My Update (Not Good)
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Wayne
you are sounding a bit better already....
i dont have any family living nearby (they are 10 - 12 hours away) so it is just me. Most of my friends are married with kids so i empathise about your situation.
re the food, during and just after a flare food that is easy to digest is best. gooey rice or mashed potato with well cooked meat ie chicken is one of my staples. gooey rice is well cooked rice with lots of extra water, do not drain it, the liquid is very very good for helping the gut to heal.
to make the rice taste better, i have batches of home made chicken stock, that i add to boil the rice.
there are a few other threads where we have talked about our 'flare food' and i am sure others will put their suggestion forward.
I have been taking anti-depressants for 3 years. the GI specialist had suggest i wean off them, my own research and how i feel at the moment i am going to keep taking them.
keep taking it step by step, day by day. you are sounding much much better, you are even starting to add some humour, poo humour at that!
take care
you are sounding a bit better already....
i dont have any family living nearby (they are 10 - 12 hours away) so it is just me. Most of my friends are married with kids so i empathise about your situation.
re the food, during and just after a flare food that is easy to digest is best. gooey rice or mashed potato with well cooked meat ie chicken is one of my staples. gooey rice is well cooked rice with lots of extra water, do not drain it, the liquid is very very good for helping the gut to heal.
to make the rice taste better, i have batches of home made chicken stock, that i add to boil the rice.
there are a few other threads where we have talked about our 'flare food' and i am sure others will put their suggestion forward.
I have been taking anti-depressants for 3 years. the GI specialist had suggest i wean off them, my own research and how i feel at the moment i am going to keep taking them.
keep taking it step by step, day by day. you are sounding much much better, you are even starting to add some humour, poo humour at that!
take care
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Wayne,
I'm on Pristiq, which is the next generation of Effexor (what Dee takes). I've had no side effects from it except for dry mouth. It's expensive but they do have a patient assistance program. It took me about a week before I did feel better.
As far as what to eat that's good, quick and easy you might try soups. You can probably eat most veggies, except beans or peas, as long as they are well cooked. When I flared, I found I could eat applesauce and canned peaches. That might give you some fruit to eat.
If you want milk, you might try the rice or almond milk. That should help just in case you're allergic to soy.
Good luck with the Entrolab sample. Just bite the bullet and get it over with. It won't be any messier than just going to the bathroom.
Good luck with your appointment with the new Dr. I'm keeping my fingers crossed for you.
Jan
I'm on Pristiq, which is the next generation of Effexor (what Dee takes). I've had no side effects from it except for dry mouth. It's expensive but they do have a patient assistance program. It took me about a week before I did feel better.
As far as what to eat that's good, quick and easy you might try soups. You can probably eat most veggies, except beans or peas, as long as they are well cooked. When I flared, I found I could eat applesauce and canned peaches. That might give you some fruit to eat.
If you want milk, you might try the rice or almond milk. That should help just in case you're allergic to soy.
Good luck with the Entrolab sample. Just bite the bullet and get it over with. It won't be any messier than just going to the bathroom.
Good luck with your appointment with the new Dr. I'm keeping my fingers crossed for you.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Hi Wayne,
I agree with Gabes that if you feel the need for an antidepressant, it may be a good idea to try to find one that works better, and continue to use it. (You can always reconsider, and wean off it, after you are in remission, if you feel that you don't need it then. Also, it is a fact that for many of us, antidepressants sometimes help to alleviate the D, (IOW, many of them have constipation, as a side effect, for some people). Of course, they don't necessarily suppress the inflammation, but they can suppress the D, by suppressing the production of serotonin in the gut. Approximately 80 percent of the human body's total serotonin is located in special cells in the gut, where it is used to regulate intestinal movements.
Almost everyone who first considers the GF diet, feels that way, because gluten has become so ubiquitous in our diet these days. If you go back and look at what your grandparents and great -grandparents ate, though, you will see that it was much easier to eliminate gluten back in those days, because most meals were prepared at home, from scratch, and even most processed foods didn't contain 30 or 40 ingredients, the way they do today. I can remember when a milkshake consisted of milk, and ice cream. These days, some milkshakes contain up to 30 or 40 ingredients, and there's a good chance that one of those ingredients is a derivative of gluten. No needs all that junk in their food.
