An update on my LDN therapy: A Miracle? An unequivocal YES!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Dear Members I would like to know if L.D.N. is a good option for me. Ican get it in Ottawa ,I livein Montreal . Iam on entrecort now once or twice a week . Ihave D once in the morning.I also have a malt lymphonia but we are only watching it now, I do not need any treatment for it. My energy level is good I work out every day I would try the L.D.N.instead of entrecort? Is this a good idea? or should I just stay on a low dose od entrecort?Iam also trying cannabis oils , has anyone tried this?
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wmonique2
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an update on my LDN therapy: A Miracle? An unequivocal YES!
Erica,
I got rid of entrecort when I started with LDN. Both of them together gave me constipation. I only take LDN now. I also got rid of Lialda and Alevil. Only LDN.
Go to IBD LDN facebook page if you are interested in talking to more people about it.
There is also Got Endorphins on FB.
I am almost 4 years in remission.
I got rid of entrecort when I started with LDN. Both of them together gave me constipation. I only take LDN now. I also got rid of Lialda and Alevil. Only LDN.
Go to IBD LDN facebook page if you are interested in talking to more people about it.
There is also Got Endorphins on FB.
I am almost 4 years in remission.
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
LDN
I started LDN 2 years ago to treat PMR (Polymyalgia Rheumatica) It was like a miracle and soon the joint and muscle pain lessened and the disappeared. I couldn't turn over in bed without help or pick up my cup of tea, let alone lift the teapot. I have stayed on 4.5 mg since then.
However , the LDN has not helped or even impacted my gut issues! It just seems to prove that our bodies are all different and react to various mess in very different ways.
If your doc is willing to prescribe LdN, it's certainly worth a try...there seem to be no side effects other than improved sleep and improved mood....
Sunny
However , the LDN has not helped or even impacted my gut issues! It just seems to prove that our bodies are all different and react to various mess in very different ways.
If your doc is willing to prescribe LdN, it's certainly worth a try...there seem to be no side effects other than improved sleep and improved mood....
Sunny
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Upton Sinclair
Hi tcmarv62,
It appears that LDN helps for most autoimmune diseases, but not for MC if MC is the only autoimmune disease that you have. If some other disease is preventing you from reaching remission with MC, then it's worth trying. But so far, no one has reported having any luck using LDN to treat MC specifically (alone).
Tex
It appears that LDN helps for most autoimmune diseases, but not for MC if MC is the only autoimmune disease that you have. If some other disease is preventing you from reaching remission with MC, then it's worth trying. But so far, no one has reported having any luck using LDN to treat MC specifically (alone).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You're very welcome. It shouldn't hurt to try, because LDN usually doesn't cause any digestive issues, but I wouldn't get my hopes up. MC is a tough disease to control.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gigi Shelley
- Posts: 2
- Joined: Sat Oct 28, 2017 7:14 pm
Hello, I am learning so much from all of you on this site. I have a ways to go. Is wine okay with CC when things have improved? I am GF SF and I have made improvements since this flared up 5 weeks ago. I have not seen any info on alcohol. My daughters and my grandson have celiac disease. I took a genetic test which put me at a very high risk for celiac. I know that my daughters are very careful about drinking alcohol. I just want to be sure before I have wine. I am not ready for wine yet. I did read where turmeric helps with inflammation. I am using drops, and I do think it is helping. Thank you to everyone![/b]
Gigi,
Larger amounts of alcohol can cause increased gut permeability (leaky gut), or make it worse, so it's best to do some healing before trying more than small amounts. If you have any histamine issues, alcohol will probably make them worse because it's a high-histamine "food". Wines are usually OK if you don't have any problems with the sulfites. If you do, look for low-sulfite wines.
You're very welcome.
Tex
Larger amounts of alcohol can cause increased gut permeability (leaky gut), or make it worse, so it's best to do some healing before trying more than small amounts. If you have any histamine issues, alcohol will probably make them worse because it's a high-histamine "food". Wines are usually OK if you don't have any problems with the sulfites. If you do, look for low-sulfite wines.
You're very welcome.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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dolson
- Gentoo Penguin
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- Location: Hilton Head, SC
- Contact:
Hi Monique
Are you a T1 Diabetic with MC? I see you live in GA. Are you near Savannah? I may want to read your book since I'm a T1 Diabetic with MC. I'm on the Specific Carbohydrate Diet which Dr. Fine advised me to use. My diet says I can eat peanut butter with no sugar, but peanut butter causes problems, thanks to Wayne's site. I have to get tested. I am feeling better but I have to know what NOT TO EAT! Any advice you can give this diabetic will be greatly appreciated. Dorothy
Hi Dorothy,
I'm not sure how often Monique checks the forum, but hopefully she will notice your post soon. In the meantime, I don't believe she will mind if I confirm that she is indeed a T1 Diabetic who has MC. I believe she lives in Atlanta.
