Well, I have plenty of those red dots, and they are not contained to my torso. However, they are mostly small, and sort of inconspicuous, with the exception of a couple of bigger ones on my belly. Although I've had them as long as I can recall, they have definitely spread and increased in number as I'm aging - I'm 60.
Love,
Kari
Dermatologist appointment
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That's weird. Now you've got me inspecting, and I have reason for hope. The one I had on my right eyelid, right at the lash level, disappeared!! I've had it there for months, if not years. BUT, now I have one higher up on my LEFT eyelid!! Could this be something other than hemangiomas? I thought they were fixed and forever, once they emerged.
Yup, high ANA, Anti-Actin and Rheumatoid Factor. The dermatologist and I suspect Amyopathic Dermatomyositis (small possibility of subacute cutaneous lupus instead), but I haven't read anything to indicate these tiny hemangiomas are at all related. But I understand the disease to be caused by autoimmune lymphocyte-driven inflammation of the microscopic blood vessels of the skin (and muscles if there is muscle involvement). Interestingly, there is a tie to Epstein Barr Virus!
http://en.wikipedia.org/wiki/Dermatomyositis
Now I'm wondering if these are cherry hemangiomas at all. The derm said I had lots of Telangiectasias. It's not just spider veins.
http://en.wikipedia.org/wiki/Telangiectasia
http://en.wikipedia.org/wiki/Dermatomyositis
Now I'm wondering if these are cherry hemangiomas at all. The derm said I had lots of Telangiectasias. It's not just spider veins.
http://en.wikipedia.org/wiki/Telangiectasia
Wow, a quick search of "dermatomyositis and gluten" provides a host of associations! Of course most docs have no clue about this one yet.
http://www.ncbi.nlm.nih.gov/pmc/article ... =pmcentrez
http://www.ncbi.nlm.nih.gov/pmc/article ... =pmcentrez
The bumps I get are itchy and the mouth sores I get are a little painful. That's why I think they are associated with mast cells. I've have a couple of red bumps that don't go away, but they don't have any surface sensation, so I've never connected them to mast cells. I've had them for years.
Gloria
Gloria
You never know what you can do until you have to do it.
Zizzle
Every post I read just drives me crazy how much we are alike. And I am 37, so we are very close in age. I have permanent red dots on my eyelids, and I had forgotten until you mentioned it, my first diagnosis was Dermatomyositis. Then they said mixed connective tissue then lupus. My doctor also told me I had an inconvenient nuisance type of disease, but probably not worse. My dermatologist was also a jerk so to say. She wouldn't listen to me, had to do two biopsies (which scarred horribly) , and they both came back inconclusive. She wanted me to do a gluten challenge to see if it was Dermatitis Herpetiformis! No thank you! And I had to ask her three times to stain for mast cells, which she obviously didn't want to do. My mast cells were elevated, but apparently "not concerning" At this point I don't know how much I believe her. Watch out for the white spots! I have loss pigment significantly in my lower legs and I am certain it is all related!
So I am so curious and I didn't see it anywhere else....What did the biopsy come back as? I may have missed it, I seem to have trouble navigating the site. Hope your boy is on the road to recovery!
And I have to say this again to all of you suffering from the heat intolerance... Mine got significantly better when I started taking the diamine oxidase (Histame) It actually removes the histamine from your gut!
Every post I read just drives me crazy how much we are alike. And I am 37, so we are very close in age. I have permanent red dots on my eyelids, and I had forgotten until you mentioned it, my first diagnosis was Dermatomyositis. Then they said mixed connective tissue then lupus. My doctor also told me I had an inconvenient nuisance type of disease, but probably not worse. My dermatologist was also a jerk so to say. She wouldn't listen to me, had to do two biopsies (which scarred horribly) , and they both came back inconclusive. She wanted me to do a gluten challenge to see if it was Dermatitis Herpetiformis! No thank you! And I had to ask her three times to stain for mast cells, which she obviously didn't want to do. My mast cells were elevated, but apparently "not concerning" At this point I don't know how much I believe her. Watch out for the white spots! I have loss pigment significantly in my lower legs and I am certain it is all related!
So I am so curious and I didn't see it anywhere else....What did the biopsy come back as? I may have missed it, I seem to have trouble navigating the site. Hope your boy is on the road to recovery!
