Hello everyone,
I went to my hospital today for a check up. The doctor told me my stomach is still very inflamed but that it should improve with Entercort. She then said to me that I could have a flare up (is this true?) but that apart from that I could eat everything!!! I told her I was allergic to gluten, soy, cafeine and lactose but she seemed sceptical. They only see one or two patiens withcc a month in this hoqpital.
love,
annie
Lack of knowledge CC by Belgian medical profession
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belgiangirl
- Little Blue Penguin
- Posts: 26
- Joined: Thu Jun 03, 2010 3:53 pm
Hello Annie, this is a normal response from almost any GI in almost any country. Mainstream medicine does not acknowledge the relation between IBD and food in general (on the contrary over and over they keep on writing on any information site on crohn and UC, that research does not show any relationship between an IBD flare up and certain types of food). In specific for MC some GI might admit that there might be a slight possibility that there is a relationship between gluten and MC (main reason is a significant higher amount of MC patients among celiacs, about 4% of people with celiac have MC). The only GI that admits that there is a relationship between gluten and MC is Dr Fine (of enterolab).
The only thing mainstream medicine and GI's can offer is a diagnosis and a prescribtion for medication. If you have read some messages here lately, you are lucky if a. you get a proper and quick diagnosis and b. you get the right medication (entocort). For know that is all you can expect for GI's and mainstream medicine. If you are lucky you will find a doctor with an open mind to the diet and encourage you to do it (like my GI).
All the other MC things, you have to sort out yourself. That is why self management is so important with MC. And thanks god there is this the MC board (again a thank you for the founders of the potty people)
harma
The only thing mainstream medicine and GI's can offer is a diagnosis and a prescribtion for medication. If you have read some messages here lately, you are lucky if a. you get a proper and quick diagnosis and b. you get the right medication (entocort). For know that is all you can expect for GI's and mainstream medicine. If you are lucky you will find a doctor with an open mind to the diet and encourage you to do it (like my GI).
All the other MC things, you have to sort out yourself. That is why self management is so important with MC. And thanks god there is this the MC board (again a thank you for the founders of the potty people)
harma
I went through every GI doc in the area until I found a decent one...:)
Yes even on entocort you can have flares.. I can eat anything I want to after 6 years on entocort. BUT in moderation. If I eat something I know could cause me problems I take a second pill before I go to bed or if I start to feel uncomfortable. I usually just take one a day otherwise. Took me years to get down to two pills a day.. then one day I got daring and went to one pill a day.
If your doctor is seeing a couple of patients a month..that is more than most ever see or ever diagnose correctly...
grannyh
Yes even on entocort you can have flares.. I can eat anything I want to after 6 years on entocort. BUT in moderation. If I eat something I know could cause me problems I take a second pill before I go to bed or if I start to feel uncomfortable. I usually just take one a day otherwise. Took me years to get down to two pills a day.. then one day I got daring and went to one pill a day.
If your doctor is seeing a couple of patients a month..that is more than most ever see or ever diagnose correctly...
grannyh
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Linda in BC
- Rockhopper Penguin
- Posts: 801
- Joined: Mon Apr 19, 2010 9:39 am
- Location: Creston British Columbia
Hello Annie:
I went to my family doctor the other day to get a prescription renewed (for a medication I had asked him for to help with my MC called Low Dose Naltrexone (LDN) ) and he had a medical student in there with him. He looked at my file and said, "You have Lymphocytic colitus, is that right? " I said , "Yes." And then he said, "I 've never heard of Lymphocyic colitus. I 've heard of Cologenious colitus but not Lymphocytic", and then he turned to the med student and asked if she had ever heard of it, and she said no, too!
No wonder he doesn't know what to do with it or how to help me. And we have no specialist here in the small town where I live , so he is all I have!
Linda
I went to my family doctor the other day to get a prescription renewed (for a medication I had asked him for to help with my MC called Low Dose Naltrexone (LDN) ) and he had a medical student in there with him. He looked at my file and said, "You have Lymphocytic colitus, is that right? " I said , "Yes." And then he said, "I 've never heard of Lymphocyic colitus. I 've heard of Cologenious colitus but not Lymphocytic", and then he turned to the med student and asked if she had ever heard of it, and she said no, too!
No wonder he doesn't know what to do with it or how to help me. And we have no specialist here in the small town where I live , so he is all I have!
Linda
"Be kind whenever possible. It is always possible."
The 13th Dali Lama
The 13th Dali Lama
When I first saw my GI three years ago, I was his second MC patient. Now he says he has many more because he does a biopsy on all women over 50 with IBS-type symptoms. But he still offers the same treatment: Entocort. I don't think he understands that diet plays a part.
Rare is the GI who connects diet with MC. Even if they did, we would still be on our own to figure out our individual intolerances beyond the Enterolab tests.
Gloria
Rare is the GI who connects diet with MC. Even if they did, we would still be on our own to figure out our individual intolerances beyond the Enterolab tests.
Gloria
You never know what you can do until you have to do it.