There is some research...... The collective results of the hundreds of people that have been, are part of this forum......
800+ people with mc
Some with other health issues, some just with mc
Some who get diagnosis quickly, some that suffer for years...
Some taking meds for other health issues, some taking none
Some taking meds to assist their mc, some doing meds and diet, some doing diet only
Some doing enter lab testing, some not
Some following mart, some not
For those on meds for mc, there is wide range of what they are taking...(ie they are not on the same med)
Some doing natural therapy, some never having it
Some working, some caring for sick/elderly family, some retired,
Some living alone, some in a household with lots of people......
Those that remove their major triggers (food, environment, stress, any meds that may be exacerbating mc) get good results quite quickly.......
There are people that have niggling issues for years.....
There are so many factors that affects every individual....... There is no set definable guaranteed to work formula that we or any study could define.....
Healing is dependant on soooo much, length of time you had chronic symptoms, age, genetics, other health issues, meds you are taking, and your mind, and beliefs, and how you approach this challenge.....
How do you know when you are healed enough?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Can I ask why you are only eating pork? Or millet? Did you have testing done and it said everything else is out?
If I were to add anything, I would stick to proteins first. Chicken, fish, beef, lamb...etc. Proteins help in the healing process.
We are all different, but as far as grains go, rice is best for me.
When out intestines are inflamed, it's very hard to produce the enzymes that help break down sugars. They end up in the large intestines where they ferment and give us problems.... so the applesauce was probably not a good choice for you.
Probably, the longer you wait, the more success you will have when you try a new food. Leave fiber and fruit for last.
Leah
If I were to add anything, I would stick to proteins first. Chicken, fish, beef, lamb...etc. Proteins help in the healing process.
We are all different, but as far as grains go, rice is best for me.
When out intestines are inflamed, it's very hard to produce the enzymes that help break down sugars. They end up in the large intestines where they ferment and give us problems.... so the applesauce was probably not a good choice for you.
Probably, the longer you wait, the more success you will have when you try a new food. Leave fiber and fruit for last.
Leah
I am waiting for the results of my Enterolab tests. I have been eliminating foods for several years when I noticed I reacted to them and ended up with the diet I am on now, but just eliminated gluten, dairy, vegies, rice(bad reaction) in the last couple of months. I didn't know my symptoms were connected to my MC until a couple of months ago when my G.I. doc wanted to put me back on Asacol.
I am feeling quite good since I gave up vegetables two weeks ago.
I am feeling quite good since I gave up vegetables two weeks ago.
MC diagnosed 2007
To expand on what Gabes and Leah are saying :
We can survive for a long time on a starvation diet if necessary, because our paleo ancestors faced that problem many times during their lives. Meat contains all the essential amino acids, so as long as you are eating a reasonable amount of meat, you will remain healthy enough. Then after you have been in remission for a while, you can fine tune your diet to suit your own personal idea of "healthy".
).
We've learned a lot about treating the disease in those 8 years, and we've seen many hundreds of members here get their lives back, but one of the most important things that we have learned is that there is no one-size-fits-all treatment for microscopic colitis. Every case is different, and that's why the GI specialists have such a tough time trying to treat patents who have MC. They simply cannot comprehend that it takes so much more than simply writing out a prescription for a drug, in order to control the disease. Every patient requires their own custom-tailored treatment program.
Tex
When MC is active and our intestines are inflamed, we can't properly digest food, and so our absorption of nutrients is severely limited no matter what we eat. In that situation, eating a "healthy" diet is irrelevant, because most of the nutrients in our food will go down the toilet no matter how healthy our diet might seem to be. So our goal is to do whatever it takes to reach remission as soon as possible, and then after our digestive system is working again, we can actually do something about our nutritionmcnomore wrote:How long can I go with a diet like this and stay healthy?
We can survive for a long time on a starvation diet if necessary, because our paleo ancestors faced that problem many times during their lives. Meat contains all the essential amino acids, so as long as you are eating a reasonable amount of meat, you will remain healthy enough. Then after you have been in remission for a while, you can fine tune your diet to suit your own personal idea of "healthy".
As Gabes pointed out, we are all different in how we respond to diet changes, medication, and everything else associated with this disease. After I reached remission, about every 6 weeks or so, I would try to reintroduce one or more foods, but it never worked until I had been in remission for about a year and a half. YMMV.mcnomore wrote:I just don't want to keep irritating my innards by experimenting too soon. I guess I'm wondering how long other people have decided to wait to begin adding foods.
Again, as Gabes pointed out, that research is going on every day here among the members of this board, and we have been accumulating data for over 8 years now. The members of this board are all a part of the largest research project ever attempted anywhere in the world, to learn more about the effective treatment of microscopic colitis. The first research report was published on August 27, 2012 (when I published my bookmcnomore wrote:Too bad there isn't any research on the healing part of this disease.
).We've learned a lot about treating the disease in those 8 years, and we've seen many hundreds of members here get their lives back, but one of the most important things that we have learned is that there is no one-size-fits-all treatment for microscopic colitis. Every case is different, and that's why the GI specialists have such a tough time trying to treat patents who have MC. They simply cannot comprehend that it takes so much more than simply writing out a prescription for a drug, in order to control the disease. Every patient requires their own custom-tailored treatment program.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex, I realize everyone is different, but I needed to hear something, anything that would give me an idea of when to test a new food and you gave me something, every 6 weeks or so you said. I have just begun the healing from what I can tell so I am concerned about continuing to heal.
It doesn't make sense to experiment when I have just begun to heal, but I guess it will be hard to tell when I have really healed other than I can eat more than I do now.
It doesn't make sense to experiment when I have just begun to heal, but I guess it will be hard to tell when I have really healed other than I can eat more than I do now.
MC diagnosed 2007
mcnomore,
I just want to let you know that Gabes is probably one of the least judgemental people on this board. When she gives advice, she is only trying to help someone.
She was trying to let you know that there isn't a simple answer to your question. I've been dealing with MC for 6 years and I'm still very reluctant to try new foods. We sure wish we could give you a firm answer, but we can't.
It's terrific that you feel well enough to entertain the thought of adding new foods, though.
Gloria
I just want to let you know that Gabes is probably one of the least judgemental people on this board. When she gives advice, she is only trying to help someone.
She was trying to let you know that there isn't a simple answer to your question. I've been dealing with MC for 6 years and I'm still very reluctant to try new foods. We sure wish we could give you a firm answer, but we can't.
It's terrific that you feel well enough to entertain the thought of adding new foods, though.
Gloria
You never know what you can do until you have to do it.
Why did she feel she needed to use a "tough-love" approach with me? Was my question inappropriate? Tough love is usually for people who are out of control, I am just scared that I will hurt myself by adding foods too soon.
I would just like to hear what others have learned during their healing. I will use my own intuition with regard to myself.
And let me say it again I DON'T NEED A FIRM ANSWER, I know we are all different.
I would just like to hear what others have learned during their healing. I will use my own intuition with regard to myself.
And let me say it again I DON'T NEED A FIRM ANSWER, I know we are all different.
MC diagnosed 2007