Thanks, Tex. I'm going to check my health food store to see if they carry Pamela's mix.
Tonight I made roasted chicken and potatoes with broccoli. Right after I finished eating, my throat and ears started itching like crazy. I must be having an allergic reaction to something, but I'm not sure what it is. Maybe the seasoning I used? I used rosemary, paprika, garlic, black pepper and sea salt. I also used some olive oil. Another mystery??
Denise's Enterolab Results
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That definitely sounds like a mast cell reaction. The only possible culprit I can see in your list is paprika. You might check whatever you had to drink, against the list at this site:
http://www.urticaria.thunderworksinc.co ... foodsource
Tex
http://www.urticaria.thunderworksinc.co ... foodsource
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Denise,
I hate to be a party-pooper, but with your spectacular A+ on your test results, I would start out by getting your system back into the 'calm' range, rather than finding a way to get the suspect ingredients back in.
Ironically, that's the best way to get those ingredients back in ;)
But first - let your system heal. I am dreaming of the day when I can reunite with my beloved eggs in baked goods, believe me. But while your system is screaming WHOA - I think the only option is to listen. That scream might be permanent for some things, and temporary for others. At this point, it will be hard to tell the difference. I think continuing to eat 'iffy' foods might eventually make them forever off limits.
Your dinner sounds delicious - but now you don't know which of those ingredients might have triggered your symptoms... or if it was cross-contamination from something else in the kitchen. My theory (and I am very boring about this) is - Rule #1: shut down the symptom nightmare asap, by any means necessary... Rule #2: only when rule #1 brings results, we can talk about whether paprika or black pepper is our BFF.
Aren't you glad you don't live at my house?
If your dinner's spices came in a prepared blend, some have other ingredients, possibly including gluten. Even some herbs & spices (which you would expect to have one ingredient) need deep scrutiny of the ingredients list. (How wrong is that?)
You will find your own path (or make one). *For me* the hard road (eliminating suspsect ingredients all at once) is the short-cut. The idea of giving up gluten and *then* finding out I was still sick from dairy... or eggs... made my head explode. Each of us has a different tolerance for how many days/weeks we can go without pancakes. But if you're having that itchy reaction post-eating, it seems important to get the overall system 'panic button' switched back off.
Wish you were closer - we also had roast chicken here, and sweet potatoes and a green salad ;)
Hope those itchy symptoms are already gone,
Sara
I hate to be a party-pooper, but with your spectacular A+ on your test results, I would start out by getting your system back into the 'calm' range, rather than finding a way to get the suspect ingredients back in.
Ironically, that's the best way to get those ingredients back in ;)
But first - let your system heal. I am dreaming of the day when I can reunite with my beloved eggs in baked goods, believe me. But while your system is screaming WHOA - I think the only option is to listen. That scream might be permanent for some things, and temporary for others. At this point, it will be hard to tell the difference. I think continuing to eat 'iffy' foods might eventually make them forever off limits.
Your dinner sounds delicious - but now you don't know which of those ingredients might have triggered your symptoms... or if it was cross-contamination from something else in the kitchen. My theory (and I am very boring about this) is - Rule #1: shut down the symptom nightmare asap, by any means necessary... Rule #2: only when rule #1 brings results, we can talk about whether paprika or black pepper is our BFF.
Aren't you glad you don't live at my house?
If your dinner's spices came in a prepared blend, some have other ingredients, possibly including gluten. Even some herbs & spices (which you would expect to have one ingredient) need deep scrutiny of the ingredients list. (How wrong is that?)
You will find your own path (or make one). *For me* the hard road (eliminating suspsect ingredients all at once) is the short-cut. The idea of giving up gluten and *then* finding out I was still sick from dairy... or eggs... made my head explode. Each of us has a different tolerance for how many days/weeks we can go without pancakes. But if you're having that itchy reaction post-eating, it seems important to get the overall system 'panic button' switched back off.
