One of our members told us she had an accident with her husband while having sex! They laughed at it. Must keep your sense of humor!!
Hopefully you will get it under control and not have too many more!
I wish I had worn a daiper.....
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Happened to me at WalMart last Monday. Thank God I was standing in the "self" checkout line and no one else was in that area. I was so flustered and shaking so badly from trying to hold it in that I dropped first my sunglasses, then my credit card. Went TWICE before exiting the area! I always keep towels in my car for just such occasions. And always used to keep extra undies at work before I retired. Although it didn't help much the day I wore white pants :}
Hang in there ... you're not alone
Hang in there ... you're not alone
Very untimely MC episode
This reminds me of the time when I was delivering meals on wheels and I had a very bad episode. I had made my first stop at the home of a man who was somewhat retarded. I got out of the car and he came walking up with a big smile on his face. Just then I thought oh oh, as I completely filled my pants. I immediately climbed back into the car and fortunately I had a friend with me. From then on I drove and he delivered the meals. I was not in any condition to get out of the car again. I felt so bad for the poor guy at that first house and wondered if he had thought that I was afraid of him. Not the case at all, he was such a sweet guy! I did not get out of the car again until I was back home. I am no longer delivering meals.
Jean
Jean
You might think you understood what I said but what you don't realize is that what I said was not what I meant!
We have all been there... it's like a rite of passage. The brown/ochre badge of courage. I haven't been this obsessed with poop since my son was a baby.
When I was first diagnosed (about 3.5 months ago, following about 2-2.5 months of unexplained constant D), I was terrified to leave the house even to go do a quick errand. I've since had accidents not far from home; I've thrown away several pairs of underwear and even a couple of pairs of pants. I keep a heavy plastic bag in my car to sit on when I feel that urge coming (my car seats are cloth). I've had accidents in my sleep when I was too tired to wake up after several hours of getting up 4-5 times an hour for WD. I have wondered "where is all this coming from?" when I feel like there can't possibly be anything left in me. I haven't ventured very far from home yet (75 miles, max) and I carry backup clothing items. It's reminiscent of those baby days when I would have all these things in the diaper bag. If I'm going somewhere where I cannot risk it, I have pre-emptively taken Imodium, which plugs me up for 1-3 days at a time, but I don't like to do that if I can possibly avoid it. I have been VERY strict about my diet, with pretty good results. I use mindfulness meditation to help manage stress. I have learned to let a lot go. I view myself as a work in progress. Reading the stories of others on this forum has inspired me to live my life anyway, and not let this disease rule or dictate EVERYTHING. It has also made me feel more "normal" and also realize that as bad as my own experience has been at times, sadly things could always be worse. I have hope that one day I will be able to travel farther from home, but for now I'm taking small steps. I've now gone almost 3 weeks without an episode or flare. Each time I have to start again, I hope for a new record.
I think that commercial with the depends under the dress is like the commercials for food that make things look much better on TV than they do in real life. Based on my experience, there is no way that they would not show under a clingy dress -- they even show under baggy sweats! I have to wear pants 2 sizes bigger than usual to even be able to zip up over them (I have lost a lot of weight with this, so I still have some bigger clothes). And they do make noise when I'm walking or sitting, that even I can hear (I wear hearing aids). I've never had the opportunity to really test them with a full or forceful load, but I expect that they would probably leak. The smell would be there no matter what, anyway! I don't use them during the day, nor pads. It would be, like the old song goes, "try[ing] to catch a deluge in a paper cup", so there doesn't seem much point.
I will sometimes wear them at night, though, when I'm going through a flare. I wouldn't care who sees me buy them - I would care a whole lot more who sees me poop my pants. My husband is so awesome that he has even bought them for me, when I've been too sick or weak to go out. He is very understanding, as I would be for him or any other friend or family member were the situation reversed. I do have a couple of friends who have Celiac and we swap our war stories with humor, and exchange tips on good GF/safe items that we find.
When I was first diagnosed (about 3.5 months ago, following about 2-2.5 months of unexplained constant D), I was terrified to leave the house even to go do a quick errand. I've since had accidents not far from home; I've thrown away several pairs of underwear and even a couple of pairs of pants. I keep a heavy plastic bag in my car to sit on when I feel that urge coming (my car seats are cloth). I've had accidents in my sleep when I was too tired to wake up after several hours of getting up 4-5 times an hour for WD. I have wondered "where is all this coming from?" when I feel like there can't possibly be anything left in me. I haven't ventured very far from home yet (75 miles, max) and I carry backup clothing items. It's reminiscent of those baby days when I would have all these things in the diaper bag. If I'm going somewhere where I cannot risk it, I have pre-emptively taken Imodium, which plugs me up for 1-3 days at a time, but I don't like to do that if I can possibly avoid it. I have been VERY strict about my diet, with pretty good results. I use mindfulness meditation to help manage stress. I have learned to let a lot go. I view myself as a work in progress. Reading the stories of others on this forum has inspired me to live my life anyway, and not let this disease rule or dictate EVERYTHING. It has also made me feel more "normal" and also realize that as bad as my own experience has been at times, sadly things could always be worse. I have hope that one day I will be able to travel farther from home, but for now I'm taking small steps. I've now gone almost 3 weeks without an episode or flare. Each time I have to start again, I hope for a new record.
