serious roid rage

crystal552000 · Post by **crystal552000** » Fri Jan 28, 2011 2:28 pm

I have been full dose 9mg a day on entocrt. Here lately I spend most of my days feeling just awful not physically but mentally. I am very easily agitated and very short with my kids and husband because of it. Somedays I feel like I am just going to lose it. I don't know where to go from here but this effecting my relationships that I hold dear. Any ideas of how to deal with this

Post by **tex** » Fri Jan 28, 2011 10:19 pm

It may be the Entocort. Some people become somewhat hyper while using it, though it usually doesn't make them "mean". If "roids" actually are a problem, (it's a common problem with MC), then hopefully you can find some relief in this thread:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10052

If you want to continue taking the Entocort, and you feel that it might be cause of your issues, then you might consider asking your doctor for a prescription for something to ease the tension, anxiety, or whatever is contributing to your state of increased agitation. This disease tends to contribute to issues of that sort, and quite a few members find that anti-anxiety meds, or anti-depressants, etc., are beneficial.

Tex

Foxnhound8 · Post by **Foxnhound8** » Fri Jan 28, 2011 11:11 pm

Crystal

I feel the same way and have recently purchased a book someone was talking about a couple of days ago called "Relaxation Revolution" by Herbert Benson. I find the 9mg a day of Entocort makes me a crabby energizer bunny and my symptoms are just barely under control so I thought I'd try a mind/body thing. Meditation is supposed to be a healing thing, so I'm going to give it a go because the meds aren't cutting it.

foxnhound

harma · Post by **harma** » Sat Jan 29, 2011 4:20 am

Is it possible you lower the dosage? Would you stay in remission with two pills a day? Do you take the three pills at once in morning just before breakfast or do you spread them during the day. What you are writing about I wouldn't be surprized it are side effect of entocort. I have been exactly two days on two pills a day and it was awful. Like you are describing. On the third day I lowered it to one pill a day and the side effect were gone and it was enough to keep the D under control

If you take all your pills at once, it could be worth trying out spreading them during the day, or lower the dosage from 3 to 2 a day or a combination of both. The (only) two days I experienced the entocort side effect, I discovered that, after 8 hours I felt "normal" again.

crystal552000 · Post by **crystal552000** » Sun Jan 30, 2011 9:12 am

I have been unsuccessful at lowering my dose, my doctors have tried but everytime i go down to two a day i start to flare. I do take all three of them at night before bed, however i used to take them in the morning but I had to change because I wasn't able to sleep at night doing that. Maybe I should try to take it three times a day and hopefully that will help