Remission Can Be Kind Of Fickle At Times

[tex]

Hi Pat,

To be honest, I don't remember if I ran across an article that directly referred to a connection between sinusitis and MC, or not. There has been research done on the connection between chronic sinusitis and inflammatory bowel diseases in general, though. Though the IBDs each have somewhat different symptoms, they are all based on inflammation of certain similar areas of the GI tract, and treatment is very similar for all of them, (except that severe cases of Crohn's and UC may require surgery, of course, whereas this does not apply to MC).

I posted this link in the topic that Polly started, before I read this post, but here is a link to an article about a study that shows that about half of the patients that were treated at a certain IBD center, that was selected for the study, also had chronic sinusitis:

http://www.ncbi.nlm.nih.gov/sites/entre ... s=12751702

Tex

[Matthew]

Tex

As regards your problem with the gluten free cookies. I mentioned a while ago that I discovered quite by accident that tapioca flower that seems to be in almost every gluten free bread would set me off in no time. Wonder if it might be the same for you. Isn’t it amazing to eat something that you hope will work so well and after having months of problems discover that one ingredient has been causing a myriad of problems all along .

How lucky I am to have discoved so many of mine

My best

Matthew

[tex]

Hi Matthew,

The only flour in these cookies is from rice, (according to the label), but I seem to be able to handle tapioca okay, anyway, though I rarely eat it these days.

Thanks,
Tex

[Matthew]

Tex

Wowie Wow Wow!

Have never found a bread or cookie that was made of all rice flower. Did not know it was possible in a commercial product or even home made . Do tell. What was the brand name? It might work for me on rare occasion. Or with guests.

Matthew

[Matthew]

Tex

Must have gotten mixed up on what works for you and what does not from this thread-

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=6758

This quote

I find it interesting that you should mention tapioca. I love tapioca, and since it is rated as a non-allergenic food, I tried eating it while I was recovering, but I found that if I ate it regularly, it seemed to cause problems. I could get away with eating it once in a while, but not on a regular basis. I thought that maybe it was just a fluke, or I was just imagining the problem, but I stopped eating it, (at least on a regular basis). I had forgotten all about that, until you brought it up.

Oh well!

I tried.

Maybe what has worked on and off for both of us will help someone else.

My best

Matthew

[tex]

Matthew,

That would be the Gluten Free Bagel Company, (formerly the Gluten Free Cookie Jar). They can be found at:

http://www.glutenfreebagelcompany.com/

They are currently having a holiday promotion, and if you order $40 worth or more, before the end of this month, you will recieive free iced pumpkin cookies, (made with butter, egg, and corn syrup, unfortunately), and free bagels, (made with yeast). If you decide to try any of the chocolate chip cookies, or the mix, note that they are available with and without dairy products. The dairy version is the default selection, so be sure to specify non-dairy, if you want to avoid dairy products.

In your second post, (just above), the reason why you are mixed up may be because you only quoted the first part of that paragraph from my post in that topic. You left out the last part, which is almost always the "punch line", "final word", "bottom line", or whatever you want to call it, namely:

These days, I only eat it occasionally, and without any problems. If it's not causing you any problems, chances are that it probably never will, since it's not generally classified as a "trigger" food.

which, as you can see, is consistent with what I said above, in my initial response to you.

but I seem to be able to handle tapioca okay, anyway, though I rarely eat it these days.

Incidentally, the reason why I added that line about tapioca not being generally considered to be a "trigger" food, (in the old thread), is because you are the only one I can recall, who has a significant problem with tapioca, (though it's certainly possible that my memory is failing me on that one), thus proving once again, that while we may be similar, we are all different.

Best regards,
Tex

[Matthew]

Wayne
Thanks for the clarification.

Only a few weeks ago a client came in to my shop. They had been searching for years for someone that could do some very specialized work for them with no luck. I explained how I would go about it, much to their joy. After signing a contract and on the way out they said “You and your work are an anachronism wrapped up in an enigma”. Still makes me laugh. What a quotable quote. And Oh so true.

I leave you all with the thought that - As my work, so is my digestive system.

My best

Matthew

[tex]

and on the way out they said “You and your work are an anachronism wrapped up in an enigma”. Still makes me laugh. What a quotable quote. And Oh so true.

I leave you all with the thought that - As my work, so is my digestive system.

