Hi Tex,
Thanks for the encouragement. After my meds arrived this morning I decided I wouldn`t tempt fate by trying to go down to one pill a day. I hope you are right about the new formulation.
How are you doing in the PD department. Very well is my prayer. Love, Carol
Tex
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Carol,
I hesitated to say what I did, because if the drug is causing those symptoms, then obviously, the sooner you can reduce the dosage rate, the better. However, as quickly as you relapsed, the last time you lowered the dose, I truly believe that it will take at least a couple more months, before 1 pill a day will maintain remission. That's just a guess, of course, because we're all different, and individual response to this drug is virtually impossible to predict. It's also impossible to predict whether or not the "new" formulation that you now have available, will have fewer, or different side effects, but we can certainly hope that it might cause fewer problems.
The Azilect, (rasagiline), that I'm taking to prevent the progress of Parkinson's disease, not only seems to be preventing further progression, but it is significantly rolling back my symptoms. Every month, my balance is better, and my coordination and articulation seem to be much improved. I'm not sure that it helps with my memory, (I mostly have trouble remembering names - not only the names of people, but the names of objects, processes, concepts, etc.), but so far the problem is not bad enough to be concerned about. As we all know, aging in general, brings with it declining memory performance, so I may be expecting too much, from that aspect. As far as that goes, I never was very good at remembering people's names, anyway, at any age.
It hurts to write a check to pay for the durn stuff, but I'm thankful that it's available, and I'm thankful that I'm still able to write a check - some people with Parkinson's lose their ability to write legibly, so that they can't even write a check. Thanks for asking.
Please let us know if you can tell any differences after you start taking the new formulation.
Love,
Tex
I hesitated to say what I did, because if the drug is causing those symptoms, then obviously, the sooner you can reduce the dosage rate, the better. However, as quickly as you relapsed, the last time you lowered the dose, I truly believe that it will take at least a couple more months, before 1 pill a day will maintain remission. That's just a guess, of course, because we're all different, and individual response to this drug is virtually impossible to predict. It's also impossible to predict whether or not the "new" formulation that you now have available, will have fewer, or different side effects, but we can certainly hope that it might cause fewer problems.
The Azilect, (rasagiline), that I'm taking to prevent the progress of Parkinson's disease, not only seems to be preventing further progression, but it is significantly rolling back my symptoms. Every month, my balance is better, and my coordination and articulation seem to be much improved. I'm not sure that it helps with my memory, (I mostly have trouble remembering names - not only the names of people, but the names of objects, processes, concepts, etc.), but so far the problem is not bad enough to be concerned about. As we all know, aging in general, brings with it declining memory performance, so I may be expecting too much, from that aspect. As far as that goes, I never was very good at remembering people's names, anyway, at any age.
It hurts to write a check to pay for the durn stuff, but I'm thankful that it's available, and I'm thankful that I'm still able to write a check - some people with Parkinson's lose their ability to write legibly, so that they can't even write a check. Thanks for asking.
Please let us know if you can tell any differences after you start taking the new formulation.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- Carol Arnett
- Gentoo Penguin
- Posts: 423
- Joined: Fri Mar 17, 2006 12:07 pm
Tex,
I was taking the generic in the hospital and I didn`t have these symptoms/side effects. Lori checked with the hospital Pharmisist before ordering these new ones. Maybe the symptoms will go away after a few days once I start taking them. The pharmisist told her that generics were just available to hospitals and not the general public until 2011. Drugs companies are almost worse than docs who don`t know what they are talking about.
I am very happy to hear that you haven`t had any progression with the PD. As far as memory goes, I am right there with you. I walk into a room and have to turn around a couple of times before I remember what I wanted.
Love, Carol
I was taking the generic in the hospital and I didn`t have these symptoms/side effects. Lori checked with the hospital Pharmisist before ordering these new ones. Maybe the symptoms will go away after a few days once I start taking them. The pharmisist told her that generics were just available to hospitals and not the general public until 2011. Drugs companies are almost worse than docs who don`t know what they are talking about.
I am very happy to hear that you haven`t had any progression with the PD. As far as memory goes, I am right there with you. I walk into a room and have to turn around a couple of times before I remember what I wanted.
Love, Carol
Carol Arnett