IOW, the key to avoiding gluten, is to eat the way that your grandparents and great-grandparents ate, except that you need to cut out the wheat flour that they used to bake bread, cakes, pie crusts, etc. I have no proof of this, but I'll bet that the "Corn Flakes", and most other breakfast cereals that were not based on wheat, did not contain barley malt, the way they do today, so they probably would have been safe to eat on a GF diet. All the meat, potatoes, rice, etc., that they ate was gluten-free, and the same is true today, (so long as you avoid "injected" meats, and "enriched" rice.) The staples are still safe, when you cook from scratch, and there is no end to the variety of safe meals that can be made, just by using safe ingredients. Take a look at Dee's Kitchen:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
She has perfected recipes for at least several hundred dishes that are not only gluten-free, casein-free, and soy-free, but gourmet quality, as well. It's true that the diet requires changes in our eating habits, but we are certainly not "deprived", in any sense of the word.
Jan's suggestions sound good, too.
It's true that collecting a sample for Enterolab can be a tricky, (maybe even daunting), task, but don't worry - they've seen diarrhea before. And, finding out for sure, whether or not you are sensitive to something, is a very empowering discovery, and it can do wonders to boost your confidence and your morale, because after that, you no longer have to wonder, and you no longer have to guess. You can base your decisions on solid facts, and that, in itself, instills confidence, and a sense of relief.
Best of luck with this,
Tex
I agree with Gabes that if you feel the need for an antidepressant, it may be a good idea to try to find one that works better, and continue to use it. (You can always reconsider, and wean off it, after you are in remission, if you feel that you don't need it then. Also, it is a fact that for many of us, antidepressants sometimes help to alleviate the D, (IOW, many of them have constipation, as a side effect, for some people). Of course, they don't necessarily suppress the inflammation, but they can suppress the D, by suppressing the production of serotonin in the gut. Approximately 80 percent of the human body's total serotonin is located in special cells in the gut, where it is used to regulate intestinal movements.
Wayne wrote:Then if I also go gluten free that doesn't leave a whole lot.
Almost everyone who first considers the GF diet, feels that way, because gluten has become so ubiquitous in our diet these days. If you go back and look at what your grandparents and great -grandparents ate, though, you will see that it was much easier to eliminate gluten back in those days, because most meals were prepared at home, from scratch, and even most processed foods didn't contain 30 or 40 ingredients, the way they do today. I can remember when a milkshake consisted of milk, and ice cream. These days, some milkshakes contain up to 30 or 40 ingredients, and there's a good chance that one of those ingredients is a derivative of gluten. No needs all that junk in their food.
IOW, the key to avoiding gluten, is to eat the way that your grandparents and great-grandparents ate, except that you need to cut out the wheat flour that they used to bake bread, cakes, pie crusts, etc. I have no proof of this, but I'll bet that the "Corn Flakes", and most other breakfast cereals that were not based on wheat, did not contain barley malt, the way they do today, so they probably would have been safe to eat on a GF diet. All the meat, potatoes, rice, etc., that they ate was gluten-free, and the same is true today, (so long as you avoid "injected" meats, and "enriched" rice.) The staples are still safe, when you cook from scratch, and there is no end to the variety of safe meals that can be made, just by using safe ingredients. Take a look at Dee's Kitchen:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
She has perfected recipes for at least several hundred dishes that are not only gluten-free, casein-free, and soy-free, but gourmet quality, as well. It's true that the diet requires changes in our eating habits, but we are certainly not "deprived", in any sense of the word.
Jan's suggestions sound good, too.
It's true that collecting a sample for Enterolab can be a tricky, (maybe even daunting), task, but don't worry - they've seen diarrhea before. And, finding out for sure, whether or not you are sensitive to something, is a very empowering discovery, and it can do wonders to boost your confidence and your morale, because after that, you no longer have to wonder, and you no longer have to guess. You can base your decisions on solid facts, and that, in itself, instills confidence, and a sense of relief.
Best of luck with this,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Wayne,
No, I haven't had any adverse effects on the Effexor XR. Like I stated, I'm one of the lucky ones, that has suffered with clinical depression and generalized anxiety disorder for many years.
Then add MC to the mix and OH! WHAT! FUN!!!!!!
When I get some free time, I'll PM you a list of products to help you get started on your diet.
That's why I questioned what you like to eat????
Do you own a slow cooker or crockpot?
I know what it is like to work and have to come home to cook. I can help you with that, too.
Your going to have more options than what you think, whenever you want to get started.
Love
Dee~~
No, I haven't had any adverse effects on the Effexor XR. Like I stated, I'm one of the lucky ones, that has suffered with clinical depression and generalized anxiety disorder for many years.
Then add MC to the mix and OH! WHAT! FUN!!!!!!
When I get some free time, I'll PM you a list of products to help you get started on your diet.
That's why I questioned what you like to eat????
Do you own a slow cooker or crockpot?
I know what it is like to work and have to come home to cook. I can help you with that, too.
Your going to have more options than what you think, whenever you want to get started.
