Lactating and not pregnant Entocort?

crystal552000 · Post by **crystal552000** » Mon Feb 28, 2011 12:33 pm

I have been taking 9mg a day of entocort for 9 months now, however my question is this, over the past two months I have been having two menstruals a month, and today noticed that I am lactating, I do not feel that I am pregnant since I am having the menstruals. Does this mean that it is effecting my adrenal and or pituitary gland. I have an appointment scheduled my my PCP on thursday and then an appointment with my GI the following week. Any help would be appreciated

natythingycolbery · Post by **natythingycolbery** » Mon Feb 28, 2011 1:16 pm

Is there any chance at all that you could be pregnant? As you can still menstruate when pregnant.

crystal552000 · Post by **crystal552000** » Mon Feb 28, 2011 1:48 pm

Well I could be Im not taking any precautions against it, but I do have two children and I knew both times right off I was pregnant but this time I just don't feel like I am

natythingycolbery · Post by **natythingycolbery** » Tue Mar 01, 2011 5:13 am

It might be worth doing a test just to be sure

crystal552000 · Post by **crystal552000** » Tue Mar 01, 2011 8:10 am

Im sure that is the first thing the doctors will check, just a little worried if it is the entocort what comes next on the treatment list

Post by **tex** » Tue Mar 01, 2011 9:52 am

Crystal,

You apparently have hyperprolactinemia. IMO, the odds of that condition being caused by Entocort are close to zero. If you're not pregnant, then it's probably due to some form of hypothalamic-pituitary dysregulation. In some cases, it can be due to a prolactinoma, so you definitely need to have your doctors check it out. It's even possible that it may be related to hypothyroidism. Do you have hypothyroidism, or have you been tested for it lately?

If, for some reason, Entocort is not a treatment option, there are approximately half a dozen 5-ASA drugs that can be safely used to treat the disease, such as Asacol, Aprisa, Lialda, Colazal, Pentasa, etc.

Suppressing the prolactin level in your system will probably affect your MC symptoms - it could either make the symptoms worse, or better, so be aware of that change. Obviously, the reasons for this are poorly understood, and little research has been done in this area, unfortunately, so no one can predict which way your symptoms will go in response to moderating your prolactin level.

Tex

crystal552000 · Post by **crystal552000** » Tue Mar 01, 2011 2:52 pm

Thanks tex, I was worried there for a minute about other drug options and atleast there are a few more left to try, and I will just hope for the best when it comes to the rest of this 2 more days till I get to see a doc

crystal552000 · Post by **crystal552000** » Thu Mar 03, 2011 5:49 pm

I just went to the doc today and did a test and I am definitely not pregnant and still lactating the doctor did a breast exam and said yep thats milk lol waiting on my blood test results to come back hopefully they get back before the 8th he wants me to take them to the GI appointment

Post by **tex** » Thu Mar 03, 2011 6:24 pm

Unless you have an exceptional GI doc, I would be surprised if she or he will be able to accurately interpret your blood test results and/or correlate them with your hormonal issues. I would think that you will probably need to see a gyno and/or endocrinologist, to track down the problem.

Tex

crystal552000 · Post by **crystal552000** » Tue Mar 08, 2011 7:21 pm

so far no results waiting on blood labs still, the GI doc said that it can't be the entocort because if it was building up in the blood I would have gained wait, Im down about 4 lbs over the last 2 months also. Hope it nothing too bad. however since I am still having bouts of D they put me on a scheduled dose of loperamide 3 2mg pills a day along with the 9mg of entocort. If the problem doesn't resolve they are talking about doing another colonoscopy just had one 8 months ago to see if I am resistant, and the talk of prednisone came up today

Post by **tex** » Tue Mar 08, 2011 8:11 pm

Crystal wrote:because if it was building up in the blood I would have gained wait

Your GI doc is full of :BSFlag:

Some people who have MC gain weight while taking Entocort, while others lose weight.

Crystal wrote:If the problem doesn't resolve they are talking about doing another colonoscopy just had one 8 months ago to see if I am resistant, and the talk of prednisone came up today

I can absolutely guarantee that if your GI doc is recommending a second colonoscopy, so soon after the previous one, that's a dead giveaway that he or she is lost, and knows virtually nothing about MC, let alone how to treat it. He wants to use you as a guinea pig, to learn on. IMO, you need to find another GI doc, ASAP.

Tex

Gloria · Post by **Gloria** » Tue Mar 08, 2011 10:45 pm

Hi Crystal,

I usually look to see what intolerances people have listed under their avitar, and I don't see any under yours. Have you changed your diet since you were Dx'd?

Gloria

crystal552000 · Post by **crystal552000** » Wed Mar 09, 2011 10:06 am

i have tried gluten free no change in symptoms so I put that back in my diet, However certain vegetables I can't tolerate like green peppers, red peppers, and lettuce of course think that is almost everyone. I have also noticed meats almost all red meat I can't eat I stick with chicken and pork. Nothing with any kind of spice or kick to it at all or I will go back to where i started. Milk can cause me problems also. However the food stuff is still a work in progress I started out on nothing but chicken and rice for a month and that didn't help either. Kind of lost on what to do

Gloria · Post by **Gloria** » Wed Mar 09, 2011 12:40 pm

I tried a month of going gluten-free, another week going lactose-free, etc. Nothing helped. The problem was I was intolerant to all of the foods I eliminated one at a time. Since I was still ingesting other problematic foods, I never saw any improvement.

Many of us have found the Enterolab testing to be helpful at determining the most common intolerances of gluten, casein (dairy), soy and eggs. I don't know if you've had this testing; if not, you might want to consider it. It really helps to have reliable test results to help determine your intolerances.

Gloria

crystal552000 · Post by **crystal552000** » Tue Mar 15, 2011 5:18 pm

My prolactin levels are normal however my TSH level is .18 and my glucose showed high so does this mean that I am definitely hyperthyroidism? Just went and did more labs today to check TS3 level and some other test to check the sugar levels when the nurse told me about the thyroid level showing hyper I stopped listening for a minute

MICROSCOPIC COLITIS SUPPORT

Lactating and not pregnant Entocort?

Lactating and not pregnant Entocort?

Not Pregnant

CBC came back