New and Struggling

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Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

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Joefnh
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Post by Joefnh »

Lauren you might find that after going GF or SF for a while and then you have some the reaction will be worse. Your body has gotten used to not having it and is letting you know not to have any again.

--Joe
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tex
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Post by tex »

Lauren,

To expand on what Joe described, when you eat gluten every day, your antibody level reaches a sort of equilibrium level, (steady state reaction), and your immune system perceives it as a "ho-hum", "business as usual" situation. If you stop ingesting gluten for a while, the antibody level slowly declines. As soon as you ingest more gluten, your antibody level surges again, and it really grabs the attention of your immune system, because it thought that it had finally licked the problem, and suddenly, there it is again, so it launches an all-out attack, to try to get it under control, again. Does that make sense?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
laurenla520
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Post by laurenla520 »

ohh okay, wow this is great to know & makes since perfectly to whats been going on
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Post by laurenla520 »

one last thing. i know i have alot of questions, it just feels great to narrow in so much on whats been going on with me,u guys are so much more helpful than any GI i have seen, i had to learn on my own about the diet and many other aspects. Just wondering now that i see some hope w all this, when symtomps are under control and minimized and ur completely gluten free are the BMs ever completely solid again? and not frequent?
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tex
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Post by tex »

Oh yes, once the sensitivities are out of your diet, (or the Entocort takes over, if you're using Entocort instrad of diet control), then your bowel movements should return to your normal pattern, (whatever was "normal" for you before the symptoms began).

Not only that, but all the other symptoms should slowly fade away also, as your intestines heal. You should feel better than you've felt in years.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Zizzle
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Post by Zizzle »

Don't expect solid BMs overnight. It can sometimes take 6 months or more for your intestines to heal, and that's if you truly are avoiding ALL your intolerances. I'm doing pretty well, but I suspect I get trace amounts of my intolerances every few days, and I eat too much fiber, so "norman" (normal BMs) are much more elusive. But being 99.5% free of my intolerances means I have much less urgency, frequency and gas, and that alone is worth it, even if it's soft D 1-2/day.
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MBombardier
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Post by MBombardier »

I'm sorry, Lauren, but your comment about the doughnut made me think of this picture and I couldn't resist. I'm like... WHAT?? :ROFL:

Image
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
laurenla520
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Post by laurenla520 »

hahaha that burger looks like hell on earth lol eeekk!! :toilet3: And wow that is great to know about the BMs for some reason I was thinking that this was going to be this way forever. even with diet control n medicince & zizzle are you taking entocourt or using diet contol or both? Im on Asacol, i really don't want to be on a steroid right now, but am going to if all else fails.
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Joefnh
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Post by Joefnh »

That just makes me feel ill :roll:

--Joe
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TooManyHats
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Post by TooManyHats »

That picture is just wrong! :lol:
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ant
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Post by ant »

its should read....

"Because We Can...Hit The Can!"


:ant5:
----------------------------------------
"Softly, softly catchee monkey".....
laurenla520
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Post by laurenla520 »

Don't mean to innudate with questions, but as Gabes suggested I did some more research on leaky gut ( i read some things briefly about it before I was diagnosed) and its dealing with the permeability of the mucosa in the colon? I believe? Now is MC leaky gut??? And does MC cause the same things as leaky gut, like bacteria and toxins entering back into the blood stream?? Im asking this because sometimes I fear I have a fecal odor and they say with leaky gut the toxins or watever go into the bloodstream and emit from your pores, breath and stuff? I dont know if im getting the conditons confused but if this is true im hoping the mucous lining heals and stops being permeable with treatment?
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irisheyes13
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Post by irisheyes13 »

Lauren,

I'm sure someone with much more knowledge than me will answer your question for you but my understanding of LGS is that it goes hand in hand with autoimmune diseases which go untreated or uncontrolled. I had read an article recently on LGS that I though described it pretty well although I'm not sure about what he recommends. I don't know much about the author however who I believe is a holistic MD from Canada.

http://www.mold-survivor.com/leaky_gut_syndrome.html

From all reading I have done, the gut can be healed by medication for the inflammation, restricted diet (gluten and dairy free at minimum) to reverse the process and supplements to bring balance back to your system. Some have been able to do it with diet and supplements alone. It seems to follow the same treatment as MC but may take longer to heal. Many on here have had success with acupuncture as a healing aid as well and I'm starting to look into this too.

I don't know about you but my head is hurting from all the reading I've been doing. :mallet:
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mbeezie
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Post by mbeezie »

Just a word of caution to be aware that there's plenty of misinformaiton on the internet regarding this subject. I encourage you to surf this site using the search option as we have discussed many of these topics in detail in the past. The author of that article recomends things like FOS, juice fasts and lots of herbal remedies and many of us have discovered that those things don't work and can be costly (lots of snake oil salesman on the internet). The author also talks about "reversal" indicating that this can be cured. Oh how I wish that were true. We learn to manage our symptoms by avoiding triggers and taking the appropriate medicine if needed but we never go back to a pre-illness state.

Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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Zizzle
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Post by Zizzle »

Lauren,
I'm using diet alone with occasional pepto bismol tabs for flare-ups. I was offered Asacol and declined (mostly out if fear of losing my hair!;)
But I don't tolerate most medications well anyway. In the beginning I was taking 6 Pepto tabs a day to help with inflammation. I'm not sure it helped as much as the diet changes, but it didn't hurt.
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