?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Joan,
She was offended and hurt by the last post that I wrote in response to one of her posts about her diet issues, (this happened right after I was discharged from the hospital). When I wrote it, I was well aware that the "tough love" position from which I wrote it, might have been risky, but I was hoping to "nudge" her out of the cycle that she seems to be stuck in, (she's in her 3rd repetition of the cycle), by persuading her to stop eating all those processed foods, long enough to see if some of them might be what's keeping her from attaining remission. I've sent her a couple of e-mails, and apologized for the way I went about it, but understandably, she still feels hurt, and she doesn't feel comfortable posting, yet.
She says she wants to wait until she has made significant progress toward remission. I hope that she can prove me wrong, but I'm very, very suspicious of those processed foods.
In my experience, (and from what I've read here on the board), we can tolerate many/most processed foods, (though not all), that are free of our known intolerances, after we are in remission, and our gut has healed. Prior to full remission, though, they are very risky, individually, and when several, (or more), are eaten, on a regular basis, the risk increases exponentially.
Anyway, the fact that she's not posting, is entirely my fault, and so far, I apparently haven't made much progress in trying to correct my mistake. I apologize for that.
Tex
She was offended and hurt by the last post that I wrote in response to one of her posts about her diet issues, (this happened right after I was discharged from the hospital). When I wrote it, I was well aware that the "tough love" position from which I wrote it, might have been risky, but I was hoping to "nudge" her out of the cycle that she seems to be stuck in, (she's in her 3rd repetition of the cycle), by persuading her to stop eating all those processed foods, long enough to see if some of them might be what's keeping her from attaining remission. I've sent her a couple of e-mails, and apologized for the way I went about it, but understandably, she still feels hurt, and she doesn't feel comfortable posting, yet.
She says she wants to wait until she has made significant progress toward remission. I hope that she can prove me wrong, but I'm very, very suspicious of those processed foods.In my experience, (and from what I've read here on the board), we can tolerate many/most processed foods, (though not all), that are free of our known intolerances, after we are in remission, and our gut has healed. Prior to full remission, though, they are very risky, individually, and when several, (or more), are eaten, on a regular basis, the risk increases exponentially.
Anyway, the fact that she's not posting, is entirely my fault, and so far, I apparently haven't made much progress in trying to correct my mistake. I apologize for that.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Tex
firstly i love the new tag line!
secondly.... you have apologised and you have contacted her directly, i dont believe you should carry any guilt or burden.
it is her choice how she reacts, (remember my theory, there is not right way or wrong way, there is her way)
it is her choice when she feels like posting again.
this comes under the category of 'shite rule' a rule i had well before MC diagnosis
you only deal with your shite!!!
we all have enough (shite) to contend with in our lives, without having to carry guilt and burden of other peoples reactions.
and you moreso, as you are still healing and recovering physically and mentally of the adventures of the past 2 months
I will send love and healing vibes to help Gloria move forward in peace
I send you love and cleansing vibes to accept what has occurred and not feel the guilt or the burden of gloria's reaction
(this is not meant in any offence there is a smile with it, it is her shite.... not yours)
firstly i love the new tag line!
secondly.... you have apologised and you have contacted her directly, i dont believe you should carry any guilt or burden.
it is her choice how she reacts, (remember my theory, there is not right way or wrong way, there is her way)
it is her choice when she feels like posting again.
this comes under the category of 'shite rule' a rule i had well before MC diagnosis
you only deal with your shite!!!
we all have enough (shite) to contend with in our lives, without having to carry guilt and burden of other peoples reactions.
and you moreso, as you are still healing and recovering physically and mentally of the adventures of the past 2 months
I will send love and healing vibes to help Gloria move forward in peace
I send you love and cleansing vibes to accept what has occurred and not feel the guilt or the burden of gloria's reaction
(this is not meant in any offence there is a smile with it, it is her shite.... not yours)
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes,
I appreciate your thoughts, and your support, but it is my fault - she was OK, until I wrote that post.
Thanks,
Tex
I appreciate your thoughts, and your support, but it is my fault - she was OK, until I wrote that post.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex my friend
Don’t take all the blame by yourself. I posted a similar answer just before yours. I composed it at least six times and finally took a deep breath and posted it. Perhaps it was a double whammy from both of us. I truly feel awful if I upset Gloria.
I can remember sitting on the edge of the bed tying my shoes to get ready to try to go grocery shopping. This was a good six months before finding this wonderful group. I suddenly found myself sobbing. Facing myself with what I did not want to accept. Turning around what I had long eaten as what I thought was a good diet.
Yikes!!! It was a dificult moment but I have come a long, long way by facing a lot of hard, dificult questions about food and life style.
I thought long and hard about my post before I sent it but I am equaly responsible for maybe jumping in and saying to much before Gloria was ready. I just can’t think of any moment that is the right one to face yourself with such a life changing decision but we all have to get their sometime .
It makes me laugh. I look for advise and then dont like the advise I get. I guess it is human nature
My sincere apology along with Yours
Love
Matthew
Don’t take all the blame by yourself. I posted a similar answer just before yours. I composed it at least six times and finally took a deep breath and posted it. Perhaps it was a double whammy from both of us. I truly feel awful if I upset Gloria.