I think that commercial with the depends under the dress is like the commercials for food that make things look much better on TV than they do in real life. Based on my experience, there is no way that they would not show under a clingy dress -- they even show under baggy sweats! I have to wear pants 2 sizes bigger than usual to even be able to zip up over them (I have lost a lot of weight with this, so I still have some bigger clothes). And they do make noise when I'm walking or sitting, that even I can hear (I wear hearing aids). I've never had the opportunity to really test them with a full or forceful load, but I expect that they would probably leak. The smell would be there no matter what, anyway! I don't use them during the day, nor pads. It would be, like the old song goes, "try[ing] to catch a deluge in a paper cup", so there doesn't seem much point.
I will sometimes wear them at night, though, when I'm going through a flare. I wouldn't care who sees me buy them - I would care a whole lot more who sees me poop my pants. My husband is so awesome that he has even bought them for me, when I've been too sick or weak to go out. He is very understanding, as I would be for him or any other friend or family member were the situation reversed. I do have a couple of friends who have Celiac and we swap our war stories with humor, and exchange tips on good GF/safe items that we find.
Courage is the price that life exacts for granting peace; the soul that knows it not, knows no release from little things. - Amelia Earhart
Had a new experience last night ... woke from a deep sleep around midnight in a puddle of poop :( Took an hour to change the bed and find all the spots where I'd dripped trying to get to the bath room to clean up! Was so exhausted by this afternoon that I took a nap. I'm a little over 2 months since this flare started. It took me a month to get strict on my diet, but have been strict for about 6-7 weeks and while I'm not going all day long, it is still watery or very loose. Haven't been very successful at adding any protein or vegetable at all. So am tired quite often and have lost 25 lbs. I sure hope this gets under control soon. My Dr is concerned about the rapid loss. And while it has put a real damper on the holidays, I am finally over the hump and not crying every time I have to go to a gathering. However, I have declined a couple of sit-down dinner events. That would just be too hard when I am still eating just rice and broth, bananas, and jello. It has been such an encouragement to be able to come to this website and find other folks going through the same things. I've said it before, I'm forever grateful ...
Judy
Judy
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
So sorry, Judy, but definitely understand. Before I finally knew I had to go gluten free, I had explosive WD 25 to 30 times a day. I didn't dare walk into a store. Just the movement of maybe a couple of steps had me running to a bathroom, and I seldom made it. I experienced the middle of the night episodes as well. Unfortunately very common for those of us who have D rather than C. May I ask, do you make your own broth? It can offer a lot of nutrients.
Paula
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
((Big Hugs)) Judy. I'm sorry that happened to you in the night. I am also having a really hard time (not) eating around other people. Right now it's easier for me to just eat alone, rather than to try to eat my food with everyone else eating their food. It's lonely. I too am grateful to have you and everyone else here. -Sarah
Judy, so sorry you are having these issues. We all understand how annoying it can be to lose control, especially in the middle of the night. My GI said the middle of the night trips were a clear indicator of colitis. The colon should be at rest while you sleep.
I remember before dx sleeping in a diaper with a blue pad under me in case the diaper leaked. Not very pleasant or very sexy
Hang in there, it's a journey.
I remember before dx sleeping in a diaper with a blue pad under me in case the diaper leaked. Not very pleasant or very sexy
Hang in there, it's a journey.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
I haven't tried making my own broth, Paula. I probably should. Just haven't had the energy to want to "cook" anything. Now that you've suggested it, I may either try it myself or see if my dh would be willing. Do you think it would have more nutrients than the boxed? It sounds like it would be tasty.
Sarah, I am doing better at being able to eat around others, but not at a sit-down meal in a restaurant during the holidays :} I actually went to the local Greek restaurant with my DIL and Honeys and ordered plain rice with plain fish in very little if no oil. When the plate arrived the rice had parsley sprinkled over the top (I violently react to parsley or any kind of leaves), and the fish had much more oil than he'd indicated he would do. By then I was so hungry that I age it, but definitely paid for it that night. :( So I'm avoiding restaurants unless I have my own with me.
Thanks so much Theresa. You're right, you know ... it is a journey. I'd never thought about it in that way before, but that's so true. And there are definitely mountains and hills along the way. And I'm looking so forward to the destination!
I appreciate all the encouragement. And I hope you are all in a position to be able to make the best of your holidays. I think of all of you often. It's so nice to not feel alone in this during this time of year. And for all of you newbies, I'm definitely feeling your "pain" ...
Judy
Sarah, I am doing better at being able to eat around others, but not at a sit-down meal in a restaurant during the holidays :} I actually went to the local Greek restaurant with my DIL and Honeys and ordered plain rice with plain fish in very little if no oil. When the plate arrived the rice had parsley sprinkled over the top (I violently react to parsley or any kind of leaves), and the fish had much more oil than he'd indicated he would do. By then I was so hungry that I age it, but definitely paid for it that night. :( So I'm avoiding restaurants unless I have my own with me.
