Another Night In The ER
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Another Night In The ER
Hi All,
I suppose that I should mention that I was released from the hospital, late this afternoon.
About 11 pm last night, while I was taking a shower, I suddenly noticed that the right side of my face was becoming numb. A minute or so later, my right hand and arm began to become tingly and numb, slowly progressing up to my bicep. Since this is exactly what happened last July 19, and no attempt at intervention was attempted by ER personnel, I didn't immediately go to the ER, but chose to finish my shower, and "wait and watch", instead. I did call the "night nurse" number at the hospital, but of course, their advice was that it was my choice - I could wait and call my PCP today, or play it safe, and go to the ER, last night. Their recommendation was to go to the ER, of course, sooooooooo, after changing my ileostomy body seal, (since I had been wearing the current one for 8 days, and it was time to change it), I went to the ER, on the outside chance that they might actually do something, this time. (After two hours, my symptoms were no worse, but not significantly better, either, so I arrived at the ER roughly 2 hours and 45 minutes after the symptoms began.) Surprisingly, they did do much more testing, this time. I suppose you have to prove to them that your body is serious about trying to commit stoke, so the second episode is much more convincing than the first.
Besides the usual blood tests and EKG, they promptly did a CAT scan of the brain, (to rule out any hemorrhaging), and when that was negative, they decided to hold me for a day or two to "observe", and make further tests. They did a series of MRI imaging of my brain and neck, (carotids), and again, didn't find any obvious problems. They sent a couple of neurologists to my room, (one was still in training, of course), and they checked my existing pheripheral neuropathy, and everything else that might be connected with neurological issues, (such as limb strength, range of motion, etc.), and they discovered that my lower limb reflexes are much improved from what they were a year ago, and so is my balance and coordination, so obviously the Metanyx, (megadoses of B-12, B-9, and B-6), seems to be working as advertised. It is claimed to actually reverse the peripheral neuropathy damage caused by diabetes. I don't have diabetes, of course, but the peripheral neuropathy that is sometimes caused by gluten crossing the blood/brain barrier, is very, very similar. I suppose that explains why my balance is better than it was a year ago.
Anyway, they agreed that while Parkinson's disease couldn't be completely ruled out, there doesn't appear to be enough evidence to diagnose it at the moment.
The bad news is that my attending physical insisted that even though no clear evidence of a cause for my symptoms exists, the evidence is sufficient to classify me as a high risk for a stroke, and as such, the primary goal is to lower my cholesterol level to the lowest possible level, regardless of any other considerations. You know what that means, I assume. It means that in addition to Lisinopril 10mg, once a day, (which I was already taking), I am to take Metoprolol Tartrate 25mg, twice a day, plus Plavix 75mg, once a day, plus, (you guessed it ), Simvastatin 20 mg, once a day.
Unless, my systolic BP checks at lower than 100 mmHg, at pill-taking time. In that situation, I am to skip both the Metoprolol and the Lisinopril, depending on whether one or both are due at that particular time, (either breakfast or bedtime - I take Lisinopril only at bedtime). All the docs insisted that where significant stroke risk is involved, not taking a statin, is not a debatable option.
Of course, I didn't get any sleep last night, and all the testing was kind of tiring, so even though I tried to write this post soon after I got back home, I kept dozing off, and had to postpone it until now. Anyway, that was my last 24 hours. It's interesting how life takes in different directions, from time to time. 24 hours later, the right side of my face still feels as if it had a shot of novacane that hasn't quite worn off, yet, but my arm/hand feels about 98% normal.
The MRI scans lasted a full 30 minutes, so I was mighty thankful that I don't have a claustrophobia problem. It was all I could do to keep from laughing a couple of times during the test, though. They instruct you to lie perfectly still, of course, but more than once during the scans, the vibrations become so intense that they actually physically shake you around. I kept thinking - "how the hell am I supposed to be still, when this thing is shaking me around like a rag doll". And, to make things even more interesting, they stick plugs in your ears, and then expect you to hear their verbal instructions to hold your breath at certain times during the scans, when they're on the other side of the room, and the machine always maintains a certain level of background noise. LOL.