Wish you were closer - we also had roast chicken here, and sweet potatoes and a green salad ;)
Hope those itchy symptoms are already gone,
Sara
Weird. All those ingredients sound pretty tame to me. I practically live on roasted chicken and broccoli! But now that you've cut out the gluten, your immune system may be reving up to freak out about other things in your diet, unfortunately. This is usually when the other intolerances become more obvious.
Thanks for the link, Tex, but I only drank water with my meal. Maybe it was the paprika. I'm going to start keeping a food journal (I know, I should have started already) to see if I can figure out what's causing the histamine reaction.
Sara, you are so right! I need to take it slow, but patience has never been my virtue.
Aren't potatoes and tomatoes related somehow? I think I read on Dr. Fine's website that they are in the same family. The reason I am asking is that about sixteen or seventeen years ago, I started breaking out in hives every time I ate tomatoes. I didn't stop eating them (I know, not very smart) and the hives eventually went away. I assumed I had desensitized myself to them, but maybe I still have an allergy to that family of foods.
Thanks again, Tex, Sara and Zizzle.
Hugs,
Sara, you are so right! I need to take it slow, but patience has never been my virtue.
Aren't potatoes and tomatoes related somehow? I think I read on Dr. Fine's website that they are in the same family. The reason I am asking is that about sixteen or seventeen years ago, I started breaking out in hives every time I ate tomatoes. I didn't stop eating them (I know, not very smart) and the hives eventually went away. I assumed I had desensitized myself to them, but maybe I still have an allergy to that family of foods.
Thanks again, Tex, Sara and Zizzle.
Hugs,
Denise
"Be the change you want to see in this world."
Mahatma Gandhi
"Be the change you want to see in this world."
Mahatma Gandhi
Right you are, Denise - tomatoes and potatoes are related... peppers, too (including paprika).
You might be more patient than I am, if you can put up with symptoms
Or maybe your patience is being used up faster than mine in other areas of life. I truly believe I might wind up with a richer, fuller diet - faster - if I get my system calmed down first. That's how impatient I am!
That link from Tex is definitely appropriate for a former hives gal. I think my lifelong allergies, 'sensitive skin' and now these food intolerances are all part of a pattern.
I think the diet gets easier when you've been at it a while. And part of that is just having fewer things in front of you that you now can't have and (took me a while to get this 2nd part down) MORE things that you can have. There's nothing like being hungry, and having nothing in the house, to impair your judgment about what to eat next.
Don't let me rush you into slowing down, seriously. Your pace is perfect for you, and only you know when you need to hit the brakes or speed up.
Hope the itching was brief and is gone!
Sara
You might be more patient than I am, if you can put up with symptoms
Or maybe your patience is being used up faster than mine in other areas of life. I truly believe I might wind up with a richer, fuller diet - faster - if I get my system calmed down first. That's how impatient I am! That link from Tex is definitely appropriate for a former hives gal. I think my lifelong allergies, 'sensitive skin' and now these food intolerances are all part of a pattern.
I think the diet gets easier when you've been at it a while. And part of that is just having fewer things in front of you that you now can't have and (took me a while to get this 2nd part down) MORE things that you can have. There's nothing like being hungry, and having nothing in the house, to impair your judgment about what to eat next.
Don't let me rush you into slowing down, seriously. Your pace is perfect for you, and only you know when you need to hit the brakes or speed up.
Hope the itching was brief and is gone!
Sara
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TooManyHats
- Rockhopper Penguin
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- Joined: Fri Jan 14, 2011 9:30 pm
- Location: New Jersey
Broccoli is also moderately high in histamine, too.tex wrote:That definitely sounds like a mast cell reaction. The only possible culprit I can see in your list is paprika. You might check whatever you had to drink, against the list at this site:
http://www.urticaria.thunderworksinc.co ... foodsource
Tex
Although tomatoes and potatoes are in the same family, tomatoes are much higher in histamines than potatoes are.