If you need a response from her sooner, she probably wouldn't mind if you sent her a PM. You can do so by clicking on the "pm" button at the bottom of any of her posts to open a message window that you can type into.
Tex
I'm not sure how often Monique checks the forum, but hopefully she will notice your post soon. In the meantime, I don't believe she will mind if I confirm that she is indeed a T1 Diabetic who has MC. I believe she lives in Atlanta.
If you need a response from her sooner, she probably wouldn't mind if you sent her a PM. You can do so by clicking on the "pm" button at the bottom of any of her posts to open a message window that you can type into.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
wmonique2
- Rockhopper Penguin
- Posts: 1048
- Joined: Fri Aug 03, 2012 9:06 am
- Location: Georgia, U.S
- Contact:
An update on my LDN therapy: A Miracle? An unequivocal YES!
Hi Dorothy,
You're asking what NOT to eat. I don't eat gluten, legumes, vegetables with too much fiber (like raw cabbage) unless they are very well cooked. No corn. No fried foods, chocolate, caffeine, sugar, processed foods, no nuts, no alcohol. I don't touch peanut butter. I do very well on protein (mostly fish or sardines and chicken) and no meat since I find it difficult to digest. I do eat fruits without skins ---- peeled apples but no grapes. Berries are great. Low in sugar and hardly no fiber. When I have greens like kale I cook them well.
I don't do the SCD diet since it is for Crohns. It is a difficult diet and hard to maintain. It's not necessary for us to be on the SCD diet.
I tested with Dr Fine and I found out that I can have dairy. I don't drink milk but I do eat cheese.
I am on a pump and count my carbs. I also have a CGM system called Dexcom. I am careful with what I eat since I don't like high sugar spikes that I can't bring down easily. I have about 75mg-100mg of carbs a day, sometimes less. I ai for 50 a day but it's not easy. I try not to have more than 20 grams of carbs per meal. I can control my sugars better that way. I only drink juice when I am low.
We are all different so you have to play around and find out what works for you. The first couple of years after my MC diagnosis, it was pure hell. I went on LDN and it changed everything. I found out that if I keep my food simple and clean it works for me.
I do recommend that you read Tex's book. I still refer to it now and then. (I do have a book but it's fiction, nothing to do with MC)
I live in Atlanta.
Best to you,
Monique
Hi Tex --- hugs to you my friend.
You're asking what NOT to eat. I don't eat gluten, legumes, vegetables with too much fiber (like raw cabbage) unless they are very well cooked. No corn. No fried foods, chocolate, caffeine, sugar, processed foods, no nuts, no alcohol. I don't touch peanut butter. I do very well on protein (mostly fish or sardines and chicken) and no meat since I find it difficult to digest. I do eat fruits without skins ---- peeled apples but no grapes. Berries are great. Low in sugar and hardly no fiber. When I have greens like kale I cook them well.
I don't do the SCD diet since it is for Crohns. It is a difficult diet and hard to maintain. It's not necessary for us to be on the SCD diet.
I tested with Dr Fine and I found out that I can have dairy. I don't drink milk but I do eat cheese.
I am on a pump and count my carbs. I also have a CGM system called Dexcom. I am careful with what I eat since I don't like high sugar spikes that I can't bring down easily. I have about 75mg-100mg of carbs a day, sometimes less. I ai for 50 a day but it's not easy. I try not to have more than 20 grams of carbs per meal. I can control my sugars better that way. I only drink juice when I am low.
We are all different so you have to play around and find out what works for you. The first couple of years after my MC diagnosis, it was pure hell. I went on LDN and it changed everything. I found out that if I keep my food simple and clean it works for me.
I do recommend that you read Tex's book. I still refer to it now and then. (I do have a book but it's fiction, nothing to do with MC)
I live in Atlanta.
Best to you,
Monique
Hi Tex --- hugs to you my friend.
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
Hi Monique,
Do you realize that you're an expert with special skills? As well as you have sorted out the details of living with diabetes and an IBD, you should give some thought to writing a book on the topic. I'm guessing there are precious few such experts in the world with as much experience as you, who are capable of writing a worthwhile book about it.
Hugs back atcha,
Tex
Do you realize that you're an expert with special skills? As well as you have sorted out the details of living with diabetes and an IBD, you should give some thought to writing a book on the topic. I'm guessing there are precious few such experts in the world with as much experience as you, who are capable of writing a worthwhile book about it.
Hugs back atcha,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.