Dear Faith
Sounds like you are running out of runway a bit with the food options..... When you eat chicken is it just the lean breasts or other parts that include more fat?
Hoping you can find more food options soon...
All the best, Ant
Mastocytic Enterocolitis
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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faithberry
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Hi Faith,
I am also double DQ 1 (subtype 5,6) - same as Gloria and Polly. I did have neuro problems from gluten (peripheral neuropathy/parasthesisas) that went away after I got off gluten. I never got a formal GI diagnosis, but I clearly have eith MC or ME, or both.
Sorry to hear of your limited diet. You remind me of my sister. She had been doing so well and adding new foods and then Wham! All of a sudden the only thing she thought she could eat was chicken and rice. She can't eat chicken with bones or chicken with skin or too much fat. She eats lean baked breasts and white rice with sea salt.
Without the MRT test it will be difficult to see what foods might be safe. Have you tried lamb? With anything new food you should allow 3 days for washout after eating it - to make sure there is no delayed reaction. Then add that food to a rotation of every 3 -4 days. This is tedious I know, but it will be the safest way to add foods. I know when you are so limited and find foods you like, you want them al the time, but have small amounts every 3-4 days. I can rotate most foods, except chicken and rice. I make a huge effort to not overdo other foods so I don't develop new sensitivities, but sometimes it's hard.
I hope that when you get back on your meds you will be more tolerant.
Take care,
Mary Beth
I am also double DQ 1 (subtype 5,6) - same as Gloria and Polly. I did have neuro problems from gluten (peripheral neuropathy/parasthesisas) that went away after I got off gluten. I never got a formal GI diagnosis, but I clearly have eith MC or ME, or both.
Sorry to hear of your limited diet. You remind me of my sister. She had been doing so well and adding new foods and then Wham! All of a sudden the only thing she thought she could eat was chicken and rice. She can't eat chicken with bones or chicken with skin or too much fat. She eats lean baked breasts and white rice with sea salt.
Without the MRT test it will be difficult to see what foods might be safe. Have you tried lamb? With anything new food you should allow 3 days for washout after eating it - to make sure there is no delayed reaction. Then add that food to a rotation of every 3 -4 days. This is tedious I know, but it will be the safest way to add foods. I know when you are so limited and find foods you like, you want them al the time, but have small amounts every 3-4 days. I can rotate most foods, except chicken and rice. I make a huge effort to not overdo other foods so I don't develop new sensitivities, but sometimes it's hard.
I hope that when you get back on your meds you will be more tolerant.
Take care,
Mary Beth
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faithberry
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Mary Beth, Double DQ1 Sister,
Thanks for the encouragement! I will definitely try rotation as you recommend if I can get my body to accept any new food. I'm impetuous so this is hard for me, but I think I have to bite the bullet. Like your sister, I was eating only chicken breasts. I can't tolerate the fatty pieces either.
The rashes I'm getting do not look like hives to me, but I was reading about a rare type of hives that comes from eating hot food. I think this might be a factor for me. So I'm going to experiment with trying to eat my food once it's cooled down to room temperature. I did that with my last meal which was white rice, ghee, and my one piece of chicken for today day. I didn't get the rashes, but I did still get a hot flash and mild burning in the gut. So I may indeed need to set aside the chicken for a few days, but maybe there's something to the hot food factor. I'll keep trying it out.
Thanks again!
Thanks for the encouragement! I will definitely try rotation as you recommend if I can get my body to accept any new food. I'm impetuous so this is hard for me, but I think I have to bite the bullet. Like your sister, I was eating only chicken breasts. I can't tolerate the fatty pieces either.
The rashes I'm getting do not look like hives to me, but I was reading about a rare type of hives that comes from eating hot food. I think this might be a factor for me. So I'm going to experiment with trying to eat my food once it's cooled down to room temperature. I did that with my last meal which was white rice, ghee, and my one piece of chicken for today day. I didn't get the rashes, but I did still get a hot flash and mild burning in the gut. So I may indeed need to set aside the chicken for a few days, but maybe there's something to the hot food factor. I'll keep trying it out.