Denise, thanks for the sweet wishes ;)
Arlene, good point - tomatoes also are high in lectins that are problematic for some people, I learned (I think) in a presentation by Loren Corden, the Paleo Diet fellow. (He was discussing eliminating lectin-containing foods for MS patients, with impressive outcomes.)
I think tomatoes are another food that was probably originally eaten only occasionally - a whole lot when ripe, and then not for another year. Now they're canned and jarred and frozen, and grown in hothouses, and flown in from other places having better weather, we eat them year-round. (Potatoes, of course, naturally store better, for better or worse.)
I am avoiding tomatoes now and hoping I can have a few at the height of July ;) I have had them a few times, with mixed results. Potatoes I seem to tolerate, but I try not to eat giant amounts.
Best,
Sara
Arlene, good point - tomatoes also are high in lectins that are problematic for some people, I learned (I think) in a presentation by Loren Corden, the Paleo Diet fellow. (He was discussing eliminating lectin-containing foods for MS patients, with impressive outcomes.)
I think tomatoes are another food that was probably originally eaten only occasionally - a whole lot when ripe, and then not for another year. Now they're canned and jarred and frozen, and grown in hothouses, and flown in from other places having better weather, we eat them year-round. (Potatoes, of course, naturally store better, for better or worse.)
I am avoiding tomatoes now and hoping I can have a few at the height of July ;) I have had them a few times, with mixed results. Potatoes I seem to tolerate, but I try not to eat giant amounts.
Best,
Sara
Denise,
All of these foods, (except broccoli), are in the nightshade family, and nightshades are notorious for the effects of the lectins found in them. Tobacco is also a nightshade, and the most controversial plant in this family is belladonna, which is poisonous, but which is used in certain medications, because of some of it's unique characteristics. Some of us can tolerate them just fine, while others can't. For some people, they are known to exacerbate the symptoms of RA, for example.
Tex
All of these foods, (except broccoli), are in the nightshade family, and nightshades are notorious for the effects of the lectins found in them. Tobacco is also a nightshade, and the most controversial plant in this family is belladonna, which is poisonous, but which is used in certain medications, because of some of it's unique characteristics. Some of us can tolerate them just fine, while others can't. For some people, they are known to exacerbate the symptoms of RA, for example.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I think my mother was given Bella Donna for stomach cramping, which was probably caused from being celiac. She always had stomach problems. I'm pretty sure I got the celiac gene from her. She also had type 1 diabetes. The celiac gene I have is also linked to type 1 diabetes.
Hugs,
Hugs,
Denise
"Be the change you want to see in this world."
Mahatma Gandhi
"Be the change you want to see in this world."
Mahatma Gandhi
-
irisheyes13
- Adélie Penguin
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- Joined: Fri Jan 28, 2011 2:46 pm
- Location: Pittsburgh, PA, United States
Hi Denise,
I'm just catching up on all the posts and saw your results. Sorry to hear you got hit with so many positives.
News like this is a tough pill to swallow no matter how much you think you are prepared for it. It sure does look like classic celiac with those results and genetics... on top of all the other AI issues you are dealing with. The good news is, you now have a definitive answer for why you have been feeling bad and can adjust your diet and hopefully begin to feel better very soon.
I'm finding out that balancing a gluten and dairy free diet with type 1 diabetes can be tricky but my guess is that you have such a tight grip on your diabetes that it won't be as difficult for you. Pleasing the palate of an 18 year old is proving challenging to say the least.
The one advantage I have with my daughter is that I have been able to bake some protein rich gf breads because she can have eggs and she begrudgingly admitted tasted great (we're not so lucky). I have come to accept that breads aren't an option for me since I can't have yeast or eggs (for now until much more healing has taken place) but Gluten Free Goddess has a blog with lots of vegan recipes and there are a few bread recipes there if you want to try your hand at baking. I haven't tried any of the bread recipes but have tried several others of hers that were fabulous.