And I have to say this again to all of you suffering from the heat intolerance... Mine got significantly better when I started taking the diamine oxidase (Histame) It actually removes the histamine from your gut!
I'm going to try the Histame!!
I have the white spots on my lower legs and forearms. My mom has them terribly. It's called "guttate hypomelanotic macules" and totally a result of sun damage and aging, although totally benign.
My first biopsy 7 years ago was also inconclusive, but showed some urticaria and excess mucin deposition. Back then, the doc said I may develop Lupus, RA or autoimmune hepatitis based on my antibodies. Instead I developed MC.
This is my current biopsy result:
"Sparse superficial perivascular lymphocytic infiltrate, with subtle equivocal mild vacuolar interface dermatitis, see comment"
Comment:
"These features are not diagnostic, with a subtle evolving mild vacuolar interface dermatitis considered in the differential diagnosis, which would include dermatomyositis among possibilities . A moboliform drug eruption, viral exanthem, and urticarial dermatitis are additionally included in the histologic differential diagnosis, to be considered if clinically appropriate. Multiple deeper levels were examined, without further qualifying histologic features."
I should mention that the biopsy was taken from the outer edge of a fresh new patch of rash in an area with no sun exposure on my chest, so it probably hadn't had enough time to really display all the skin changes. As the rash improves or spreads, the old rash dries up on the surface and eventually leaves lighter pigmented flat bumps that look like goosebumps, only flatter. Not sure if that would qualify as scarring, but it's not normal skin texture either.
Any similarities with your results?
I have the white spots on my lower legs and forearms. My mom has them terribly. It's called "guttate hypomelanotic macules" and totally a result of sun damage and aging, although totally benign.
My first biopsy 7 years ago was also inconclusive, but showed some urticaria and excess mucin deposition. Back then, the doc said I may develop Lupus, RA or autoimmune hepatitis based on my antibodies. Instead I developed MC.
This is my current biopsy result:
"Sparse superficial perivascular lymphocytic infiltrate, with subtle equivocal mild vacuolar interface dermatitis, see comment"
Comment:
"These features are not diagnostic, with a subtle evolving mild vacuolar interface dermatitis considered in the differential diagnosis, which would include dermatomyositis among possibilities . A moboliform drug eruption, viral exanthem, and urticarial dermatitis are additionally included in the histologic differential diagnosis, to be considered if clinically appropriate. Multiple deeper levels were examined, without further qualifying histologic features."
I should mention that the biopsy was taken from the outer edge of a fresh new patch of rash in an area with no sun exposure on my chest, so it probably hadn't had enough time to really display all the skin changes. As the rash improves or spreads, the old rash dries up on the surface and eventually leaves lighter pigmented flat bumps that look like goosebumps, only flatter. Not sure if that would qualify as scarring, but it's not normal skin texture either.
Any similarities with your results?
I'll try to find mine and compare...I have to say from reading yours and from what I remember of mine, doesn't it seem like they are grasping at straws a little? I mean wholy moly that is a lot of very different possibilities!
My Derm took the samples as they were going away. I do remember that Dermatitis Herpetiformis was listed as one of the many possibilities, but can't remember what else was one there!
I did have a bit of a sun reaction today(boo!) Mainly itchy hands and a couple of bumps, but I think it honestly may have been from the splurge of 5 chocolate chips (dairy free of course) and the sip of my husband's wine yesterday. Time will tell. I'll get back to you with the results!
Did your son get better?
My Derm took the samples as they were going away. I do remember that Dermatitis Herpetiformis was listed as one of the many possibilities, but can't remember what else was one there!
I did have a bit of a sun reaction today(boo!) Mainly itchy hands and a couple of bumps, but I think it honestly may have been from the splurge of 5 chocolate chips (dairy free of course) and the sip of my husband's wine yesterday. Time will tell. I'll get back to you with the results!
Did your son get better?
My son is totally better. He only coughs when he exerts himself and he takes his last antibiotic dose today. What a relief! His doc will check him in 2 weeks to make sure his lungs are back to normal.
Do you happen to get Gottron's papules on the knuckles of your hands? I have 2-4 of these dry, round bumps on each of the knuckles of my right hand. They are not noticeable from a distance, but the knuckles are always light pink. I also have swollen cuticles "periungual telangiectasias" on both hands.
When do you take the Histame pills? What time of day? With food? How many?