Thanks again!
Faith
LC (in remission)
LC (in remission)
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faithberry
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I've been getting rosacea on my face (redness on the cheeks and nose), which can come about due to persistent flushing, for awhile now. The funny thing is that I don't flush in my face, but in my knees, thighs, and abdomen. I only figured out it was rosacea a few days ago, but I now recall a number of mast cell friends mentioned this problem too.
There are some very helpful information sites on the topic. You can find out about foods that trigger flushing as well as environmental factors (overheating, cold weather, wind, etc.) and lifestyle factors (hot showers, large meals, hot beverages.) It seems this information might be very helpful for those dealing with mast cell issues! If you are interested you can google rosacea triggers and look at 3 or 4 sites. Most of the recommendations are similar but sometimes explained in greater detail. There is individual variation in terms of triggers and tolerance levels, but quite a bit of consistency too.
Mary Beth, bananas are one of the common triggers. I wonder if this is due to amine content or high sugar content. Sugar is one of the culprits as it's a vasodilator.
I've been trying to apply the various principles like eating smaller meals, waiting until my food cools down before starting to eat, and so on. I realized that it's not always the specific food that is the problem. Sometimes, it's the temperature or amount eaten.
I'm just starting to play with this to see if it can make a difference for me. It's like another layer on top of specific food intolerances!
There are some very helpful information sites on the topic. You can find out about foods that trigger flushing as well as environmental factors (overheating, cold weather, wind, etc.) and lifestyle factors (hot showers, large meals, hot beverages.) It seems this information might be very helpful for those dealing with mast cell issues! If you are interested you can google rosacea triggers and look at 3 or 4 sites. Most of the recommendations are similar but sometimes explained in greater detail. There is individual variation in terms of triggers and tolerance levels, but quite a bit of consistency too.
Mary Beth, bananas are one of the common triggers. I wonder if this is due to amine content or high sugar content. Sugar is one of the culprits as it's a vasodilator.
I've been trying to apply the various principles like eating smaller meals, waiting until my food cools down before starting to eat, and so on. I realized that it's not always the specific food that is the problem. Sometimes, it's the temperature or amount eaten.
I'm just starting to play with this to see if it can make a difference for me. It's like another layer on top of specific food intolerances!
Faith
LC (in remission)
LC (in remission)
I finally got my histamine results back and they were normal. I really didn't feel symptomatic that day, so I am not surprised. I fact, most days I feel pretty good. The itching that I had went away. I have avoided bananas, but I am suspicious that it may have been related to the weather and not food. I noticed that when it's been raining here for a few days it tends to happen - possibly mold, which I am allergic to. I have also noticed that everything gets worse with my period.
I have been tolerating food very well. In fact, I think I am gaining weight from the enjoyment of being able to eat a bit more. My stools are better than they were a few months ago, and again, normal on some days, but formed and a bit mushy other days. I've done trials with eliminating many suspicious foods, like corn and fructose, but don't see a pattern. My question to those who have healed: was achieving normans a gradual/incremental process or was it more instantaneous . . .meaning when you eliminated the offending food you instantly noticed formed stools???
Mary Beth
I have been tolerating food very well. In fact, I think I am gaining weight from the enjoyment of being able to eat a bit more. My stools are better than they were a few months ago, and again, normal on some days, but formed and a bit mushy other days. I've done trials with eliminating many suspicious foods, like corn and fructose, but don't see a pattern. My question to those who have healed: was achieving normans a gradual/incremental process or was it more instantaneous . . .meaning when you eliminated the offending food you instantly noticed formed stools???
