Oh my, Connie!
You are really going through a difficult time. What a shame that no one is listening.
The first thought that comes to mind is B-12 deficiency, which can cause many of the symptoms you mentioned, as well as enlarged blood cells. It can occur for a number of reasons: not enough B-12 in diet (usually vegetarians); or malabsorption of B-12 because of atrophic gastritis or an inflammatory bowel disease (think MC) or small intestinal bacterial overgrowth (SIBO). B-12 deficiency is also more common in those who have other A.I. diseases. Of course we are high risk for all of those reasons. Atrophic gastritis usually occurs around 60 and is due to loss of the stomach lining due to age which produces less acid for digestion.
If B-12 deficiency is the problem, your iron and folate may also be low.
I hope you will be able to get some answers soon. You have every right to be incredibly frustrated.
Love,
Polly
Is It Just Me? What's So Bad About Measles?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Thanks for the information, Polly.
I tested heterozygous for just the 1298 on my 23andMe. Tried taking methylfolate and it made me much worse. I'm homozygous for quite a few of the gene mutations that relate to mood disorders. I take B-6-B12 every day, but likely am not absorbing it. Will discuss the breath test for SIBO w/my doctor. I also take Iron every day. Recently went off all my supplements for 8 days and got much worse. Will look into Atrophic gastritis.
Nearly 10 years of constant D and recently nocturnal D is just too much. I have little desire to live and now little $ to live as well. Living on SS.
I tested heterozygous for just the 1298 on my 23andMe. Tried taking methylfolate and it made me much worse. I'm homozygous for quite a few of the gene mutations that relate to mood disorders. I take B-6-B12 every day, but likely am not absorbing it. Will discuss the breath test for SIBO w/my doctor. I also take Iron every day. Recently went off all my supplements for 8 days and got much worse. Will look into Atrophic gastritis.
Nearly 10 years of constant D and recently nocturnal D is just too much. I have little desire to live and now little $ to live as well. Living on SS.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
.jpg){kind=avatar}
I hear your despair and wish there was some way I could help. MC is bad enough. All those other symptoms just make it so much worse. Do you feel you've done everything you can with your diet? Maybe there are still things you can do diet wise. Maybe we can help you think this through. It is so hard when you feel unheard and unsupported. I hope coming to the forum can at least help with that.
Jean
Jean
Hi Connie,
I'm so sorry to hear of what has happened. I totally agree with you that all clinics and hospitals, and probably individual physician's practices should absolutely have someone on staff assigned the duty of patient risk assessment anytime a vaccine, medication, or any other form of medical intervention is recommended. Adverse reactions to vaccinations, contrast mediums administered by IV, and many, many medications, are much more common than is generally reported in the medical literature, and many lives are taken or severely damaged every day because of this cavalier attitude. It is being swept under the rug by virtue of a claim of rarity, just as MC was ignored for decades because doctors chose to label it a "rare" disease. There will always be unforeseen accidents, but there is no reason why patients who are clearly at-risk should be encouraged to take vaccinations that could be very dangerous for them. That's inexcusably iatrogenic, IMO.
Regarding some of your symptoms, I agree with Polly that some of us need much more B-12 than others, and some of us need to keep our levels at the upper end of the normal range, or above. Please be aware that vitamin B-6 can actually cause paresthesia, if taken in excess. I'm speaking from experience here. Some of the fingers of my left hand were become increasingly (and chronically) numb. I cut my intake of B-6 way down, and the problem has slowly faded away.
But looking at your symptoms in general, they have "magnesium deficiency" written all over them. According to some reports, most people in this country are magnesium deficient, but not so much that they become unable to function normally. However, the malabsorption problems associated with MC mean that we do not absorb magnesium very well. Magnesium is mostly absorbed in the terminal ileum and the colon, where MC is most active. So we run a relatively high risk of becoming seriously magnesium deficient.
Obviously I can't be sure that magnesium is your problem, but your description matches the way I felt a couple of months ago when I had an adverse reaction to an antibiotic that depleted my remaining supply of magnesium, and I suffered severe magnesium deficiency symptoms. Magnesium is a critical electrolyte. I even had erratic BP and heart rate and chills and fever, as my body became unable to properly regulate all those things. And I was already taking 800 mg of magnesium supplement daily at the time, but it wasn't enough.
If I were in your situation, I would either ask for a magnesium test, or begin taking magnesium, preferably in a form that will not cause D. If magnesium is the problem, you should begin to see results within a day or 2. Too much oral magnesium acts as a laxative, so roughly 400 mg of oral magnesium citrate is about all we can stand, for many of us. Magnesium glycinate is far less likely to cause D, but it is also less likely to be absorbed.
