactions that I have, and had diarrhea before she got off of them. She's also got about a 10 percent hearing loss. Hers mostly bothers her at night when it gets quiet and she's trying to go to sleep. Think that's the main reason she and her hubby sleep with a fan on -- white noise to drown out the tinnitis!
Not sure whether hers has improved off of gluten, etc., but if it's nerve damage, it's likely permanent. Mom is only reactive to gluten, and is totally nerve deaf, and so was her father, and she had to get one of her bad genes from him as she had two identical ones. My sister and I have one of those each, and similar ones we got from our dad.
This can be autoimmune also, so it's not surprising, given our genetics, that it would occur a little more frequently in this group. As you mentioned, there are other possible causes, one of which is a tumor, so hope you'll have all this checked out with the appropriate doc/s.
Maybe we'll hear from some other members on this. Would like to know if some of their kin are known to have this condition. Does it run in anyone's biological family?
Sure hope you find something that works. I know that I keep a radio on so I can drown out Mom's snoring. I'm her 24 hr caregiver, and have to stay close at night so she can wake me to get her up or whatever she needs. Radio doesn't keep me awake at all, unless it's music as my mind will follow the lyrics! Ha! Guess this would be a very individual thing. Maybe you could try the fan bit first. Guess you could find a little white noise, even during the day.
Let me know what you come up with.
I believe you will find something that works well for you, but isn't it frustrating?!!
Keep us posted on what you find out, please.
Yours, Luce
My sister's had this for a long time. Turns out that she's got the exact same food reactions that I have, and had diarrhea before she got off of them. She's also got about a 10 percent hearing loss. Hers mostly bothers her at night when it gets quiet and she's trying to go to sleep. Think that's the main reason she and her hubby sleep with a fan on -- white noise to drown out the tinnitis!
Not sure whether hers has improved off of gluten, etc., but if it's nerve damage, it's likely permanent. Mom is only reactive to gluten, and is totally nerve deaf, and so was her father, and she had to get one of her bad genes from him as she had two identical ones. My sister and I have one of those each, and similar ones we got from our dad.
This can be autoimmune also, so it's not surprising, given our genetics, that it would occur a little more frequently in this group. As you mentioned, there are other possible causes, one of which is a tumor, so hope you'll have all this checked out with the appropriate doc/s.
Maybe we'll hear from some other members on this. Would like to know if some of their kin are known to have this condition. Does it run in anyone's biological family?
Sure hope you find something that works. I know that I keep a radio on so I can drown out Mom's snoring. I'm her 24 hr caregiver, and have to stay close at night so she can wake me to get her up or whatever she needs. Radio doesn't keep me awake at all, unless it's music as my mind will follow the lyrics! Ha! Guess this would be a very individual thing. Maybe you could try the fan bit first. Guess you could find a little white noise, even during the day.
Let me know what you come up with.
I believe you will find something that works well for you, but isn't it frustrating?!!
Keep us posted on what you find out, please.
Yours, Luce
Hi Joyce,
It can also be caused by loud noises. When I was young, I used to do a lot of target practice with fairly potent handguns, (.45 Colt,.357 Mag., .44 Mag, etc.), and back in those days, it was not common knowledge that loud noises were so detrimental to hearing. We heard about sailers and soldiers who fired the really big guns, coming back home with hearing losses, and tinnitus, but it never dawned on us that lesser noises could be almost as bad.
Anyway, as I began to get older, I read about the risks and started using hearing protection, but, of course, I probably already had some damage--no tinnitus, though. One day, a little over 20 years ago, I was hunting with a handgun that was chambered for the .30 Herrett cartridge, (which is a modification of the old .30-30 rifle cartridge), and I took a chance on taking a shot without using hearing protection. Due to the short barrels, handguns firing potent cartridges have a tremendous amount of muzzle blast, which, of course, causes a tremendous shock wave to slam into the ear channel.
My ears starting ringing at the shot, and they have never stopped. I should have known better, because I had done it before, and they stopped ringing after a day or so. You don't know your limits, though, until you exceed them. Sigh.
Anyway, it's agravating, all right, but you do indeed get used to it. I never resorted to anything like white noise, but I've heard of people using recordings of the surf, or a babbling brook, or the wind in the trees, etc., with good results. I just learned to tune it out.