Mary Beth
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faithberry
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Mary Beth,
I'm so glad you are seeing improvement! It's wonderful that you are tolerating food so well. If you find there's a connection to your periods, you might consider checking "catamenial anaphylaxis" which occurs during periods. Rainy weather is a problem for me too. I always am worse in the autumn. I'm not surprised by your histamine results either since you seem to have MCAD or IA or something like that so the numbers would probably only be up when you are having symptoms or an attack.
I am still reacting to all food, but not at every meal. I decided that it must be a combination of factors including the very cold, rainy, windy weather (I got more symptoms the same time last year) and I've had recent exposures to perfume and essential oils. I've read that once the mast cells are activated, they don't settle down right away necessarily. They can stay grumpy for awhile. Plus, I think I tried too many foods the last few months and it's got my immune system in an uproar. I have a 4-day break coming up and am going to stay secluded, warm, and rest a lot.
I've decided that I can't give up on all food and need to keep eating! The main symptoms I'm getting are redness on my knees, burning on my thighs, itching, and burning in the gut. if I take a Zantac the latter goes away. I don't like taking medications, but I think I will have to keep with the Zantac for now...today I had to take 3 - 150 mg, but that's not unusual for masto folks. For the moment I am eating mostly white rice, zucchini every third day, will try to rotate chicken which gives me stronger reactions, and a little ghee. And I'm going to try to add one or two other vegetables. I even get reactions to the white rice when I eat it entirely on it's own.
We are going to a warmer climate for the winter (in about 4 weeks) and I think that will calm my system right down. Just hope I can survive till then :-)
Generally though, I feel OK. More energy, no joint/muscle problems, sleeping well.
I wonder how Julie is.
Stay well!
I'm so glad you are seeing improvement! It's wonderful that you are tolerating food so well. If you find there's a connection to your periods, you might consider checking "catamenial anaphylaxis" which occurs during periods. Rainy weather is a problem for me too. I always am worse in the autumn. I'm not surprised by your histamine results either since you seem to have MCAD or IA or something like that so the numbers would probably only be up when you are having symptoms or an attack.
I am still reacting to all food, but not at every meal. I decided that it must be a combination of factors including the very cold, rainy, windy weather (I got more symptoms the same time last year) and I've had recent exposures to perfume and essential oils. I've read that once the mast cells are activated, they don't settle down right away necessarily. They can stay grumpy for awhile. Plus, I think I tried too many foods the last few months and it's got my immune system in an uproar. I have a 4-day break coming up and am going to stay secluded, warm, and rest a lot.
I've decided that I can't give up on all food and need to keep eating! The main symptoms I'm getting are redness on my knees, burning on my thighs, itching, and burning in the gut. if I take a Zantac the latter goes away. I don't like taking medications, but I think I will have to keep with the Zantac for now...today I had to take 3 - 150 mg, but that's not unusual for masto folks. For the moment I am eating mostly white rice, zucchini every third day, will try to rotate chicken which gives me stronger reactions, and a little ghee. And I'm going to try to add one or two other vegetables. I even get reactions to the white rice when I eat it entirely on it's own.
We are going to a warmer climate for the winter (in about 4 weeks) and I think that will calm my system right down. Just hope I can survive till then :-)
Generally though, I feel OK. More energy, no joint/muscle problems, sleeping well.
I wonder how Julie is.
Stay well!
Faith
LC (in remission)
LC (in remission)
Faith,
Hopefully the move to warmer weather will help. My husband has always suspected the weather and environmental causes for me. I didn't get symptomatic until we moved to Houston - very hot, humid and polluted.
I did a quick search on catamenial anaphylaxis and it does seem to fit. I sure wish I knew if my big reactions were during times of PMS. I had an oophorectomy in Aug 2008 and my GYN said that with just one ovary the tendency is to stop menstruating within 2 years. I read the treatment is Lupron, which is the most evil drug IMO. I took it years ago for a fibroid and it was so harsh. My symptoms were so awful I filed an FDA report.
