Kari's Good News - MRT Results

Discussions can be posted here about mediator release testing (MRT), as offered by Oxford Biological Technologies, in conjunction with the LEAP program, which is claimed to determine a relative level of sensitivity to various foods and chemicals by measuring an increase in the ratio of liquids to solids in a blood sample that has been exposed to a specific allergen.

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Kari
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Post by Kari »

Hi everyone,

It seems like a good idea to keep posting updates to this thread, as it contains a summary of my struggle with MC. It is my sincere hope that reading my story will be helpful to fellow MC "sufferers", even if it's in a small way.

I have now been on the LEAP diet for 11 days, and feel like I'm gradually getting my life back. I mostly have one and sometimes 2, pretty firm, BM's a day, so the D is gone for the time being. Actually this has more or less been the case since mid December when I eliminated all the reactive items identified on the MRT test results.

The MRT test is a blood test that is able to identify "reactive foods", which for us MCers is invaluable. It tests for 150 chemicals and foods, and the results are shown on a scale from least reactive to most reactive for each item, and lists the results by categories such as Dairy, Fruits, Vegetables, Grains, etc., so it's very organized and easy to decipher.

I don't want to go into too many details about the test and diet program here, as the lab has a good website, which explains everything. Basically, after you get the results back, you can either use the comprehensive material they send you to design your own diet, or work with a qualified LEAP dietitian to assist you along the way.

As I've said in an earlier post, I'm working with a dietitian, and the first phase of the diet plan has been to limit my diet to 25 items from the various categories, and eat only those for 2 weeks. Here is the list of items I've been eating during the last 11 days:

PROTEINS: Garbanzo beans, Tuna, Tilapia, Beef, Pinto Beans

STARCHES: Buckwheat, Quinoa

VEGETABLES: Yellow squash, Beet, Cauliflower, Cabbage, White potato

FRUITS: Apple, Blueberry, Grapefruit, Raspberry

NUTS/SEEDS/OILS: Cashew, Peanut, Walnut, Hazelnut, Olive

FLAVOR ENHANCERS: Basil, Cayenne Pepper, Coconut, Ginger

The only item I reacted to from the list is Quinoa, and yesterday I included eggplant in its place, and have not reacted to it.

On Wednesday I have another appointment with the dietitian to review my progress, and I will then begin to reintroduce and test other foods from my least reactive list - one per day.

I was very nervous at the start of this program, since the list includes quite a bit of fiber. However, I seem to tolerate it quite well, but try to be careful not to overdo it with the nuts. I also try to make sure that the veggies are well cooked so they are easier to digest.

Although I have had to give up all my favorite foods and am eating things that I mostly have never cared for, it seems a small sacrifice for getting my health back. My taste buds seem to gradually adjust, so I'm starting to enjoy the foods I can safely eat.

It is still early on in this program, so I've been a bit hesitant to post about it - please keep your fingers crossed that my progress continues!!! I will keep updating here as time goes by.

Love,
Kari

P.S. Today marks my half year anniversary of going gluten free and starting down this road of diet adjustments :grin: .
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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mbeezie
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Post by mbeezie »

Although I have had to give up all my favorite foods
Within 3-6 months you might very well tolerate some of those foods. The first phase is the hardest and most restricitve, so hang in there. You are right, giving up certain foods is a small price to pay for health and feeling good.

Love,

Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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Post by Polly »

Hi Kari,

I sent you a post yesterday, "Paging Kari" asking more about your MRT experience. And here you have provided that! Thanks. It's always good to hear an update.

Are you able to tolerate the garbanzo and pinto beans? Since they have lectins, I know they weren't covered by the MRT test. Perhaps they can be tolerated if one is eating their least-reactive foods? IOW, I wonder if there is a maximum dosage, a tipping point for reaction, so to speak.

How many of your most reactive foods would be allowed on the paleo diet?

It is wonderful to hear how well you are doing! I'll look forward to further progress reports.

Love,

Polly
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Joefnh
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Post by Joefnh »

Hi Kari that's great news. After my lunch with Mary Beth and her family, I have also been looking at having the MRT testing done soon. That really is great news on your improvements and I do hope they continue.

Regarding your tag line, it has been driving me nuts for a while now to try and figure out what "Thich Nhat Hanh" means. I study languages and have been having a tough time on this one, and can only compare it to a dialect in Vietnamese (Than Hoa dialect - central) or possibly Thai. Any insights?

--Joe
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Post by mbeezie »

One step, one moment, and then the next step and its moment. How the simple life brings me freedom."
Thich Nhat Hanh
Joe,

I can't speak for Kari, but that quote embodies Buddhist philosophy for me . . . living in the present moment. Being chained to the past or the future creates sort of a mental prison that complicates our thoughts and actions. Living in the present moment is the simple life because it is all we have and that is what brings us peace and joy . . . and freedom.

Mary Beth

PS: If your RD can't do the MRT please let me know.
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
Matthew
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Post by Matthew »

Joe-

Thich Nhat Hanh is a Buddhist monk, teacher, author, poet and peace activist now based in France.

You can read more about him here and find more about his name.

http://en.wikipedia.org/wiki/Thich_Nhat_Hanh

Matthew
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Post by Joefnh »

Thanks Mary Beth and Mathew, I was working on the premise that it was a phrase not a name. At least I got the language and even the dialect correct; although mostly a guess since he was "born Nguyễn Xuân Bảo in Thừa Thiên (Central Vietnam) in 1926" (Wikipedia quote.

--Joe
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Kari
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Post by Kari »

Polly - Garbanzo and pinto beans were very low reactive for me, and I eat small portions of them. I eat the refried pinto beans, rather than the whole ones, as I think they are easier to digest. I believe your assumption is correct that we are also portion sensitive. If going over a certain threshold in quantity there would likely be a reaction. I don't really know a lot of details about the paleo diet yet, so I don't know the answer to the question you asked. My focus will be to prepare and eat foods from "scratch" - i.e. unprocessed foods. As much as I don't care for meat, I will definitely include it in my diet.

Joe - you sure did your research to figure out that the name originated in Vietnam :grin: . I've enjoyed Thich Nhat Hanh's books for a very long time. He seems to have such an easy to relate to, grounded philosophy. Hope you're able to do the MRT testing - let us know how it goes.

Mary Beth - I like your take on Buddhist philosophy :grin: .

Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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wonderwoman
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Post by wonderwoman »

Kari, I just read this thread from the beginning to the end. Wow! What a journey you have experienced. I hope you continue to have good luck with your new diet.
I don't want to go into too many details about the test and diet program here, as the lab has a good website, which explains everything.


Are you able to share the website so we can check it out?
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mbeezie
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Post by mbeezie »

The website is www.nowleap.com You need to work through a certifed LEAP dieititian (it is recommended and you get a price break for doing so). I can help you locate one in your area.

Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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