I hope your day was much better.
Tex
I suppose that I should mention that I was released from the hospital, late this afternoon.
About 11 pm last night, while I was taking a shower, I suddenly noticed that the right side of my face was becoming numb. A minute or so later, my right hand and arm began to become tingly and numb, slowly progressing up to my bicep. Since this is exactly what happened last July 19, and no attempt at intervention was attempted by ER personnel, I didn't immediately go to the ER, but chose to finish my shower, and "wait and watch", instead. I did call the "night nurse" number at the hospital, but of course, their advice was that it was my choice - I could wait and call my PCP today, or play it safe, and go to the ER, last night. Their recommendation was to go to the ER, of course, sooooooooo, after changing my ileostomy body seal, (since I had been wearing the current one for 8 days, and it was time to change it), I went to the ER, on the outside chance that they might actually do something, this time. (After two hours, my symptoms were no worse, but not significantly better, either, so I arrived at the ER roughly 2 hours and 45 minutes after the symptoms began.) Surprisingly, they did do much more testing, this time. I suppose you have to prove to them that your body is serious about trying to commit stoke, so the second episode is much more convincing than the first.
Besides the usual blood tests and EKG, they promptly did a CAT scan of the brain, (to rule out any hemorrhaging), and when that was negative, they decided to hold me for a day or two to "observe", and make further tests. They did a series of MRI imaging of my brain and neck, (carotids), and again, didn't find any obvious problems. They sent a couple of neurologists to my room, (one was still in training, of course), and they checked my existing pheripheral neuropathy, and everything else that might be connected with neurological issues, (such as limb strength, range of motion, etc.), and they discovered that my lower limb reflexes are much improved from what they were a year ago, and so is my balance and coordination, so obviously the Metanyx, (megadoses of B-12, B-9, and B-6), seems to be working as advertised. It is claimed to actually reverse the peripheral neuropathy damage caused by diabetes. I don't have diabetes, of course, but the peripheral neuropathy that is sometimes caused by gluten crossing the blood/brain barrier, is very, very similar. I suppose that explains why my balance is better than it was a year ago.
Anyway, they agreed that while Parkinson's disease couldn't be completely ruled out, there doesn't appear to be enough evidence to diagnose it at the moment.
The bad news is that my attending physical insisted that even though no clear evidence of a cause for my symptoms exists, the evidence is sufficient to classify me as a high risk for a stroke, and as such, the primary goal is to lower my cholesterol level to the lowest possible level, regardless of any other considerations. You know what that means, I assume. It means that in addition to Lisinopril 10mg, once a day, (which I was already taking), I am to take Metoprolol Tartrate 25mg, twice a day, plus Plavix 75mg, once a day, plus, (you guessed it ), Simvastatin 20 mg, once a day.
Unless, my systolic BP checks at lower than 100 mmHg, at pill-taking time. In that situation, I am to skip both the Metoprolol and the Lisinopril, depending on whether one or both are due at that particular time, (either breakfast or bedtime - I take Lisinopril only at bedtime). All the docs insisted that where significant stroke risk is involved, not taking a statin, is not a debatable option.
Of course, I didn't get any sleep last night, and all the testing was kind of tiring, so even though I tried to write this post soon after I got back home, I kept dozing off, and had to postpone it until now. Anyway, that was my last 24 hours. It's interesting how life takes in different directions, from time to time. 24 hours later, the right side of my face still feels as if it had a shot of novacane that hasn't quite worn off, yet, but my arm/hand feels about 98% normal.
The MRI scans lasted a full 30 minutes, so I was mighty thankful that I don't have a claustrophobia problem. It was all I could do to keep from laughing a couple of times during the test, though. They instruct you to lie perfectly still, of course, but more than once during the scans, the vibrations become so intense that they actually physically shake you around. I kept thinking - "how the hell am I supposed to be still, when this thing is shaking me around like a rag doll". And, to make things even more interesting, they stick plugs in your ears, and then expect you to hear their verbal instructions to hold your breath at certain times during the scans, when they're on the other side of the room, and the machine always maintains a certain level of background noise. LOL.
