MICROSCOPIC COLITIS SUPPORT

Hello!

I am stage one eating/healing. My question is what do people experience bowel wise during this phase. I know everyone is different.
I have experienced across the board symptoms from formed BM to mushy, to mush and water, no gurgle to gurgle, gas to no gas. I am on no MC meds.

Just curious…….just curious what the expectation should generally be

Thank you! Tina

Hi Tina,

The road to remission is not always straight and narrow, and most of us have setbacks from time to time. If the reactions seem to occur on a regular schedule, however, that suggests that there might be something in your diet, your supplements, or something else in your environment that's causing those reactions, especially if they keep occurring after you've been on the diet for at least a month or six weeks. Are you eating any commercially prepared foods, or commercially processed foods, or do you do all your own cooking, and cook from scratch, using pure, basic ingredients?

I hope this helps,

Tex

Tina
to expand on Tex's reply

there are lots of factors that impact stability how long it takes to have less symptoms.

1. how long there has been inflammation occurring before you swapped across to the bland low inflammation eating plan
2. nutrient deficiencies - if you are deficient in Vit D3, magnesium etc then it will take a while for BM's to improve
3. its not just about food - what you drink, how well you sleep, contact with other toxins/inflammatory type items, any physical/mental/emotional stress in day to day life can impact BM's and reduction of symptoms
4. contamination - are you sharing kitchen with others that are having gluten products? sharing cookware with possible triggers like vegetable oil etc
5. time - healing does take time. months not weeks.

hope this helps.

For years I don’t eat any gluten no sugar no seed oils. Very little fruit except berries in season
Basically eat 4 pasture raised eggs everyday for breakfast with onions and mushrooms and for dinner usually meat of some kind
I also eat a spoonful of beef liver pate pretty much every day and a can of sardines
I eat probably a cup or more of Greek yogurt and some 95-100;dark chocolate. Usually eat 1st meal at 10:30/-11:30. And last meal at around 4
Do drink probably 3 cups of coffee in morning but not after 9 am
All of a sudden I’ve had terrible diarrhea. Had a colonoscopy & was clean as a whistle. He took biopsies and I now have been diagnosed with micro colitis
Have no idea what to eat. I thought I was doing everything right
Take no pharmaceuticals. Do take a bunch of vitamins
I refused steroid and dr gave me prescription for mesalamine which I filled but haven’t taken yet
Have been thinking about Boswella extract and artichoke leaf extract

Thanks to both of you for your insight….

Navigating is a challenge. I think for me, I may be one who swings from D to C. I think I have had symptoms for many years, mainly C. My daughter has celiacs, my mom was adopted and I think she also suffered, but was told she had radiation colitis due to colon cancer treatment…..but her symptoms were MC, she suffered for many years without any answers.

I take Vit D3 with K, 5000u and mg 300mg daily, should I increase it?
I am just grateful I am not needing the Budesonide!

Thankful for you and this sight!

Tina

Tina,

If you've been taking those supplements for at least six or eight weeks or more,those doses are probably adequate. I take those exact doses myself, during the colder months, and during the warmer months, I cut the vitamin D dose in half (by taking it every other day), since I live in the southern part of the US.

Tex

Quote27,

I see this is your first post, so welcome to the group, and please feel free to ask any questions that you might have.

Tex

Thanks for the welcome
So yesterday with dinner I took 8000 mg of artichoke and 1000 mg of boswella extract
And for the 1st time in a week I didn’t have to poop all night. Hard to believe it could have acted that fast. Haven’t pooped all day. Very surprised
I just took 4000 mg of artichoke and 1000 mg of boswella We’ll see what happens
My stomach has been doing it’s usual gurgling thing and a few times I thought I had to poop but it was just gas

Interesting,

Please let us know how this plays out.

Tex

Another night of no pooping
Late this morning had 1st poop. Much much better. Had decent form. Much closer to being a 4 on the Bristol scale
Just ate and stomach is doing it’s usual gurgling thing
Will keep doing 4000 mg of artichoke and 1000 mg of boswella extract for the time being

In case anyone is interested the boswella and artichoke seem to be working amazingly well. No middle of the night pooping. No diarrhea at all. Pretty much poop is totally normal. This is just what seems to be working for me as of now

Hi Quote27,

Have you changed your diet at all along with the artichoke and Boswella supplements?

Looking forward to seeing how you progress :)

Take care,

Laura

Hi everyone,

Just wanted to say that I love adding mashed potatoes to stews/casseroles just before or during plating up. I then stir it all together, it’s my comfort food

Also, rice noodles are a great quick meal option! They go great with mince.

Kind Regards,
Amy

This stage one eating plan is very informative and I’m very thankful for the efforts that have contributed to the plan itself, the links, and the comments
I’ve got a strong celiac problem in my family; many direct relatives get very sick if they eat gluten (and some if they smell it or touch it without ingesting). I rarely have gluten (maybe once a year), and when I do I feel awful (abdo swelling, pain, and systemic issues like joint swelling, headaches, peripheral neurological dysfunction, muscle weakness).
I used to take lots of quality vits/minerals and nutritional supplements/antioxidants, however I got to the point I couldn’t tolerate anything without it exiting dramatically from either end so I shifted to a full liquid diet around 12 months ago, mostly consisting of something similar to stage one diet initially, which progressed to hydralyte and nestle resource as the only two items I could keep in for any length of time / diarrhoea wasn’t eliminating 100% of what was taken in. I was on those for 5 months, then a specialist thought it strange that I wasn’t able to eat (after me mentioning it several times and stating it’s not normal and needs investigating). Since the colonoscopy in December 2021, I’ve been on Budesonide, which is minimally effective, but enough to get me back to stage one diet, while using very small doses of liquid multivitamins, and an oral Vit D3 tablet (I was on Vit D3 600,000IU IM jabs for a while each 6 months as I’ve been low for years, and so I’m trying to maintain it with tablets lately).
Im still not at the stage where I can tolerate oil supplements, or antioxidants, as my GIT won’t tolerate them just yet. I also become a human fountain with cows milk and any kind of coconut products. I make my own yoghurt with goats milk, and everything I eat is homemade from scratch using only unprocessed whole foods.
I’ve been on Budesonide for 7 months, unable to taper (trying it creates uncontrolled diarrhoea). Im just at the stage of very soft well cooked foods in the stage one diet category, with, spoon of yoghurt a couple of hours before bed.
Still very small meals, once or twice a day, otherwise the pain and bloating and sometimes nausea is intolerable.
I even use only natural products to wash my clothes, skin, and hair, brush teeth, no dyes, no makeup, no nail polish, to minimise reactions (having had random flares of skin reactions that I can’t find a source of). The cleaning products I use are all natural and harmless - I used to react to some cleaners with the smell giving me diarrhoea..!
I do think that the array of health challenges I have stems from MGUS which is symptomatic in its own right, and thus why I can’t seem to get rogue immune cells to behave - they’re born that way…
Anyway, I just want to say thanks again for all the intricate and explanatory info - it’s fabulous

Cases that don't respond to treatment often involve diet cross-contamination. Have you read this newsletter recently published by the Microscopic Colitis Foundation? Here's a direct link where you can read or download a copy:

https://www.microscopiccolitisfoundatio ... d91296.pdf

Tex