The Diets

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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lulu
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The Diets

Post by lulu »

Hi All...have been trying to read on here & learn a little at a time. I probably made a mistake, as I went to grocery store hungry & discovered one of our's here has a pretty good GF section. I bought some GF Bisquick, etc. Used that to make a pancake this morn., and had D all day. I bought some rice milk, then forgot & used my pwdrd. goat's milk this morn. Was on phone & just not thinking. Is it smart to just delete everything first off or assume that it was the milk, or soy, or just to stay off all the seemingly offending things at first, like the soy, dairy, gluten, yeast...in other words, most that are listed here? I remember one of you saying just think protein & simple things. I've seen no difference at all yet. I did have D less yesterday, only in morn. & at night before bed, but today was a different story. Have any of you tried the GF Bisquick & found it doesn't work? I did buy another mix the other day, but haven't tried it as yet. It's Namaste Perfect Flour Blend. Anyone tried that one?

Guess I'm going to have to do the food diary and also get tested, so I won't have as much trial & error & loss of money from buying all of these expensive things. Also bought one of "Amys" TV dinners, was so empty & hungry. It was so good, but also had some cheese, I believe.

I did buy some of the GF Rice Chex & make a snack mix w/ my new Earth Balance margarine & a few spices, but not a lot like I'd usually do. I've always loved really spicey things, but it turned out pretty good & satisfied my salty craving. I probably already know the answer to my questions, just need to hear it?! lol

In starting this diet, is it just best to be simple & not try any GF flour mixes? Have just been so hungry lately, have been craving anything to fill me up.
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Post by Linda in BC »

Hi Lulu:
I remember when I first went GF / SF and Corn Free ( I had been casein free for 7 years before that) I was hungry all the time, too. I am not now tho ( and I still don't eat those things) so I think it is just a matter of figuring out some staple foods that you can eat and getting them into the house. I love the GF bisquick and have not had any problems with it ( other than not being able to buy it here and having to wait til I go down to the Sates to get it. ) However, others have reacted to it ( Joe did, I think) so it is possible that you could be reacting to that. I would tend to suspect the cheese in the Amy's TV dinner or the goats's milk first, though. You'll just have to try the bisquick again some other time, but when testing a food, it's important to try to eat only one "iffy" food at a time. Other wise you cannot tell for sure what caused a reaction. What kind of milk did you use to make the biscuit/pancake? Also , if I had eaten the bisquick before I discovered I am intolerant of eggs, I would have thought it was the mix. I threw out or gave away a ton of expensive GF flours and mixes and stuff because I thought I was reacting to them, when in fact it was the eggs I was using in all my baking that were making me sick. So maybe, so you don't have to go through that, you should try any baking you do twice , once with eggs and once without. There are lots of things you can use to substitute for eggs. I sometimes use 1 TBS of ground flax seed mixed w/ 3 tablespoons of warm water (let it thicken for a few minutes) as a substitute for one egg. Or 1/4 c of mashed potatoes.

It is probably better just to stick to mainly meat, chicken , rice and well cooked veggies, and the occasional banana at first, because those are pretty safe foods,a and then you can be pretty sure that you are not constantly poisoning yourself, at least until you get the D. under control. Then you can start to experiment. But I totally understand your being so hungry right now. I lost ten pounds my first two months after going GF/sf/corn free , because I couldn't figure out what to eat half the time so I just didn't . And i was always hungry!
You'll figure it out... and when you do, it won't seem so harsh.

Linda
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diet

Post by lulu »

Thanks Linda. Have been pretty busy since found this place & still have so much to learn, but the egg replacement suggestion you gave should be very helpful if I have to stop eating them. That was stupid using the goat's milk again, but wasn't even thinking...need to start paying more attention & start out more simple.

I am calling my Dr. for an appt. today to see if he will go the Enterolab w/ me or not, and get this started, but may not get in for awhile. What is usually suggested as to what particular tests are needed if I go this by myself & pay for it myself? I looked & the one combined test was something like $369, but aren't other's needed, like the one for all dairy, soy, etc? I need to know ALL that I could be intolerant of, I'd think, or why go through it?

Am hoping to gain some weight eventually, but looks like it will be awhile, huh? I am down to 110 lbs, 5'3, so don't want to lose more. Wish I wasn't so hungry, that would help.
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tex
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Post by tex »

Hi Lulu,

Sorry you're having problems with processed foods. It turns out that a fair number of the "mainstream" processed foods that are labeled as GF are not. By "mainstream", I mean foods manufactured by the huge international companies that mostly manufacture conventional foods for the general population. They seem to have a problem comprehending how careful they must be to avoid cross-contamination, and other problems.