Love
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Wayne
again you sound much better than 2 weeks ago... and thanks for sharing the update
there has been some discussion on other threads about weight gain and weight loss, the short answer, we are all different. to me as long as the weight gain is not tooo bad, good health and no D is more important.
Gluten free type eating is a bit more expensive, then again it is cheaper than the high end medication options for treatment. Given that i have eliminated alcohol and barely eat out now, budget wise it is about same same for me.
(food costs now versus food +eating out + alcohol costs pre MC)
Some people (including me) have had some minor constipation issues whilst sorting out the med and food regime. Now that i am 'med free' and using diet, the instance of constipation has gone. now it is just controlling D flares and normally they are occurring as I am trying a new ingredient.
Hang in there, getting a good doctor that you can discuss things with is a wonderful positive....
again you sound much better than 2 weeks ago... and thanks for sharing the update
there has been some discussion on other threads about weight gain and weight loss, the short answer, we are all different. to me as long as the weight gain is not tooo bad, good health and no D is more important.
Gluten free type eating is a bit more expensive, then again it is cheaper than the high end medication options for treatment. Given that i have eliminated alcohol and barely eat out now, budget wise it is about same same for me.
(food costs now versus food +eating out + alcohol costs pre MC)
Some people (including me) have had some minor constipation issues whilst sorting out the med and food regime. Now that i am 'med free' and using diet, the instance of constipation has gone. now it is just controlling D flares and normally they are occurring as I am trying a new ingredient.
Hang in there, getting a good doctor that you can discuss things with is a wonderful positive....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Glad you have a doctor you can talk to now.
Very happy you got that sample in the mail and I hope an pray that there won't be any problems with it geting to EnteroLab.
I think you will feel better by going GF. I think anything is better than having D all the time.
Very happy you got that sample in the mail and I hope an pray that there won't be any problems with it geting to EnteroLab.
I think you will feel better by going GF. I think anything is better than having D all the time.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Wayne,
The appointment sounds promising. Two quick observations about her comment:
The weight gain "risk" depends on your choice of foods, (just as it does with a normal diet). Sure some GF foods have more calories than conventional "low-cal" offerings, but that doesn't mean that you can't choose lower calorie GF options, in many cases. I'll bet that Dee has some low-calorie recipes for many meals.
I hope the package gets sent, too, because it's going to get pretty "ripe" if it sits in that UPS store very long.
Tex
The appointment sounds promising. Two quick observations about her comment:
Going to see doctors is also expensive, but we gotta do what we gotta do. Actually, if you cook from scratch, the cost goes waaaaaaaaay down.She also said going gluten free would be expensive and more than likely cause weight gain (?).
The weight gain "risk" depends on your choice of foods, (just as it does with a normal diet). Sure some GF foods have more calories than conventional "low-cal" offerings, but that doesn't mean that you can't choose lower calorie GF options, in many cases. I'll bet that Dee has some low-calorie recipes for many meals.
I hope the package gets sent, too, because it's going to get pretty "ripe" if it sits in that UPS store very long.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You do sound better, Wayne, and I'm very glad. There truly is hope and I'm sure you will be successful. It's hard but much better than living with MC. I think it's not really as hard as you have believed. Lots of help here as you are discovering.
My best to you......... Keep posting.
Love, Shirley
My best to you......... Keep posting.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Wayne!
Have been AWOL lately but just logged on and saw that you have sent off your Enterolab test. HOORAY for you! You have just taken the first step on the path to health by taking matters into your own hands. Now you will know for certain if/what food intolerances you have. BTW, which test(s) did you order? As the PP will attest again and again, it is nearly impossible to put MC in remission by following only a GI's advice.
If you are sensitive to gluten, eliminating it will probably improve your mental outlook. I'm not saying it will cure depression, but I know it had an impact in my case. Even after a few weeks of going GF, I felt less irritable, more optimistic/hopeful, and a lifting of that "mental fog". I actually wrote all of that down at the time because I was so surprised.
Will be anxious to hear the results.
Love,
Polly
Have been AWOL lately but just logged on and saw that you have sent off your Enterolab test. HOORAY for you! You have just taken the first step on the path to health by taking matters into your own hands. Now you will know for certain if/what food intolerances you have. BTW, which test(s) did you order? As the PP will attest again and again, it is nearly impossible to put MC in remission by following only a GI's advice.
If you are sensitive to gluten, eliminating it will probably improve your mental outlook. I'm not saying it will cure depression, but I know it had an impact in my case. Even after a few weeks of going GF, I felt less irritable, more optimistic/hopeful, and a lifting of that "mental fog". I actually wrote all of that down at the time because I was so surprised.
Will be anxious to hear the results.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.