Question for the gluten intolerant folks on here

Gas Bag · Post by **Gas Bag** » Tue Aug 18, 2009 1:25 pm

I am just making up my own theory, for my situation and cutting out a bad thing I don't need to be doing for any reason.

I am feeling pretty darn good again, it's that probiotic yogurt so far I think.

Deb

ant · Post by **ant** » Tue Aug 18, 2009 11:11 pm

Lesson learned but so hard for a 9 year old. The very next day at camp they had cake and he couldn't eat it - he was just about in tears.

Mary Beth, that twinged my heart. To be a child with this must be aweful.

Best to you and your son, Ant

Faerenach · Post by **Faerenach** » Wed Jan 19, 2011 9:17 am

I've been going gluten-free for about two weeks now, and while I feel like I have more energy and a bigger appetite, it hasn't affected my digestion at all yet. Still same ol' urgency and non-absorption...

Is it early for me to be measuring my reaction to going gluten-free? I've heard it takes months for some people to get their systems clear and start feeling a change.

Post by **tex** » Wed Jan 19, 2011 10:50 am

It takes a long time for the gut to heal, if there is a lot of damage from gluten. A few people see results in a week or two, but most of us take anywhere from a couple of months to a year, before we see significant improvement. However, if you are intolerant to any other foods, (such as dairy or soy), and you continue to eat those foods, you are not likely to see significant improvement. We have to eliminate all foods to which we are sensitive, in order to achieve remission.

If you have more energy, and a better appetite, you are apparently already seeing some benefits from the diet. Keep up the good work. Patience and dedication to detail in your diet will allow you to get your life back.

Tex

MBombardier · Post by **MBombardier** » Wed Jan 19, 2011 12:05 pm

Another suggestion is to think about cutting out fiber. That's what did it for me. When I cut out the fiber, the good the gluten-free and lactose-free (I don't react to casein) diet was doing for my symptoms really showed itself.

JLH · Post by **JLH** » Wed Jan 19, 2011 12:47 pm

Luckily, I had darn fast results going gluten free. (I have been dairy free for decades.)

Within a month or two, things were not so great any more. I suspected soy because of the PP. It was confirmed by EnteroLab.

Keep with it. You can do it.

Zizzle · Post by **Zizzle** » Wed Jan 19, 2011 1:44 pm

Like Joan, saw amazing improvement after just days on the GF/DF diet. Bathroom trips reduced to 1-2 per day, although it was still D. But the urgency, bloating, gas and pain were gone. Unfortunately, it's been 8 months and I've only seen norman twice. I have my life back, but bm's are usually a soft pile or worse D, depending on what I eat. Alcohol, fiber, citrus, and now peanut butter seem to be derailing my hopes of remission. I have a hard time cutting out fiber from fruits, veggies and beans, because I've eaten them all my life and I don't feel healthy if I can't eat greens, broccoli, apples, melons, etc. GF/DF is restrictive enough. When I eat mostly safe starches and meats, the high-glycemic starches leave me with hunger pangs. So I end up eating too much meat to stay full, not enough veggies (to avoid fiber), and feeling bad. My DH is on a high-fiber weight-loss diet, so simple carbs are not welcome at home. I've threatened to buy all the veggies frozen to force myself to cook them well. We'll see how mushy vegetables go over at dinnertime...

mzh · Post by **mzh** » Wed Jan 19, 2011 7:51 pm

I get diarrhea the next day after eating anything with even just breading. I always wondered why not in a couple of hours.

tcorbett · Post by **tcorbett** » Thu Jan 20, 2011 2:55 pm

Deb,

Not to be "Johnny Raincloud" here - but if you need to avoid gluten - you need to be 100% - otherwise from what I've learned - you are causing damage that you just can't see. Some folks with Celiac have constipation as their symptom - I have a friend like that. I have been gluten-free for 8yrs, I still have D, due to finding this summer that I have MC. Only time will heal. Now, I have been "glutenized" by accident - when eating at the restaurant I worked at, they changed the recipe on a hot sauce, no one said anything, because it was only "a little flour" - well, that's all I need! I think if I just look at gluten I have the runs.

I agree with Tex, depending on where the damage is - will determine the reaction time. I'm glad you are off the vodka and the ibuprophen - my GI calls Advil and all that a GI dr's nightmare! Which is true - it only makes matters worse. I had been misdiagnosed with Lupus in 1988 - what did they put me on for arthritis - you guessed it NSAIDs - lots of it for many years - DAMAGE DAMAGE DAMAGE - who knew?

Keep up the great work of being back on track with the gluten-free, you will heal much faster! There are so many wonderful GF foods out there - I don't even miss it! I could never let a piece of gluten cross my lips - I was way too sick back then - it's not worth the consequences. You realize if you are gluten-intolerant - you are at a high risk for colon cancer (very painful by the way - had 3 relatives die from it) - that's all it took for me to say "no more gluten". Sorry to babble.

Take care of yourself - you deserve it!

Theresa