When I was recovering, (IOW, when my gut was hypersensitive), virtually all processed foods caused problems for me, (including mixes made by many/most of the popular dedicated GF manufacturers). Even today, I occasionally have problems with some of those foods, and I've been in remission for 7 years now.

At least one of our members tried the new GF bisquick, and reacted to it. Since it's manufactured by General Mills, (the manufacturer of the GF Chex cereals), it's probably safe to assume that they have the same contamination issues with it, as they have with the Chex cereals. A search of the internet will reveal that many, many people who are gluten-sensitive, react to the Chex cereals, so General Mills still has a way to go, to get their ducks in a row, when it comes to manufacturing GF products. However, as I noted in another post, I recently tried a box of Rice Chex, and had no problems with it. I have no way of knowing if I just happened to get a "lucky" box, or if the company is doing better now, but previously, I almost always reacted to it.

The safest way to eat, of course, is to prepare all your food from scratch, at home, and totally avoid processed foods. For some people, who are especially sensitive to gluten, casein, and/or soy, that is their only hope for remission, by diet alone, because the risk of contamination from processed foods, is unacceptably high, unfortunately. There are no laws in place, in this country, regarding GF labeling - there are guidelines, but compliance is strictly voluntary, (so as a result, compliance leaves a lot to be desired). They put "Gluten-Free" on the label, because it helps to sell products, but whether or not it is actually GF, is anyone's guess - it's sort of a "caveat emptor" situation, at present.

Tex

P. S. In response to your question, currently, the casein test, (dairy), is included for free, in the panel of tests that you mentioned, so that's a good deal. The soy test, at $99, might be a good thing to add, if you can afford it now, because at least half of us seem to be sensitive to soy.
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Post by Linda in BC »

Dear Lulu;
I was tested with Enterolab for gluten, soy , casein and the gene panel, but not for eggs. It turned out that eggs were an intolerance of mine but it took me 4 months longer than it should have to figure that out the hard way. So I would suggest that you get tested for everything that you can afford to get tested for right at the beginning.

Don't be too hard on yourself about the goat's milk. You are very new to this , and it does take a while until this way of eating is second nature. Even then we still can have "duh!" moments. After 6 months GF , I one day made homemade beef soup and, like my mom always did, I put a soup mix into it that had barley and little pasta alphabets!! ( and reacted like crazy of course. Boy, did I feel dumb.)
Linda
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Diet elimination

Post by lulu »

Thanks Tex, I wondered about the General Mills thing, because as many years as I've had to read about alternative health regarding my family, I learned not to trust mainstream foods, but I think I'm letting my being so hungry outweigh my brain right now, and just hoping I can tolerate some of these things & will have to start being more stringent, at least for awhile.

Have a one night trip planned w/ some friends starting tomorrow (if we can get out of NW Arkansas w/ our 24" snow, to get to Hot Springs..today's sun & temps will determine that), and am more & more thinking I maybe shouldn't try to go & eat out for 2 days, unless the Pep Tabs will work. It's all a guessing game at this point, haven't tried them yet.

Thanks for reaffirming what I was already wondering. Boy, this thing becomes more emotional than I thought, trying to eat correctly for MC. Now I see what my daughter went through more, and why she'd sometimes get cranky & defiant about her diet, as she had so many issues growing up w/ diet, then ultimately got away from it when she could choose her own diet, but finally seeing she needs to get back to a more healthy diet for her twin's sakes & her's too. Her husband & children are picky eaters & she almost gave up trying to cook. Shame on me, I'm an adult & having those feelings, I have to confess. Was feeling sorry for myself this morn., thinking if we do go on the trip, how it won't be a fun one for me, not being able to eat like the other's, and also just trying to find anything to eat. I thought when I bought the GF Bisquick, I could make sausage balls to take for an early morn. meeting we have there, but that has cheese & rethinking that now, of course, after yesterday & the D. They will only have pastries at the meeting, of course. Not an easy thing to do, huh? I may just stay home & not put myself through this right now, will see this afternoon what happens w/ the weather & myself.

Ok, gives me an idea about what tests now, so will see when I can get in Dr. & if not soon, may have to go ahead & order these on my own, for self preservation. :roll: It's so nice to have you all & your support.
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Post by harma »

hello Lulu, I don't I have welcomed you here already, so welcome!! I read you are making a serious attempt to start the diet, very good. Making small mistakes in the beginning, is normal. It is a new routine to get used to and also it takes a while to figure where to buy what (but maybe that is only a "holland" thing, since the diet section is not that complete as in the US).

In the beginning of my diet, I first started with only glutenfree, while waiting for my enterolab testing, I bought a lot of glutenfree stuff. You know, new life, new start, new food. Wrong!!! I even got more pain than I had before!!! I discovered I also couldn't digest corn. And what was I eating for breakfast, cornflakes. Also I had the idea the insolvable fibers in gluten free food were a problem for me. Only thing I use from the processed food diet section is food with only rice flower or starch in it. And in my case of course also SF and DF. I can assure, to keep on looking and you will find something.