Transdermally-applied magnesium bypasses the laxative problem. Foot soaks in warm Epsom salt solutions works, as does adding Epsom salts to bathwater. Magnesium oil sprays are also available that can be applied to the skin. I take 400 mg of magnesium citrate and 400 mg of magnesium glycinate daily, plus Ancient Minerals magnesium oil spray at night, allowing it to soak in for at least 15 or 20 minutes before taking a shower.
An antibiotic escalated my magnesium deficiency symptoms. It's possible that the vaccine (or rather an adverse reaction to the vaccine) might have triggered an accute magnesium deficiency situation for you.
I wish you the best of luck in your recovery, and please keep us posted.
Tex
I'm so sorry to hear of what has happened. I totally agree with you that all clinics and hospitals, and probably individual physician's practices should absolutely have someone on staff assigned the duty of patient risk assessment anytime a vaccine, medication, or any other form of medical intervention is recommended. Adverse reactions to vaccinations, contrast mediums administered by IV, and many, many medications, are much more common than is generally reported in the medical literature, and many lives are taken or severely damaged every day because of this cavalier attitude. It is being swept under the rug by virtue of a claim of rarity, just as MC was ignored for decades because doctors chose to label it a "rare" disease. There will always be unforeseen accidents, but there is no reason why patients who are clearly at-risk should be encouraged to take vaccinations that could be very dangerous for them. That's inexcusably iatrogenic, IMO.
Regarding some of your symptoms, I agree with Polly that some of us need much more B-12 than others, and some of us need to keep our levels at the upper end of the normal range, or above. Please be aware that vitamin B-6 can actually cause paresthesia, if taken in excess. I'm speaking from experience here. Some of the fingers of my left hand were become increasingly (and chronically) numb. I cut my intake of B-6 way down, and the problem has slowly faded away.
But looking at your symptoms in general, they have "magnesium deficiency" written all over them. According to some reports, most people in this country are magnesium deficient, but not so much that they become unable to function normally. However, the malabsorption problems associated with MC mean that we do not absorb magnesium very well. Magnesium is mostly absorbed in the terminal ileum and the colon, where MC is most active. So we run a relatively high risk of becoming seriously magnesium deficient.
Obviously I can't be sure that magnesium is your problem, but your description matches the way I felt a couple of months ago when I had an adverse reaction to an antibiotic that depleted my remaining supply of magnesium, and I suffered severe magnesium deficiency symptoms. Magnesium is a critical electrolyte. I even had erratic BP and heart rate and chills and fever, as my body became unable to properly regulate all those things. And I was already taking 800 mg of magnesium supplement daily at the time, but it wasn't enough.
If I were in your situation, I would either ask for a magnesium test, or begin taking magnesium, preferably in a form that will not cause D. If magnesium is the problem, you should begin to see results within a day or 2. Too much oral magnesium acts as a laxative, so roughly 400 mg of oral magnesium citrate is about all we can stand, for many of us. Magnesium glycinate is far less likely to cause D, but it is also less likely to be absorbed.
Transdermally-applied magnesium bypasses the laxative problem. Foot soaks in warm Epsom salt solutions works, as does adding Epsom salts to bathwater. Magnesium oil sprays are also available that can be applied to the skin. I take 400 mg of magnesium citrate and 400 mg of magnesium glycinate daily, plus Ancient Minerals magnesium oil spray at night, allowing it to soak in for at least 15 or 20 minutes before taking a shower.
An antibiotic escalated my magnesium deficiency symptoms. It's possible that the vaccine (or rather an adverse reaction to the vaccine) might have triggered an accute magnesium deficiency situation for you.
I wish you the best of luck in your recovery, and please keep us posted.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Appreciate the response Wayne, I'm just at a point where I'm just broken and really finding it hard to care if I survive, will look at what you wrote tomorrow morning, am pretty well brain dead by this hour, every day. Think they just want all us Boomers dead off SS.
I take 2 Magnesium Glycinate 200mg a day from Metagenics.
Posted this on FB today:
Today on All Things Considered at 4 PM on OPB they are going to be discussing the adverse reactions to the flu shot, the recourse for people and the controversy, of course.
I'll be listening…Hope you will too. I've been disabled since a few days after I got my shot on 1/9. Trying to wade through the VAERS system is a nightmare when you have migraines 24/7.
This is the website where you can listen to it, for those of you not in Oregon who might be interested: http://www.npr.org/programs/all-things-considered/
There isn't a link to it up there yet, but there should be one tomorrow.
I take 2 Magnesium Glycinate 200mg a day from Metagenics.
Posted this on FB today:
Today on All Things Considered at 4 PM on OPB they are going to be discussing the adverse reactions to the flu shot, the recourse for people and the controversy, of course.
I'll be listening…Hope you will too. I've been disabled since a few days after I got my shot on 1/9. Trying to wade through the VAERS system is a nightmare when you have migraines 24/7.