I can remember sitting on the edge of the bed tying my shoes to get ready to try to go grocery shopping. This was a good six months before finding this wonderful group. I suddenly found myself sobbing. Facing myself with what I did not want to accept. Turning around what I had long eaten as what I thought was a good diet.
Yikes!!! It was a dificult moment but I have come a long, long way by facing a lot of hard, dificult questions about food and life style.
I thought long and hard about my post before I sent it but I am equaly responsible for maybe jumping in and saying to much before Gloria was ready. I just can’t think of any moment that is the right one to face yourself with such a life changing decision but we all have to get their sometime .
It makes me laugh. I look for advise and then dont like the advise I get. I guess it is human nature
My sincere apology along with Yours
Love
Matthew
I don't know Gloria, but I think I'm coming to the conclusion that I'm just going to have to 'bite the bullet' on this one, spend some money (even though we really don't have it to spend), and get some things that are GF and go for it. I'm weaning off of entecort slowly and it's going pretty good, but I want full remission, and from what I've read, here and elsewhere, that's just not ever going to happen unless I'm willing to change my eating patterns, so here goes. To the health food store tomorrow (65 mile drive from here), and in head first.
I hope Gloria comes back and that she's able to attain remission. This disease is horrible and I don't want another single person to have to suffer with it. I'm hoping also, Tex, that I end up kind of doing what you did with the whole spectrum of immune system disorders I have (lupus, fibro, etc) and that they will eventually back off too, as they are flaring really badly right now, I don't know if it's the meds from the colonoscopy, the procedure itself, or just the darned stress, but something has set them off.
I hope Gloria comes back and that she's able to attain remission. This disease is horrible and I don't want another single person to have to suffer with it. I'm hoping also, Tex, that I end up kind of doing what you did with the whole spectrum of immune system disorders I have (lupus, fibro, etc) and that they will eventually back off too, as they are flaring really badly right now, I don't know if it's the meds from the colonoscopy, the procedure itself, or just the darned stress, but something has set them off.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Matt
is it the advice we want? or the quick short cut that doesnt cost much (money, time, emotion, mental and physical inputs)
acceptance of this high maintenance disease and its demands is HUGE....
i go home somedays (especially those where there has been D) and I just want to curl up in a ball on my bed and just forget the day, and then i remember that i have to cook something so i will have something for my lunch at work (as i cant just go and buy something) and then that means washing up etc
(mindful that this is reliant on the fact that i have hunted and gathered all the required ingredients to make my food, driving to various health food shops and outlets that sell our stuff)
accepting the reality is hard.
its not what people say or dont say..... it is accepting (and loving) what is......
easier said than done
and most of what i have written above applies to myself more than anyone....
the universe works in amazing ways, as i start to type some of these posts i realise what i am saying applies to me and a situation that is occuring around me
love and hugs and happiness to all
is it the advice we want? or the quick short cut that doesnt cost much (money, time, emotion, mental and physical inputs)
acceptance of this high maintenance disease and its demands is HUGE....
i go home somedays (especially those where there has been D) and I just want to curl up in a ball on my bed and just forget the day, and then i remember that i have to cook something so i will have something for my lunch at work (as i cant just go and buy something) and then that means washing up etc
(mindful that this is reliant on the fact that i have hunted and gathered all the required ingredients to make my food, driving to various health food shops and outlets that sell our stuff)
accepting the reality is hard.
its not what people say or dont say..... it is accepting (and loving) what is......
easier said than done
and most of what i have written above applies to myself more than anyone....
the universe works in amazing ways, as i start to type some of these posts i realise what i am saying applies to me and a situation that is occuring around me
love and hugs and happiness to all
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I have thought this over and prayed on it last night. I think this incident is a good reminder that we need to think carefully on how we word our posts. The written word can be so much more powerful than when we can speak with the love and tenderness that is behind the words. I have seen more than one post over time that when I read it I said "ouch". They have been well meaning, I am sure, but don't necessarily come across that way.
Gloria, if you are reading the posts on the Board, know that we love you, miss you and are here to support your struggle as you try to achieve remission and reduce your drug usage.
Jan
Gloria, if you are reading the posts on the Board, know that we love you, miss you and are here to support your struggle as you try to achieve remission and reduce your drug usage.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
-
RUBYREDDOG
- Adélie Penguin
- Posts: 158
- Joined: Tue Jun 10, 2008 4:45 pm
- Location: Glendale, Ca.
Gloria, Whether you return to posting on this forum or not, I would like to express my gratitude to you and others on this board for all the help you extended to me during my journey to remission.
Your advice regarding Entocort, and your dietary experiences were a key factor in my recovery. I suspect that you have helped many others as well. God bless you and good luck on your journey.
Hotrod
Your advice regarding Entocort, and your dietary experiences were a key factor in my recovery. I suspect that you have helped many others as well. God bless you and good luck on your journey.
Hotrod
-
MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Gloria,
You are in my prayers always and I know what a struggle it can be and for me it still is. I hope you are reading and I just wanted to let you know what an inspiration you have been to me.
Love and Miss You, Maggie
You are in my prayers always and I know what a struggle it can be and for me it still is. I hope you are reading and I just wanted to let you know what an inspiration you have been to me.
Love and Miss You, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!