Added success with 10mg amitriptyline.

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tex
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Post by tex »

Barb wrote:what about cooking the food then freezing it after being cooked??
That's the safest policy. Freeze everything in single serving containers, and thaw them in a microwave just before you are ready to reheat them for a meal. That will not destroy any existing histamines, but it will prevent the propagation of additional histamines in the food.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gloria
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Post by Gloria »

Barb,

That is how I eat all of my meat and gravy. I cook the roast, slice it into individual portions, then freeze it. When I'm ready to eat, I take out a slice of meat, defrost the gravy enough to scoop some out, and reheat them both in the microwave. That's why I take a freezer and microwave in my car when I travel.

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Post by barbiem »

that is sooo cool Gloria !! How do you make your gravy?? so you have just a mini freezer and microwave??

barb
Babs
Canada
Feb 2013 diagnosed Lymphocytic colitis
SCD diet since March 2013
Mezavant April 30 to present still no success
entocort from feb 1 to 28 no success
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Post by Gloria »

Barb,
I make my gravies the same way I did when I used wheat flour. I use white corn flour as a thickener instead and it works fine.

I have a 12 volt thermoelectric cooler for my almond milk, salad dressing and avocado. My freezer is 84 quarts and is similar in size to the top freezer compartment in my refrigerator. The freezer holds my muffins, gravies, waffles, pancakes, tortillas and meats. The microwave is a 900 volt mini.

You can read about the van setup here: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13272 If you look at the last page (5), you'll see pictures of the setup.

Gloria
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Post by barbiem »

Geez I added steamed really steamed broccoli tonight with my steak and am now sick as a dog!! Diarrhea again, that weird flare feeling! UGH! so frustrating. I don't understand why broccoli would bother me. I guess back to green beans .
Babs
Canada
Feb 2013 diagnosed Lymphocytic colitis
SCD diet since March 2013
Mezavant April 30 to present still no success
entocort from feb 1 to 28 no success
barbiem
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Post by barbiem »

carolm
Hi carol - just wondering if you are still on Elavil? and if so, still same results??? Is wellbutrin in the same category as Elavil?

thxs
babs
Babs
Canada
Feb 2013 diagnosed Lymphocytic colitis
SCD diet since March 2013
Mezavant April 30 to present still no success
entocort from feb 1 to 28 no success
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Post by DebE13 »

Super news Carol! Absolutely wonderful news.
Deb

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Post by carolm »

HI Babs,
Yes, I am still on Amitriptyline and in times of stress my Dr. has given me permission to increase it to 15mg. So, for example, the weekend of Nov 1-3 I was out of town having a 'girls weekend' with a couple of friends, I came home on Sunday the 3rd, worked Monday and Tuesday then left Weds the 6th, for a TriState Special Ed Law Conference in Omaha, Neb (slightly over 5 hours away). We just came back late Friday night the 8th. I took 15 mg the night before and throughout both of my out of town trips. For the Law Conference I packed and ate my own food and thing went well. It's good to know I can increase it anytime I will be out of my usual routine.

Amiptriptyline (Elavil) is a tricyclic antidepressant and has been around for at least 30 years that I know of. I started my first job in 1980 as a psychologist on an inpatient psychiatric unit and Elavil was a commonly prescribed medication then. Now there are options with fewer side effects and better results for depression. But I'm glad that it has other uses and has had a very positive impact on my gut motility issues.

I looked up Wellbutrin-- I knew it was not a tricyclic but I was not sure if it was an SSRI or SNRI. Looks like it's neither. So in answer to your question, "no' they are not related. Here's a clip from WebMD as to the make up of Wellbutrin.

"WELLBUTRIN (bupropion hydrochloride), an antidepressant of the aminoketone class, is chemically unrelated to tricyclic, tetracyclic, selective serotonin re-uptake inhibitor, or other known antidepressant agents. Its structure closely resembles that of diethylpropion; it is related to phenylethylamines. It is designated as (±)-l-(3-chlorophenyl)-2-[(l,l-dimethylethyl)amino]-l-propanone hydrochloride. "

I'm no chemist or pharmacist and I did not find any reference to the impact of Wellbutrin on gut motility. However, if it helps your depression then that benefit alone may be worth any risks. That would be an individual decision.

I hope that helps. take care.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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Post by barbiem »

Thanks Carol - appreciate all your wisdom!! I have read that those with mast cell issues tolerate tetrocyclics better? Do you know what those would be??

thxs
barb
Babs
Canada
Feb 2013 diagnosed Lymphocytic colitis
SCD diet since March 2013
Mezavant April 30 to present still no success
entocort from feb 1 to 28 no success
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Post by UkuleleLady »

Hi Babs,
Remeron (another older antidepressant), which I am taking is actually a tetracyclic, not a tricyclic like I previously thought. I am curious what you read re: tetras and mast cell issues.

I have found my psych to be very open to my ideas, e.g. Trying elavil, which I did but then switched to this instead. Seems to be working really well for me and helps me sleep through the night.

I have had such a good experience with this psych. Maybe you can meet with one and hash some of this out. they have such a good knowledge of these meds, their off-uses in differing amounts, etc.
Good luck.
Nancy
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Post by barbiem »

This is an amazing website devoted to tons of information on mast cell issues:

http://www.iamast.com/medications/4564806907

"Depression
Happens in mast cell . Some patients have clincially low serotonin but many have high .
Treating it is challenging . Tetracyclics are the best tolerated .
Tricyclics interact with epinpeherine ( EPIPEN ) causing high blood pressure and arrythmias (BNfinteractions 2012)
SSRI/SSNI - have the risk of increasing serotonin and causing serotonin syndrome
MOAI's are tolerated but not popular with patients as they have dietery restriction and most patients already have highly restricted diets"

So maybe this is why your Remeron works for you?? How did it effect your colitis??

barb
Babs
Canada
Feb 2013 diagnosed Lymphocytic colitis
SCD diet since March 2013
Mezavant April 30 to present still no success
entocort from feb 1 to 28 no success
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Post by carolm »

Babs, Remeron and Ludiomil are the tetracyclics listed (I'm assuming that's what you meant. Nothing comes up when I Google tetrocyclics). Again those have been around for awhile and I don't know their efficacy when used for motility issues or with mast cell concerns. Sounds like Nancy (above) has some first hand knowledge. It seems to me that antihistamines are likely to be the better med to counter the effects of mast cell issues. Like others have said-- I take Claritin everyday because I have allergies and stopped my PPI and started Zantac (H2 inhibitor) instead. I have also had times when I've taken Benadryl at night if I feel like I need it after eating a high histamine food.

Keeping digging-- the more you read, research and ask the closer you will get to find that "formula' that works for you.

Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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Post by janet »

WELL DONE CAROL. KEEP UP THE GOOD WORK, SOON IT WILL ALL BE A THING OF THE PAST.

SO VERY PLEASED FOR YOU

MARIE
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