....who gets great BM's whenever I eat wheat? I have been dealing with LC for 3 years now and on and off I have eliminated wheat from my diet. In fact I was doing it just recently, but whenever I do.....I see no improvement. However, let me eat a sandwich with white bread (not whole wheat) and I have the nicest BMs.
I just can't seem to correlate gluten and my LC. Currently I have been trying to go dairy free....not 100% but pretty close......and I don't know if it is making any huge difference.
The only thing that I can definitely see a direct relationship between my diet and my LC is whenever I eat something that is high fiber.......I cannot handle fiber.....especially in raw veggies and even in some cooked. If I eat only a shred of lettuce......my stomach has a fit. I had some peas last week and I thought I was going to die......well not quite....lol.....and the odd thing is that I didn't have any diarrhea.....just severe abdominal pain.
But whenever I eat white bread or pasta.....my stomach is calm and I know they will keep my BM's nice and firm......and they don't cause constipation either.
It seems as if almost everyone here has problems with gluten, so I don't know if I should eliminate it or not.
Is there anyone else on this site who can handle gluten......such as found in white bread or pasta?
Am I The Only One....
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Am I The Only One....
IssyW123
For me it took some months to get a handle on the diet that would work. Part was the elimination of gluten, but that alone didn't do it, I had to eliminate fresh fruits, all dairy, and raw veggies. I slowly (painfully slow) added things back in one at a time to see what I could and could not tolerate, finally viola! A year and some change later I am where I feel I should be. I tend to think MC is somewhat cyclical in that there seem to be times when I am a little more sensitive than others, I associate it with some peculiar aches and pains I seem to get that coincide with active MC, during those periods I revert back to a very limited and bland diet and that seems to put me back on track quickly. I don't mess with gluten, ever not even a bite. I really feel 100 times better without it and there just is no temptation to want to go back to the begining~I don't like scheduling my life around potty call.
Most people are about as happy as they make up their minds to be.
- Abraham Lincoln
- Abraham Lincoln
I can't quite figure out gluten's effect on me...the only thing that happens when I eat bread, is that I get persistent heartburn. The "flares" I have had that involve terrible "D" all seem to be at times when I was under unusual stress and pressure in life situations. Tomato sauce in anything, and some chocolate (not all) also give me heartburn. Lettuce has never agreed with my stomach and gives me indigestion. I have given up eggs and bananas and BMs have been mostly normal since then. I do have the bloated belly syndrome...in the morning it's flat and as the day progresses it bloats out. That started about 30 years ago. I used to kid that I looked like a kangaroo and my little daughter called me "Kanga". I never knew why it did that but now I read here that several of the pp have that same thing happen to them. When I was diagnosed with LC I figured that was why I bloated. If I eat other forms of gluten, like noodles, cake, cookies, etc I seem to do just fine. Soooo I have just eliminated breads of all kinds, plus eggs, bananas, and lettuce. Chocolate, however, is worth the trouble; but I don't overdo that, either. There have been times, when at the end of a flare, I eat gluten, and it actually firms things up. I am still puzzled by it. Syl
Do good or do not
Issy
I don't dare eat even the least bit of gluten containing grains. Soy is just as bad. I can always tell when I have been contaminated even the smallest amount because I get horrible insomnia and wake up with aches and pains and a wooly brain fog. Digestion problems would come later if I let it continue. It has not happened in some time but I am SOOOO fortunate that my sister and her partner Susan are so careful to ask me first before family get togethers if something will work or not. They make lots of things that I can not eat but warn me ahead of time and then I bring lots of dishes that I can eat . I am always amazed how my dishes disappear faster than others. Always makes me smile to come home with empty dishes and leave all the leftovers I can’t eat for them. And even more grateful that they care enough to take the time to do something about it. .
Going out for a meal is always a huge problem in that my body is so sensitive but I do have fun a couple of times a year to get together at a place where I can get a steak and salad where they are aware and careful how they prepare things
So NO I don’t dare eat any thing that even might contain Gluten from any grain I thought it would be very limiting but find I eat a more varied more nutritious and interesting diet now than I did before my diagnosis.
To your continued recovery-
Love
Matthew
I don't dare eat even the least bit of gluten containing grains. Soy is just as bad. I can always tell when I have been contaminated even the smallest amount because I get horrible insomnia and wake up with aches and pains and a wooly brain fog. Digestion problems would come later if I let it continue. It has not happened in some time but I am SOOOO fortunate that my sister and her partner Susan are so careful to ask me first before family get togethers if something will work or not. They make lots of things that I can not eat but warn me ahead of time and then I bring lots of dishes that I can eat . I am always amazed how my dishes disappear faster than others. Always makes me smile to come home with empty dishes and leave all the leftovers I can’t eat for them. And even more grateful that they care enough to take the time to do something about it. .