I agree, I think I have MCAD with a normal amount of mast cells that act up every now and then. You are absolutely right that when your mast cells act up that your immune system stays agitated for a while. There was just a good discussion on this topic on a food sensitivity forum I follow. That's why I think the MRT plan worked for me. It took away many of the foods that released mediators, allowing my immune system to calm down. I am hopeful for a more normal existence once my leaky gut heals and I go into menopause. Oh, and a move from Houston would be icing on the cake. Santa Fe here I come - love it there.
So sorry to hear of your restricted diet. I'll be looking forward to hearing some good new from you after you move.
Yes, we seem to have lost Julie and a few others that were following. Hope they are doing well.
Mary Beth
Hopefully the move to warmer weather will help. My husband has always suspected the weather and environmental causes for me. I didn't get symptomatic until we moved to Houston - very hot, humid and polluted.
I did a quick search on catamenial anaphylaxis and it does seem to fit. I sure wish I knew if my big reactions were during times of PMS. I had an oophorectomy in Aug 2008 and my GYN said that with just one ovary the tendency is to stop menstruating within 2 years. I read the treatment is Lupron, which is the most evil drug IMO. I took it years ago for a fibroid and it was so harsh. My symptoms were so awful I filed an FDA report.
I agree, I think I have MCAD with a normal amount of mast cells that act up every now and then. You are absolutely right that when your mast cells act up that your immune system stays agitated for a while. There was just a good discussion on this topic on a food sensitivity forum I follow. That's why I think the MRT plan worked for me. It took away many of the foods that released mediators, allowing my immune system to calm down. I am hopeful for a more normal existence once my leaky gut heals and I go into menopause. Oh, and a move from Houston would be icing on the cake. Santa Fe here I come - love it there.
So sorry to hear of your restricted diet. I'll be looking forward to hearing some good new from you after you move.
Yes, we seem to have lost Julie and a few others that were following. Hope they are doing well.
Mary Beth
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faithberry
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Mary Beth,
Here's one person's personal take on her diagnosed catamenial anaphylaxis and protein foods from the mastcelldisorders.lefora.com:
Hope you can get to Santa Fe!!!! It's not any fun living in a place that makes you ill. I know the cold weather effects me. I don't know about hot weather, but I know I have a very small comfort range in terms of temperature. I get irritable when it's too hot, irritability is a mast cell symptom!
I want to check out MRT soon.
I really think I might have TMEP (cutaneous masto) as I have spider veins popping up. But they are so subtle that the doctor would probably think I'm nuts.
Stay well, Faith
Here's one person's personal take on her diagnosed catamenial anaphylaxis and protein foods from the mastcelldisorders.lefora.com:
Don't know if that might resonate for you or if it's a very individual thing. The connection with her period became clear after being in the ER a number of times when they always ask at intake if you are pregnant and she would always say no because she's on her period. I know Dr. Castells has dx'd people with this; don't know about Dr. Greenberger (oops, is that his name....you know, your doctor.)In my journal taking a few things other than my menstrual cycle stood out to me. I noticed a pattern with eating a lot of protein, in particular animal protein such as red meats. Thinking back on this now and making the protein connection I've often wondered if having that Tryptase released during that anaphylactic reaction the first time to crustaceans while I was on my peroid triggered something. I looked this up:
LH is a heterodimeric glycoprotein. Each monomeric unit is a glycoprotein molecule; one alpha and one beta subunit make the full, functional protein.
It made sense to me that the two may be related as LH is essential for reproduction and directly related to ovulation AND it controls proteins. On a whim I reduced the amount of red meat proteins in my diet. I also do have a true allergy to crustaceans now and avoid them totally. I noticed a difference immediately in the frequency in reactions. Since my cycle is not concrete, if I have had a lot of protein in a day from eggs to poultry or even high in protein legumes, and my period sneaks up on me? Full blown reaction.