Thanks so much Theresa. You're right, you know ... it is a journey. I'd never thought about it in that way before, but that's so true. And there are definitely mountains and hills along the way. And I'm looking so forward to the destination!
I appreciate all the encouragement. And I hope you are all in a position to be able to make the best of your holidays. I think of all of you often. It's so nice to not feel alone in this during this time of year. And for all of you newbies, I'm definitely feeling your "pain" ...
Judy
The holidays suck as far as eating with other people. Last night we went to a holiday party and the food choices were any number of chips, pita/hummus, chili, mexican dip, guacamole with sour cream, cheeses, raw veggies, shrimp in butter & parmesan, cookies, etc. I ate dinner before we arrived so that I wouldn't be hungry, but still... I ate a couple of corn chips after looking at the bag.
The hard part is that people notice you're not eating anything. You get so tired of explaining and it sounds so much like whining about your health problems.
Has anyone developed a short, concise, even humorous way to handle this?
But, thank God, unlike some of you I do have to poop during the night but I'm such a light sleeper that, so far, no accidents!
The hard part is that people notice you're not eating anything. You get so tired of explaining and it sounds so much like whining about your health problems.
Has anyone developed a short, concise, even humorous way to handle this?
But, thank God, unlike some of you I do have to poop during the night but I'm such a light sleeper that, so far, no accidents!
Judy,
The reason why homemade broth is better, is the same reason why all homecooked food is safer for us — if we eat enough commercially-processed foods, we are virtually guaranteed to encounter cross-contamination with gluten or one of our other food sensitivities. The amounts may be tiny, but that can easily be enough to keep the inflammation going, and prevent us from achieving remission.
Tex
The reason why homemade broth is better, is the same reason why all homecooked food is safer for us — if we eat enough commercially-processed foods, we are virtually guaranteed to encounter cross-contamination with gluten or one of our other food sensitivities. The amounts may be tiny, but that can easily be enough to keep the inflammation going, and prevent us from achieving remission.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I like potlucks best. If it's held at someone's home or at the office, I eat before going to an event and bring something safe to share. I have had other people thank me for doing this because they too have an issue with gluten or dairy or whatever. You can put the plainest thing in a pretty dish and make it look festive. I put a little card/sign with it saying GF/DF etc.
I have tried various approaches to the "explanation" (why do people we hardly know feel it is any of their $#%@ business anyway?) but the one that usually works best even though it is technically a lie is that I have allergies. People don't argue or ask a lot of questions about that, they just accept it as a fact. Then I ask them a question or change the subject. For people (acquaintances) who persist strongly in asking questions that I don't want to answer, I will put on my best mysterious smile and ask "why do you want to know?" They don't usually have a good answer for that. I have toyed with the idea of telling the nosy parkers a really gruesome story, but I haven't actually done it yet.
Other stuff, we just have to put up with. I recently went to a Happy Hour after work and just had water, and had to endure some ribbing about going easy on my drinks and being cut off, etc. There was no food that I could eat, either -- there are some places where there's just literally nothing on the menu that I can have. Everything is breaded and/or drenched in cheese, etc.
I have tried various approaches to the "explanation" (why do people we hardly know feel it is any of their $#%@ business anyway?) but the one that usually works best even though it is technically a lie is that I have allergies. People don't argue or ask a lot of questions about that, they just accept it as a fact. Then I ask them a question or change the subject. For people (acquaintances) who persist strongly in asking questions that I don't want to answer, I will put on my best mysterious smile and ask "why do you want to know?" They don't usually have a good answer for that. I have toyed with the idea of telling the nosy parkers a really gruesome story, but I haven't actually done it yet.
Other stuff, we just have to put up with. I recently went to a Happy Hour after work and just had water, and had to endure some ribbing about going easy on my drinks and being cut off, etc. There was no food that I could eat, either -- there are some places where there's just literally nothing on the menu that I can have. Everything is breaded and/or drenched in cheese, etc.
Courage is the price that life exacts for granting peace; the soul that knows it not, knows no release from little things. - Amelia Earhart
IMO, this is the reason why Twitter is so successful — these days, for some reason or other, almost everyone thinks that they are an expert on everything, and because of even more convoluted logic, they mistakenly think that everyone else wants to hear their "expert" opinion.Meg wrote:(why do people we hardly know feel it is any of their $#%@ business anyway?)
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You're right, Tex. I don't know why I didn't think about that. It never crossed my mind. I know fresh ingredients are always tastier and better for us, I am just not used to considering the other "hidden" ingredients in cans and cartons yet. It's coming slowly.
I actually just found a site with a slow-cooker recipe for all kinds of broths, so we're off to the store to get what we need. I'm actually beginning to think of this as an adventure! {I hope that feeling lasts :}
Judy
I actually just found a site with a slow-cooker recipe for all kinds of broths, so we're off to the store to get what we need. I'm actually beginning to think of this as an adventure! {I hope that feeling lasts :}
Judy