I hope your day was much better.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Whoa Tex,
You sure are keeping them busy.
I can see you are tired. You missed the obvious joke that they did a CAT scan of your brain and didn't find anything. boom boom
This whole situation is not good at all. At least they were thorough checking you out this time.
Have a good night's sleep and I hope the numb feeling goes. Checking the full range of side effects and impacts of those meds can wait till later.
Lyn
You sure are keeping them busy.
I can see you are tired. You missed the obvious joke that they did a CAT scan of your brain and didn't find anything. boom boom
This whole situation is not good at all. At least they were thorough checking you out this time.
Have a good night's sleep and I hope the numb feeling goes. Checking the full range of side effects and impacts of those meds can wait till later.
Lyn
Tex,
You are getting way too friendly with the ER staff! Glad everything has checked out OK so far . . .what's the next step in figuring this out?
Whatever is going on is out of the ordinary and leaving them scratching their heads. Have you ever considered that you could have some mast cell activation? The CNS is loaded with mast cells and peipheral neuropathy and parasthesias can be caused by that. You have had numerous symptoms (numbness, GI bleeding, migraines, blood pressure changes and anemia). Just a thought - of course I think everyone has mast cell problems.
Get some rest - hope you feel better soon.
Mary Beth
You are getting way too friendly with the ER staff! Glad everything has checked out OK so far . . .what's the next step in figuring this out?
Whatever is going on is out of the ordinary and leaving them scratching their heads. Have you ever considered that you could have some mast cell activation? The CNS is loaded with mast cells and peipheral neuropathy and parasthesias can be caused by that. You have had numerous symptoms (numbness, GI bleeding, migraines, blood pressure changes and anemia). Just a thought - of course I think everyone has mast cell problems.
Get some rest - hope you feel better soon.
Mary Beth
WOW, I can't believe we just had that thread about statin drugs and............. here your are being told you have no choice but to take one. Well, I know you'll make the decision that makes sense to you.. so would I.
Was your blood pressure up again?
I sure wish we could do a "scrub" of the last several years and remove the things we'd like to "do over". That's juvenile, I know, but sometimes it's kind of nice to dream.
Please take care and please keep us informed about what is going on.
Love, Shirley
Was your blood pressure up again?
I sure wish we could do a "scrub" of the last several years and remove the things we'd like to "do over". That's juvenile, I know, but sometimes it's kind of nice to dream.
Please take care and please keep us informed about what is going on.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Golly Tex, Youve sure had a time of it. Yes I know what you mean about the time having an MRI. I couldnt hear the instructions either and wondered how any one was meant to. Apparently one can have their favorite CD playing as well, if they need calming. I held my breath thinking thats what was required, like with ordinary xrays, I nearly burst not knowing it could be 2 mins minimum while each "slice" was being taken. I then yelled out" Can I breath" . They never said to earlier and I think they should for people experiencing an MRI for the first time.
All the best for your recovering.
All the best for your recovering.
"Never pray for lesser burdens but for broader shoulders."
- MaggieRedwings
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Morning Tex,
I am sitting here wondering just what the hell is the matter and why can't they figure it out. More meds and no diagnosis. One has to wonder.
I want you to really take it easy and take care of yourself. Do what they say but with caution. You are very important to me and to all of us and we want you around here and not in the E.R.
Love you and am worried crazy.
Maggie
I am sitting here wondering just what the hell is the matter and why can't they figure it out. More meds and no diagnosis. One has to wonder.
I want you to really take it easy and take care of yourself. Do what they say but with caution. You are very important to me and to all of us and we want you around here and not in the E.R.
Love you and am worried crazy.
Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!
- wonderwoman
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Hi Everyone,
Lyn, you're right - I felt pretty rough last night, and I definitely completely overlooked that joke setup.
Mary Beth, you may be on to something. I think I'll research that a bit, (mast cell effects on the CNS). Thanks for the insight.
