Hello everyone,
I reported yesterday that I was able to eat a cooked meal again and that it stayed inside of me!
However, this night I woke up with severe abdominal pains and had to go to the toilet all the time. All morning I have been very ill, i even have some fever.
I am just worried that I never will be able to eat proper food again. Have you been there?
I am starting Enterocort today.
Annie
I am really desperate and worried
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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belgiangirl
- Little Blue Penguin
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- Joined: Thu Jun 03, 2010 3:53 pm
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Hey Annie, hang in there. Starting the entocort when it is this bad is a good move. Be patient it takes the entocort a few days to begin working. For me I noticed a difference at day 3, and by day 11 the D had significantly slowed down. Everyone's response to the medication can be different. Keep the foods simple as you can and take the medication exactly as prescribed.
I know this is hard but you will be feeling better soon. Just about all of us on this board have experienced what you are going through and have found that given the diet and medications things do get better.
The diet is just as important as the medication. Keep to the gluten free foods, it will tkae a little while to allow things to heal. Consistency on your part is important
I know for me I am tempted once I start to feel better to eat the way I used to, but to do that would mean discomfort again.
Hang in there Angie, give the medication and the diet a chance to work, it will. Listen to your body; eating small amounts more frequently during the day slowly also helps when your system is this upset.
Keep us informed of how you are doing and please let us know if you have any questions.
--Joe
I know this is hard but you will be feeling better soon. Just about all of us on this board have experienced what you are going through and have found that given the diet and medications things do get better.
The diet is just as important as the medication. Keep to the gluten free foods, it will tkae a little while to allow things to heal. Consistency on your part is important
I know for me I am tempted once I start to feel better to eat the way I used to, but to do that would mean discomfort again.
Hang in there Angie, give the medication and the diet a chance to work, it will. Listen to your body; eating small amounts more frequently during the day slowly also helps when your system is this upset.
Keep us informed of how you are doing and please let us know if you have any questions.
--Joe
Joe
Hallo Annie, so sorry to hear after a good afternoon you had a bad night. What works for most of us, especially in the beginning after receiving the diagnoses is the combination medication (entocort) and diet. For some only diet works and others choose the road of only medication (only problem is than after you stop taking the meds, sooner or later the d comes back). But most important of all, what ever you choose to do, patience is so important.
the best way to deal with this disease is to take it step by step. I agree with Joe, I think it is a good idea you've started with entocort. For most of us here, it gives results in a couple of days. The d will be gone or at least much less. Sometimes it works very quick almost within the same day, and is some cases it can take up to two week.
The next step, what was a key step for me, was the enterolab testing. You're interesting in doing it I read in you earlier messages. I did the whole package, I wanted to know what food I was intolerant to. When it comes to MC most important are gluten, milk and soy. As mentioned before oversees testing is no problem.
Another thing you can do from today is start to eat gluten free. For the enterolab testing you don't need to eat gluten until you've sent your "sample" to the US.
the best way to deal with this disease is to take it step by step. I agree with Joe, I think it is a good idea you've started with entocort. For most of us here, it gives results in a couple of days. The d will be gone or at least much less. Sometimes it works very quick almost within the same day, and is some cases it can take up to two week.
The next step, what was a key step for me, was the enterolab testing. You're interesting in doing it I read in you earlier messages. I did the whole package, I wanted to know what food I was intolerant to. When it comes to MC most important are gluten, milk and soy. As mentioned before oversees testing is no problem.
Another thing you can do from today is start to eat gluten free. For the enterolab testing you don't need to eat gluten until you've sent your "sample" to the US.
Hi Annie,
I'm sorry to hear that you had such a bad night. Maybe you ate too much at one time. When our gut is inflamed, it cannot produce sufficient enzymes to properly digest large meals. As Joe suggested, we do better if we eat smaller meals, but eat more often. This gives the gut time to do a better job of producing digestive enzymes. Until your gut heals, you are gong to continue to have those reactions, but if you eat smaller meals, the reactions should be smaller.
Yes, most of us have spent many days and nights, going through what you went through last night. This disease can make us feel sicker than we have ever felt before. As the others said, after you take Entocort for a few days, you should be able to eat more, without having such bad reactions, and the Entocort, together with the diet, will allow your gut to heal, and your health will slowly return to normal. It's rough now, but you will get better.
Tex
I'm sorry to hear that you had such a bad night. Maybe you ate too much at one time. When our gut is inflamed, it cannot produce sufficient enzymes to properly digest large meals. As Joe suggested, we do better if we eat smaller meals, but eat more often. This gives the gut time to do a better job of producing digestive enzymes. Until your gut heals, you are gong to continue to have those reactions, but if you eat smaller meals, the reactions should be smaller.
Yes, most of us have spent many days and nights, going through what you went through last night. This disease can make us feel sicker than we have ever felt before. As the others said, after you take Entocort for a few days, you should be able to eat more, without having such bad reactions, and the Entocort, together with the diet, will allow your gut to heal, and your health will slowly return to normal. It's rough now, but you will get better.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Annie,
Just to reinforce what others have said, when I started entocort at first I bloated even more (I was still eating gluten and dairy... which was a bad idea
) Then after about 10 days on entocort and a GF, DG, SF, EF diet I started to see progress.
Hope you get through this bad phase soon, Best ant
Just to reinforce what others have said, when I started entocort at first I bloated even more (I was still eating gluten and dairy... which was a bad idea
) Then after about 10 days on entocort and a GF, DG, SF, EF diet I started to see progress.Hope you get through this bad phase soon, Best ant
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belgiangirl
- Little Blue Penguin
- Posts: 26
- Joined: Thu Jun 03, 2010 3:53 pm
thank you for your support
thanks a lot to all of you for your support and experience. i don't know what I would do without you.
I still have a lot of pain this evening, what do you take to relieve the pain?
Annie
I still have a lot of pain this evening, what do you take to relieve the pain?
Annie
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collagastritis84
- Little Blue Penguin
- Posts: 35
- Joined: Mon May 24, 2010 7:40 pm
Hey Annie hang in there, we have all been there. The best thing you can do is try to take your mind off of it. Let the Entocort do its job. This disease is driven by stress in a lot of cases. I dont think NSAIDS are safe to take with MC maybe Tylenol is OK. Anyone else know about safe pain meds?
ibrown
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Joefnh
- Rockhopper Penguin
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- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Tylenol (paracetamol) works. I did find that Tramadol (Ultram) works quite well as it is a non-narcotic pain reliever that is not a NSAID. Say away from Naprosyn, Ibuprophen (Advil) or any other Non-Steroidal Anti Inflammatory (NSAID) medication. NSAIDs are a direct aggravent to this disease.
Take Care
--Joe
Take Care
--Joe
Joe
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belgiangirl
- Little Blue Penguin
- Posts: 26
- Joined: Thu Jun 03, 2010 3:53 pm
Abdominal pain
I meant abdominal pain, it are not cramps, it is like a huge weight is pressing on my bowels and I can't breath anymore.
Annie
Annie
Hi Annie yes I recognize that, only I always find it very difficult to describe how it feels, I say "if there are going stones through my bowel". In my case it was a pressure and very uncomfortable feeling, which only started after I start taking the entocort. After the results of the enterolab testing and a dramatically change in food habits it slowly got better.