The ringing in my ears is pretty loud, but I seldom notice it. As far as aggravating afflictions go, on a scale of 1 to 10, I would rate MC at about a 7 or 8, and tinnitus at about 2, mainly because I have learned to tune out the ringing noise from my consciousness, but I haven't learned how to "tune out" the symptoms of MC. YMMV.
Love,
Wayne
It can also be caused by loud noises. When I was young, I used to do a lot of target practice with fairly potent handguns, (.45 Colt,.357 Mag., .44 Mag, etc.), and back in those days, it was not common knowledge that loud noises were so detrimental to hearing. We heard about sailers and soldiers who fired the really big guns, coming back home with hearing losses, and tinnitus, but it never dawned on us that lesser noises could be almost as bad.
Anyway, as I began to get older, I read about the risks and started using hearing protection, but, of course, I probably already had some damage--no tinnitus, though. One day, a little over 20 years ago, I was hunting with a handgun that was chambered for the .30 Herrett cartridge, (which is a modification of the old .30-30 rifle cartridge), and I took a chance on taking a shot without using hearing protection. Due to the short barrels, handguns firing potent cartridges have a tremendous amount of muzzle blast, which, of course, causes a tremendous shock wave to slam into the ear channel.
My ears starting ringing at the shot, and they have never stopped. I should have known better, because I had done it before, and they stopped ringing after a day or so. You don't know your limits, though, until you exceed them. Sigh.
Anyway, it's agravating, all right, but you do indeed get used to it. I never resorted to anything like white noise, but I've heard of people using recordings of the surf, or a babbling brook, or the wind in the trees, etc., with good results. I just learned to tune it out.
The ringing in my ears is pretty loud, but I seldom notice it. As far as aggravating afflictions go, on a scale of 1 to 10, I would rate MC at about a 7 or 8, and tinnitus at about 2, mainly because I have learned to tune out the ringing noise from my consciousness, but I haven't learned how to "tune out" the symptoms of MC. YMMV.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joyce
- Little Blue Penguin
- Posts: 46
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- Location: Garden Grove, California
Hi Luce & Wayne,
I woke up at 6:00 am this morning with the loudest ringing yet. It lasted about a hour and then calmed down and I fell back to sleep. Listening to the radio or TV doesn't seem to help. I can still hear the ringing. I wonder if getting a headset to listen to music would help or do more damage? I have a feeling it's here to stay. And it will be something that I will learn to deal with. Just like my occular migraines, mitral valve prolapse, and MC. I have to agree with you Wayne I would have to rate the MC on the higher end of the scale of an aggravating affliction
Wayne I did read on Web MD that the loud noise is the number one reason for getting tinnitus. It's real common for Rock stars to get it. But that doesn't pertain to me. Never really been around anything that loud for a long period of time. Sorry that you deal with it Wayne. I have noticed in the past year that I have a hard time hearing sometimes when people are talking to me. Would have occasional ringing like most people have but not constant like now.
Will keep you posted. Looks like I'll be seeing my doc in a few days. Need to get the thyroid checked out anyways.
Take care,
Joyce
I woke up at 6:00 am this morning with the loudest ringing yet. It lasted about a hour and then calmed down and I fell back to sleep. Listening to the radio or TV doesn't seem to help. I can still hear the ringing. I wonder if getting a headset to listen to music would help or do more damage? I have a feeling it's here to stay. And it will be something that I will learn to deal with. Just like my occular migraines, mitral valve prolapse, and MC. I have to agree with you Wayne I would have to rate the MC on the higher end of the scale of an aggravating affliction
Wayne I did read on Web MD that the loud noise is the number one reason for getting tinnitus. It's real common for Rock stars to get it. But that doesn't pertain to me. Never really been around anything that loud for a long period of time. Sorry that you deal with it Wayne. I have noticed in the past year that I have a hard time hearing sometimes when people are talking to me. Would have occasional ringing like most people have but not constant like now.
Will keep you posted. Looks like I'll be seeing my doc in a few days. Need to get the thyroid checked out anyways.