I can't answer you biscuit question, its a brand they don't sell in the Netherlands. But I really do recongize what you are going through now. Starting the diet and finding out what you can and can't eat. It's a matter of trial and error and it will take you a while.

Are you going to do the enterolab testing or not. If so, I would suggest, start now with glutenfree, keep on eating the rest (and enjoy it), and than after the test result start a whole diet based on your results.

Good luck with it!!!
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Post by irisheyes13 »

Hi Lulu,

I'm new too and experiencing the same learning curve as you and have gotten tripped up a couple times. I just sent in my Enterolab testing on Monday. The casein test is included in the full panel (Gluten Sensitivity Stool and Gene Panel Complete) for $369 (plus $25 shipping). The testing for soy, yeast and egg can be ordered individually and the cost is $99 each or can be ordered as a panel for all 3 and it is $199.

It was recommended to me in another post and also as Harma mentioned above that if you are going to get the testing done soon and also be tested for soy, egg and/or yeast, to remain gluten free but not worry about eliminating other proteins until after you submit your test and see what the results indicate.

Hang in there.
Kelly

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Post by Gloria »

Hi Lulu,

I have found that processed foods aren't necessarily the problem, but rather that they typically contain several ingredients, any one of which could be a problem. The board has a suggestion that if there are more than five ingredients listed, it's better to avoid the product. You increase your odds for a reaction with each additional ingredient.

Even when you make your own GF products, it's not always easy to determine which ingredients are OK and which are a problem because all GF flour mixes require at least four different flours and starches. Something that is GF can have problematic ingredients for you, but not for someone else. It took me over three years to determine that I can't eat millet, sorghum, tapioca, buckwheat or amaranth, for example. These are common ingredients in many processed foods.

I'm considering writing a post to help determine which GF ingredients might be a problem. The best way is to eat each GF ingredient one at a time and see if you react.

You probably would be better off using very simple recipes from Dee's Kitchen for now until you have a better handle on your intolerances.
Linda wrote:It is probably better just to stick to mainly meat, chicken , rice and well cooked veggies, and the occasional banana at first, because those are pretty safe foods,a and then you can be pretty sure that you are not constantly poisoning yourself, at least until you get the D. under control.
That's pretty good advice, though it does leave you hungry. See if you can find single-ingredient snacks to satisfy your hunger, such as applesauce, Enjoy Life chocolate chips, corn or potato chips, etc.

You are not alone - we've all had the same struggles as you and we know it isn't easy at first. Hang in there. It does get better.

Gloria
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Post by MBombardier »

Gloria, every time I see a post from you with the Emerson quote, I have to smile. He was my great-grandmother's cousin and she insisted that my father be named after him. My grandmother succeeded in overruling her mother-in-law to the extent that Emerson is my father's middle name, but he was called Emerson all through school, and became quite the fighter by trouncing boys who called him "Emmy."
Gloria wrote: I'm considering writing a post to help determine which GF ingredients might be a problem. The best way is to eat each GF ingredient one at a time and see if you react.
I noticed a forum called "Ingredients to Be Avoided" or something like that, where Jean posted several lists in 2005. You might find those helpful when you write your post.

Lulu,

I went for four months trying to figure out what I was intolerant to besides gluten. For a while, I thought it was only gluten, then I started having trouble again. I really did not want to spend that kind of money for being tested, so I thought I could figure it out. But I finally decided $400 was worth all the time and energy I was investing, and uncertainty that I was experiencing. I am going to do the egg/yeast/soy panel next month for the same reason. If I know for sure which things I react to, then I can more easily discover if there are others when the ones I know I react to are eliminated.

As far as eating out is concerned, lots and lots of restaurants know about gluten intolerance. If you tell your server that you have a serious reaction to gluten, I think it is highly likely you will be told exactly what you can eat and not eat. At least it's worth a try. I know that Outback, Olive Garden, Old Spaghetti Factory, PF Chang's, and a few others really work on being a good place for the gluten-intolerant to eat.
Marliss Bombardier

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lulu
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diet

Post by lulu »

Thanks Marliss (btw, I have your twin as a friend; you two look almost identical...she said she'd send you a pic if you'd send her a bigger one...lol) , gloria, Irish Eyes & Harmiss....
thanks so very much for your info & support. Boy, does it help. I keep reading & haven't read it all yet, but trying. I'd read of those gluten free menu restaurants & that's great. Also have a Panera Bread restaurant here that makes great homemade bread sandwiches, that I understand is gluten free. Going to try some of them later. We have all of those in our area, thank goodness. Love Olive Garden & all of them listed.