Several weeks ago after I had gotten my MRT results back and was adjust my diet based on my results and dietitian recommendations, I became very frustrated. I think my frustration was over the fact that my intestines haven't healed and weren't ready for new foods that should be safe. It sure can be frustrating when you eat something as simple as chicken, potato and broccoli and it doesn't settle well. I had the same experience when I had almost the sames foods except my veg was carrots instead of broccoli. Since then I have backed down to simple diet with foods which seem to work for me but do my best to rotate these foods to avoid further intolerances and to keep from getting completely bored with a very limited diet. I have been doing much better since then. My hope is that if we can be patient and allow for some healing to take place now, months down the road hopefully we can slowly begin to add some of our (safe) favorites back in.
There is definitely a learning curve to eliminating all of these proteins at once and it involves lots of label reading and spending a bit more time planning and preparing foods but I have no doubt that you will figure it all out in time and be feeling better soon.
Kelly
P.S. My daughter's A1C was 6.8 when we went for her first follow-up Endo visit.
I'm just catching up on all the posts and saw your results. Sorry to hear you got hit with so many positives.
News like this is a tough pill to swallow no matter how much you think you are prepared for it. It sure does look like classic celiac with those results and genetics... on top of all the other AI issues you are dealing with. The good news is, you now have a definitive answer for why you have been feeling bad and can adjust your diet and hopefully begin to feel better very soon.I'm finding out that balancing a gluten and dairy free diet with type 1 diabetes can be tricky but my guess is that you have such a tight grip on your diabetes that it won't be as difficult for you. Pleasing the palate of an 18 year old is proving challenging to say the least.
The one advantage I have with my daughter is that I have been able to bake some protein rich gf breads because she can have eggs and she begrudgingly admitted tasted great (we're not so lucky). I have come to accept that breads aren't an option for me since I can't have yeast or eggs (for now until much more healing has taken place) but Gluten Free Goddess has a blog with lots of vegan recipes and there are a few bread recipes there if you want to try your hand at baking. I haven't tried any of the bread recipes but have tried several others of hers that were fabulous.Several weeks ago after I had gotten my MRT results back and was adjust my diet based on my results and dietitian recommendations, I became very frustrated. I think my frustration was over the fact that my intestines haven't healed and weren't ready for new foods that should be safe. It sure can be frustrating when you eat something as simple as chicken, potato and broccoli and it doesn't settle well. I had the same experience when I had almost the sames foods except my veg was carrots instead of broccoli. Since then I have backed down to simple diet with foods which seem to work for me but do my best to rotate these foods to avoid further intolerances and to keep from getting completely bored with a very limited diet. I have been doing much better since then. My hope is that if we can be patient and allow for some healing to take place now, months down the road hopefully we can slowly begin to add some of our (safe) favorites back in.
There is definitely a learning curve to eliminating all of these proteins at once and it involves lots of label reading and spending a bit more time planning and preparing foods but I have no doubt that you will figure it all out in time and be feeling better soon.
Kelly
P.S. My daughter's A1C was 6.8 when we went for her first follow-up Endo visit.
Kelly, it has been really difficult! I'm not a baker, or should I say I wasn't, because if I want to eat, I'm going to have to start making my own stuff.
Your daughters A1C is awesome considering she was just diagnosed! It sounds like she is really doing great with that balancing act! She and I share the same 0302 gene, which is one of the main genes for celiac and also diabetes. I was curious and checked my results against your daughters. I did some research and sure enough it has also been found to be related to type 1 diabetes. I have often wondered if there was a way to have both of my children tested for the gene that caused my diabetes. Now I know there is. I am definitely going to have my son tested, but my daughter is 24 years old and when I made the suggestion to her, she didn't want to talk about it. She is planning her wedding and I understand she doesn't want to think about things like that right now. Hopefully before she has her own baby she'll get herself tested.
