Tex and Ann. I find the rancorous tone of BOTH of your postings to be counterproductive as they give off "more heat than light". Perhaps your disagreement with each other could be best handled in private posts.
Even the "old timers" on this forum are still learning new things every day about their MC. Personally, I think we should read ALL postings with a grain of salt because MC is definitely not a "one size fits all" kind of disease.
Let's all keep in mind that the real value of this forum is to make it comfortable for all of us to ask questions and listen to each other's insights. When we shut others down we are surely not accomplishing our best mission.
Peace...
Medications And Supplements That May Be Used By MC Patients
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
Hi Hopeful,
I appreciate your input, and I once felt the same way (that everyone should be allowed to do as they please, and write whatever they want, and let the viewers sort out the posts), but while that's a lofty goal, unfortunately it doesn't work in the real world. Discussion boards that operate that way typically don't survive very long. Useful discussion and support boards have to have rules, and if they are to actually provide useful support (rather than all the ambiguous and worthless BS that you can find on all the other websites), then guidance and direction are essential. The original MC board was a great place for several years, but because of a lack of administration, it met an untimely end. When we (the founding members) created this board, we put a lot of time and effort into it, and I made a vow to myself that it wouldn't meet the same fate if I could possibly help it.
I don't enjoy being the one who has to do the maintenance, pay the bills, make the hard decisions, and occasionally write unpleasant posts, but someone has to do it, or it wouldn't get done, and this site would slowly grind to a halt. I'll be the first to admit that I have plenty of faults, and I'm getting old, and forgetful, and set in my ways, and I have all sorts of other negative attributes, but so far, no one else has volunteered to take over, and contribute the time, effort, and technical expertise necessary to keep this thing going, so I continue to do what has to be done.
We must be doing something right, because while the average life of Internet discussion boards is less than 4 years, this one has been around for over 9 years now. And no other MC (or IBD, for that matter) discussion board can claim anywhere near the success rates that our members have had at achieving remission. We all try to do the best we can, and that's all that anyone can hope to do. I'm proud of our accomplishments with this board, but I learned many years ago that no matter how hard one tries, it's impossible to please everyone, and attempting to do so is an exercise in futility and frustration. Attempting to please everyone led to the demise of the original board. So I no longer go there, because life is too short to waste very much of it on futile and frustrating endeavors.
Tex
I appreciate your input, and I once felt the same way (that everyone should be allowed to do as they please, and write whatever they want, and let the viewers sort out the posts), but while that's a lofty goal, unfortunately it doesn't work in the real world. Discussion boards that operate that way typically don't survive very long. Useful discussion and support boards have to have rules, and if they are to actually provide useful support (rather than all the ambiguous and worthless BS that you can find on all the other websites), then guidance and direction are essential. The original MC board was a great place for several years, but because of a lack of administration, it met an untimely end. When we (the founding members) created this board, we put a lot of time and effort into it, and I made a vow to myself that it wouldn't meet the same fate if I could possibly help it.
I don't enjoy being the one who has to do the maintenance, pay the bills, make the hard decisions, and occasionally write unpleasant posts, but someone has to do it, or it wouldn't get done, and this site would slowly grind to a halt. I'll be the first to admit that I have plenty of faults, and I'm getting old, and forgetful, and set in my ways, and I have all sorts of other negative attributes, but so far, no one else has volunteered to take over, and contribute the time, effort, and technical expertise necessary to keep this thing going, so I continue to do what has to be done.
We must be doing something right, because while the average life of Internet discussion boards is less than 4 years, this one has been around for over 9 years now. And no other MC (or IBD, for that matter) discussion board can claim anywhere near the success rates that our members have had at achieving remission. We all try to do the best we can, and that's all that anyone can hope to do. I'm proud of our accomplishments with this board, but I learned many years ago that no matter how hard one tries, it's impossible to please everyone, and attempting to do so is an exercise in futility and frustration. Attempting to please everyone led to the demise of the original board. So I no longer go there, because life is too short to waste very much of it on futile and frustrating endeavors.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
....to what Lisa said...I don't know what I would have done had I not found this site. 
One of things I have always valued about our PP site is that I can trust the information is rooted in valid research and that the research will be well scrutinized by others on this site. It's part of what gives our site credibility. Asking someone for a scientific reference to support what they post is not at all unusual. In fact, we should be able to defend what we post as fact, as any good scientist would. This time the request came from Tex but it could come from any of us. Sometimes it leads to spirited academic discussions which should be welcomed, not avoided.