Do you happen to get Gottron's papules on the knuckles of your hands? I have 2-4 of these dry, round bumps on each of the knuckles of my right hand. They are not noticeable from a distance, but the knuckles are always light pink. I also have swollen cuticles "periungual telangiectasias" on both hands.
When do you take the Histame pills? What time of day? With food? How many?
Sooo glad your son is better!
I used to get those red knuckles but haven't had them in a while. My symptoms got better with each pregnancy, and I never got the red knuckles back.
Wish I could figure out how to post a pic. I have a great one of my horrible looking hands with my first flare. Doctors always said it wasn't a true rash since it was in the connective tissue and not on the skin. Just looked up a pic and that is exactly what they were...Gottron's Papules, all over my knuckles. I don't have them right now though. Crazy, the pics on the internet are exactly what my hands looked like. Terribly itchy too!
I take histame everytime I eat, regardless of what food it is. Either right before or right after, I don't think it matters. I take two each time I eat. Can be up to eight a day, which is a little spendy, so I really hope it helps you!
I did take plaquenil for about 5 years. That made all of my lupus symptoms less severe. Ugh, I hate just thinking about that rash. So sorry and hope it goes away soon! Let me know....
I used to get those red knuckles but haven't had them in a while. My symptoms got better with each pregnancy, and I never got the red knuckles back.
Wish I could figure out how to post a pic. I have a great one of my horrible looking hands with my first flare. Doctors always said it wasn't a true rash since it was in the connective tissue and not on the skin. Just looked up a pic and that is exactly what they were...Gottron's Papules, all over my knuckles. I don't have them right now though. Crazy, the pics on the internet are exactly what my hands looked like. Terribly itchy too!
I take histame everytime I eat, regardless of what food it is. Either right before or right after, I don't think it matters. I take two each time I eat. Can be up to eight a day, which is a little spendy, so I really hope it helps you!
I did take plaquenil for about 5 years. That made all of my lupus symptoms less severe. Ugh, I hate just thinking about that rash. So sorry and hope it goes away soon! Let me know....
Plaquenil has been mentioned to me several times, by several different doctors. I suppose if this gets uncomfortable enough, I may try it. Ugh. My knuckles don't itch, thankfully, but they never improve. They only get worse, very slowly. Hence the suggestion that I only have nuisance-level disease. Yet my hands are a constant reminder that something's just not right. Now I go around checking other people's hands to see who might be hiding something like me! 
I've seen a few reports of women with celiac and dermatomyositis, so there may be a connection to gluten issues.
Do you get your muscle enzymes checked occasionally, since you were once diagnosed with DM? Did they tell you it was Amyopathic DM? I don't want to end up with weak, calcified muscles someday!
I may try apple cider vinegar compresses next. I read of patients getting acetic acid compresses in the hosptial for these rashes. I wonder what the vinegar does to the skin? Or to the bacteria residing on the skin?
I've seen a few reports of women with celiac and dermatomyositis, so there may be a connection to gluten issues.
Do you get your muscle enzymes checked occasionally, since you were once diagnosed with DM? Did they tell you it was Amyopathic DM? I don't want to end up with weak, calcified muscles someday!
I may try apple cider vinegar compresses next. I read of patients getting acetic acid compresses in the hosptial for these rashes. I wonder what the vinegar does to the skin? Or to the bacteria residing on the skin?
If you look just below the message composing window, you will see a link that says "Add image to post". If you click on that link, it will open a pop-up window on your screen. Just click on the "Browse" button, and you can then browse to the image file on your computer that you want to add to your post. When you click on the desired image file, to select it, the file path will automatically appear in the window to the left of the Browse button. If you want to add a caption or any other comments to the picture, you can put that in the bigger box in the middle of the window, where it says Image Description. To add the image to your post, just click on the "Upload It!" button, down below.Fish2575 wrote:Wish I could figure out how to post a pic.
The image will be automatically uploaded to the hosting site, and the Bulletin Board Code, (BB Code), will be automatically added to your post. The system will also automatically create a thumbnail image for you. Anyone who clicks on the thumbnail in your post, will be transported to the remote server to see the full size image.Note that this feature is not available for the Quick Reply form, so if you want to add a picture to a response in an existing thread, you will have to click on the "Post Reply" button.
I copied this from an old post in the "Technical Assistance" section, so I hope it still works the same way on the remote site. If you have any questions or comments about how features of the board work, please don't hesitate to bring them to my attention.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.