Memory- if you ar out there please read.
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
From a forum called Pain in the Gutt
" Asacol -- what the drug companies don't want you to know
« on: August 04, 2006, 04:06:27 PM »
--------------------------------------------------------------------------------
STOP THE ASACOL!!!!!!!!
I said it before and I am saying it again because since I stopped taking those daily asacol pills I have gone into complete remisison. So much so that I have gotten off of dissability and am even about to take a job at Club Med because I feel that good!!!
What the drug companies don't want you to know is that Asacol contains LACTOSE (dairy). A lot of IBD sufferers can not tolerate dairy. For me -- cutting dairy and gluten out of my diet has made a HUGE difference!
An inactive ingredient of Asacol is called "lactose monohydrate" also known as milk sugar. Research has shown that "Lactose, or milk sugar, is used as the base for more than 20 percent of prescription drugs and about 6 percent of over-the-counter medicines."
Check out these links (copy and paste them in your browser) to find out more about lactose monohydrate and Asacol:
http://allergies.about.com/cs/medicatio ... 60401a.htm
You also can ask your pharmacy for a DETAILED ingredients list of your medication!"
« on: August 04, 2006, 04:06:27 PM »
--------------------------------------------------------------------------------
STOP THE ASACOL!!!!!!!!
I said it before and I am saying it again because since I stopped taking those daily asacol pills I have gone into complete remisison. So much so that I have gotten off of dissability and am even about to take a job at Club Med because I feel that good!!!
What the drug companies don't want you to know is that Asacol contains LACTOSE (dairy). A lot of IBD sufferers can not tolerate dairy. For me -- cutting dairy and gluten out of my diet has made a HUGE difference!
An inactive ingredient of Asacol is called "lactose monohydrate" also known as milk sugar. Research has shown that "Lactose, or milk sugar, is used as the base for more than 20 percent of prescription drugs and about 6 percent of over-the-counter medicines."
Check out these links (copy and paste them in your browser) to find out more about lactose monohydrate and Asacol:
http://allergies.about.com/cs/medicatio ... 60401a.htm
You also can ask your pharmacy for a DETAILED ingredients list of your medication!"
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi Memory
I was on Sulphasalazine for about 2 1/2 weeks and was having no real problems except some heartburn, until I got the 'big pain' in my lower abdomen. Then followed bloating, nausea, gas, 'anorexia', and stomach cramps, and a 'burny' feeling in my mid abdomen. This all started to subside somewhat about 4 -5 days after stopping the drug, but lingered in a more reduced form. Then the big D started with a major, still ongoing, flare. Sigh.
Mia
I was on Sulphasalazine for about 2 1/2 weeks and was having no real problems except some heartburn, until I got the 'big pain' in my lower abdomen. Then followed bloating, nausea, gas, 'anorexia', and stomach cramps, and a 'burny' feeling in my mid abdomen. This all started to subside somewhat about 4 -5 days after stopping the drug, but lingered in a more reduced form. Then the big D started with a major, still ongoing, flare. Sigh.
Mia
Re: From a forum called Pain in the Gutt
OK, now I'm confused. Zyrtec contains "lactose monohydrate" and was just discussed in a recent thread: http://www.perskyfarms.com/phpBB2/viewt ... c&start=15JLH wrote:What the drug companies don't want you to know is that Asacol contains LACTOSE (dairy). A lot of IBD sufferers can not tolerate dairy. For me -- cutting dairy and gluten out of my diet has made a HUGE difference!
An inactive ingredient of Asacol is called "lactose monohydrate" also known as milk sugar. Research has shown that "Lactose, or milk sugar, is used as the base for more than 20 percent of prescription drugs and about 6 percent of over-the-counter medicines."
Check out these links (copy and paste them in your browser) to find out more about lactose monohydrate and Asacol:
http://allergies.about.com/cs/medicatio ... 60401a.htm
I'm assuming we're talking about the same type of Lactose monohydrate. If we avoid Asacol because it contains lactose, shouldn't we also avoid Zyrtec and Claritin?Tex wrote:Gloria,
You're correct, of course. Lactose monohydrate is a solid form of lactose. It's made by simply crystallizing lactose out of solution.
It should be pure, though, so it shouldn't contain any casein. That suggests that it might not cause an adverse reaction. IOW, trace amounts of casein can cause reactions, but more than trace amounts of lactose should be required to cause problems, since lactose can't trigger an autoimmune response, (theoretically, at least). There's no way of knowing for sure, without trying it, unfortunately.
Gloria
You never know what you can do until you have to do it.
Gloria my medication (the budesonide version budenofalk and zyzal, something like zyrtec) does contain lactose. I can't digest lactose, but in these cases the amounts are so low, I don't believe it can cause of any bowel problem. Lactose intolerance is not an autoimmune response but a lack of enzyme to digest the lactose.
My idea always was the same as you were quoting tex in your last message. Pure, not containing traces of casein from milk. I just hope this is the case. Entocort could be an alternative for the budesonide, but for the zyzal, I have no idea if there is an alternative. And sometimes (not very often) I take a paracetamol. I never have checked that one for ingredients, but I bet there is lactose in there too.
It is just so difficult to avoid, I would prefer of course to have lactose free medication. But that seems to be impossible. So I live with it and hope that it will only contain lactose and no casein.
My idea always was the same as you were quoting tex in your last message. Pure, not containing traces of casein from milk. I just hope this is the case. Entocort could be an alternative for the budesonide, but for the zyzal, I have no idea if there is an alternative. And sometimes (not very often) I take a paracetamol. I never have checked that one for ingredients, but I bet there is lactose in there too.
It is just so difficult to avoid, I would prefer of course to have lactose free medication. But that seems to be impossible. So I live with it and hope that it will only contain lactose and no casein.
Hmmm. I took Zyrtec and I was fine but it didn't help my post nasal drip. I took Claritin after that and have had really bad nausea etc. for over a week. I can't seem to get rid of it. I used some Mylanta and Pepto. I don't want to eat much food at all.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Mia,
I was in pain ( abdominal cramping ) from Asacol for 2 weeks before I stopped taking it. It was severe, a pain like I have never felt... bloating big time, nausea and I also had awful heartburn !! I think it is ok for some ppl and they dont have any issues taking it, but for me ( and possibly you ) we just dont tolerate it for some reason...I do remember reading the literature that came with the Aascol that said it may exacerbate your CC symptoms ( this was also confirmed by my Dr )...and once I stopped taking it I felt so much better even tho i was in the midst of a flare, so i know it was a reaction to the Asacol that made me feel worse than i normally would have with a flare up. I wouldnt take that drug again for anything !!
Have you had a endoscopy to ck for acid reflux ? The heartburn and burn you feel in your stomach may be from acid...I know what you are going thru and I sure hope you feel better soon.
Big Hugs, Memory
I was in pain ( abdominal cramping ) from Asacol for 2 weeks before I stopped taking it. It was severe, a pain like I have never felt... bloating big time, nausea and I also had awful heartburn !! I think it is ok for some ppl and they dont have any issues taking it, but for me ( and possibly you ) we just dont tolerate it for some reason...I do remember reading the literature that came with the Aascol that said it may exacerbate your CC symptoms ( this was also confirmed by my Dr )...and once I stopped taking it I felt so much better even tho i was in the midst of a flare, so i know it was a reaction to the Asacol that made me feel worse than i normally would have with a flare up. I wouldnt take that drug again for anything !!
Have you had a endoscopy to ck for acid reflux ? The heartburn and burn you feel in your stomach may be from acid...I know what you are going thru and I sure hope you feel better soon.
Big Hugs, Memory