We had to cancel our trip because of the snow here, so just as well. Wasn't looking forward to solving eating out right now in a town that has great old famous restaurants. One of them is a really good BBQ, so that probably wouldn't have sat too well. Do you all stay away from pork usually? Of course I love it, has more flavor to me than beef has, but tried not to eat it too much, even before the gluten diet.Ii have some wonderful Red Fish & Rainbow Trout in freezer that my hubbuy caught in marshes of La. & need to eat it up anyway, so may try that w/ the earth balance butter & lemon juice, in the broiler.

I called my Dr. & their office is closed because of the snow (no one can remember a worse snow storm than this one), so will have to wait until they return for an appt. & see if he'll order the tests from Enterolab, but if not, will just order them myself, and may anyway, since it may take awhile to see him. Thanks so much for all of your hints & the testing, etc. I know it will all be trial & error, but I sure had a bad reaction yesterday from what I think was the goat's milk. Next time I try pancakes, will try them w/ the rice milk & see if any difference, but not ready to even try again, will try my best to stick to simple things first, if I don't get TOO hungry. Can't believe how hungry I've been, guess it doesn't help to feel so empty in the tummy from the D, huh?
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Post by lulu »

Sorry Harma, didn't mean to spell your name wrong.
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Post by tex »

Lulu,

FWIW, pork is my main staple - I eat it every day. Back when I was reacting, I had to stop eating beef, because it would cause bloating, upper body aches and pain , a stiff neck, headache, etc. Pork has never bothered me. Here in Texas, most BBQ is safe, especially if you get it without any sauce, marinade, or whatever, (because you can never be sure that might be in those "secret" sauces - many sauces contain commercial sauces that use soy in the mix). In fact, if I get caught away from home at mealtime, and don't have anything with me to eat, I usually look for a good BBQ joint. If I don't trust anything else there, I'll just eat meat. Meat is the only complete food, you know, (IOW, it contains all the essential amino acids needed for health).

Tex

P. S. By the way, you can edit your own posts, if you will click on the "Edit" button in the upper right-hand corner of the message window.
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by lulu »

Well, Tex, there are those that say that pigs eat badly & we shouldn't eat it, but I think it's tastier than beef. I also bloat after eating a steak, and I've never thought they have lots of flavor. My daughter & hubby who live in a Dallas suburb (Frisco), are always talking about some good steak somewhere, but when I taste one, is never as good as pork to me. Maybe that's one of the reasons I have headaches off & on...from eating beef? Who knows, but usually an Advil sinus tab will get rid of it if Oil of Oregano won't (& I've read where we aren't suppose to take aspiran somewhere?), so just figured them to be sinus headaches, but then have been reading some on here that they also go along w/ this too? Oh boy. Lots of things are starting to add up. My fibro, neuropathy, arthr.,etc. I love pork BBQ, but also love the hot sauces on them, so would have to check the sauces out. The one in Hot Springs makes their own, but the base may be w/ commercial sauce also, you never know until you ask, huh? The restaurants here will dread to see me coming when I start w/ the questions...oh well!! I'll have to figure out a good GF bun to make or something...I like the pulled pork best on a bun, of course. We have a few really good BBQ places here, surprisingly.

I didn't see my spelling mistake until I sent it. Does that mean we can edit it after sending?

One more thing. If I eat fresh corn on cob, it seems to bother me, or did last summer, or corn in soup, etc, but not sure, but think I'm doing better w/ corn meal, as in tamales, etc. Is that normal? Not sure, sometimes hard to tell, but I do know that the last few times I've eaten corn, seems to bother me, but maybe it was the gluten I was eating w/ it?
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Post by Bifcus16 »

Hi Lulu,

In an ideal world, you would try to stick to a really basic diet with minimal irritants until norman started hanging around, and then slowly add in food to see what if anything causes problems. That could take anything from a few days to a few weeks to many many months. Maybe think of it as seeing what happens if you do this for just a week. Seeing an end to it can make it easier to do.

By a basic diet, I mean home cooked meat and well cooked vegies. White rice. Just bananas as fruit. Very limited herbs etc and definitely no herb or spice mixes (many contain gluten). No supplements and seriously review prescription meds if norman won't turn up. But eat as much that you want quantity wise!

Then start adding in your packaged food, wider range of foods etc.

If you include the packaged stuff from the start it is harder to work out what is causing problems and what not. It is even hard to work out how long it takes you between eating something and having a reaction.

In the real world you may not be able to do that. If you do want to include the packaged food from the start, aim for the simpler products - rice cakes etc, items with a small number of ingredients and so on. Those little packages of cooked fruit they aim a schoolkids are currently filling my work cupboard (and I am well into remission - old habits).

The corn on the cob thing is just telling you that you can't cope with that much fibre yet. When it is made into cornmeal it is easier on the gut.

Lyn
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