Shirley, that's exactly what was dominating my thoughts last night. Ain't that some irony? The blood pressure pattern has to be a clue, but the doctors are completely overlooking it, (presumably because, like me, they can't figure out what's going on. The doctor in charge of my case, and I, had a long discussion before he discharged me. After he went through the whole spiel against blood pressure, and cholesterol, etc., he admitted that my cholesterol was in the normal range, and my blood pressure was normally fine, etc., but he insisted that I needed to reduce my cholesterol to the absolute minimum, and suppress my BP, to keep it as low as possible, as long as it remained above 100 mmHg. His point was that high blood pressure causes strokes.
The problem is that I had just checked my BP roughly an hour before the TIA event began, and it was 114/69. Does that sound like a BP level that might trigger a stroke? Not to me it doesn't. After I finished my shower, dried off, got dressed, and settled down, I checked my BP again, and it was 162/95. So the question is, did something cause my BP to suddenly escalate, and trigger an embolism? Or was the elevated BP simply the result of my reaction to the realization that I could be having a stroke? I'm guessing that it was the latter, because as far as I am aware, it's impossible to face the realization that one's life may well be in serious jeopardy, without experiencing a BP spike, in response, due to the release of adrenalin, etc. Anyway, my question to the doctors, (which none of them could answer), was, "If high blood pressure causes strokes, then why am I having these so-called 'mini-strokes', with low blood pressure?"
Emjayn, you're right, of course - it would be nice if they would explain prior to the test that it's OK to breathe, except for when they specifically request otherwise. I had an MRI brain scan last August, at another hospital, and even though they used older equipment, they had me wear headphones, (instead of the ear plugs used in the most recent scan), and the operator used a microphone to relay instructions, and it was very easy to understand his instructions, that way.
Harma, I'm feeling much better this morning, and the numbness is almost completely gone, both in my arm, and my face, so hopefully, things are back to normal.
Maggie, I'm wondering what's going on, too, because deep down, it bothers the hell out of me that doctors seem to have a one-track mind, and to them, cholesterol, (even normal levels), and/or high blood pressure, cause strokes. I don't have high BP, (at least I certainly didn't have high BP just prior to this event), and I see no reason why normal cholesterol levels should be a problem. I'm afraid that big pharma has "sold them a bill of goods", and convinced them that cholesterol is the root of all evil, regarding heart health and stroke risk. I have a hunch that cholesterol levels are a symptom, not a cause, of coronary and stroke issues. If AstraZeneca wins that Crestor case, then for the first time in history, doctors will be prescribing a serious drug, to people who are not sick. Everyone in the general population is a potential target of this campaign. If that's the case, and the drug is so wonderful for long-term health, then why should it be available by prescription only? It should be available OTC. The answer, of course, is that it is much more profitable to Big Pharma, and to the medical profession, to retain it's prescription-only status.
Joan, yes, I do plan to take it easy today. I was supposed to go to an awards banquet, a couple of hours away, tonight, but I've already called, and canceled out on that event. They can certainly pull it off successfully without me. LOL.
Ant, - man I hope things settle down, too. I received friendly, excellent care, in the ER/hospital yesterday, but it's just not one of my favorite places to hang out.
Charlotte, I appreciate the kind words, but really, it appears to me that everyone here does a pretty good job of helping each other, so I'm not exactly indispensable.
Thanks, everyone.
Love,
Tex
Lyn, you're right - I felt pretty rough last night, and I definitely completely overlooked that joke setup.
Mary Beth, you may be on to something. I think I'll research that a bit, (mast cell effects on the CNS). Thanks for the insight.
Shirley, that's exactly what was dominating my thoughts last night. Ain't that some irony? The blood pressure pattern has to be a clue, but the doctors are completely overlooking it, (presumably because, like me, they can't figure out what's going on. The doctor in charge of my case, and I, had a long discussion before he discharged me. After he went through the whole spiel against blood pressure, and cholesterol, etc., he admitted that my cholesterol was in the normal range, and my blood pressure was normally fine, etc., but he insisted that I needed to reduce my cholesterol to the absolute minimum, and suppress my BP, to keep it as low as possible, as long as it remained above 100 mmHg. His point was that high blood pressure causes strokes.
