Very nice to recieve such kind words and empathy, we all know the dreaded d wouldnt be so bad if we didnt get painful cramps and all that goes with it, and yet we cant curl up in a ball either.
I know the good Lord hasn't given me a day, that I havent made it thru, yet.
dqshelton, I hope you are able to get to church and enjoy it. I havent been able to go as I generally work every other Sunday and try to catch up on my chores, somedays I am just worn out. I have a radio station that I listen to at times 'the joy fm", has contemporary Christian music I like. thejoyfm.com if you are interested.
Rough day.....
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
thanks again Ladies!
If you want to change the world, you must start at home.
Dear Carol,
Hope today is a better day.....
I agree with what others have said. MC, especially the daily morning "process" plus "accidents" (actual and the fear of them) effect so much of life. I had to give up my job and only now (with diet and the prop of one Entocort a day) do I have the confidence and energy to rebuilding some sort of career.
I believe it is now vital to sort out your food intolerances as the next step to getting your life back. But do not believe what some in the medical professionals say that you can get off Entocort quickly. Even with diet it can take a year or more for the gut to settle down.
I have just reordered Entocort from alldaychemists.
Best wishes, ant
Hope today is a better day.....
I agree with what others have said. MC, especially the daily morning "process" plus "accidents" (actual and the fear of them) effect so much of life. I had to give up my job and only now (with diet and the prop of one Entocort a day) do I have the confidence and energy to rebuilding some sort of career.
I believe it is now vital to sort out your food intolerances as the next step to getting your life back. But do not believe what some in the medical professionals say that you can get off Entocort quickly. Even with diet it can take a year or more for the gut to settle down.
I have just reordered Entocort from alldaychemists.
Best wishes, ant
----------------------------------------
"Softly, softly catchee monkey".....
"Softly, softly catchee monkey".....
Carol,
I hope today is finding you feeling better. As you can see, we all have our days. Hopefully with time, patience and diet you will find your good days much more abundant.
It does seem that mornings are generally a rough time for a lot of us. Amazing how we make it to work sometimes; it just shows our tenacity to overcome this disease and not let it get the best of us.
Laura
I hope today is finding you feeling better. As you can see, we all have our days. Hopefully with time, patience and diet you will find your good days much more abundant.
It does seem that mornings are generally a rough time for a lot of us. Amazing how we make it to work sometimes; it just shows our tenacity to overcome this disease and not let it get the best of us.
Laura
All things are possible through God.
day off
A day off definitely helped, altho today I am looking around at all my unfinished business, going "where the heck do I start?" I know as long as I start somewhere I will find some kind of progress in my day. Its sad for me to see how much things have fallen apart since I have been ill. I am desperately trying to not allow myself to feel overwhelmed, because then, I wont accomplish a thing, and I wont really be relaxing so, it will only waste time and precious energy. I guess I am either trying to talk myself outta something or into it.
Pray everyone is having a "good day", and healing progressively.
Carol
Pray everyone is having a "good day", and healing progressively.
Carol
If you want to change the world, you must start at home.
Re: day off
Carol,Carol wrote:I guess I am either trying to talk myself outta something or into it.
I read that and just bounced to my feet - I'm going to do my errands. Whatever else you accomplish, you got me on the move today, and THANK YOU.
I will cross something off my list, and there will always be more to do ;)
Hope you're feeling a little encouraged by one step at a time,
Sara
Carol - I am so glad that you are feeling better today and I hope that you're able to ake a dent in your pile of things to do. I don't like to look around and see a bunch of things that need to be done either. It used to bother me a lot more than it does these days. Stress really affects my CC, so trying not to stress over things is always my goal...a lot easier said than done, I know! I have taken the approach of...what is the worst thing that could happen if I don't get this thing done today? If the answer does not include major blood loss or death, I try not to worry about it! LOL. I can tell you it never involves either of those and kind of puts things in perspective for me.
I hope you are having a great day!
Hugs,
I hope you are having a great day!
Hugs,
Denise
"Be the change you want to see in this world."
Mahatma Gandhi
"Be the change you want to see in this world."
Mahatma Gandhi
I agree - most of us learn to downshift a little, and take life one day at a time. It definitely helps to calm the nerves if we don't worry about planning very far ahead. In fact, I soon became an expert at postponing even the act of making plans, until tomorrow, or the day after that. LOL. Without plans, there's nothing left to worry about. Of course, realistically, occasionally we do have to perform, but that doesn't mean that we have to worry about it in advance, (or afterward, for that matter).
I find it interesting that most of us who are members of this board, seem to have been perfectionists when our symptoms first began, but by the time we reach remission, we have learned to change our lifestyle, and our attitude, and we view our life and the world around us, in a totally different way. Most of us come to realize that for the most part, we have adapted/developed a more relaxing, healthier attitude/outlook.
Carol - I'm glad that you're feeling better.
Tex
I find it interesting that most of us who are members of this board, seem to have been perfectionists when our symptoms first began, but by the time we reach remission, we have learned to change our lifestyle, and our attitude, and we view our life and the world around us, in a totally different way. Most of us come to realize that for the most part, we have adapted/developed a more relaxing, healthier attitude/outlook.