Hugs,
Your daughters A1C is awesome considering she was just diagnosed! It sounds like she is really doing great with that balancing act! She and I share the same 0302 gene, which is one of the main genes for celiac and also diabetes. I was curious and checked my results against your daughters. I did some research and sure enough it has also been found to be related to type 1 diabetes. I have often wondered if there was a way to have both of my children tested for the gene that caused my diabetes. Now I know there is. I am definitely going to have my son tested, but my daughter is 24 years old and when I made the suggestion to her, she didn't want to talk about it. She is planning her wedding and I understand she doesn't want to think about things like that right now. Hopefully before she has her own baby she'll get herself tested.
Hugs,
Denise
"Be the change you want to see in this world."
Mahatma Gandhi
"Be the change you want to see in this world."
Mahatma Gandhi
Denise,
Gloria has some great recipes in the Dee's Kitchen forum here - and I'm sure you've already discovered the incredibly varied 'Net resources for GF (not all DF, but some)... I like Elana's Pantry, though in honest I haven't made all that many of her recipes (I'm a wing-it kind of cook... doesn't work with baking). She uses a lot of almond flour. Gluten-Free Girl has a blog, a cookbook, and she's a fine writer. I can't believe that when I read her story (sick for years, no Dx, finally figured it out essentially despite her doctor)... it didn't cross my mind that I'd turn out to be celiac (or close enough) myself. Her husband's a chef, so they have given a *lot* of thought to yumminess.
Great idea to test your son - fingers crossed he's 0302-free, but if not, you will know how to keep him as safe and healthy as possible, while you're figuring it out for yourself.
I also think you're wise to let your daughter enjoy her pre-wedding excitement without being the "voice of doom" (and you, too, as mother of the bride should get a break from health woes). May her only worries be about flowers and such weighty matters. Speaking of her babies... I had multiple miscarriages, and I am not the only one here who has. Fertility struggles, pregnancy loss, and intrauterine growth retardation seem to be more likely for women with celiac - there's a celebrity whose celiac disease was only discovered after a heartbreaking story (she is blond, and I am very bad at famous people... has to do with television). Don't tell her that now! And I hope none of that befalls your daughter, but keep it in the back of your mind in case she ever has struggles in that area. Maybe a blond celebrity's story will be more engaging than a mother's reminding about getting tested.
And I hope she's negative, too, when she gets around to it!
Love,
Sara
Gloria has some great recipes in the Dee's Kitchen forum here - and I'm sure you've already discovered the incredibly varied 'Net resources for GF (not all DF, but some)... I like Elana's Pantry, though in honest I haven't made all that many of her recipes (I'm a wing-it kind of cook... doesn't work with baking). She uses a lot of almond flour. Gluten-Free Girl has a blog, a cookbook, and she's a fine writer. I can't believe that when I read her story (sick for years, no Dx, finally figured it out essentially despite her doctor)... it didn't cross my mind that I'd turn out to be celiac (or close enough) myself. Her husband's a chef, so they have given a *lot* of thought to yumminess.
Great idea to test your son - fingers crossed he's 0302-free, but if not, you will know how to keep him as safe and healthy as possible, while you're figuring it out for yourself.
I also think you're wise to let your daughter enjoy her pre-wedding excitement without being the "voice of doom" (and you, too, as mother of the bride should get a break from health woes). May her only worries be about flowers and such weighty matters. Speaking of her babies... I had multiple miscarriages, and I am not the only one here who has. Fertility struggles, pregnancy loss, and intrauterine growth retardation seem to be more likely for women with celiac - there's a celebrity whose celiac disease was only discovered after a heartbreaking story (she is blond, and I am very bad at famous people... has to do with television). Don't tell her that now! And I hope none of that befalls your daughter, but keep it in the back of your mind in case she ever has struggles in that area. Maybe a blond celebrity's story will be more engaging than a mother's reminding about getting tested.
