New guy, sort of.

This area contains descriptions and brief histories of the experiences of members after the onset of the symptoms of microscopic colitis.

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randyh
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New guy, sort of.

Post by randyh »

Hello all,

I have been reading the different topics and have gathered much information about MC.

I was diagnosed about 6 years ago after having D for several month and loosing weight, I had a colonoscopy and they found that I had LC. The doctor did not really seem to think it would be a problem (he was surgeon) and said it would probably clear up on its own. I took his word for it and for the most part went back living and eating the way I had before. I have always had bouts with D since then, some lasting for a couple weeks or more, but nothing really as serious as what had caused me to go to the doctor when I was diagnosed, so I didn't really worry too much.

Fast forward to a few months ago, I started having allot of acid reflux so I took PREVACID. Now I can see many of you cringing thinking of what happened next. You got it, my LC came back and all the fun and not so fun symptoms. I ended up back at the doctors and they did a ultrasound and then a CT scan of my abdomen of course finding nothing visually wrong. In addition to the PREVACID I was also under a sever amount of stress, work, selling house, buying a house, just got married about a year and half ago, working to finish my degree online and a mission trip to Africa.

I thought it was all the stress that had revived my symptoms but decided to look up the side effects of PREVACID. Wow, how about that PREAVACID has been known to cause LC. So here I am month later trying to get my life back together, its sure has been a process. Some weeks are really good with no problems, other weeks are not so good with all the discomforts of LC.

Of course you have to really dig deep to find anything about PREVACID causing LC, and I could kick myself for not doing the research before I took it, I am usually very diligent in researching medications.

I have also been diagnosed with General Anxiety Disorder and alot of my anxiety comes from my LC.

Thanks for all your information and I look forward to sharing this with all who understand.

Blessings,
Randy
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Bifcus16
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Post by Bifcus16 »

:welcome: Randy,


Nice to meet you. Sorry that the LC has come back. It does tend to do that. And if you search the archives of this board you will find many members have problems with GERD so you aren't alone there.

You might want to consider doing the stool tests from enterolab to find out what food sensitivities are causing you problems - food always plays such a big part. Most of can't handle gluten and dairy, and about half of us are also sensitive to soy, and then smaller numbers have problems with a range of other foods. Some of us use drugs to control the D (entocort is preferred, but expensive), but many of us are able to use diet to control the symptoms. This has some interesting side effects because gluten can cause all sorts of odd issues, including brain fog and psychological symptoms.

Welcome again, and please feel free to ask whatever questions you may have.

Lyn
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natythingycolbery
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Post by natythingycolbery »

Welcome to the forum, I'm sorry to hear you have GAD from LC, I had a similar situation to you, only the other way round, I got my LC due to medication for GAD and depression.

I hope this forum helps you as much as it has helped me
'The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be.' Horace Bushnell

Diagnosed with MC (LC) Aug 2010
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tex
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Post by tex »

Hi Randy,

Welcome to our internet family. Of course, as most of us have discovered, we're ultimately responsible for our own health, but if your doctor hadn't been asleep at the wheel, he or she wouldn't have prescribed Prevacid to someone with MC. It has been a known cause of MC longer than probably any other drug, other than NSAIDs. Many doctors simply don't do their homework, and their patients end up suffering, because of it.

If Prevacid had been the initial cause of your MC, discontinuing the use of it might have brought remission, but since something else caused it initially, discontinuing it probably will not bring remission, though you might possibly get back to where you were before you starting using it, (with intermittent symptoms). As Lyn suggested, to resolve all the symptoms, reliably, usually requires some major dietary changes, because when MC is triggered, most of us become just as sensitive to gluten, as the average celiac, but we will always test negative to the classic celiac blood tests, unless we also have fully-developed celiac disease.

Stress does have an effect, of course, and it can certainly make the symptoms worse, or prolong a flare. The medical community insists that it cannot cause MC, but I'm not 100% convinced of that.

Apparently you've already figured out that no one truly understands this disease, unless they have it. Contrary to the claims of the mainstream medical community, MC is a life-altering disease, (it's a true inflammatory bowel disease), but even the Crohn's and Colitis Foundation doesn't recognize it as a serious inflammatory bowel disease. It's a shame that all the "experts" who consider it to be a "benign" disease, can't have an opportunity to experience it themselves for about 6 months or so. They would surely change their opinion of it, long before their trial period was over. :lol:

Again, welcome aboard, and please feel free to ask anything,

Tex (Wayne)
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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