I was hoping that some of you seasoned Paleo dieters could help me out a wee bit. Two weeks after I got continuous diarrhea, I cut out all gluten, dairy, sugar, processed food, soy etc. That was two years ago. I was diagnosed with LC 18 months ago. I have been up and down in that time, I had another flare 5 months ago, but went on metagest (hydrochloric acid), and within 1 day I had my first normal BM since first getting sick. I lived a life of bliss for 3 months. I still ate really well. Only organic foods, veges, fish, meat, nuts, seeds, brown rice, quinoa, millet etc.
I have been in a flare for 2 months. I have been doing Paleo now for two weeks, very restricted, I am only eating very well cooked carrots and zucchini, fish, chicken, and occasionally a banana and eggs.
My questions are, how long does it take for the diarrhea to stop? I have noticed a lot of improvements since starting the diet, but no D is not one of them. I realise this would be different for everyone, but I was wondering if you all could tell me how long it took you.
Also, did any of you ever flare after going Paleo? If you did, what on earth did you cut out of your diet to get yourself out of the flare?
I look forward to hearing back from some of you. Thanks
Sandra
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Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Sandra,
I hope I can give you some insight to help you get things under control. I know that some folks have problems with eggs (sometimes the chicken feed contains gluten which might be passed through to the egg) and some have problems with bananas (fiber). I can eat almost any veggie as long as it is well cooked. Raw or semi cooked still bothers me and brings on D for a couple of days. When that happens, I take 1 Immodium (regular not the Advanced) for a day or two and that tends to bring things back into control. I did have a flare almost 3 years ago. I had to go back on steriods for 2 months. It was due to an overdose of popcorn. I love the stuff but the hulls don't love me
What you are eating appears very bland and you should heal over time. Sometimes it takes longer than others. A couple of folks have problems with sugar and carrots are relatively high in sugars. You might try taking that out and putting something else in for a few days and see if that makes a difference.
Good luck in figuring out the next step in your journey.
Jan
I hope I can give you some insight to help you get things under control. I know that some folks have problems with eggs (sometimes the chicken feed contains gluten which might be passed through to the egg) and some have problems with bananas (fiber). I can eat almost any veggie as long as it is well cooked. Raw or semi cooked still bothers me and brings on D for a couple of days. When that happens, I take 1 Immodium (regular not the Advanced) for a day or two and that tends to bring things back into control. I did have a flare almost 3 years ago. I had to go back on steriods for 2 months. It was due to an overdose of popcorn. I love the stuff but the hulls don't love me
What you are eating appears very bland and you should heal over time. Sometimes it takes longer than others. A couple of folks have problems with sugar and carrots are relatively high in sugars. You might try taking that out and putting something else in for a few days and see if that makes a difference.
Good luck in figuring out the next step in your journey.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Hi Jan,
Thanks for your response. Over the last two years I have done very extensive exclusion tests, the first time only eating brown rice
for two weeks and then adding in one new food a week to see if i can tolerate it. This time I have done the same, (only no brown rice),
and well cooked carrots and zucchini are the only veges I can tolerate. The eggs are from my own organic chickens, and they eat what I eat.
I have also completely cut them out from my diet this flare and then reintroduced them. The same with bananas. There was no difference.
I am improving every day, but these are the only foods I can tolerate and willing to eat until I settle down.
I have never taken any medication, and the only one i might consider in the future is LDN.
Have you done the Paleo diet? I would really like to know how long those going on Paleo took to get their D under control, and if they
flared after going on it, and what they ate if they did. I do believe I am heading in the right direction, I just want to know if it will maybe take two weeks or six months. Thanks again for answering me.
Sandra
Thanks for your response. Over the last two years I have done very extensive exclusion tests, the first time only eating brown rice
for two weeks and then adding in one new food a week to see if i can tolerate it. This time I have done the same, (only no brown rice),
and well cooked carrots and zucchini are the only veges I can tolerate. The eggs are from my own organic chickens, and they eat what I eat.
I have also completely cut them out from my diet this flare and then reintroduced them. The same with bananas. There was no difference.
I am improving every day, but these are the only foods I can tolerate and willing to eat until I settle down.
I have never taken any medication, and the only one i might consider in the future is LDN.