Hope you can get to Santa Fe!!!! It's not any fun living in a place that makes you ill. I know the cold weather effects me. I don't know about hot weather, but I know I have a very small comfort range in terms of temperature. I get irritable when it's too hot, irritability is a mast cell symptom!
I want to check out MRT soon.
I really think I might have TMEP (cutaneous masto) as I have spider veins popping up. But they are so subtle that the doctor would probably think I'm nuts.
Stay well, Faith
Faith
LC (in remission)
LC (in remission)
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faithberry
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It finally dawned on me that it's the chicken that's been triggering my reactions. When I stop eating the chicken, the symptoms progressively reduce. I haven't been able to get organic chicken, so I'm either super sensitive to the level of free glutamates in the chicken or it is injected with something. Today I had a half cup of brown potatoes and one piece of chicken and I've been pooping all day. Pretty funny since I feel the urge, but since I'm constipated what comes out is paltry. Until the last time, when I really felt the urge. It wasn't D. but it did come out quickly. Some types of potatoes have glutamates too. So who knows.
Back to white rice again. I think once I stop aggravating myself with eating the chicken, my system will calm down and hopefully I'll be able to eat a few vegetables again. I did feel pretty good when I was eating white rice, a few vegies, and clarified butter several months ago, but then I started this round of diet experiments. I've learned a lot from these experiments, but have inflamed my body in the meantime.
Faith
Back to white rice again. I think once I stop aggravating myself with eating the chicken, my system will calm down and hopefully I'll be able to eat a few vegetables again. I did feel pretty good when I was eating white rice, a few vegies, and clarified butter several months ago, but then I started this round of diet experiments. I've learned a lot from these experiments, but have inflamed my body in the meantime.
Faith
Faith
LC (in remission)
LC (in remission)
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faithberry
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Hi,
How long can a person go without vitamin C?
I'm not having huge luck with vegetables. I seem to be able to tolerate 2 or 3 slices of zucchini at a meal (about 1/4th cup), but if I up it to 1/2 cup then it's a no go. Especially if it's on a day when I've been exposed to environmental triggers like fragrance. I don't get digestive symptoms. I get nerve/joint/muscle pain always in the same spots.
It was stupid to eat the non-organic chicken, but I thought it was safe in terms of gluten at least. Although it was stupid, I learned a huge amount by testing it out.
The dermatologist is sure that I don't have TMEP so I can relax about that. I'm wondering if my cycling reactivated Epstein Barr virus could be a trigger for the mast cells. It's interesting that my neutrophils dropped when I was eating chicken again. I wonder if this could be the effect of glutamates, which can depress taurine which I believe may be needed to make neutrophils, but I'm not certain about that.
My latest mind wanderings!
Hope everyone is well.
How long can a person go without vitamin C?
I'm not having huge luck with vegetables. I seem to be able to tolerate 2 or 3 slices of zucchini at a meal (about 1/4th cup), but if I up it to 1/2 cup then it's a no go. Especially if it's on a day when I've been exposed to environmental triggers like fragrance. I don't get digestive symptoms. I get nerve/joint/muscle pain always in the same spots.
It was stupid to eat the non-organic chicken, but I thought it was safe in terms of gluten at least. Although it was stupid, I learned a huge amount by testing it out.
The dermatologist is sure that I don't have TMEP so I can relax about that. I'm wondering if my cycling reactivated Epstein Barr virus could be a trigger for the mast cells. It's interesting that my neutrophils dropped when I was eating chicken again. I wonder if this could be the effect of glutamates, which can depress taurine which I believe may be needed to make neutrophils, but I'm not certain about that.
My latest mind wanderings!
Hope everyone is well.
Faith
LC (in remission)
LC (in remission)
Faith,
Here's some info from the Office of Dietary Supplements on vitamin C deficiency. I know you have some of the symptoms. Sorry things aren't getting any better for you.