Take care,
Joyce
I don't have a constant ringing in my ears, but when I shake my head really fast, I hear a bell-like sound in my head. I learned this when I was playing with Korben and he shook his head and, of course, I shook my head back. It's really kind of pretty sounding. Like church bells in the distance.
I also have a 10% or thereabouts hearing loss and I have difficulty hearing people on the phone. I have hearing aids, but, naturally, I don't wear them. They are such a pain to deal with. Not so much wearing them once I get them in, but getting them in and putting in the batteries which I invariably drop on the floor, etc. etc. Maybe someday when I am REALLY deaf.
I know. Bells in her head. Maybe I am a dingaling?
Lots of love,
Sally
I also have a 10% or thereabouts hearing loss and I have difficulty hearing people on the phone. I have hearing aids, but, naturally, I don't wear them. They are such a pain to deal with. Not so much wearing them once I get them in, but getting them in and putting in the batteries which I invariably drop on the floor, etc. etc. Maybe someday when I am REALLY deaf.
I know. Bells in her head. Maybe I am a dingaling?
Lots of love,
Sally
Mitakuye oyasin
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annie oakley
- King Penguin
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- Joined: Fri May 13, 2011 5:56 pm
Joyce,
I also have family with mitral valve prolapse, and as you may remember, my lifelong migraines went away as soon as I got completely off of gluten. Up until then, they had just continued to get worse and worse, and closer together..very frequent, just generally changing in character.
Unfortunately, I don't think the hearing loss is reversible, but my sister doesn't seem to have much trouble getting along with just the 10 percent loss, so if there's any way you can stop or slow down the process it would be well worth it, even if that meant leaving off certain foods in hopes it would stop further nerve damage.
This is fairly well known by people in the field ,but I think the people around you suffer more when you're REALLY deaf, than the person who can't hear, like my mom, for instance. It really can impact relationships with those you care about.
Sometimes I believe that people are more motivated to do things for those they care about than they are motivated to do things for themselves.
Since it's gotten so bad, and it seems as though it's come on rather suddenly, I'm sooo glad that you were able to get in to see a doc right away, just in case.
Pardon me if you don't want to hear this, but there are so many stories now to keep up with that I can't remember whether you've ever tried to eliminate any possible food triggers, gluten in particular. I think the MAIN thing you could use to evaluate gf effectiveness would be the migraines lessening or possibly going away for good. How often do you get them? I had had seconary triggers that I had always assumed were PRIMARY triggers, in my case, as they would come right before onset, but not every time, so now I understand WHY not ever time -- it all depended upon how irritated the nervous system was from the autoimmune complexes circulating in the blood as a result of extreme, delayed food (gluten) reactions.
As any good neuro will tell you, these things don't just vanish instantly when they've been getting increasingly worse for a lifetime without there being a some definite reason. Mine was pretty obvious.
I don't have a thyroid now, but it was also destroyed by the immune complexes. Guess you already know this, but if your doc did the thyroid antibodies blood tests, they often produce false negatives as mine did. Hopefully, your prescribing doc uses clinical signs and symptoms as well as thyroid lab values to adjust your dosages.
One book that is a must read for people like us is Dr. Aram's book, "The Thyroid Solution." His former co-researcher is an endochrinologist (M.D.) with a PhD in this field, and they did Arem's major study together. It's available in paperback as it's intended for the lay person as well as professionals, and can be acquired, last I checked, online, or you might be able to get Border's or some of the big book houses to order it for you. It is a little dated though, so this may be unavailable soon.
My endo does Arem's way of prescribing thyroid replacement hormones for me, but a lot of docs don't believe in it, but then they're not nearly as prominent as these two guys. My surgeon, an ENT, is excellent for the surgical part, but he wouldn't have prescribed it this way, just assuming that the body can do the conversion between T3 and T4. The better method is to give the appropriate amounts of both.
I'm doing great, but know many people who don't get both T3 and T4 in the right amounts because their docs won't prescribe it that way, and they're having a horrible time after surgery, even though they didn't have total thyroidectomies and still can produce some of their own.