My best

Matthew

Now that's a mouthful, and definitely a quotable quote, if there ever was one. LOL. That's probably the way most of our doctors see us.

Thanks for the thought.

Tex

[Pat]

Here is a rice flour cookie recipe which is pretty good. I sub dextrose for the sugar since I don't tolerate sucrose right now and it is acceptable. And it is casein free too! Really need the sweet rice flour also for the thickener. Sweet rice flour alone doesn't work. Neet both. I leave out the choc chips for now until I can tolerate them. It makes me think I am getting a cookie! HA!


http://whatscookingamerica.net/Cookie/C ... enFree.htm

[tex]

Pat,

Do you use the Crisco Butter-Flavored Shortening? It says "all vegetable" on the label, but it contains natural and artificial butter flavors, (dairy), citric acid, (corn), soybean oil, partially hydrogenated soybean oil, and TBHQ, (among other things).

Otherwise, the recipe looks okay.

Tex

[Pat]

Actually, I just used canola oil. I was afraid of the xanthan gum too so I left it out. I may try it because I think they will not be so crumbly with it.

Pat

[tex]

I figured you were probably making some sort of substitution for the Crisco. Thanks.

Xanthan gum, to the best of my knowledge, is in GF recipes, solely to provide the cohesiveness that gluten provides in conventional recipes. Guar gum, or methylcellulose, can also be used in place of xanthan gum, but unfortunately, guar gum sometimes has a laxative effect, so xanthan gum is probably the safest bet for most people.

Tex

[harvest_table]

Hi all,

Joanna's post mentioning that she was experiencing vertigo at times, (after being in remission for a couple of years), reminded me of how tenuous remission can be at times. For the past couple of weeks, I've been having D, and don't know why - no other symptoms, (except maybe a little bloating), just D, and it's not serious, but it's persistent.

After being in remission for about four and a half years, and 100% GF for over six years, (to the best of my knowledge), I'm beginning to wonder if I might be a victim of the dreaded "new food intolerance" phenomenon. Or, could it be due to the "seasonal effect" that we've discussed before? This is the time of year when others have had unexplained flares, in the past.

Joanna, have you had a problem with vertigo in the past, (at other times of the year), or is this your first experience with it?

Stuff such as this makes me wonder if we are really in remission due to our treatment programs, or merely enjoying spontaneous remission, that was "triggered" by our treatment programs. The point is, if we are really in remission, we shouldn't be having symptoms that occur without a logical reason.

Tex

Sorry to be so late responding, this is important stuff, I think. Been busy with hunting, thanksgiving with family and all that good stuff. Life is good, except for vertigo like symptoms which I wasn't prepared for.

I read the board regularly and have seen comments about vertigo often from other members but since I had no experience with it until now and have been living symptom free for almost 3 years I have paid less attention than I should have. We all need to pay close attention to what's going on with all other members here - MC seems to spread it's wings out to so many problems prior to DX and after.

I caught a bug late September which took over 2 weeks for me to pull out of. Did not go to the Dr, so this may just be a lingering infection in my ear.

Never had vertigo or been dizzy before but it's real now. Major spinning

Could be menieres?
http://www.entnet.org/healthinfo/balance/meniere.cfm

Or AIED- Autoimmune Ear Disease?
http://64.233.167.104/search?q=cache:XM ... cd=2&gl=us

Or a simple ear infection?

Love,
Joanna

Any others here with symptoms of vertigo?

[tex]

Hi Joanna,

I've been wondering where you were. I forgot that you were planning to spend a bunch of time hunting. I hope your freezer, (or freezers), is nearly full by now.

Since you never had the problem before, and you recently had an ear infection, I would be suspicious that the vertigo might be connected with the ear infection, though it could be any of the things you named, of course.

I hope you discover the cause soon, and can eliminate the symptoms. Things like that are no fun at all, and can be dangerous, in some situations.

I had a few episodes of it while I was recovering, but fortunately, my "spells" were usually pretty short, (a few minutes to a few hours). It hasn't been back, for several years, now.

Love,
Tex

[mle_ii]

Hey Tex, I was wondering if you would be up for getting a lactulose breath test done? I'd be really curious as to what they'd find. Anyone around there do this testing? Make sure they do both methane and hydrogen and that they do it over 3 hours.

Thanks,
Mike