Going out for a meal is always a huge problem in that my body is so sensitive but I do have fun a couple of times a year to get together at a place where I can get a steak and salad where they are aware and careful how they prepare things
So NO I don’t dare eat any thing that even might contain Gluten from any grain I thought it would be very limiting but find I eat a more varied more nutritious and interesting diet now than I did before my diagnosis.
To your continued recovery-
Love
Matthew
Dan,
I believe that you are correct that MC can be cyclic, at least for many of us. The other IBDs are, so why wouldn't MC behave similarly? For example, many of us seem to have unexplained flares during the fall, and sometimes during the spring, (possibly in sync with hayfever season). I believe that we have a few members who do not routinely use a maintenance treatment. They only treat their symptoms when they have a flare, and those flares are supposedly a year of more apart. The rest of the time, they enjoy a "spontaneous" remission.
I'm like you - I was so sick that there is no way that I'm going to tempt fate by knowingly ingesting any gluten - it took too long to recover, the first time.
Issy,
According to Dr. Fine's research, he found that 69% of patients with MC are gluten-sensitive, (according to his stool tests). The percentage seems to be much higher, among members here, so I'm guessing that most people who have MC, but who are not gluten-sensitive, have drug-induced MC, and simply stopping the use of the drug will bring remission in most of those cases, so very few of those individuals ever register here. We have a few members who connected their MC with a drug, after registering, and learning about the connection, (PPIs, in particular), and when they stopped taking the drug, they automatically went into remission. None of them post anymore, of course, since they seem to be in permanent remission, as long as they stay away from the drugs that cause the problem.
Incidentally, his research also showed that 29% of normal volunteers test positive for gluten-sensitivity, (according to his stool tests), and 62% of those with autoimmune disease test positive for gluten-sensitivity, (according to his stool tests), FWIW. Presumably, those normal volunteers were asymptomatic, (the 29% with positive test results) - IOW, they were sensitive to gluten, and they were producing antibodies to the alpha gliadin peptide, but they did not present with any clinical symptoms.
Tex
I believe that you are correct that MC can be cyclic, at least for many of us. The other IBDs are, so why wouldn't MC behave similarly? For example, many of us seem to have unexplained flares during the fall, and sometimes during the spring, (possibly in sync with hayfever season). I believe that we have a few members who do not routinely use a maintenance treatment. They only treat their symptoms when they have a flare, and those flares are supposedly a year of more apart. The rest of the time, they enjoy a "spontaneous" remission.
I'm like you - I was so sick that there is no way that I'm going to tempt fate by knowingly ingesting any gluten - it took too long to recover, the first time.
Issy,
According to Dr. Fine's research, he found that 69% of patients with MC are gluten-sensitive, (according to his stool tests). The percentage seems to be much higher, among members here, so I'm guessing that most people who have MC, but who are not gluten-sensitive, have drug-induced MC, and simply stopping the use of the drug will bring remission in most of those cases, so very few of those individuals ever register here. We have a few members who connected their MC with a drug, after registering, and learning about the connection, (PPIs, in particular), and when they stopped taking the drug, they automatically went into remission. None of them post anymore, of course, since they seem to be in permanent remission, as long as they stay away from the drugs that cause the problem.
Incidentally, his research also showed that 29% of normal volunteers test positive for gluten-sensitivity, (according to his stool tests), and 62% of those with autoimmune disease test positive for gluten-sensitivity, (according to his stool tests), FWIW. Presumably, those normal volunteers were asymptomatic, (the 29% with positive test results) - IOW, they were sensitive to gluten, and they were producing antibodies to the alpha gliadin peptide, but they did not present with any clinical symptoms.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Fascinating statistics I hadn't seen, as well as the others you posted, Tex. Gluten elimination has been my lifesaver and I haven't tested it since I stopped eating it in 8/09.Incidentally, his research also showed that 29% of normal volunteers test positive for gluten-sensitivity, (according to his stool tests), and 62% of those with autoimmune disease test positive for gluten-sensitivity, (according to his stool tests), FWIW.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Connie,
Those statistics come from this lecture outline, (which is posted on his website):
http://www.enterolab.com/Lecture/Lecturenew/frame.htm
Specifically from this slide:
29 Prevalence of Gluten Sensitivity in Various Groups
Tex
Those statistics come from this lecture outline, (which is posted on his website):
http://www.enterolab.com/Lecture/Lecturenew/frame.htm
Specifically from this slide:
29 Prevalence of Gluten Sensitivity in Various Groups
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.