Acute vitamin C deficiency leads to scurvy [7,8,11]. The timeline for the development of scurvy varies, depending on vitamin C body stores, but signs can appear within 1 month of little or no vitamin C intake (below 10 mg/day) [6,7,21,22]. Initial symptoms can include fatigue (probably the result of impaired carnitine biosynthesis), malaise, and inflammation of the gums [4,11]. As vitamin C deficiency progresses, collagen synthesis becomes impaired and connective tissues become weakened, causing petechiae, ecchymoses, purpura, joint pain, poor wound healing, hyperkeratosis, and corkscrew hairs [1,2,4,6-8]. Additional signs of scurvy include depression as well as swollen, bleeding gums and loosening or loss of teeth due to tissue and capillary fragility [6,8,9]. Iron deficiency anemia can also occur due to increased bleeding and decreased nonheme iron absorption secondary to low vitamin C intake [6,11]. In children, bone disease can be present [6]. Left untreated, scurvy is fatal [6,9].
Until the end of the18th century, many sailors who ventured on long ocean voyages, with little or no vitamin C intake, contracted or died from scurvy. During the mid-1700s, Sir James Lind, a British Navy surgeon, conducted experiments and determined that eating citrus fruits or juices could cure scurvy, although scientists did not prove that ascorbic acid was the active component until 1932 [23-25].
Today, vitamin C deficiency and scurvy are rare in developed countries [8]. Overt deficiency symptoms occur only if vitamin C intake falls below approximately 10 mg/day for many weeks [5-8,21,22]. Vitamin C deficiency is uncommon in developed countries but can still occur in people with limited food variety.
Mary Beth
Here's some info from the Office of Dietary Supplements on vitamin C deficiency. I know you have some of the symptoms. Sorry things aren't getting any better for you.
Acute vitamin C deficiency leads to scurvy [7,8,11]. The timeline for the development of scurvy varies, depending on vitamin C body stores, but signs can appear within 1 month of little or no vitamin C intake (below 10 mg/day) [6,7,21,22]. Initial symptoms can include fatigue (probably the result of impaired carnitine biosynthesis), malaise, and inflammation of the gums [4,11]. As vitamin C deficiency progresses, collagen synthesis becomes impaired and connective tissues become weakened, causing petechiae, ecchymoses, purpura, joint pain, poor wound healing, hyperkeratosis, and corkscrew hairs [1,2,4,6-8]. Additional signs of scurvy include depression as well as swollen, bleeding gums and loosening or loss of teeth due to tissue and capillary fragility [6,8,9]. Iron deficiency anemia can also occur due to increased bleeding and decreased nonheme iron absorption secondary to low vitamin C intake [6,11]. In children, bone disease can be present [6]. Left untreated, scurvy is fatal [6,9].
Until the end of the18th century, many sailors who ventured on long ocean voyages, with little or no vitamin C intake, contracted or died from scurvy. During the mid-1700s, Sir James Lind, a British Navy surgeon, conducted experiments and determined that eating citrus fruits or juices could cure scurvy, although scientists did not prove that ascorbic acid was the active component until 1932 [23-25].
Today, vitamin C deficiency and scurvy are rare in developed countries [8]. Overt deficiency symptoms occur only if vitamin C intake falls below approximately 10 mg/day for many weeks [5-8,21,22]. Vitamin C deficiency is uncommon in developed countries but can still occur in people with limited food variety.
Mary Beth
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faithberry
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Oh gosh, I'm going to be the only person in the modern world with scurvy and it can be fatal. Yikes! OK, I will have to knuckle down and eat some veg. even if it gives me reactions. This is driving me so nuts. If I eat, I continue the cycle of inflammation. If I don't eat, I don't get the proper nutrients to intervene in the inflammatory process. It sucks. It's a Catch-22. How can a person be this reactive????? I'm hoping the change of environment will help me out.
Thank you so much for the information, Mary Beth.
Thank you so much for the information, Mary Beth.
