Ohhhhhkayyyy-
Still taking the occasional Immodium...I've been taking the generic Costco/Kirkland stuff and never seemed to bother me (????). Thought I looked at it closely YEARS AGO when I started buying it but apparently not. Of course I pitched the outer box and it says nothing on the bottle but after reading the latest posts about this I got online and apparently it has lactose in it. So, thought I read the the name brand Immodium didn't have it in it...so stopped at the store yesterday and bought that (unfortunately left readers in car so couldn't read the fine print..). Got home and looked at the box and IT HAS LACTOSE in it!!! Still have the receipt so will take that back.
Is all name brand Immodium like this? What brand is ok???
Laine
My MC is Back
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Laine,
As Rosie pointed out, the inactive ingredients in Loperamide-based products sometimes seem to change with the seasons. We had a similar discussion a few years ago when most of these products seemed to reverse their lactose status at about the same time. They're probably all made in one or two facilities and in order to be different, when one changes formulations, the other follows suit in order to maintain some difference in their ingredients.
This entire issue is ridiculous in view of the fact that when most people have diarrhea, it's because of intestinal inflammation. Even the flu causes intestinal inflammation. And anytime the small intestine is inflamed, lactase production is significantly reduced, resulting in lactose intolerance. So how could anyone with half a lick of common sense choose to add lactose to a product intended to stop diarrhea? The stupidity of the pharmaceutical companies sometimes boggles the mind. But it's all irrelevant from their point of view because the one thing in which they excel is making money, and nothing else matters to them.
Tex
As Rosie pointed out, the inactive ingredients in Loperamide-based products sometimes seem to change with the seasons. We had a similar discussion a few years ago when most of these products seemed to reverse their lactose status at about the same time. They're probably all made in one or two facilities and in order to be different, when one changes formulations, the other follows suit in order to maintain some difference in their ingredients.
This entire issue is ridiculous in view of the fact that when most people have diarrhea, it's because of intestinal inflammation. Even the flu causes intestinal inflammation. And anytime the small intestine is inflamed, lactase production is significantly reduced, resulting in lactose intolerance. So how could anyone with half a lick of common sense choose to add lactose to a product intended to stop diarrhea? The stupidity of the pharmaceutical companies sometimes boggles the mind. But it's all irrelevant from their point of view because the one thing in which they excel is making money, and nothing else matters to them.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Again, thanks y'all. Well Tex, I will always look at the labels from now on. I just went to Walgreens and bought their generic but of course it has corn starch in it instead (I'm saying instead...). I react to corn at 2+ per the last Enterolab test in July 2016...but it was the "least reactive" of the grains...so can't win I guess. Lactose or corn starch??? Which is the lesser evil?? Actually think my numbers for dairy were 10 on the Enterolab test in 2011...cut it out of my life anyway and would only do it very occasionally for special occasions and then with taking an Immodium...never an immediate reaction, just if I did it for a few days in a row and then things would get funky/noticeable (with no immodium)...not explosive or anything!!!
Not sure what is going on with me today...feel crummy in general and sort of crampy...but it just may be that time of the month which is all over the place anymore!!!
Laine
Not sure what is going on with me today...feel crummy in general and sort of crampy...but it just may be that time of the month which is all over the place anymore!!!
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt
If you think it's the corn in the imodium, you might be better off with the lactose, based on your low reaction level to it. 
I hope it's just something minor.
Tex
I hope it's just something minor.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Update, My New Test Results
A-1) Gluten/Antigenic Food Sensitivity Stool Panel
Fecal Anti-gliadin IgA 177 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 7 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 10 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 9 Units (Normal Range is less than 10 Units)
And 4 years ago, these were my other results.
Gluten/Antigenic Food Sensitivity Stool Panel
Fecal Anti-gliadin IgA 16 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 4 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 21 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 9 Units (Normal Range is less than 10 Units)
I must be getting cross contaminated. Because I am not eating any Gluten. The last time I know I had Gluten was in some Hot dogs last June, that I didn't realize it had gluten in it, and I didn't check the Label. I will also stop eating the gluten free oatmeal, to see if that Helps. I told my family no more Gluten in the House. I am Pissed. If I was glutened anyways, I could have just ate a regular diet.
A-1) Gluten/Antigenic Food Sensitivity Stool Panel
Fecal Anti-gliadin IgA 177 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 7 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 10 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 9 Units (Normal Range is less than 10 Units)
And 4 years ago, these were my other results.
Gluten/Antigenic Food Sensitivity Stool Panel
Fecal Anti-gliadin IgA 16 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 4 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 21 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 9 Units (Normal Range is less than 10 Units)
I must be getting cross contaminated. Because I am not eating any Gluten. The last time I know I had Gluten was in some Hot dogs last June, that I didn't realize it had gluten in it, and I didn't check the Label. I will also stop eating the gluten free oatmeal, to see if that Helps. I told my family no more Gluten in the House. I am Pissed. If I was glutened anyways, I could have just ate a regular diet.