For those subjects that can't be found in the research, we usually reference ourselves and the vast experience of the members of this group. These are still evidence based conclusions.
I've used every bit of guidance that is available on this site and I'm sure I am in remission because I followed the advice of the experienced members of this group.
Tex, I love your statement... We are a family, not an audience... I think that sums it up well.
Carol
For those subjects that can't be found in the research, we usually reference ourselves and the vast experience of the members of this group. These are still evidence based conclusions.
I've used every bit of guidance that is available on this site and I'm sure I am in remission because I followed the advice of the experienced members of this group.
Tex, I love your statement... We are a family, not an audience... I think that sums it up well.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Lisa, Linda, and Carol,
Thank you so much for your kind words of support and wisdom. I had naturally been feeling kind of down today over this peccadillo, and we're having a dreary, rainy day here, to boot, but you have definitely lifted my spirits (just like a real family), and I truly appreciate your kindness and thoughtfulness.
Tex
Thank you so much for your kind words of support and wisdom. I had naturally been feeling kind of down today over this peccadillo, and we're having a dreary, rainy day here, to boot, but you have definitely lifted my spirits (just like a real family), and I truly appreciate your kindness and thoughtfulness.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
This board saved my life. I was so sick I was sure I was dying and no one could help me, in spite of the doctor telling me this is benign. He also told me it is rare. And that I could eat everything. When I found this board I realized that a) he was wrong about most things and that b) there was hope.
One thing I learned early on was that the only thing we have in common is our dx, and even that raises questions. I remember an discussion soon after I found this board and shortly after I got my enterolab results, about cooking for a thanksgiving dinner. One of the members pointed out that our sensitivities were so different that the only thing we could both eat was pecans. We could never cook together for a holiday because there was no other food we had in common.
That was my first realization regarding this disease. The second one was that doctors have no idea how to treat us so we have to rely on each others experience to guide us through healing, no matter how different we are.
And, of course, where ever possible, research, where available, should back up all discussions.
And now, with the help of everyone here, and many who no longer come here, and whom I hope are all doing well, I am finally healing.
Yes, we have challenged each other, but always with respect. And that is what makes this board work so well.
One thing I learned early on was that the only thing we have in common is our dx, and even that raises questions. I remember an discussion soon after I found this board and shortly after I got my enterolab results, about cooking for a thanksgiving dinner. One of the members pointed out that our sensitivities were so different that the only thing we could both eat was pecans. We could never cook together for a holiday because there was no other food we had in common.
That was my first realization regarding this disease. The second one was that doctors have no idea how to treat us so we have to rely on each others experience to guide us through healing, no matter how different we are.
And, of course, where ever possible, research, where available, should back up all discussions.
And now, with the help of everyone here, and many who no longer come here, and whom I hope are all doing well, I am finally healing.
Yes, we have challenged each other, but always with respect. And that is what makes this board work so well.
Carol said this so well:
I am thankful, Tex, for all you do. I am not sure where I would be today if I had not found this board.
We each have our own experiences and we can all benefit by knowing we are not alone, but we are all different. I appreciate the references which show there has been research rather than just one persons opinion. I think it's important to know the difference.carolm wrote:One of things I have always valued about our PP site is that I can trust the information is rooted in valid research and that the research will be well scrutinized by others on this site. It's part of what gives our site credibility. Asking someone for a scientific reference to support what they post is not at all unusual. In fact, we should be able to defend what we post as fact, as any good scientist would. This time the request came from Tex but it could come from any of us. Sometimes it leads to spirited academic discussions which should be welcomed, not avoided.
For those subjects that can't be found in the research, we usually reference ourselves and the vast experience of the members of this group. These are still evidence based conclusions.
I've used every bit of guidance that is available on this site and I'm sure I am in remission because I followed the advice of the experienced members of this group.
Tex, I love your statement... We are a family, not an audience... I think that sums it up well.
I am thankful, Tex, for all you do. I am not sure where I would be today if I had not found this board.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
Many thanks Theresa, for your kind words. And I hope that your current flare fades away quickly.
Lesley,
Thank you for sharing your thoughts. I can remember realizing, soon after you joined, that helping you to get your health back on track was going to be a huge challenge (to say the least). Reading your recent posts (including this one) and realizing that all your hard work and dedication are finally paying off as you continue to improve, actually makes me kind of misty-eyed (I'll bet your doctor will never say that), because you have had a really tough time of it for longer than anyone should have to suffer.
