My doctor wants to put me on medication, should I wait?

[tex]

Hi Jonas,

I'll quote your questions below, and my responses will follow them, in blue. Note that these are just my opinions, and others may have different opinions.

1. Say that I can not tolerate gluten and dairy, and is allergic sensitivity to peppers, chilli, corn and almonds.
Will my gut take as much damage no matter what I have in me, or are gluten makes the most damage? Ie. if I happen to get me a small amount of almond sometime it's just as bad as if I would have gluten in me?

The reactions/symptoms may seem to be just as bad or even worse with certain other foods, but gluten causes the worst damage to our intestines, and it causes the most long-term damage.

2. If you have microscopic colitis and eat right, what is most common that you get more food allergies as time passes, fewer or the same as before?

In my opinion (IMO), if we eat a safe diet then we should not develop any more food sensitivities as time passes. However, we may discover some that we already had earlier, but we were not aware of them. We are all different. Some of us find that we develop a tolerance for certain foods, and we may be able to eat them after enough time passes. Most of us find that yeast is no longer a problem after we heal, and many of us who are sensitive to eggs, find that after we heal, we can at least eat eggs in baked goods, even though we may not be able to eat them separately.

3. As for my diet I eat
meat, fish, rice, potatoes, coconut, nuts, eggs, cucumber, carrot, buckwheat, berries, orange, peeled pears and olive oil.

I should ev. remove nuts, eggs, buckwheat according to you..

Those are foods that some of us cannot tolerate, but that does not mean that you cannot tolerate them. You should notice after you eat them, if they cause any problems. If they do not, then it is probably safe for you to eat them.

Is there anything I can add that I have missed? Quinoa, I thought of. Is there something else I could add?

Many quinoa fields are cross-contaminated with barley. If you eat quinoa, buy kosher brands, because they are safe and the others are not. The article at this link explains why:

http://koshereye.com/koshereye-exchange ... uinoa.html

4. A friend of mine recommended me to go on homeopathy, it is something that someone with MC been helped by as far as you know?

Some members here have been helped by various types of medical practitioners. Mostly, we rely on our own good judgment about our treatments, though. Our body can tell us what we need to do, if we will listen, and our body is a better judge of our health, than most physicians.

5. Which test at enterolab is recommended?
Panel A + C: Comprehensive Gluten / Antigenic Food Sensitivity Stool Panel?

Personally, I like Panel B (because it includes a gene test, if I remember correctly), but if you can afford the cost, Panel A + Panel C is a very good choice. Personally, I would add the gene test also, but it is certainly not essential

Perhaps a "Gluten Sensitivity Gene Test 'for my daughters?

IMO, that is a very good plan.

I talked to my nutritionist yesterday about this and he had almost no idea what he would answer my questions about diet and MC. It is a rare disease, and even rarer to try to treat it with diet. Therefor I can understand him.
So this forum is extremely important for us with the MC, both for support and information you can not get anywhere else. Thank you for being kind and so helpful.

Jonas

Nutritionists/dietitians in this country are generally not very helpful either, because virtually none of them are familiar with MC, and the ones who are familiar with it do not realize that diet has any affect on the symptoms.

You are very welcome,
Tex

[Carriagehouse]

Hi Jonas
I am new to this forum as well and I can really relate to all of your questions. I am really suffering with fatigue, also, especially since going GF/DF about 10 days ago. I have fallen asleep sitting straight up on the sofa in the middle of the day. I have been going to bed at 8 pm and sleeping for 10 hours and I'm still exhausted the next day. I have been trying to eat a lot of protein, which is hard for me because I was pretty close to vegetarian before being diagnosed with LC, and I seem unable to digest any vegetables right now. So far eggs are not a problem for me, and quinoa pasta is quite good and a protein source. I have also had success in eating nut butters (can't eat peanut butter, but almond butter is nice.) I am seeing a naturopathic physician/acupuncturist tomorrow and I'm hopeful she will have recommendations. I continue to struggle with figuring out what to eat, the options seem so limited. I'll let you know if she has any suggestions, but I believe your best source of information is contained within this forum.

