Conflicting advise

nancyl · Post by **nancyl** » Wed Apr 13, 2011 2:25 pm

Kelly,
I just checked online and peanuts are considered a legume. I am still stumped about the rice milk, but not doubting that may be what caused this flare. It sounds like it does have a small amount of gluten in it, but I consume more gluten than that in my regular food. I am wondering if it is the rice. I do have a problem with brown rice, when my flare was at it's worse and I tried eating some very well cooked, it seemed to make me worse.

I called Enterolab and have another couple of weeks to decide if I want another test added so I am going to think about it. She told me that soy is the next biggest problem after dairy and gluten. I don't buy anything with soy because of breast cancer, but know that it is in so many products that I'm sure I'm getting small amounts here and there. I may go with the egg testing.

We do have a Trader Joe's and my granddaughter was just telling me that she picks up Justin's all the time and loves it. I am going to have to check on that one.

Thank you so much for all you help and suggestions.

Nancy

irisheyes13 · Post by **irisheyes13** » Wed Apr 13, 2011 3:20 pm

It could be the rice milk or it could be the added ingredients in it. If you think you might have trouble with white and/or brown rice then it would stand to reason that you wouldn't tolerate rice milk either. There are also coconut, almond and hemp milks. I actually prefer almond milk but I think you mentioned that you didn't care for it.

Adding the additional testing is something to consider if you can't figure things out on your own. Did you get the gene panel? I would check to see if you can add additional testing after you receive your results. I know they keep your specimen for a brief time but I'm not sure how long it is.

Hang in there Nancy. :flowersmiley:

nancyl · Post by **nancyl** » Wed Apr 13, 2011 6:21 pm

Good idea. I will call and see how long after I receive the results that they keep the specimens.

I am going to a new GI doctor on Friday. He was recommended by Joe and he likes him a lot. I hate taking medication and don't tolerate them very well, but I'll see what he suggests. I'd like some feel good time while sorting out the diet.

I am going to try either the almond or coconut milk next.

Thanks again
Nancy

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 14, 2011 1:15 am

Nancy
as you may know i have used acupuncture for 8 - 9 years and have close friends who are naturopaths.

both my acupuncturist and naturopath had to change how they approached treatments for me for MC, all the documented information regarding IBD's didnt always work for me. As you know we are all very unique with our MC triggers and reactions, the biggest indicator for what is good and what is bad is listening to your body.... and keeping the diary even now 16months post diagnosis the diary is just as useful now as it was in the early days.
even now we are still monitoring what is happening and tweaking treatments to suit.
Discussing my reactions (from the diary) it gave them the information that gave them the clues to what is going on.

Just when you think you have got things sussed out for your MC management plan, things change there can be reactions to items you thought were safe, that now may no longer be safe, there are quite a few discussions about seasonal changes and impact on our immunity.

For me at the moment i dont get too many Digestion related symptoms, if anything now, I get a bit of C if I have a busy stressful day
it is the muscle aches and fatigue when i am a bit overtired. I dont get the joint aches unless i have been glutened. Sticking to the eating plan that i know works, i dont think my digestion is my weak point anymore.

nancyl · Post by **nancyl** » Thu Apr 14, 2011 5:33 am

You have been at this for a very long time. I am going back today for acupuncture and also going to call Enterolab to see if I can upgrade to the new testing that Kelly informed us about on another post. I don't suffer from aches and pains, but I noticed several people speak about it on these posts. What is the cause of that? The only time I suffer from fatigue is when I am in a flare. I am thinking it was probably the rice milk that triggered this recent flare, but of course not positive about anything anymore.

Nancy

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 14, 2011 12:42 pm

Nancy
i have had digestion issues since childhood, 3 lots of bowel surgery (for twists and blockages) and aside from scar tissue and lesions, the bowel is adhered to my left ovary. after my last surgery the doctor said if i had major issues again then they would consider removing the bowel and replacing it with a colostomy bag, i was in my late 20's at the time and I was determined to try to and get to 50 before that would need to happen.

not long after that i worked at a company that packed and sold nutritional supplements, naturopaths on staff became friends and so began my wholistic relationship with my body via food, supplements and treatments like acupuncture.

As Polly has mentioned, it is the ingredients that may only be 2 - 4% content in some of food/drink items that can cause the issue. It is not easy to procure 'pure' items.

The expanded scope of the enterolab testing should be awesome.

irisheyes13 · Post by **irisheyes13** » Thu Apr 14, 2011 1:21 pm

Good luck with your acupuncture as well as your appointment tomorrow! If Joe recommends him, that is a good indication that they are on top of their game. I find that if I write down any concerns or questions I have for the doctor and have them ready as well as taking notes when they are giving their thoughts or instructions, it saves trying to remember everything while you have their attention for that short period of time you are there.

Consider yourself fortunate if you don't suffer from the joint and muscle pain. MC is most definitely very individual in how we react as well as what intolerances we have. Gabes' advice to listen to your body is probably the best tip I have ever received and has helped me tremendously. It takes patience but it's so worth it.

I spoke with Kathy at Enterolab yesterday and they hold on to specimens for 4 weeks after the testing so you do have some time to add additional testing if you decide to.

I started another thread regarding making nut milk and gave it a try last night. It is so easy and if you decide to give it a try, you can be sure that you are only ingesting the nut itself and not any additives or stabilizers. I would imagine it would be a similar process to make rice milk.

nancyl · Post by **nancyl** » Thu Apr 14, 2011 2:40 pm

Kelly,
I just got off the phone with Enterolab and upgraded so I will now be tested for soy and egg. It will be another two weeks before I get results, but that's OK with me. I'll try to be careful in the meantime and try to keep the flares at bay. I am going to check the nut milk too. Thanks for posting that.

Gabes,
I can't believe all that you have gone through. I got interested in holistic supplements about 10 years ago. There is a wonderful health food store here and one in NJ that I visit when I visit my son. The people are so knowledgeable and will not sell anything in their stores unless it meets very high standards. I see them before I see my doctors. Now if insurance would only cover naturopaths. I think we would all be better off.

Thanks for all your support, you all got me through yesterday, which was a pretty bad day. Today was much better and I was able to go to my little 4 hour a week job.

Nancy

Gabes-Apg · Post by **Gabes-Apg** » Fri Apr 15, 2011 2:04 pm

I am pleased that we got you through the bad day, and you got to work today (or yesterday by the time you read this)
when is your appointment with the doctor?

Yeah i was kinda relieved and excited when i got the MC diagnosis. being chronically ill before diagnosis i had fair amount of fear that i was going to lose the bowel. within 24 hours of that to then find this site and have years of mystery symptoms explained it was fantastic.

knowing for many years that we have one body and we have to nurture and care for it, illness and condition is not isolated, it can have impact whole of body (and mind as well)

I frequently have people ask f we are discussing my diet, do i miss foods, and my response is, it is like something changed in my brain, things that cause flares and symptoms are like poison and not worth the 5 minutes of taste on my taste buds. I get more delight at adjusting a receipe to suit my eating plan or the days where i get all my cooking done, my chores done and i feel ready for the week ahead.

As an easter treat for Joe and I, I am going to try cooking duck. there is a jamie oliver recipe which is 'twice cooked duck' you do some cooking one day, store it and then finalise the cooking the next day.... (do you get jamie oliver on tv there, he is a cute non swearing Brit that does more homestyle type cooking and doesnt yell at people like gordon ramsay)
Mc may have its limitations, but once you get into the mojo of it, it encourages you to 'think outside the square'