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Kari
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Post by Kari »

That makes a lot of sense Tex - thanks for the clarification. At this point in time, I'm so thrilled to be on the road to recovery, that I'll gladly eat whatever works. In my brief history of being gluten/dairy/soy free I've discovered that there are a lot of wonderful products on the market, not to mention the whole universe of unprocessed foods (I'm finally learning to cook:)).

The day I discovered the MC/gluten connection, I was in Steamboat Springs, Colorado, and found a wonderful little market that catered to celiacs. Here in the Denver area where I live, Vitamin Cottage has a lot of gluten free products which are labeled as such on the shelves, making shopping easier, as it saves the time of having to scrutinize labels.

It seems to me that this way of eating is healthier in general. As with anything else, making a change from what is habitual is the hard part. Once the change has been made, it is easy, and finally becomes second nature.
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Post by JLH »

You have Udi's. I'm jealous.
DISCLAIMER: I am not a doctor and don't play one on TV.

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Joan
Kari
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Post by Kari »

Yes - Udi's is great - I'm a huge bread lover. There is also a gluten free bakery in Colorado Springs called "Outside the Breadbox, Inc." which has really good bread, also available at Vitamin Cottage. Sorry that it sounds like you don't have access to these great products

My favorite gluten free product (as well as favorite sweet treat) that I have found so far is "Pamela's Baking and Pancake mix". It makes for the best pancakes I have ever had - even my fickle (and healthy) fiance loves them. Instead of the customary bloating followed by fatigue I get after eating wheat pancakes, these pancakes leave me feeling light and energized!!! Amazing ....
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Matthew
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Post by Matthew »

Dear Kari

Welcome as a new member and another Denver resident. My hope is that you are no where near the raging forest fire and are out of the line of smoke. Things have not been to bad here but no question their is a haze of smoke in the air.

Just wanted to make sure that besides Vitamin Cottage and Whole Foods that you have also visited Sunflower Market . They have lots of organic fruit and produce at cheaper rates than Vitamin Cottage and Whole Foods. Also a good line of gluten free foods from Bob’s Red Mill. I have never had a problem with their pork and chicken . I shop at the one just south of Yale on Colorado Boulevard but their are others that may be closer to you. Just be careful of the bulk bins, they may be cross contaminated. They also carry some Udi’s products but since they all contain tapioca I can not eat them.

Their is a small farmers Market on Old South Pearl street from 9 till 1 every Sunday. Not lots of produce but much to my joy Ela Family Farms brings in fresh peaches, cherries , plumbs , cider and the most delicious organic apples you have ever tasted from the western slope . Well worth my short walk. And really nice people which just makes it even better. I live in the Platte Park area so many of these places are in easy walking distance.

My best from the Mile High City !

Matthew
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tex
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Post by tex »

Kari,

I had Pamela's pancakes for breakfast this morning, and I agree, that mix is arguably the best available, gluten-free or otherwise.

It does contain cultured buttermilk, however. Are you sure that you're casein-sensitive? Cultured buttermilk is low in lactose, (like yogurt), but it is not low in casein, unless the curds are removed. Maybe you're just lactose intolerant, (which may be a temporary condition - it may resolve after your gut heals).

Incidentally, if you should ever need a top of the line GI doc, Dr. Scot Lewey practices in Colorado Springs. He is arguably one of the top GI docs in this country, for dealing with food-related GI issues, and he's a dedicated blogger about food-related GI issues. Another of our members who lives in Colorado uses him as her GI doc. Unfortunately, he only accepts Colorado residents as patients. :sad:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by JLH »

Yes, my HFS carries Udi's now because I asked them to do so after reading about them on the PP and the www. Quite expensive, though, as is everything in the store.

DH got a few things at Eath Fare in Auburn for me. The Udi's things were cheaper there. He got me cinnamon buns but they weren't so great. I MUCH prefer their muffins. He also got me some Pamela's ginger cookies which, at first, I though tasted like medicine, but I got used to them.

Our Earth Fare is still a shell of a building. Can't wait, just so they don't put the HFS out of business.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Kari
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Post by Kari »

Matthew - Yes, Sunflower is my favorite market by far - I was thrilled when they opened up a store on Bowles and Wads near where I live. They do not carry good gluten free bread, but their produce is amazing and very reasonable. So nice to hear from someone in the Denver area - I have lived here for 4 years (moved from NYC) and absolutely love it. Thanks for your welcome comments.

Tex - I have not been tested for any allergies, just trial and error at this point - I don't know very much about the various allergens, so the knowledge you're sharing with me is hugely appreciated. I do not have a reaction to Pamela's, so your analysis is probably correct. Since I'm doing so much better for the first time in 10 years, I'm trying to be as careful as possible, using the limited knowledge I have. I bought lactose free milk a week ago, but didn't seem to do well with it, so I let it go. I'm really not sure what's going on, but if I can succeed in getting into full remission, I will probably then start experiementing with reintroducing items, one at the time, and see where it goes. Thanks for the info on the GI in Colorado Springs.

Joan - I'm trying to figure out where you live from your posts??? I didn't know Pamela's make ginger cookies - will give them a try .....

Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Zizzle
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Post by Zizzle »

Kari,
Regarding casein intolerance, I tested positive through Enterolab, but the titer was so low, I'm not sure I beleive it. I have severe lactose intolerance - I can't even taste a small bit of my kids' ice cream, but I can still cook with a little butter, eat salads with a few feta crumbles, and not worry too much about casein additives in processed foods. I can also eat goat cheese with seemingly no trouble, so I've found shredded goat cheese and goat milk yogurt at Trader Joe's. But I wouldn't try a glass of lactose free milk. Just not worth it.

Same goes for soy. I used to drink soymilk and eat tofu and edamame. Now I only allow soy additives like soy lecithin in dark chocolate or gluten free soy sauce and terriyaki sauce. Fermented soy is much better for you anyway - perhaps the proteins are altered by the process?

Incidentally, I lost 7 lbs in less than 2 months on the diet, mostly because I noticed a severe decrease in food cravings. I have to remind myself to eat now (unless it's PMS time!). I guess gluten really is addictive. I expected to gain weight once the D improved. But my diet is much healthier too. It does feel like I lost alot of water weight and swelling from my abdomen - I guess from much of the inflammation going down. I can finally wear fitted shirts again!! But now that I have a better handle on what I can eat, and what my staples are, I seem to be eating more.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
Linda in BC
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Post by Linda in BC »

Hi Kari, and welcome:

Something that I noticed in your post, and I don't think anyone else has commented on, is about your reaction after eating stir-fry.. my thinking is that maybe it could be the vegetables, if there were lots in it. Many of us (dare I say , most of us?) cannot tolerate much fiber, so raw or lightly cooked vegies, as in stir fry, lettuce (especially lettuce!), and even many cooked veggies reek havoc with us. I find I can only tolerate well cooked carrots at this point, and have a similar reaction to stir-fry even though I use GF soy sauce and tested negative to soy intolerance on my Entero lab tests. I believe that eventually we should be able to return to eating a variety of vegetables once our gut heals ( Oh, I am so hoping! because I really miss my veggies.... the most, I think, of all the foods I have had to give up.) Sorry to be there bearer of such news :sad:

Linda
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Kari
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Post by Kari »

Thank you Linda - I have definitely noticed that certain veggies will set me off. It's a long time since I stopped Brussel Sprouts (yum) and other veggies in the cabbage family. You've confirmed for me one of my suspicions, that I must pay a lot more attention to my veggie reactions. If I remember correctly, I had zucchini and mushrooms in my stir fry.

Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Linda in BC
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Post by Linda in BC »

You are welcome, Zizzle. Strangely enough, there are some members who find the brasicas to be some of the only vegetables they tolerate well. Intuition would suggest otherwise ( because of their gaseousnous) , but I have found cabbage to be not as bad as say, tomatoes, corn, or cucumbers.... Also Peas, or any legumes, and most nuts, seem to be hard to digest for many people with MC. Whether it is outright intolerance or just too hard for a weak intestinal tract to digest, differs for individuals. Long before I found the site, I had recognised that my body does not like peas, corn or peanuts.
You are right if you are thinking .. what can she eat??? If I were to just stick with what I know does not bother me, (instead of always trying to find something else I can eat to add variety) I would only be eating chicken, pork, beef, fish, rice, cooked carrots, rice milk, applesauce and eggs. Everything else seems to bother me! Apparently the simplest of diets is best. Check out Gabes cook up... it is a "caveman"/modified paleo diet that she has ( I hope I am right in saying this, Gabes) used to acheived remission. http://www.perskyfarms.com/phpBB2/viewt ... gabes+cook

Linda
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Gabes-Apg
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Post by Gabes-Apg »

Linda /Kari

Yep i am still following caveman/modified paleo type eating plan

additional info to what is in the diet post, i have found that i can only tolerate 3 different vegetables in any one meal. Any more than this i have issues
also have found that i can tolerate carrots, i can tolerate cauliflower but if i have them in the same meal i have issues, seperate good, together BAD!!! weird hey

it has taken a while to retrain my brain and tastebuds that i dont need variety in my meals, sticking to the ingredients my body likes best, in easy to digest format has been and is a key part to my med free MC Management.
Gabes Ryan

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Post by Gabes-Apg »

also

given the discussion on Leaky Gut in the other thread

the research i did was that in medieval times and for many years the theory of slow cooking meat on the bone or making a soup via meat bones was for the gelatine and its healing properties.

I use my home made gelatine rich stock for everything, 50/50 water/stock for, boiling rice, boiling vegetables, it is the main liquid content in my savoury muffins


alot of cultures this was the basis of their daily eating (asian cultures make alot of soups based on meat bones, meditterean make dishes via slow cooking meat on the bones etc, traditional irish cooking was slow cooked meat on the bones)
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Linda in BC
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Post by Linda in BC »

Thanks Gabes. That is weird about the carrots and cauliflour together! I will have to look into that for myself.

Linda
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Gabes-Apg
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Post by Gabes-Apg »

It was the 'winning the poop' diary that helped me to figure it out......
Gabes Ryan

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