And I hope she's negative, too, when she gets around to it!
Love,
Sara
-
irisheyes13
- Adélie Penguin
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- Joined: Fri Jan 28, 2011 2:46 pm
- Location: Pittsburgh, PA, United States
Denise- All of these changes can really be overwhelming and quite honestly (for me at least), depressing at first but if you do your best at focusing on the "now" and trying to cook ahead for a few days so that you don't get "caught" with no food options when you are ravenous as well as making sure you are stocked with safe foods, I have found that it helps. Once you focus on what you can have and away from what you can't have it starts to get a bit less overwhelming.
Yes, you and my daughter do share that same 0302 gene and it is linked to both celiac and type 1. I would definitely get both of your kids cheek swabbed to test their genetics but totally understand where your daughter's focus is right now with such an important occasion.
Polly posted a Vitamin D study a few months ago on the board that mentioned possible prevention of these diseases as well as others by increasing our vit. D levels to much higher levels than has been recommended. My levels were very low and I just had my daughter's checked. We haven't received her results yet but I have all of my kids on 2000 units of vit D per day now. Adding vit D to their diet is something to consider. There is so much research money being poured into prevention and hopefully a cure for diabetes. If they can come up with a cure for just one of these autoimmune diseases, I feel like it will open the flood gates to solving the mystery to others as well. They seem close on prevention of type 1 so hopefully some day soon we'll hear some good news...
Sara- I have read so many of Elena's recipes but don't think I have actually tried any. It may be because I don't have the blanched almond flour that she swears by in all of her recipes. I have Trader Joe's almond meal which I love but she says you won't get the same results if you aren't using blanched almond flour... I think it's time I purchased some and tried a few of her recipes. I seem to be handling homemade almond milk well these last few weeks so I'm keeping my fingers crossed that it's a safe food. I also love GF girl and the chef and her blog! Her story moved me as well and how quickly she responded to going GF was amazing. Dee's kitchen and many of Gloria's recipes have saved the day on several occasions for me. Polly's sticky chicken is one of my favorites but there is some cayenne pepper in the seasoning mix so that might not be a good starting point if you are having any nightshade sensitivities.
Yes, you and my daughter do share that same 0302 gene and it is linked to both celiac and type 1. I would definitely get both of your kids cheek swabbed to test their genetics but totally understand where your daughter's focus is right now with such an important occasion.
Polly posted a Vitamin D study a few months ago on the board that mentioned possible prevention of these diseases as well as others by increasing our vit. D levels to much higher levels than has been recommended. My levels were very low and I just had my daughter's checked. We haven't received her results yet but I have all of my kids on 2000 units of vit D per day now. Adding vit D to their diet is something to consider. There is so much research money being poured into prevention and hopefully a cure for diabetes. If they can come up with a cure for just one of these autoimmune diseases, I feel like it will open the flood gates to solving the mystery to others as well. They seem close on prevention of type 1 so hopefully some day soon we'll hear some good news...
Sara- I have read so many of Elena's recipes but don't think I have actually tried any. It may be because I don't have the blanched almond flour that she swears by in all of her recipes. I have Trader Joe's almond meal which I love but she says you won't get the same results if you aren't using blanched almond flour... I think it's time I purchased some and tried a few of her recipes. I seem to be handling homemade almond milk well these last few weeks so I'm keeping my fingers crossed that it's a safe food. I also love GF girl and the chef and her blog! Her story moved me as well and how quickly she responded to going GF was amazing. Dee's kitchen and many of Gloria's recipes have saved the day on several occasions for me. Polly's sticky chicken is one of my favorites but there is some cayenne pepper in the seasoning mix so that might not be a good starting point if you are having any nightshade sensitivities.
Kelly
Believe deep down in your heart that you are destined to do great things~ Joe Paterno
Believe deep down in your heart that you are destined to do great things~ Joe Paterno