The problem is that I had just checked my BP roughly an hour before the TIA event began, and it was 114/69. Does that sound like a BP level that might trigger a stroke? Not to me it doesn't. After I finished my shower, dried off, got dressed, and settled down, I checked my BP again, and it was 162/95. So the question is, did something cause my BP to suddenly escalate, and trigger an embolism? Or was the elevated BP simply the result of my reaction to the realization that I could be having a stroke? I'm guessing that it was the latter, because as far as I am aware, it's impossible to face the realization that one's life may well be in serious jeopardy, without experiencing a BP spike, in response, due to the release of adrenalin, etc. Anyway, my question to the doctors, (which none of them could answer), was, "If high blood pressure causes strokes, then why am I having these so-called 'mini-strokes', with low blood pressure?"
Emjayn, you're right, of course - it would be nice if they would explain prior to the test that it's OK to breathe, except for when they specifically request otherwise. I had an MRI brain scan last August, at another hospital, and even though they used older equipment, they had me wear headphones, (instead of the ear plugs used in the most recent scan), and the operator used a microphone to relay instructions, and it was very easy to understand his instructions, that way.
Harma, I'm feeling much better this morning, and the numbness is almost completely gone, both in my arm, and my face, so hopefully, things are back to normal.
Maggie, I'm wondering what's going on, too, because deep down, it bothers the hell out of me that doctors seem to have a one-track mind, and to them, cholesterol, (even normal levels), and/or high blood pressure, cause strokes. I don't have high BP, (at least I certainly didn't have high BP just prior to this event), and I see no reason why normal cholesterol levels should be a problem. I'm afraid that big pharma has "sold them a bill of goods", and convinced them that cholesterol is the root of all evil, regarding heart health and stroke risk. I have a hunch that cholesterol levels are a symptom, not a cause, of coronary and stroke issues. If AstraZeneca wins that Crestor case, then for the first time in history, doctors will be prescribing a serious drug, to people who are not sick. Everyone in the general population is a potential target of this campaign. If that's the case, and the drug is so wonderful for long-term health, then why should it be available by prescription only? It should be available OTC. The answer, of course, is that it is much more profitable to Big Pharma, and to the medical profession, to retain it's prescription-only status.
Joan, yes, I do plan to take it easy today. I was supposed to go to an awards banquet, a couple of hours away, tonight, but I've already called, and canceled out on that event. They can certainly pull it off successfully without me. LOL.
Ant, - man I hope things settle down, too. I received friendly, excellent care, in the ER/hospital yesterday, but it's just not one of my favorite places to hang out.
Charlotte, I appreciate the kind words, but really, it appears to me that everyone here does a pretty good job of helping each other, so I'm not exactly indispensable.
Thanks, everyone.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- Gabes-Apg
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Tex
hope you are getting some rest and recovering from the episode.
and it totally sux to have 'mystery situation' where the symptoms and the diagnosis dont match. (and it doesnt match their little check sheet for the big pharma meds!)
how are you feeling (aside from your mind working overtime to figure out what is going on) are you having any other symptoms
hope you are getting some rest and recovering from the episode.
and it totally sux to have 'mystery situation' where the symptoms and the diagnosis dont match. (and it doesnt match their little check sheet for the big pharma meds!)
how are you feeling (aside from your mind working overtime to figure out what is going on) are you having any other symptoms
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hey Tex,
And again, --- no one mentions the possibility of MIGRAINE??
With your history of that similar event last summer, as well as all those visual migraine auras???
Better review that history with them, or they will continue to CT and MRI your head --- forever.
Migraine, like Parkinson's, is something of a default diagnosis, not something they arrive at without first going through "the works" (which they have done).
Best,
Gayle
And again, --- no one mentions the possibility of MIGRAINE??
With your history of that similar event last summer, as well as all those visual migraine auras???
Better review that history with them, or they will continue to CT and MRI your head --- forever.
Migraine, like Parkinson's, is something of a default diagnosis, not something they arrive at without first going through "the works" (which they have done).
Best,
Gayle
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