If I were you, I'd make sure I had a doc who believes in not relying totally on one's body to do the conversion itself from one to the other. This usually means having to take two pills, but hey, thyroid is really cheap. I take Armour 1 gr plus 25 mcg of Levoxyl, for example, but the amounts depend on the results of your blood tests -- this requires careful monitoring by a good endochrinologist, but they are difficult to get into, so be prepared to wait, but first, make SURE they'll base treatment on both T 3 and T 4 amounts as I just explained before even making an appointment if you want to go this route.
By the way, my endo thinks that people seem to feel better if their TSH lab value is close to 1. Mine tends to stay a fraction above that, so he leaves it at the prescribed amounts I mentioned for that reason.
Again, The Thyroid Solution is a great resource for anyone with thyroid issues.
Best of wishes! Yours, Luce
I also have family with mitral valve prolapse, and as you may remember, my lifelong migraines went away as soon as I got completely off of gluten. Up until then, they had just continued to get worse and worse, and closer together..very frequent, just generally changing in character.
Unfortunately, I don't think the hearing loss is reversible, but my sister doesn't seem to have much trouble getting along with just the 10 percent loss, so if there's any way you can stop or slow down the process it would be well worth it, even if that meant leaving off certain foods in hopes it would stop further nerve damage.
This is fairly well known by people in the field ,but I think the people around you suffer more when you're REALLY deaf, than the person who can't hear, like my mom, for instance. It really can impact relationships with those you care about.
Sometimes I believe that people are more motivated to do things for those they care about than they are motivated to do things for themselves.
Since it's gotten so bad, and it seems as though it's come on rather suddenly, I'm sooo glad that you were able to get in to see a doc right away, just in case.
Pardon me if you don't want to hear this, but there are so many stories now to keep up with that I can't remember whether you've ever tried to eliminate any possible food triggers, gluten in particular. I think the MAIN thing you could use to evaluate gf effectiveness would be the migraines lessening or possibly going away for good. How often do you get them? I had had seconary triggers that I had always assumed were PRIMARY triggers, in my case, as they would come right before onset, but not every time, so now I understand WHY not ever time -- it all depended upon how irritated the nervous system was from the autoimmune complexes circulating in the blood as a result of extreme, delayed food (gluten) reactions.
As any good neuro will tell you, these things don't just vanish instantly when they've been getting increasingly worse for a lifetime without there being a some definite reason. Mine was pretty obvious.
I don't have a thyroid now, but it was also destroyed by the immune complexes. Guess you already know this, but if your doc did the thyroid antibodies blood tests, they often produce false negatives as mine did. Hopefully, your prescribing doc uses clinical signs and symptoms as well as thyroid lab values to adjust your dosages.
One book that is a must read for people like us is Dr. Aram's book, "The Thyroid Solution." His former co-researcher is an endochrinologist (M.D.) with a PhD in this field, and they did Arem's major study together. It's available in paperback as it's intended for the lay person as well as professionals, and can be acquired, last I checked, online, or you might be able to get Border's or some of the big book houses to order it for you. It is a little dated though, so this may be unavailable soon.
My endo does Arem's way of prescribing thyroid replacement hormones for me, but a lot of docs don't believe in it, but then they're not nearly as prominent as these two guys. My surgeon, an ENT, is excellent for the surgical part, but he wouldn't have prescribed it this way, just assuming that the body can do the conversion between T3 and T4. The better method is to give the appropriate amounts of both.
I'm doing great, but know many people who don't get both T3 and T4 in the right amounts because their docs won't prescribe it that way, and they're having a horrible time after surgery, even though they didn't have total thyroidectomies and still can produce some of their own.
If I were you, I'd make sure I had a doc who believes in not relying totally on one's body to do the conversion itself from one to the other. This usually means having to take two pills, but hey, thyroid is really cheap. I take Armour 1 gr plus 25 mcg of Levoxyl, for example, but the amounts depend on the results of your blood tests -- this requires careful monitoring by a good endochrinologist, but they are difficult to get into, so be prepared to wait, but first, make SURE they'll base treatment on both T 3 and T 4 amounts as I just explained before even making an appointment if you want to go this route.
By the way, my endo thinks that people seem to feel better if their TSH lab value is close to 1. Mine tends to stay a fraction above that, so he leaves it at the prescribed amounts I mentioned for that reason.
Again, The Thyroid Solution is a great resource for anyone with thyroid issues.
Best of wishes! Yours, Luce