Carol - I'm glad that you're feeling better.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
downshift
I have definitely downshifted, the toys on the floor means the kids had some fun, the dishes in the sink mean we had food to eat, the dirty clothes mean we had something to wear, and I tell the kids if you spill it please wipe it up, I will be too busy scrubbing the toilet...again.
If its not growing where it shouldn't be, crawling when it shouldn't move, or smelling funky, I am good. I have never been sooo complacent, and I am learning more each day how to delegate responsibilities, and how to let go, and strangely enough, am actually starting to feel a little more in control than when I was able to do a million things at a time.
Also, I was the go to person for everything, as I have been learning to take care of me, I have been finding resources for my "friends" and telling them "no". They are amazed to find out they can help themselves, and I am amazed how much better I have started to feel about not taking on the world.
Carol
If its not growing where it shouldn't be, crawling when it shouldn't move, or smelling funky, I am good. I have never been sooo complacent, and I am learning more each day how to delegate responsibilities, and how to let go, and strangely enough, am actually starting to feel a little more in control than when I was able to do a million things at a time.
Also, I was the go to person for everything, as I have been learning to take care of me, I have been finding resources for my "friends" and telling them "no". They are amazed to find out they can help themselves, and I am amazed how much better I have started to feel about not taking on the world.
Carol
If you want to change the world, you must start at home.
re
day 11, on entocort, the first 3 months of entocort, I could pretty much eat anything. this round is frustrating, the bouts with d, have slowed to 1-2 times a day, which is a great relief, I have tried to take all the wheat products out of my diet, for the past week and buying gf products. I am sure it takes time to adjust. I do have lots of painful cramping high in the abdomen, and bloating. Hyocosamine seems to help with the cramping, (at times) and theres a burning sensation at times. My pharmacist said I should do a low fiber diet, due to cc, as he says fiber can contribute to the build up of collagen. The dr said he will order testing for celiac and other stuff at my next appointment. So in the meantime I am "coping" and hoping, and making the list for the dr. My energy comes and goes throughout the day, and I am doing my best not to get too frustrated.
Definitely been a boost emotionally to connect with others who share the experience, but also sad, cause I wouldn't wish this on my worst enemy. Thanks for all the support,
Carol
Definitely been a boost emotionally to connect with others who share the experience, but also sad, cause I wouldn't wish this on my worst enemy. Thanks for all the support,
Carol
If you want to change the world, you must start at home.
Carol,
It took 3 months last year for me to see my first Norman after upping Entocort to 9 mg. a day from 3 mg. a day. All other times, it only took a few days to a week or so. Hang in there; it will improve. Changing the diet is essential.
Gloria
It took 3 months last year for me to see my first Norman after upping Entocort to 9 mg. a day from 3 mg. a day. All other times, it only took a few days to a week or so. Hang in there; it will improve. Changing the diet is essential.
Gloria
You never know what you can do until you have to do it.
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TooManyHats
- Rockhopper Penguin
- Posts: 550
- Joined: Fri Jan 14, 2011 9:30 pm
- Location: New Jersey
Be careful with your colander, tupperware containers, cooking utensils, and non-stick cookware that can have gluten embedded in them that is impossible to remove, but can cause cross-contamination. I replaced all of mine along with a dedicated gluten-free toaster oven. Also, replace your toothbrush for the same reasons.
Arlene
Progress, not perfection.
Progress, not perfection.
Carol,
Fiber doesn't cause an increase in collagen band thickness because of any nutritional effects, but rather it does so by irritating the gut, and increasing the inflammation. Fiber is almost universally recommended to "improve regularity". The problem is that it improves regularity by physically irritating the gut. Fiber actually tears the cells of the mucusa, prompting the production of mucus, which promotes motility through the gut. Whenever the gut is irritated or inflamed, it produces copious amounts of mucus, to coat the intestines, in a effort to protect itself from the source of the irritation, and all that extra mucus, promotes bowel movements, of course.
IMO, that's not necessarily a good thing at any time, let alone when the gut is already inflamed, because of MC. Anyway, this is why fiber is most definitely contraindicated for anyone with MC, who is trying to control their symptoms and allow their gut to heal. Here's a reference, if you doubt that fiber really affects the gut in this way.
Tex
Fiber doesn't cause an increase in collagen band thickness because of any nutritional effects, but rather it does so by irritating the gut, and increasing the inflammation. Fiber is almost universally recommended to "improve regularity". The problem is that it improves regularity by physically irritating the gut. Fiber actually tears the cells of the mucusa, prompting the production of mucus, which promotes motility through the gut. Whenever the gut is irritated or inflamed, it produces copious amounts of mucus, to coat the intestines, in a effort to protect itself from the source of the irritation, and all that extra mucus, promotes bowel movements, of course.
IMO, that's not necessarily a good thing at any time, let alone when the gut is already inflamed, because of MC. Anyway, this is why fiber is most definitely contraindicated for anyone with MC, who is trying to control their symptoms and allow their gut to heal. Here's a reference, if you doubt that fiber really affects the gut in this way.
http://www.sciencedaily.com/releases/20 ... 093156.htmTheir results suggest that as these bulky foods make their way down the gastrointestinal tract, they run into cells, tearing them and freeing lubricating mucus within.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.