Hello again everyone,
Last I posted I had decided to try the Pepto/Gluten free diet treatment to my MC (Collagenous). BUT first, I had ordered the stool test from the Enterolab, and knowing that I was supposed to continue on the same diet I'd been on, I really didn't make any dietary changes and was waiting to start the Pepto until I'd done the test so as not to mess things up for the lab. I received the test and was a bit frustrated to read that I wouldn't be able to do the test till I'd been off my fish oil for 7 days. Siiiiigh. I SO wanted to get going with the gluten free diet and Pepto. I went off the fish oil 3 days ago, and yesterday, I was "norman"!! Same thing today. (I had almost forgotten what that felt like).
I am still going to go ahead with the enterolab stool test, and then I'll probably just go ahead with the gluten free since it can't hurt. I am still curious to see what the stool test results are (and also the blood test the doc did a week ago) The Pepto Bismol I bought is still sitting unopened on my night stand. I have to wonder if it was enough for me to stop the NSAIDS altogether.
Just wanted to update...
Remission...and I didn't DO anything...
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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arizwldcat
- Little Blue Penguin
- Posts: 35
- Joined: Thu Oct 14, 2010 4:31 pm
- Location: Arizona
Hi,
Yes, others have reported that certain oils can cause them to have D. It's very unusual, though, for discontinuing it to bring remission, without making any other changes. Never look a gift horse in the mouth, though.
It's not uncommon for some of us to have occasional episodes of spontaneous remission, so I agree that you are wise to go ahead with the test. That way, you'll be able to make your decisions based on facts, if/when the symptoms return, or if you want to preempt it from happening, by modifying your diet, based on test results. That's the safest course, obviously, and you won't have to be concerned with "waiting for the other shoe to drop".
Thanks for the update, and please let us know how the test results turn out.
Tex
Yes, others have reported that certain oils can cause them to have D. It's very unusual, though, for discontinuing it to bring remission, without making any other changes. Never look a gift horse in the mouth, though.
It's not uncommon for some of us to have occasional episodes of spontaneous remission, so I agree that you are wise to go ahead with the test. That way, you'll be able to make your decisions based on facts, if/when the symptoms return, or if you want to preempt it from happening, by modifying your diet, based on test results. That's the safest course, obviously, and you won't have to be concerned with "waiting for the other shoe to drop". Thanks for the update, and please let us know how the test results turn out.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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arizwldcat
- Little Blue Penguin
- Posts: 35
- Joined: Thu Oct 14, 2010 4:31 pm
- Location: Arizona
I had a somewhat similar experience, in that the D went away when I stopped taking fish oil supplements after a chance comment by my GI just before the colonoscopy that diagnosed me with LC. After I found this forum, I decided to go ahead with the Enterolab testing because I had been sensitive to dairy for about 5 years previously, and Tex said that he would be surprised if I wasn't gluten intolerant too, since the two sensitivities often go together. My tests showed that indeed I am gluten intolerant, and also soy and yeast. So even though I was apparently doing OK as far as D at the time, I eliminated them from my diet. I was then amazed to discover that when I eliminated the gluten and soy I had a lot of improvement in areas that that I didn't even associate with MC. My asthma and hoarse, raspy voice improved dramatically, and the fatigue began lifting. It's been about 14 months since I did this, and I have been very stable. I suspect that if I had continued to consume gluten and soy, that I would have had a relapse at some point. So I would encourage you to take Tex's advice and get tested.
Rosie
Rosie
Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time………Thomas Edison
Since I have been taking fish oil for years and was diagnosed as gluten-sensitive by enterolab a few years ago, I am wondering if fish oil affects the results of stool tests. At that time they did not have instructions to refrain from fish oil for 7 days. Does anyone know why this would be necessary and would it affect the results. Thanks! (Hey, maybe I'm not gluten-sensitive?)
Hi Temple,
I really don't know the answer to your question. I can see how it might possibly mask antibodies, and cause a false negative test result, but I don't see how it could cause a false positive result. Still, maybe I'm overlooking something. The best thing to do might be to e-mail that question to them, to get an accurate answer. They should be able to look at your test results, and make a judgment on whether or not it might have made a significant difference.
If you do this, please let us know their response. Or, if you would rather not e-mail them yourself, I would be happy to do it. In that case, just let me know, and I'll contact them about it.
Tex
P. S. It's good to see a post from you again. I hope you're been doing well, and your symptoms have remained in remission.
I really don't know the answer to your question. I can see how it might possibly mask antibodies, and cause a false negative test result, but I don't see how it could cause a false positive result. Still, maybe I'm overlooking something. The best thing to do might be to e-mail that question to them, to get an accurate answer. They should be able to look at your test results, and make a judgment on whether or not it might have made a significant difference.If you do this, please let us know their response. Or, if you would rather not e-mail them yourself, I would be happy to do it. In that case, just let me know, and I'll contact them about it.
Tex
P. S. It's good to see a post from you again. I hope you're been doing well, and your symptoms have remained in remission.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I thought that the reason for cutting out fish/flax oil supplements was possible interference with the Quantitative Microscopic Fecal Fat Score, as you could get a false positive if you were adding extra fat oils to your "normal" diet. Just as you could get a false negative if you reduced your normal fat intake. And since the tests are all done on the same sample, Enterolab just has a policy of routinely eliminating these supplements??
Rosie
Rosie
Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time………Thomas Edison
Rosie,
Apparently my CRS is flaring this morning, because I can't remember seeing that before, but it certainly sounds logical, since that test is definitely sensitive to fat intake.
Thanks for pointing that out.
Tex
Apparently my CRS is flaring this morning, because I can't remember seeing that before, but it certainly sounds logical, since that test is definitely sensitive to fat intake.
Thanks for pointing that out.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex and Rosie! Rosie, you were correct. I e-mailed Enterolab at Tex's suggestion and they responded that the fish oil would affect the fat absorption test only, not the gluten. Oh well, worth a try.
I have been off gluten since 2004 when I received the positive gluten-sensitivity
results from Enterolab. Since I have been tested and do not have celiac, I probably get a tiny bit of gluten, since I am not too strict, especially when I am at restaurants, traveling, etc. My LC is much better, but I still have flares, especially when stressed. But sometimes I have no reason why the LC acts up. I was under a tremendous amount of work stress when I was first diagnosed, but since I am not currently working, that is not the issue.
I have been off gluten since 2004 when I received the positive gluten-sensitivity
results from Enterolab. Since I have been tested and do not have celiac, I probably get a tiny bit of gluten, since I am not too strict, especially when I am at restaurants, traveling, etc. My LC is much better, but I still have flares, especially when stressed. But sometimes I have no reason why the LC acts up. I was under a tremendous amount of work stress when I was first diagnosed, but since I am not currently working, that is not the issue.
Thanks for sharing your experiences. Most of us seem to have the same issues - even when we're very careful, it seems that once in a while, a reaction will catch us by surprise, and we're unable to determine the cause. Thankfully, most of the time, we're fine.
We've found that stress can play a much bigger role in this disease, than is generally attributed, in the medical literature.
Thanks for the information from Enterolab, also.
Tex
We've found that stress can play a much bigger role in this disease, than is generally attributed, in the medical literature.
Thanks for the information from Enterolab, also.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.