Starting meds...

[jmayk8]

Thanks everyone for being so welcoming...
I am starting my Entocort tomorrow am and a bit nervous....Since one of my problems lately has been allergic reactions to medicines. At first my doctor thought i had SIBO (small intestinal bacteria overgrowth) and started me on a rx for that. It was supposed to have little to no side effects/allergic reactions bc it didn't start working until it was in the intestines. But, 5 days on it i had itchy lips and a swollen tongue..
I guess my question is has any one had any adverse reactions to the med and when should i take it? on the package it says morning, same time every day. That's fine but before i eat or after?
Thanks!

[Celie]

I take my entocort in a split dose. One in the morning and one every other night. I take it before breakfast in the morning and have not had any problems.

I have lots of trouble tolerating medications, but have had no trouble with Entocort. I hope it works as well for you as it does for me!


Celie

[Foxnhound8]

I was recently diagnosed with CC and started Entocort a few weeks ago. I took it in a split dose for a week or so but switched to all 3 in the am with Apriso before breakfast. They have not bothered me at all and I usually have problems taking meds on an empty stomach. Good luck.

foxnhound

[ant]

I take it morning before breakfast. When I was taking three a day; two in the morning and one in the evening.

When I started I had a little bit of bloating . After a week it settled down and I started to see gradual improvement in BMs

Best wishes, ant

[tex]

If you have any adverse reactions to budesonide, they will probably be in the form of neurological events, such as balance issues, vertigo, blurred vision, reduced cognition, headache, etc. Those have been the most common adverse events among members here, (not counting minor, common, corticosteroid side effects, such as weight gain, moon face, facial hair, easy bruising, skin thinning, etc.

Tex

[jmayk8]

are the side effects you mentioned; weight gain, moon face, facial hair, easy bruising, skin thinning
common with people on this site??

[jmayk8]

should I want to add good bacteria too while taking the Entocort? like probiotics?

[tex]

are the side effects you mentioned; weight gain, moon face, facial hair, easy bruising, skin thinning
common with people on this site??

Well, I suppose we could say they're common, but not everyone has those side effects, and most people don't have more than one or two of them. The risk with budesonide is not nearly as high as with prednisone, because of the relatively low systemic effects of budesonide.

should I want to add good bacteria too while taking the Entocort? like probiotics?

Theoretically, probiotics are a good idea, and are generally recommended for MC. Unfortunately, very few of us have been able to find a probiotic that actually seems to help, and in some cases, they actually make us sick. Prebiotics, (FOS, inulin, etc.), typically cause problems for us, because they tend to cause the "bad" bacteria to propagate more competitively than the "good" bacteria, (despite ad claims to the contrary).

Tex

[klhale]

I split the dose, and I take one in the morning before I eat and one or two after lunch.
I have no prednisone type side effects except for a little nervous energy.

You will be ok, in fact you will be so much better once you get on Entocort.

karen

[Wndrwmn]

I am one of the odd ones that had a neurological reaction. My left arm from mid-forearm to my fingers went numb. It started after taking Entocort for 10 days. It took probably about a week and a half for it to go away. I am now taking Asacol 3 x a day, and it's working pretty well. I loved Entocort, it worked phenomenally well for me, minus the hand numb thing. Good luck, I hope you do better on it than I did.
Becky