What the hell do I do?

Leah · Post by **Leah** » Sun Apr 20, 2014 9:39 pm

You poor girl! God, I hope you find some answers soon!
OXOX Leah

carolm · Post by **carolm** » Sun Apr 20, 2014 10:01 pm

Lesley, while healing (and even now if I get ahold of soy or gluten) I had motility issues that seemed complex, like either I had very slow motility and C, and after a few days of that I'd have a day of spasms, cramping, and numerous BMs (some pencil thin). Polly and I explored if it was the result of eating foods high on my MRT list. I tracked it on a calendar against foods, stress level and the quality or length of my sleep. If I had a night of too little sleep or poor quality my gut would become spasm-y and the motility would be aggressive (for lack of a better word). I would be wiped out for the rest of the day.

I wonder if this could be similar to what you go through but yours is more inconsistent and aggressive yet.

Carol

Lesley · Post by **Lesley** » Mon Apr 21, 2014 7:45 pm

Thanks Leah. XOXO back!

Carol - it does sound similar, though, as you said, mine seems to be more aggressive, and stubbornly persistent. Polly suggested that my lack of motility could be connected to PPS.
I have those days of slow motility and C, and have to take something (Dr. Schultze's up to now, and colase to try as an alternative). Then I have every single possible type of abnormal BM - thin,mucousy, wet, formed with ribbons hanging off, everything except N!! Leading up to that horrible episode - the only pain that has actually made me scream EVER - I had gurgling and rumbling, something that I seldom get anymore.
Sleep - I always sleep since I am always dead beat, but I wake often to go to the toilet to pee. Poor Licorice wakes with me and doesn't settle till I do, so she sleeps late in the am.

By high on your MRT - how high do you mean? I try not to touch anything yellow or red, though I have been known to eat some sweet potato (mid yellow) on occasion. Carrot is high green, and white potato is just below it, though enterolab said I was non reactive to potatoes. Apples are not the lowest green but just above. Onion is the very lowest green. Joan suggested that onion might be a problem, though it hasn't been before.
Oats are high green, though enterolab says I'm non reactive.
Anyway, right now I am only eating lamb and potatoes, but I would like to add apple puree soon. I will wait until I finally have a BM and see what it is like.

I think LDN is helping a LITTLE bit. I did more today, and am sore and exhausted now. But I felt a little better this morning. May that happen more often and last longer!

carolm · Post by **carolm** » Tue Apr 22, 2014 8:49 pm

Lesley, yes that was my definition of high on the MRT scale--- yellows, reds, even some high greens. For example, spinach was a high green for me but one serving gave me a couple of hours of WD.

And for someone whose C prominent that's like a flashing neon sign saying "you react to this!!!". There is some other characteristic in the spinach that I obviously reacted to. But yes that's what I was thinking.

C.

gluten · Post by **gluten** » Wed Apr 23, 2014 9:52 am

Hi Carol, I found that spinach is very high in amino acid arginine. "Popeye" used spinach to get the muscles to fight off "Brutus" to impress "Olive Oyl" It is used by body builders because it helps dilate the bloods vessels that allows more nutrients to the muscles. But, it also promotes virus replication and is not recommended for anybody with any type of herpes virus. Jon

Leah · Post by **Leah** » Wed Apr 23, 2014 11:53 am

AND it is very high in histamines!

carolm · Post by **carolm** » Wed Apr 23, 2014 7:18 pm

Jon and Leah-- you are right--- it's all those things! and bad for me, apparently. Nothing like having a few hours of watery D 12 hours after having 1 serving. Was I surprised!!

C.

Pat · Post by **Pat** » Wed Apr 23, 2014 7:51 pm

Spinach affects me that way too. Do you find all green leafies do that?

Pat

Chrisdat · Post by **Chrisdat** » Thu Apr 24, 2014 6:32 am

Spinach, and all winter greens. I can have about a bite of cooked spinach, and that is it. Collard greens are the worst for me!

Romaine and Iceburg, raw, just a bite or two. Not as bad as spinach and winter greens, which even cooked, cause much WD.

Lesley · Post by **Lesley** » Thu Apr 24, 2014 8:42 pm

Sounds odd to say but I wish I got WD from anything in particular. Because of the C I don't know whether I am reacting with MORE C if you see what I mean. When I do get a flare I don't know what is causing it. Basically it's the usual cycle. C, C, C, stool softeners and D for a day. No idea what is doing what.

MarthaE · Post by **MarthaE** » Fri Apr 25, 2014 12:15 pm

Hey Lesley, I'm sorry I spelled your name wrong in a previous post. Hope you are feeling better and having a nice day.

Lesley · Post by **Lesley** » Fri Apr 25, 2014 4:09 pm

Thanks Martha!

Martha · Post by **Martha** » Fri Apr 25, 2014 5:46 pm

I hope you're feeling a little bit better today, Lesley.

:bigbighug:

Love,
Martha

Pat · Post by **Pat** » Sun Apr 27, 2014 4:53 pm

Lesley,

Have you tried adding more fat to your diet like olive oil and coconut oil. And how about prunes? and other fruit? They say fiber, soluble and insoluble for C. I think I read that in Readers Digest recently.

Pat

hoosier1 · Post by **hoosier1** » Sun Apr 27, 2014 5:29 pm

Lesley,

In the past, I found that going to an all liquid diet helped me immensely. That is not necessarily the case any longer for me, unfortunately (I think). But I wonder how you would fare if you tried that? I used to order pre-digested (sounds gross but they are not) shakes from a person who has Chron's disease and has a supplemental nutrition business. They are gluten, dairy, and soy free. This type of nutrition rests the gut and the bowels, and keeps your nutrition up. You can even add flax seed oil for fat content if you like. In fact, if I weren't freaking traveling this week, I would probably try this for myself this week. Just a thought. I feel your pain. You are not alone.

Rich