It takes several years for anti-gliadin antibodies to decay to non-reactive test levels (even when you are in remission). That result looks to be possible, especially after your exposure in June . The exposure in June kicked your anti-gliadin antibodies higher and that is probably still showing up in your results.
Avenin (oats) would not affect the anti-gliadin test result. The tests are very specific. There is no test for avenin. Still, I would avoid the oats because most people here who have tried them, react to pure oats.
Tex
Avenin (oats) would not affect the anti-gliadin test result. The tests are very specific. There is no test for avenin. Still, I would avoid the oats because most people here who have tried them, react to pure oats.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Lando....
are you having many serves of gluten free process flour products? cereals, breads, etc?
for a product to have gluten free status in the USA, it can still have up to 20ppm of gluten. this may not cause a reaction as you eat it, but over the day or the week this will build up.
Along with if you are exposed to small amounts of gluten in the oats, in the kitchen at home etc.
now the kitchen is gluten free, you may want to invest in new utensils etc. you dont have to replace everything but maybe have a new chopping board, new frypan that you only use for cooking for your items
Also double check
- shampoos, other body products for ingredients like wheatgerm.
- make up products and lip balms - some brands of make up have gluten in lipsticks etc
- toothpaste etc
the other aspect to this if you are being inflammed from non food sources (mold, pollen, pollution, chemicals etc) then this may cause heightened inflammation to food ingredients (and possibly the test results)
hope this helps
are you having many serves of gluten free process flour products? cereals, breads, etc?
for a product to have gluten free status in the USA, it can still have up to 20ppm of gluten. this may not cause a reaction as you eat it, but over the day or the week this will build up.
Along with if you are exposed to small amounts of gluten in the oats, in the kitchen at home etc.
now the kitchen is gluten free, you may want to invest in new utensils etc. you dont have to replace everything but maybe have a new chopping board, new frypan that you only use for cooking for your items
Also double check
- shampoos, other body products for ingredients like wheatgerm.
- make up products and lip balms - some brands of make up have gluten in lipsticks etc
- toothpaste etc
the other aspect to this if you are being inflammed from non food sources (mold, pollen, pollution, chemicals etc) then this may cause heightened inflammation to food ingredients (and possibly the test results)
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Yes, I think I am clearly getting cross contaminated.brandy wrote:Hi Lando,
Mom is celiac, Dad is not. Dad does not eat GF. I cooked a totally GF meal for the three of us at Mom and Dad's house: steak, baked potato and I think broccoli. I had a strong GF reaction the next morning. Clearly the fry pan or the dishes had gluten contamination.
Yes, but trying to figure out, why I got sick that weekend, after the Hot dogs, then was good for about 4 or 5 months, then got sick and can't get back into remission. That is the reason I thought it was Soy or Dairy.tex wrote:It takes several years for anti-gliadin antibodies to decay to non-reactive test levels (even when you are in remission). That result looks to be possible, especially after your exposure in June . The exposure in June kicked your anti-gliadin antibodies higher and that is probably still showing up in your results.
Avenin (oats) would not affect the anti-gliadin test result. The tests are very specific. There is no test for avenin. Still, I would avoid the oats because most people here who have tried them, react to pure oats.
Tex
..Gabes-Apg wrote:Lando....
are you having many serves of gluten free process flour products? cereals, breads, etc?
for a product to have gluten free status in the USA, it can still have up to 20ppm of gluten. this may not cause a reaction as you eat it, but over the day or the week this will build up.
Along with if you are exposed to small amounts of gluten in the oats, in the kitchen at home etc.
now the kitchen is gluten free, you may want to invest in new utensils etc. you dont have to replace everything but maybe have a new chopping board, new frypan that you only use for cooking for your items
Also double check
- shampoos, other body products for ingredients like wheatgerm.
- make up products and lip balms - some brands of make up have gluten in lipsticks etc
- toothpaste etc
the other aspect to this if you are being inflammed from non food sources (mold, pollen, pollution, chemicals etc) then this may cause heightened inflammation to food ingredients (and possibly the test results)
hope this helps
I don't eat a lot of processed foods, the only thing that is processed, I eat everyday is oatmeal. Since 2006 I have always pretty much been a meat and rice/potatoes(mostly rice, because I am too lazy to make potatoes) guy. With occasional processed food on the weekend. I am eating all the same foods, that I was eating when I was in remission for 3 years.
That may be why you can't get back into remission. We have to go back to a bland, easy-to-digest recovery diet in order to methodically get out of a flare. We have to go back to "square one" and literally start over in most cases.lando wrote:I am eating all the same foods, that I was eating when I was in remission for 3 years.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.