Have you done the Paleo diet? I would really like to know how long those going on Paleo took to get their D under control, and if they
flared after going on it, and what they ate if they did. I do believe I am heading in the right direction, I just want to know if it will maybe take two weeks or six months. Thanks again for answering me.
Sandra
Sandra
As a Paleo enthusiast I find this an interesting question. Unfortunately I have no answer. Yes, I have reached the age of reason, I can just say I don't Know.
It depends on where you are starting from. In other words how much inflammation you have in the gut and where it is .
I can only speak for myself so feel free to take anything I say with a grain of salt. Shortly after my diagnosis from Entero Labs I was so frustrated with finding gluten free foods that I could afford that one day I decided to just go down the produce isle buying what I thought would work, bought some organic meat, fish and fowl, some spices, juice, tea and eggs. I still eat the same way and it works for me. have no idea if it will work for others or if you can even take on my mind set.
Some time later I found this sight and some time after their was a discussion of the Paleo diet. A great break through was eliminating green beans that I had never thought of as legumes.
At the beginning of recovery one may not be able to eat all the foods on the Paleo diet. However it is far better than eating all the food like substances that are labeled Gluten free. Just because they are labeled so does not necessarily make them problem free.
One of the great aspects of the Paleo diet is that it avoids foods that increase intestinal permeability. It has made a big change for me
• Cereal grains (lectins and gliadin)
• Legumes, including soya and peanuts (lectins and saponins)
• Tomato (tomato lectin and alpha-tomatin)
• Potato (lectins and saponins)
• Chili (capsaicin)
• Quillaja (foaming substance)
• Quinoa (saponins)
• Egg white (lysozyme)
• Alfalfa sprouts (saponins)
• Amaranth (saponins)
• Alcohol
So making an attempt to answer your question, being close to the paleo diet for eight months I finally started having formed stools . It took another six to tweak my diet following the Paleo guide lines but it was well worth it. It is inexpensive compared to all the Gluten free food like substances and is far more nutritious and has no side effects unless you might think that going out a riding thirty miles on my bicycle this week end is a bad side effect. Hahahahahah!
This is my experience. If i knew what i know now I might have found remission far faster but that is life. Wherever you go there you are.
Your experience may be different but I truly hope similar.
To your continued recovery
Love
Matthew
As a Paleo enthusiast I find this an interesting question. Unfortunately I have no answer. Yes, I have reached the age of reason, I can just say I don't Know.
It depends on where you are starting from. In other words how much inflammation you have in the gut and where it is .
I can only speak for myself so feel free to take anything I say with a grain of salt. Shortly after my diagnosis from Entero Labs I was so frustrated with finding gluten free foods that I could afford that one day I decided to just go down the produce isle buying what I thought would work, bought some organic meat, fish and fowl, some spices, juice, tea and eggs. I still eat the same way and it works for me. have no idea if it will work for others or if you can even take on my mind set.
Some time later I found this sight and some time after their was a discussion of the Paleo diet. A great break through was eliminating green beans that I had never thought of as legumes.
At the beginning of recovery one may not be able to eat all the foods on the Paleo diet. However it is far better than eating all the food like substances that are labeled Gluten free. Just because they are labeled so does not necessarily make them problem free.
One of the great aspects of the Paleo diet is that it avoids foods that increase intestinal permeability. It has made a big change for me
• Cereal grains (lectins and gliadin)
• Legumes, including soya and peanuts (lectins and saponins)
• Tomato (tomato lectin and alpha-tomatin)
• Potato (lectins and saponins)
• Chili (capsaicin)
• Quillaja (foaming substance)
• Quinoa (saponins)
• Egg white (lysozyme)
• Alfalfa sprouts (saponins)
• Amaranth (saponins)
• Alcohol
So making an attempt to answer your question, being close to the paleo diet for eight months I finally started having formed stools . It took another six to tweak my diet following the Paleo guide lines but it was well worth it. It is inexpensive compared to all the Gluten free food like substances and is far more nutritious and has no side effects unless you might think that going out a riding thirty miles on my bicycle this week end is a bad side effect. Hahahahahah!
This is my experience. If i knew what i know now I might have found remission far faster but that is life. Wherever you go there you are.
Your experience may be different but I truly hope similar.