This is the website where you can listen to it, for those of you not in Oregon who might be interested: http://www.npr.org/programs/all-things-considered/
There isn't a link to it up there yet, but there should be one tomorrow.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Yes, Martha, I heard that as well on OPB's All Things Considered. http://www.npr.org/sections/health-shot ... d-vaccines
I have spent a lot of time trying to file a report at the VAERS website, but it is a lengthy and complicated form and I want to make sure that what I write is accurate, so have downloaded it onto a PDF so I can copy and paste as each section has a time limit. There are also many law firms that specialize in vaccine injury. Once I have the results of the tests I have requested from my MD, for GBS and several types of bacteria, I will be in a better position. Have an appt. for the tests on 6/9. Have spoken with an attorney.
I have spent a lot of time trying to file a report at the VAERS website, but it is a lengthy and complicated form and I want to make sure that what I write is accurate, so have downloaded it onto a PDF so I can copy and paste as each section has a time limit. There are also many law firms that specialize in vaccine injury. Once I have the results of the tests I have requested from my MD, for GBS and several types of bacteria, I will be in a better position. Have an appt. for the tests on 6/9. Have spoken with an attorney.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
My current health situation
I'm home from an appt at the Legacy Clinic that is my new PCP, this morning. I changed my PCP to Legacy and left the OHSU system earlier this year, except for my Neurologist Doc, who is a Neurologist is at a hospital, that's a 45 min. drive, in good traffic, that's now owned by OHSU whose main Hospital is a 45 min drive from me.. I like the Neurologist I've seen, but need to find a Neurologist and a GI Doc closer to home in the Legacy System, where I can drive myself in the morning hours before my daily Migraine with Vertigo sets in. I'd tried since early '15 to see a Neurologist through OHSU but it was a 7 month wait for an appt. w/a OHSU Neuro Doc, via their Clinic that's walking distance from me. I've now had a relationship of many years with my Neurologist at Tualaty Hospital and who's now "officially owned" by OHSU.
I really like my Neurologist, who's been a mostly straight shooter since our first appt., where he said that I'd likely had Encephalitis from my stupid decision to get the Senior flu shot 2 days after my Wellness visit.
Well, my appt this morning at Legacy was a total washout as to getting any tests ordered. NO MD's are going to ever write anything on My Chart, that would point to my ailments since 1/9/15 as being a vaccine reaction. Got some valuable feedback from the Pharmacist at Rite Aid, who came to my aid when I fainted there and he came to my aid; His wife had the same reaction to the same vaccine - Fluvirin - 2015 - that I did.
She has also been disabled ever since. I'm beyond Migraine hell for todayI hope that anyone on this forum is paying attention to the recent payouts for Round-Up - Glyphosate - I'd never used Roundup until my husband used it at the house we bought together in '03.
RoundUp is what CAUSED THE GREAT POTATO FAMINE THAT BROUGHT MY FAMILY, TRUMP'S FAMILY, TO THE US AND IS ALSO MAKING VETERANS OF VN BLIND NOW, as is my HS BF now, whose wife and I are friends now.
MY FATHER WAS LOSING HIS SIGHT, AFTER BEING EXPOSED TO ROUNDUP, DDT,WHATEVER THEY'RE CALLING IT NOW, shortly after his family moved to the US IN THE LATE 1800'S. The OHSU William Casey Eye Institute is named after the Dr. who featured my Father in his book as a puzzle. I really need to buy that book.
So peace out, need to eat and go to bed. Anyone who is still using Glyphosate is a criminal.
I really like my Neurologist, who's been a mostly straight shooter since our first appt., where he said that I'd likely had Encephalitis from my stupid decision to get the Senior flu shot 2 days after my Wellness visit.
Well, my appt this morning at Legacy was a total washout as to getting any tests ordered. NO MD's are going to ever write anything on My Chart, that would point to my ailments since 1/9/15 as being a vaccine reaction. Got some valuable feedback from the Pharmacist at Rite Aid, who came to my aid when I fainted there and he came to my aid; His wife had the same reaction to the same vaccine - Fluvirin - 2015 - that I did.
She has also been disabled ever since. I'm beyond Migraine hell for todayI hope that anyone on this forum is paying attention to the recent payouts for Round-Up - Glyphosate - I'd never used Roundup until my husband used it at the house we bought together in '03.
RoundUp is what CAUSED THE GREAT POTATO FAMINE THAT BROUGHT MY FAMILY, TRUMP'S FAMILY, TO THE US AND IS ALSO MAKING VETERANS OF VN BLIND NOW, as is my HS BF now, whose wife and I are friends now.
MY FATHER WAS LOSING HIS SIGHT, AFTER BEING EXPOSED TO ROUNDUP, DDT,WHATEVER THEY'RE CALLING IT NOW, shortly after his family moved to the US IN THE LATE 1800'S. The OHSU William Casey Eye Institute is named after the Dr. who featured my Father in his book as a puzzle. I really need to buy that book.
So peace out, need to eat and go to bed. Anyone who is still using Glyphosate is a criminal.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.