Joint and Body pain

kimtg68 · Post by **kimtg68** » Mon May 17, 2010 6:38 am

What do you all do to help with the pain and aches of joints? Does exercise hurt or help or do nothing. I've had days where I felt like my body was weighed down with lead or I was trudging through mud. I've had other days where the pain in my hips &/or knees &/or elbows had terrible pain. I've tried topical stuff but it didn't work. Perhaps once I get to a point where I've narrowed down the foods that I react to and avoid them, hopefully this stuff will lesson. Any advice?

Joefnh · Post by **Joefnh** » Mon May 17, 2010 7:42 am

DITTO!!! Those are exactly my symptoms for the last 10 years before being diagnosed. I did find that mild exercise as tolerated helps with mobility and general well being. In my case as in many people with MC (CC or LC) you may not tolerate and NSAIDs for pain relief i.e. Advil, Motrin (Ibuprofen) or aspirin. I believe it is recommended that you should not take those with MC as it may aggravate the GI symptoms. My doctor prescribed Ultram (generic tramadol) which does help somewhat.

Recently I was put on Entocort 9mg a day which has miraculously halted all pain and fatigue in the joints and muscles, and is also dong a good job on contolling the D.

I would discuss these issues with your doctor as well as look at the dietary recommendations on this website, the meds plus diet seems to really work well.

Take care

--Joe

kimtg68 · Post by **kimtg68** » Mon May 17, 2010 9:41 am

Yes I was told not to take NSAIDs any more. Thanks Joe for your advice. I'm still working on learning what I can and cannot eat but will talk to the doctor about it as well.

Post by **tex** » Mon May 17, 2010 9:54 am

Flax seed oil and glucosamine sulphate will help with joint pain, but after I removed all traces of gluten from my diet, all my symptoms went away, (not immediately, but over time, as my gut healed).

Tex

mbeezie · Post by **mbeezie** » Mon May 17, 2010 10:36 am

For me, gluten is the number one reason for aches and pains. I'm certain I got glutened on Saturday at a lovely anniversary dinner at Fogo de Chao (a carnivore's delight - I accidentally ate one of the meats that wasn't gluten free - my fault, not theirs). Of course I got D, but the aches and pains yesterday and today are driving me crazy. Hoping it resolves soon.

Mary Beth

MaggieRedwings · Post by **MaggieRedwings** » Mon May 17, 2010 11:28 am

I agree with Mary Beth and the others that gluten can cause terrible aches and pains. I very rarely have them any more since I am extremely diligent in scoping out any hidden gluten. The one food that I am intolerant of - amongst many - that will give me aches is tomatoes. Every now and then I have to succumb to a GF pizza and pay for it with aches and pains.

Maggie

Stanz · Post by **Stanz** » Mon May 17, 2010 1:18 pm

Eliminating gluten was my best cure for what you describe, before that nothing worked.

kimtg68 · Post by **kimtg68** » Mon May 17, 2010 2:44 pm

I was tested for Celiac and it was negative. Isn't that a gluten allergy type thing? I'm a bit confused.

Stanz · Post by **Stanz** » Mon May 17, 2010 3:11 pm

The blood tests are worthless unless you have the two main genes for celiac and I have no idea why anyone even uses them anymore as they are statistically about 80% inaccurate. Reality is that 1 in 100 are celiac, but 1 in 4 are gluten sensitive. I am GS genetically. I tested negative for Celiac, as have most of us here.

Post by **tex** » Mon May 17, 2010 4:28 pm

Connie is quite correct, of course. The classic celiac blood tests will only detect gluten sensitivity if you have fully developed celiac disease - they will not detect the type of gluten sensitivity that we have with MC, and yet most of us are just as sensitive to gluten as the average celiac. This is because until celiac disease is fully developed, the antibodies are confined to the intestines, and therefore can't be detected by a blood test. Only the stool tests offered by Enterolab are sensitive enough to detect the antibodies for people who have MC, but who do not have fully developed celiac disease.

Most of us here are sensitive to gluten and casein, (the primary protein in milk), and about half of us are sensitive to soy, and all it's derivatives.

Tex

Stanz · Post by **Stanz** » Mon May 17, 2010 5:46 pm

Much more nicely worded, Tex, as I am Miss crabby today.

Post by **tex** » Mon May 17, 2010 6:16 pm

We seem to alternate in that role, from time to time.

Tex

Trey · Post by **Trey** » Sun Jan 02, 2011 1:20 pm

i have body aches that are extremely bad. i hurt so bad that i just want to sleep. do any of u have aches like this?

Post by **tex** » Sun Jan 02, 2011 1:26 pm

I used to have them most of the time, before I changed my diet, and my gut had time to heal.

Tex

hoosier1 · Post by **hoosier1** » Sun Jan 02, 2011 2:17 pm

Kim,

As Joe and Tex experienced, my joint pain (and lower back pain) vanished while on Entocort. My vague body discomfort also seemed to wane somewhat. But I would probably look into Tramadol or the equivalent. I have used this off and on for chronic pelvic pain. Seems to be a much milder, more synthesized version, of Vicodin.

I DO think the GF diet is helping to keep some of my pain and discomfort at bay.

Regards,

Rich