To your continued recovery
Love
Matthew
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I've been eating Paleoish for about five years- tweak it occasionally depending on how my CC symptoms are doing.
Unfortunately, after all these years I do not feel I'm in remission-I am simply controlling this disease with diet- but that's a good thing...right?
Matthews post is important- notice lectins. It might help to pay attention to eliminating those from your diet and see is there is improvement.
http://www.krispin.com/lectin.html
Love,
Joanna
Unfortunately, after all these years I do not feel I'm in remission-I am simply controlling this disease with diet- but that's a good thing...right?
Matthews post is important- notice lectins. It might help to pay attention to eliminating those from your diet and see is there is improvement.
http://www.krispin.com/lectin.html
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Hello Sandra, I have done some reading on the paleo diet and the SC diet (is a milder variant of paleo). What both books say (Lordain and Gottschall) to see improvement takes one to two months. To achieve full remission doesn't give the book of Cordain (Paleo) a real answer on. Gottschall (SC diet) says it can take up to two years and it works for about 80 to 90% of the people (while I am writing this I just wonder, could the other 10% perhaps have a milk - casein - intolerance). Also Cordain says in his book, the first 2 - 3 weeks after starting the diet, you can feel worse. After that you should starting to feel much better. But in this case he is talking about people in general, not specific about people with gut problems.
At the moment I am some in between Paleo person. As long as the gut is not 100% healed, also a lot of paleo food can be difficult to digest (in my case/ is my experience). That is one of the things I am struggling with. The last couple of weeks I tried some recipes out of the Paleo book of Cordain, the tasted well, but it did not make my feel better. Actually it make me feel worse, it is just to spicy and herby for me.
Also you are asking about the D. Elain Gottschall (SC diet) starts in her book with a version of her diet that you can follow until the d stops and than other things can be added. Only problem is she also includes some diary in her diet (yoghurt cottage cheese and butter). For some of us that can be a problem.
I know it is a puzzle and sometimes a struggle to figure what to eat or what not to eat.
good luck with it
harma
At the moment I am some in between Paleo person. As long as the gut is not 100% healed, also a lot of paleo food can be difficult to digest (in my case/ is my experience). That is one of the things I am struggling with. The last couple of weeks I tried some recipes out of the Paleo book of Cordain, the tasted well, but it did not make my feel better. Actually it make me feel worse, it is just to spicy and herby for me.
Also you are asking about the D. Elain Gottschall (SC diet) starts in her book with a version of her diet that you can follow until the d stops and than other things can be added. Only problem is she also includes some diary in her diet (yoghurt cottage cheese and butter). For some of us that can be a problem.
I know it is a puzzle and sometimes a struggle to figure what to eat or what not to eat.
good luck with it
harma
Sandra, I got frustrated trying to figure out what bothered me and what didn't and decided to take the same approach as Matthew; bought only fresh and nothing processed except for a few exceptions, Earth Balance SF/DF butter, almond butter, and GF brown rice cakes from Lundberg. I am taking 1 Entocort a day and will reduce to 1 every other day in the near future, but the modified Paleo diet is making me feel better. I include only two no-nos; potatoes & rice only to try and stop the weight loss.
I don't feel there is any "time" alotment that can be stated for all. I also feel the mind and the body have to work together and that is a struggle for myself but am beginning to realize that this recovery will be a lot of little steps. The Entocort allows me to have fairly normal BM's every day and keeps me functional so I can continue to work.
For myself, I have discovered that I should eat my fruits and veggies (fiber) in the morning and noon time and I leave the starches for dinner. I also eat protein at every meal. My gut seems to handle that combination well. We just keep fine tuning our eating habits.
Wishing you the best and endurance with our disease. Ginny
I don't feel there is any "time" alotment that can be stated for all. I also feel the mind and the body have to work together and that is a struggle for myself but am beginning to realize that this recovery will be a lot of little steps. The Entocort allows me to have fairly normal BM's every day and keeps me functional so I can continue to work.
For myself, I have discovered that I should eat my fruits and veggies (fiber) in the morning and noon time and I leave the starches for dinner. I also eat protein at every meal. My gut seems to handle that combination well. We just keep fine tuning our eating habits.
Wishing you the best and endurance with our disease. Ginny