[Carriagehouse]

Tex,
I agree with your statement about nutritionists. When I asked my GI if he would refer me to the clinic nutritionists, his response was that there is no published proof that making dietary changes has any impact whatsoever on Microscopic Colitis, and therefore the nutritionists would have no recommendations to make.

[brandy]

Hi Jonas,

Jonas asked:

Will my gut take as much damage no matter what I have in me, or are gluten makes the most damage? Ie. if I happen to get me a small amount of almond sometime it's just as bad as if I would have gluten in me?

For me gluten and soy are the worst, if I get a small amount of something else that is a problem it is minor.

Jonas asked:

If you have microscopic colitis and eat right, what is most common that you get more food allergies as time passes, fewer or the same as before?

As time as passed I'm able to eat more things. I can eat all proteins, almost all vegetables except for legumes (and I still have not retested corn so I'm not sure about that). I'm able to eat a broad category of foods now.

Jonas asked:

Is there something else I could add?

Early on most people can have the following:

homemade chicken broth
homemade chicken soup
homemade bone broth

Any vegetables from the squash family: yellow squash, zuchini, butternut squash, acorn squash, pumpkin. Peel skin and overcook everything.

Sweet potatoes (yams) (orange pototoes) I'm not sure if you have these in Sweden.

Applesauce in very small quantity.

Banana in very small quantity.

Coconut oil--good for cooking with, neutral flavor, can cook at higher heat than olive oil.

AS YOU GET BETTER----GIVE IT SOME TIME---- YOU CAN TRY THE FOLLOWING BUT THIS WILL BE A LITTLE MORE INDIVIDUALISTIC:

broccoli, cauliflwer, brussel sprouts, bok choy---overcook, cut in small pieces, chew well, try small portions as these can cause gas.

greens: spinach, turnip greens, collards, mustard greens, kale, broccoli rabe----cut in 1" sections, overcook, chew well, test with small portions

raw apple--wait awhile to try this---peel, try 1/4 apple, chew well

coconut water--get the plain one that is coconut water only, no other ingredients, add 1" to your glass of water, it is a good way to get some potassium, do this 3 or 4 times per day, particularly after playing outside with the kids or strenuous activity, it acts like an after sports drink that the athletes use

cashew butter or almond butter--you can put on your apple or eat off of spoon

squeeze of lemon--since you are ok with orange you might be ok with a squeeze of lemon on your veggies. Usually I pour extra virgin olive oil on my overcooked veggies and a tiny squeeze of lemon for flavor. This is the Sicilian way to have veggies that I learned from an ex boyfriend.

On rough days at work I'll put chicken broth in an insulated coffee tumbler and sip on that and everyone thinks I'm drinking coffee. The broths really help.

Regards, Brandy p.s. I'm not using my normal ergonomic keyboard so sorry for my typos.

[Jonas]

Since the last time I wrote I have visited a homeopath after persuasion from my partner, he looked me in the eyes and saw that I had not enough blood supply to the intestine. He would cure both my gluten intolerance and my milk allergy, we asked if he really thought it was possible. He said he worked on it in 30 years and did not he mean we would get our money back.
I'm still very skeptical, If he would have a cure for celiac disease, he should get the Nobel Prize. right? I will never eat gluten again no matter how good I feel.

I have noticed that I put on me 1-1.5 kg in weight when I eat something I can not tolerate, this is probably the best way for me to check if I have eaten something inappropriate. Since I rarely have diarrhea or flatulence.
I guess intestines hoard water to thin out the poison (what you are allergic to) associated weight gain. Is there anyone else who has the same symptoms?

Regards, Jonas

[tex]

Hi Jonas,

You are right to be suspicious of his claims. If he could actually cure celiac disease, in this day and age of high-speed communications the word would have spread around the world in the twinkling of an eye land he would be guaranteed to win the Nobel Prize.

When I was reacting, I had alternating diarrhea and constipation. Yes, my weight increased whenever I did not have diarrhea.

Tex

[Christine.]

If your homeopath "cures" you from your food intolerances please let us know. I will buy a ticket to Sweden as soon as possible!
Christine