Hi Deb,
On a positive note I seem to recall that you have a fairly active job. Moving around all day and doing some lifting is protective of bone density. Working a desk job is not good for bone density as the bones are not "loaded with force" during the day.
Happy Thanksgiving by the way.
Opinions on FMT donor testing
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That is a positive thought! I am on the move all day long and get a good workout assembling orders. I did not enjoy my desk job when I had it- I felt like I was going to explode.
Hope your turkey day was a good one. It's in the 50's here, which is unusual for WI this time of year. I just put on my yard clothes and think I will go put up my Christmas lights and possibly cut the grass one last time before it rains. Some fresh air is always uplifting.
I postponed my CT scan.... I wanted to just cancel but wasn't sure how to approach my GI about it. I'd really like to try the FMT before doing anything further with him. Obviously, he won't understand and I really don't like making up excuses. I figure I have some time to think because my insurance is good until the end of the year. I have an appointment with my GI in mid December which I'd like to skip too. For now I will go with procrastination. It's actually not a good plan because it will stick in my head and drive me nuts until I have a solid plan. I wasn't so sure I'd follow through with the FMT but I have the UBiome kit on the way for my husband and have ordered what I will need to give it a try. My husband is all on board which is encouraging. Still a bit nervous about the what ifs but I cannot continue to live like this, it's very depressing and I've felt myself slipping down that road and I simply refuse to go there (will visit for periods of time but feeling sorry for one's self gets you nowhere without some sort of plan). I found myself stuck in the self-pity/tired of trying mode for a couple weeks straight- not good at all. I think it may be best to just stop weighing all the pros and cons and just do it.
I guess if I gain weight it won't be the end of the world. I should be more concerned about the unknown risks. I'm like a dog chasing her tail again..... it could very well be the answer and could reestablish my guts so I can start making progress again. I threw my hands up this summer and gave into the idea of managing my MC with drugs. Jokes on me, none of them work.
I will take that as a sign. I can't be the lone person in the whole world in which nothing works...... something has to help. This makes sense.
Now I'm looking at tightening up my diet again. Not that I've been bad but a bit lax on possible triggers since I can't tell if they really bother me or not (nightshades, legumes, peanuts). I've eaten the occasional piece of cheese and suffered the arthritis type symptoms, eaten a bit of scrambled egg only to get a bad stomach ache..... makes it hard because I have WD no matter what I do or don't do.
I'm debating if I should add a protein powder. I know it's better to get it from foods and my appetite isn't that huge so I need to be sure I don't fill up on foods that aren't helping me heal. I have an aversion to chicken. I love tuna but then read the warnings about mercury. I can do haddock but it's hard to find fish not from China and even if it is labeled from the US- is it really? I love peanutbutter but don't really know if I should eat it. I like the Bonza brand pasta but that is made from chickpeas. A powder would be an easy way to get the 20-30 grams of protein in a day but if it's pea based, there again, I'm not sure about legumes. I've never tried hemp- I wonder if that'd be safe?
The learning never ends......
Hope your turkey day was a good one. It's in the 50's here, which is unusual for WI this time of year. I just put on my yard clothes and think I will go put up my Christmas lights and possibly cut the grass one last time before it rains. Some fresh air is always uplifting.
I postponed my CT scan.... I wanted to just cancel but wasn't sure how to approach my GI about it. I'd really like to try the FMT before doing anything further with him. Obviously, he won't understand and I really don't like making up excuses. I figure I have some time to think because my insurance is good until the end of the year. I have an appointment with my GI in mid December which I'd like to skip too. For now I will go with procrastination. It's actually not a good plan because it will stick in my head and drive me nuts until I have a solid plan. I wasn't so sure I'd follow through with the FMT but I have the UBiome kit on the way for my husband and have ordered what I will need to give it a try. My husband is all on board which is encouraging. Still a bit nervous about the what ifs but I cannot continue to live like this, it's very depressing and I've felt myself slipping down that road and I simply refuse to go there (will visit for periods of time but feeling sorry for one's self gets you nowhere without some sort of plan). I found myself stuck in the self-pity/tired of trying mode for a couple weeks straight- not good at all. I think it may be best to just stop weighing all the pros and cons and just do it.
I guess if I gain weight it won't be the end of the world. I should be more concerned about the unknown risks. I'm like a dog chasing her tail again..... it could very well be the answer and could reestablish my guts so I can start making progress again. I threw my hands up this summer and gave into the idea of managing my MC with drugs. Jokes on me, none of them work.
I will take that as a sign. I can't be the lone person in the whole world in which nothing works...... something has to help. This makes sense. Now I'm looking at tightening up my diet again. Not that I've been bad but a bit lax on possible triggers since I can't tell if they really bother me or not (nightshades, legumes, peanuts). I've eaten the occasional piece of cheese and suffered the arthritis type symptoms, eaten a bit of scrambled egg only to get a bad stomach ache..... makes it hard because I have WD no matter what I do or don't do.
I'm debating if I should add a protein powder. I know it's better to get it from foods and my appetite isn't that huge so I need to be sure I don't fill up on foods that aren't helping me heal. I have an aversion to chicken. I love tuna but then read the warnings about mercury. I can do haddock but it's hard to find fish not from China and even if it is labeled from the US- is it really? I love peanutbutter but don't really know if I should eat it. I like the Bonza brand pasta but that is made from chickpeas. A powder would be an easy way to get the 20-30 grams of protein in a day but if it's pea based, there again, I'm not sure about legumes. I've never tried hemp- I wonder if that'd be safe?
The learning never ends......
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Re: Opinions on FMT donor testing
Has anyone tried FTM? I read that the most difficult and important thing is to find a good donor, since 90% of the population is NOT suitable. Thank you
I know a guy who unfortunately had to make it at home by performing many tests on his wife and his health improved a lot.
I know a guy who unfortunately had to make it at home by performing many tests on his wife and his health improved a lot.