Your doctors could have helped a lot, if they had been more understanding, but you persevered without much help from them, and virtually all of the credit for your improving health goes to you, because you never lost sight of your goal, and you never lost faith in your ability to reach that goal. So you were willing to continue to search for solutions and to do whatever was necessary to get your health back.
And thank you both, and everyone else here, for being a part of this family.
Tex
Lesley,
Thank you for sharing your thoughts. I can remember realizing, soon after you joined, that helping you to get your health back on track was going to be a huge challenge (to say the least). Reading your recent posts (including this one) and realizing that all your hard work and dedication are finally paying off as you continue to improve, actually makes me kind of misty-eyed (I'll bet your doctor will never say that), because you have had a really tough time of it for longer than anyone should have to suffer.
Your doctors could have helped a lot, if they had been more understanding, but you persevered without much help from them, and virtually all of the credit for your improving health goes to you, because you never lost sight of your goal, and you never lost faith in your ability to reach that goal. So you were willing to continue to search for solutions and to do whatever was necessary to get your health back.
And thank you both, and everyone else here, for being a part of this family.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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darlagroat
- Little Blue Penguin
- Posts: 31
- Joined: Thu Sep 12, 2013 5:04 pm
- Location: California
Thankful
I, too, don't know where I would be without your help, Tex, and everyone else who contributes. I am "lucky" that I found the site close to my diagnosis, but everything I have learned about this disease and how to get better, I have learned from this site. I realized early on that my GI was of no help, and that I was on my own to manage my care.
It is November, and the month of Thanksgiving, and I am most thankful for all of you!
It is November, and the month of Thanksgiving, and I am most thankful for all of you!
Tex,
Count me as one of the very THANKFUL!! Like Darla, I found this site early on with my dx. I cannot believe how good I feel and how my life has turned around. I'm almost scared this will jinx me but I do have my life back. I have read, read and read everything on this board, done what all of you have suggested and watched my diet.
There is absolutely hope and healing for all of you newbies
Love to all and Thankful for each and everyone of you!
Love,
Connie
Count me as one of the very THANKFUL!! Like Darla, I found this site early on with my dx. I cannot believe how good I feel and how my life has turned around. I'm almost scared this will jinx me but I do have my life back. I have read, read and read everything on this board, done what all of you have suggested and watched my diet.
There is absolutely hope and healing for all of you newbies
Love to all and Thankful for each and everyone of you!
Love,
Connie
Live, Laugh & Love Much
Connie,
It's great to read that you're doing so well.
Thank you for your support and your inspiring update.
Love,
Tex
It's great to read that you're doing so well.
Thank you for your support and your inspiring update.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I'm a little late getting caught up on this string. I did originally ask about the z-pac and it sounds like a discussion arose from this topic. I did want to give a heads up that over the course of my taking the z-pac, I got really, really bad D. Started the night after I began and was really bad by the 5th day (luckily that was my last dose). It took many days of pepto and increasing my Budesonide and probiotics to get my stomach back to normal. I know there could have been something else to trigger it (I don't have many food intolerances at this time, so I eat a wide variety of foods), but the way it started and got progressively worse with each day I was on the z-pac seemed too coincidental.
Since I saw you mention that a lot of advice comes from what others have experienced, I thought I'd throw out mine. And since I struggle with sinus infections, I feel that (unfortunately) I'll likely have another opportunity to test out my body's reaction, and will plan to share if you'd like me to. It sounds like I'm not the norm.
I am very, very thankful for this site. You got me to the best doc that I could find out here, pointed me to EnteroLab where I learned about my food intolerances, and I turn to this site often for help or reference. I would hate to think what my condition would be like if I didn't have this forum.
Thank you!!!
Since I saw you mention that a lot of advice comes from what others have experienced, I thought I'd throw out mine. And since I struggle with sinus infections, I feel that (unfortunately) I'll likely have another opportunity to test out my body's reaction, and will plan to share if you'd like me to. It sounds like I'm not the norm.
I am very, very thankful for this site. You got me to the best doc that I could find out here, pointed me to EnteroLab where I learned about my food intolerances, and I turn to this site often for help or reference. I would hate to think what my condition would be like if I didn't have this forum.
Thank you!!!