Faith
LC (in remission)
LC (in remission)
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faithberry
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Hi Mary Beth,
We have a very high quality water filter. Our water does contain a lot of calcium, but that might be beneficial since I can't take calcium supplements.
That's a good suggestion about the Spectracell test. It's interesting that all the standard nutrient blood tests my doctor has done in the last 2 years have come back normal except for D, including B12, folic acid, zinc, manganese, copper (for DAO processing), calcium, and my protein profile. I realize the standard tests aren't as effective as some of the alternative tests, but it's interesting that I'm not falling off the end of the scale. I was taking a LOT of supplements until 9-12 months ago and after that I was eating a lot of grains, which are rich in certain types of minerals and vitamins, and although eating only a limited number of vegetables, I ate as much quantity as I could tolerate. The real diet crisis has been in the last six months. Hopefully, I wasn't starting from a seriously depleted nutrient place due to all the supplements I had taken previously. But I know C is not stored in the body, nor are many of the B vitamins.
I decided to bite the bullet and have a 1/4 of an orange at breakfast today. I had reactions, but not severe. Then I just had 1/8th of an orange this afternoon, to see if I can tolerate that without reactions. Strangely, I get fewer reactions from an orange than say a kiwi or a nectarine. Maybe because they are low in oxalates. But they are acidic which is not good for colitis and I will often get a mouth sore a day or so after eating one. I looked on nutrition data and most vegetables and many fruits just don't contain high enough amounts of Vitamin C unless you are eating decent servings. So I decided to go straight for the largest amount of Vitamin C I could get:-) --the orange---without causing too severe of a reaction. Will see how I fare tonight.
Last night I had strong reactions at bedtime, probably due to a fragrance exposure because I only had rice yesterday. I took an H1 and H2 antihistamine and they went away pretty quickly. Maybe I really need to stay on top of the medication or even increase it to be able to handle some foods.
I'm going shopping tomorrow to see what other food possibilities I can dig up. Thanks for the support.
We have a very high quality water filter. Our water does contain a lot of calcium, but that might be beneficial since I can't take calcium supplements.
That's a good suggestion about the Spectracell test. It's interesting that all the standard nutrient blood tests my doctor has done in the last 2 years have come back normal except for D, including B12, folic acid, zinc, manganese, copper (for DAO processing), calcium, and my protein profile. I realize the standard tests aren't as effective as some of the alternative tests, but it's interesting that I'm not falling off the end of the scale. I was taking a LOT of supplements until 9-12 months ago and after that I was eating a lot of grains, which are rich in certain types of minerals and vitamins, and although eating only a limited number of vegetables, I ate as much quantity as I could tolerate. The real diet crisis has been in the last six months. Hopefully, I wasn't starting from a seriously depleted nutrient place due to all the supplements I had taken previously. But I know C is not stored in the body, nor are many of the B vitamins.
I decided to bite the bullet and have a 1/4 of an orange at breakfast today. I had reactions, but not severe. Then I just had 1/8th of an orange this afternoon, to see if I can tolerate that without reactions. Strangely, I get fewer reactions from an orange than say a kiwi or a nectarine. Maybe because they are low in oxalates. But they are acidic which is not good for colitis and I will often get a mouth sore a day or so after eating one. I looked on nutrition data and most vegetables and many fruits just don't contain high enough amounts of Vitamin C unless you are eating decent servings. So I decided to go straight for the largest amount of Vitamin C I could get:-) --the orange---without causing too severe of a reaction. Will see how I fare tonight.
Last night I had strong reactions at bedtime, probably due to a fragrance exposure because I only had rice yesterday. I took an H1 and H2 antihistamine and they went away pretty quickly. Maybe I really need to stay on top of the medication or even increase it to be able to handle some foods.
I'm going shopping tomorrow to see what other food possibilities I can dig up. Thanks for the support.
Faith
LC (in remission)
LC (in remission)